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Ed Brabant
Ed Brabant CSN Member Posts: 61
in Kidney Cancer #1

Last scan showed that the Votrient I have been taking for almost 5 years has stopped working. Doctor suggested a clinical trial of IPILIMAUB and NIVOLUMAB at Dana Farber. Going to the doctor next Thursday to start the process of entering the clinical trial. How do clinical trials work? I know that I will be reciving a combination of the 2 drugs. But what else happens? 

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Comments

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    edited February 2017 #2
    Hey there Ed~ I don't know

    Hey there Ed~ I don't know about clinical trials but others here will answer. Sorry that Votrient stopped working.

    So I am sending a a big dose of HOPE and HEALING!

    Hugs, Jan

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  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    #3
    Tests

    For every test they need two blind groups (in other words one group that is on the test drug, and one group on a provenly effective drug). You will not know which you are on until, a)the test is over, b) your results are not great. Nivo, I have taken with great effect for a year. Its well worth doing. Personally you may be getting a drug (or drug combo) that is game changing from which you and many others may derive great benefits. 

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  • Ed Brabant
    Ed Brabant CSN Member Posts: 61
    #4
    Tests

    I talked with Dana Farber yestrday afternoon. I asked if I was going to get the drug combination or something else. They said that it would be the 2 drugs together. Next Thursday I see my doctor at MGH. Dana Farber said that I am a good canidadte for this clinicall trial. Going to get another set of scans, cardiogram, blood tests and then start. At first I will have to be seen every week. Infusion every other week. They need to keep an eye on a few things when I first start.

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  • foroughsh
    foroughsh CSN Member Posts: 780 Member
    edited February 2017 #5
    I don't have information

    I don't have information about drugs but just wanted you to know that i'm pryaing for you, wishing you good result with next treatment.

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  • hardo718
    hardo718 CSN Member Posts: 853 Member
    #6
    Best wishes Ed

    I'll keep you in my prayers.

    Donna~

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  • todd121
    todd121 CSN Member Posts: 1,448 Member
    edited February 2017 #7
    Drug Trial

    Hope the new drugs work better than even the old one. I think there's a good chance.

    Todd

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  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    edited February 2017 #8
    Sending good thoughts and

    Sending good thoughts and prayers your way!

    Hugs

    Jojo

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  • Ed Brabant
    Ed Brabant CSN Member Posts: 61
    #9
    Trial

    March 8th CT guided biaopsy March 23 sign the clinical trial papers the on to the trial.Prett excited seeing some of the results people have had. I also understand that nothing may happen. But with me the glass is always half full.

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  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #10
    Ed,

    I'm all for joining a clinical trial. I was in a phase 1 when nivo was called, "MDX-1106".

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