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MD Anderson
Is doing an all day seminar on Kidney Cancer. Below is from the email- this is LIVE - they're on break for about 15 more minutes. For the first time, we're streaming live, right now, from MD Anderson Cancer Center in Houston, Texas. As part of a beta test with YouTube, you'll be able to watch the entire series of…
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concerning weight loss
I am going to have the lap nephrectomy in two weeks. After reading lots of comments on this message board, I start concerning the possible weight loss after the surgery. I am skinny (125lb), and not sure I can afford losing another 10-20lb. Any advice?
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3 months post surgery!
I cant believe it has been three months since surgery! I am totally back to normal now. Can eat, drink, work out, and function fine. This day seemed so far away after surgery. I still have pain in my kidney, dull pain that rotates from front to back and aches. Guess its something I will have to live with. I do think that…
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For information only - not alarm!
FDA Puts 16 Drugs on Watch List http://www.medscape.com/viewarticle/762205 I noticed two of the 16 with some interest but please note the reassurances I'm quoting below. One of the items is gadolinium contrast dyes and a fuller story is given here http://www.medscape.com/viewarticle/713593 The other is Nexavar (sorafenib)…
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ASPIRIN - !,543 B.C. to 21st April 2012 announcement
Mechanism of aspirin benefit uncovered 21 Apr 2012 Researchers in Canada, Scotland and Australia have discovered that salicylate, the active ingredient in aspirin, directly increases the activity of the protein AMPK (AMP-activated protein kinase), a key player in regulating cell growth and metabolism. AMPK which is…
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Getting ready for surgery
I have 19 days until my surgery..So I am tying up all the loose ends right now..Pre op appt's and meeting up with my attorney to make sure all my affairs are in order before my surgery. I am a bit tired with it all and am looking forward to getting the surgery over with at this point. I have made peace with it but am…
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Summary of current treatment options
This is a good, succinct conspectus of current and future treatment choices http://www.cancernetwork.com/rcc/content/article/10165/2044903 The paper dates from last month and is entitled "Systemic Therapy in Renal Cell Carcinoma: Advancing Paradigms".
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:)
Good Morning all. and thank you.
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Dumb "research" ?
The fact that an institution is world-renowned as a treatment centre is no guarantee that research emanating from that source is bound to be irreproachable. If you have a brain the same size as a gnat's or venture into areas you know little about and don't try to find out about that terrain, or, more frequently, you have…
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New card-carrying member
I just wanted to introduce myself. I'm a 43-year-old postop day four now out from a 15% partial nephrectomy for a 12-mm, T1a, Fuhrman grade 2 clear cell renal cell carcinoma. Like many of you, I ended up here completely by blind luck. Less than a month ago, I had some weird abdominal pain going on, classic for gallbladder…
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A little heartbroken
I guess things just seem to be getting worse for me.Already lost my right kidney now my left one has a tumor that is about a 1.4 cm.Will find out today how the surgeon is going to remove it .I guess things could be worse but it is very hard for me to be thankful right now, I will keep everyone posted when I can.Have A Nice…
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Mother diagnosed with Stage IV RCC
My mother (who just turned 70) was hospitalized for 3 days last week to do tests after her MD found alarming results on a chest x-ray and CT scan. Then in the hospital they did a contrast CT scan of the kidney and lower chest and then an MRI of her spine and a bone scan, as well as multiple blood tests. She had small…
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The Thing from outer space v the biological programming error
Some of the books I've been reading lately have the same underlying theme - a great favourite: clear thinking. The excellent "Bad Science" by Ben Goldacre contains material flagged by the eponymous title but the book is really about correct thinking. Charles Merrett's "The Origin of Anxieties" could have taken its title…
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not Von Hippel Lindau... now what?
I had genetic testing done to see if I had the Von Hippel Lindau gene, my urologist swore that is why I got kidney cancer at 28. Well guess what, I dont have the gene. So what the Eff does that mean? Why did I get kidney cancer at 28? Did I do something, eat something, breath something? If just doesn't make sense. I wanted…
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Big decision
Hello Everyone, I hope someone can advise me please. I have had a 2.5cm tumor under surveillance for the past 18 months.I had my last CT scan last week which shows that it has not grown. As I see my specialist on Monday, should I tell him to remove my kidney or just keep up with the watching and waiting. It worries me that…
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So Happy To Have Everyone Here !!
Hello Friends!! I have been gone celebrating my 50th wedding anniversary, and as soon as I came home, turned on the computer to see how everyone is doing. So happy everyone is keeping up the fight!! Life is good!
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SARCOMATOID CHROMOPHOBE RCC
I'm looking to compare notes with anyone who has Chromophobe RCC that has become sarcomatoid. I don't want to be knocked down in the rush, so please don't all flock here at once :) In the event that there's anyone out there who has heavily necrotic, metastatic, sarcomatoid chromophobe RCC I'd be happy to make contact…
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Fishknees good luck thread....
Friday the 13th of April will be a good luck day for Fishknees as she will get rid of her unwanted parasite once and for all. She will no doubt do well because she knows what to do. She is smart...she found this site, she asked questions, she was upfront with her doctor, and after she will follow their instructions for the…
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Who's next
I hate to ask who is next for their surgery. I don't have anyone on my calendar. I ask this because I think it is me. I am next Friday the 13th. My new lucky day. I hope there is no one else before me. That is a good sign. Please let me know if you are having surgery soon so I can say a prayer for you. Fishie
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The beauty of health insurance Membership card
Yes I am one of the fortunate ones to have health insurance,I believe my lifetime benefits are about 1 million dollars which at this time leaves me with about 900,000 left give or tae a few dollars.Now to my point,I have had to spend the whole damm week worrying whether or not my cancer has returned or not because on 4/09…
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One Year Cancer Free
One year cancer free today. It's has been one year since my radical nephrectomy and I'm happy to report that I'm cancer free. I remember sitting in my kitchen by myself signing on to this site while my family slept in their rooms alittle over a year ago. I never felt so alone. I posted a short message not really expecting…
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What to expect, determined T2A, one week after surgery
Well we are one week after surgery for my husband, full removal left kidney and mass. We just received the pathological results yesterday. His mass was malignant, and it was 7 x 6 x 5.5 cm. No spreading to lymph node, urinary normal, veins normal, confined to his kidney. He said it is "T2A, stage 2". His creatine (sp?) is…
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shrank by 50%
GOOD NEWS! GOOD NEWS!! I got the results yesterday from my 2nd scan. The tumors have shrunk by 50%! Now to keep fighting to get rid of the other 50%. He does want to reduce my dose to 37.5 a day. The side effects were pretty rough this time around. He is also hoping at some point in the future to do interlukin II. I pray…
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Leg Swelling after kidney removal?
Has anyone had any leg swelling after their surgery? Mom had her surgery A week ago on Thursday and her legs have been swollen for the past 4 days. She is having a bit of trouble breathing as well when she walks. None of this before the surgery... Thank you!
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Disappointing HDIL2 News; MDX 1106 with Sutent/Votrient Clinical Trial may be next step
John (and I) met with Dr. Hammers today after John's scan to see if the HDIL2 had been successful. He said the scan reflected a mixed response, with most of his lung mets showing some growth, but one met showing a slight reduction. So--bottom line--no more HDIL2. As way of history, John had received 14 doses in the first…
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Study
The hospital just called and asked if I want to participate in a study. They did not go into detail. They just said that they would talk to me at my blood typing on Thursday. The guy did say that my doctor said I was eligible. I don't know what it involves but I guess I will find out Thurs. I tried to find out what it was…
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Universal Cancer Vaccine
I tried to post the link but I could not. It is in The Telegraph, Thursday April 12, 2012. "Universal" Cancer Vaccine Sounds very interesting. If someone can post the link I would appreciate it. New things everyday it seems.
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looking on the grim side but keepin hope alive
sorry havent been on in a bit got results not lookin real good found three at esophagus,one at top of lung one at diaphram, 2 or 3 goin down back and one where my kidney was just removed can you believe it speechless to say but life goes on went to the radiation dr they gonna start radiation on my arm did i mention its in…
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Tuesday is fast approaching .... I am ready...I think
Tuesday at noon is my lap robotic partial neph. Thanks for all the tips for a comfortable (as possible) recovery. I assume when you are put under there is no recollection. Has anybody had their procedure video taped? I am going to the University hospital and of course signed the waiver that they may use this as an…
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hubby's pathology report received today
Doc says it was all contained in the kidney but I have a question. Do you mind if I post the report and get some feedback? Is there a way to attache it here??? probably not. Furhman nuclear grade 2 Clear cell renal cell carcinoma TNM descriptors: N/A Primary Tumor: pT1b Regional lymph nodes: none resected Why were no lymph…