Help - treatment advice/meds/success stories, we need hope.
They found a small met 2cm in his lung and he had both the kidney (7cm tumor) and lung met removed in one surgery.
He recovered well. The oncologist said to wait before starting treatment as the most successful chemotherapy is Sutent and in some patients it only works for a number of years, so best to wait until you really need it.
Around March they found a small met in one lymph node and then he starter having back pain. They foun two bulging discs and a met on the vertebrae. The met cracked the vertebrae but luckily didn't spread to the surrounding tissue and cells.
Oncologist decided now it's time for the Sutent and radiation.
He had 5 doses of radiation over 5 days and then started the Sutent, 50mg per day for 4 weeks and then 2 weeks off.
All was ok until week 3 of the Sutent and he started getting very bad side effects, bad reflux, sore throat, tongue, nausea etc. He was so sick he ended up back in hospital as a result of the drug. They took him off it for two weeks and lowered the dose to 37.5mg.
He's in his third week and symptoms are significantly less and he his coping much better.
However, his back is in agony. He's almost in tears daily, he feels it's barely any better than before the radiation.
I'm beside myself in fear. I cry everyday. I try to keep it together to be as supportive as possible but I constantly fear the worse...
Should his back be better after the 5 sessions of radiation? Its been 5 weeks - should he still be in so much pain?
I'm so worried maybe Its not working? But he does have a cracked vertebrae as a result and he does have two bulgin discs...
How Long does it normally take for the pain to subside?
Is there anything he can take to help? He's on pain meds etc...
Can someone offer some advice or some hope???
He's my best friend and I'm only 26. I'm petrified.
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