The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Great report from scans

ivfour
ivfour CSN Member Posts: 49
in Kidney Cancer #1
I had my appointment this AM and got the best news about my scans. Abdominal, chest, pelvic, and bone scans were all clear with no evidence of disease. I have been on Votrient 400mg daily for the last year and it has kept me in remission. I am off of it for 2 weeks due to slightly elevated liver enzymes and still just having minimal GI side effects. He thinks I will stay on it for 5 years depending on side effects and then see what research shows to do then. I am so very blessed to be in remission. God is good and to think I am only on the votrient because insurance wouldn't pay for the Affinitor.
Like Care

Comments

  • Gordon Charles
    Gordon Charles CSN Member Posts: 91
    #2
    Very Nice....
    Congratulations !!! You are a great example of my universal reply for anyone asking about fighting cancer: I live "til I die and I ain't dead yet!
    Like Care
  • Texas_wedge
    Texas_wedge CSN Member Posts: 2,798
    #3
    Gordon Charles said:

    Very Nice....
    Congratulations !!! You are a great example of my universal reply for anyone asking about fighting cancer: I live "til I die and I ain't dead yet!

    Clear scans
    Great news and another example of a life saved by a combination, but this time Harley + Votrient. You've been doubly lucky - the bike accident revealing the cancer and being one of those whom Votrient suits so well. It's a drug that does seem very good indeed for some folks and maybe for a lot more in the future. Here's hoping that's you're cured and you'll be riding along with Fox and the other biker freaks here for decades to come.

    [Have a great week Fox but do use plenty of sunscreen!!!}
    Like Care
  • alice124
    alice124 CSN Member Posts: 896 Member
    #4
    Wonderful news!
    Terrific! So happy for you. Needless to say I'm hungry for MDX1106 and Votrient news (since my husband is on MDX/Votrient trial), and your news is even better than I would have expected combined with a wonderful prognosis from your Dr.

    Congratulations.
    Like Care
  • matchframe
    matchframe CSN Member Posts: 58
    #5
    Congrats!!!

    Congrats!!!
    Like Care

Discussion Boards