10 weeks out of RCC and a radical

Islandart
Islandart Member Posts: 4
in Kidney Cancer #1

So they found it incidentally, had the operation October 23rd in Col. Pres in NYC. I have pain in the lower abdomen feels like my back not sure if its a sympathy pain on the left and the right one working harder. Major surgery is no fun and you're never the same. Started excercising on the tread, bike some light wieghts. Incision stills hurts don't know how long that's supposed be hurting. Try to stay off the Tylenol and no pain meds trying not too stress out the last kidney I have. Will be going for follow ups of course but I wish I knew more what to expect. What if any the recurrence odds are. What not to do or to do. Drinking alot of water not drinking as much alcohol seemed to get drunk fast New Year's Eve like never before. If there's anybody out there that can enlighten me in anyway would appreciate the input. This has been very emotinally trying. Blessed to have stage 1no follow up treatment at least not yet. 

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #2
    Welcome to the club

    Islandart,

    The initiation is not fun as you can see. Depending on your age and general heath the the rcovery can at times be diffficult. Sometines you are going to have these aches and pains for 6 monthe to a year although you should be able to do most normal activities after 10 weeks.

     

    Do seek medical attention if you feel you need to. Don't pudh yourself on exercise until you are ready.

    You have axked about recurrance rates and that has to do with the size of your tumor and other pathology which you have not shared. We do not want to give you an inappropriate answer out of the blue. There are a lot of answers on this board, If in fact you have Stage 1 srick to those answers  of other persons sharing your journey.

    Icemantoo

  • foxhd
    foxhd Member Posts: 3,181 Member
    #3
    icemantoo said:

    Welcome to the club

    Islandart,

    The initiation is not fun as you can see. Depending on your age and general heath the the rcovery can at times be diffficult. Sometines you are going to have these aches and pains for 6 monthe to a year although you should be able to do most normal activities after 10 weeks.

     

    Do seek medical attention if you feel you need to. Don't pudh yourself on exercise until you are ready.

    You have axked about recurrance rates and that has to do with the size of your tumor and other pathology which you have not shared. We do not want to give you an inappropriate answer out of the blue. There are a lot of answers on this board, If in fact you have Stage 1 srick to those answers  of other persons sharing your journey.

    Icemantoo

    yes, it is trying

    Islandart, you have found out that even the toughest people get their clocks cleaned by having a nephrectomy. There is no substitute for time.  You'll have aches and pains, fatigue and energy loss for a while. Gary has reiterated the post op plan many times. Drink lots of water and get out and walk. A more normal life will eventually raise it's head. Usually in a couple few months with a year being necessary for many. Yep, tough initiation. But completely normal.

  • Islandart
    Islandart Member Posts: 4
    #4
    icemantoo said:

    Welcome to the club

    Islandart,

    The initiation is not fun as you can see. Depending on your age and general heath the the rcovery can at times be diffficult. Sometines you are going to have these aches and pains for 6 monthe to a year although you should be able to do most normal activities after 10 weeks.

     

    Do seek medical attention if you feel you need to. Don't pudh yourself on exercise until you are ready.

    You have axked about recurrance rates and that has to do with the size of your tumor and other pathology which you have not shared. We do not want to give you an inappropriate answer out of the blue. There are a lot of answers on this board, If in fact you have Stage 1 srick to those answers  of other persons sharing your journey.

    Icemantoo

    Thanks for your reply

    Thank you for your response. Interesting how your response is more comforting than those around me, I guess in a way they just don't know they haven't gone through this. Pathology was 3.5 centemeters encapsulated with no follow-up treatment. Following up with a specialist this mont and returning to the surgeon for follow-up in February. I will seek counsel here i'm glad I found the network. Be well.

  • foxhd
    foxhd Member Posts: 3,181 Member
    #5
    Islandart said:

    Thanks for your reply

    Thank you for your response. Interesting how your response is more comforting than those around me, I guess in a way they just don't know they haven't gone through this. Pathology was 3.5 centemeters encapsulated with no follow-up treatment. Following up with a specialist this mont and returning to the surgeon for follow-up in February. I will seek counsel here i'm glad I found the network. Be well.

    Good news/bad news

    Good news, at 3.5cm and encapsulated is quite the fortunate RCC diagnosis. Live long and prosper MR. Spock. Good for you. Most of us would trade positions with you in a heart beat. Bad news would be to follow MD's advice about no follow up. Unless one wants to only live for the moment and ignore the risks, you will want to get follow up scans. 6 months, maybe yearly. But get them.

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #6
    Islandart said:

    Thanks for your reply

    Thank you for your response. Interesting how your response is more comforting than those around me, I guess in a way they just don't know they haven't gone through this. Pathology was 3.5 centemeters encapsulated with no follow-up treatment. Following up with a specialist this mont and returning to the surgeon for follow-up in February. I will seek counsel here i'm glad I found the network. Be well.

    3,5 cm

    At 3.5 cm your prognonie is as good as it fets. Generally there is a full recivery frim the surgery alone under 4 cm. Now you can tell people that you had Cancer, not that you have it. You still need periodic follow up in the small chance of recurrance.

     

    Icemantoo

  • Islandart
    Islandart Member Posts: 4
    #7
    icemantoo said:

    3,5 cm

    At 3.5 cm your prognonie is as good as it fets. Generally there is a full recivery frim the surgery alone under 4 cm. Now you can tell people that you had Cancer, not that you have it. You still need periodic follow up in the small chance of recurrance.

     

    Icemantoo

    Thanks Guys

    Appreciate the kind words and yes I do feel very fortunate. I will do diligence and follow-up with periodic scans. Seeing docs this month and next. Wish you both well.

  • Copado
    Copado Member Posts: 4
    #8
    Islandart said:

    Thanks Guys

    Appreciate the kind words and yes I do feel very fortunate. I will do diligence and follow-up with periodic scans. Seeing docs this month and next. Wish you both well.

    Follow Up

    Like everyone on this board has said this really can take you for a loop. I felt like I had been through the grinder. I read an extract from a urological journal where it mentioned that surviellance should focus on the chest and lung. That is what my uro-oncologist also happened to order. Surveillance @ 6 months with a chest x-ray cbc and kidney function testing.

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