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Kidney Cancer Association Annual Patient Meeting Update and link for Youtube for those who could not
Have been watching this and its actually really interesting.. esp for those of you who have been newly diagnosed or have a family member who has been.. They are on break right now.. www.kidneycancer.org has a link to it..it's live streaming so not sure if you will be able to see it later on YouTube its worth a look…
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Why didn't they tell me?
I guess I’m just scared and looking for some advice. A little background: 3 yrs ago my urologist ( I have intercystial cystitis) found a small 2~3 cm mass in the upper pole of my left kidney. At first the CT indicated that it was indeterminate so he had me go in for another CT 3 months later. At that time he said he was…
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first scan results good
Well Nick had his first post-Sutent scan 2 weeks ago and we got the results on Thursday. The bone lesions showed no signs of growth and were as the consultant said 'stable'. He has lesions on his right pelvis and left collarbone. Don't know how large they are. The consultant told us that these would not shrink ever, but…
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THE ALLTRIALS PETITION
Just returned from an appointment with my oncologist and found this email from Ben Goldacre and Tracey Brown waiting for me. I hope folks here will take this as seriously as I, for one, feel it warrants. Dear Friend You, and 40,000 other people around the world, have signed the AllTrials petition. We are on the threshold…
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ccRcc diagnosed 08/03/2012
Hello. I have been reading the posts here for a few weeks as I try to get a handle on this whole Renal Cell Carcinoma thing. I was diagnosed August 3rd with a large mass on my left Kidney 10cm, and ever since then it's been a confusing ride of tests, guesses, and assumptions. I have been trying to learn everything I can…
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National Patient and Survivor Conference, April 6 Live Webcast
I just received this in an email from the KCA. --David From the Kidney Cancer Association Events Calendar: Join us for a live webcast from the National Patient and Survivor Conference, April 6, from M. D. Anderson Cancer Center, in Houston, Texas. Here's a link to more info:…
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Just out of Hospital from having partial Nephrectomy done
I feel ok, feels great to know that tumor has been removed from me, Tired, but forcing myself to walk around,
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nutrition supplements
Hi all, Can anyone recommend me some nutrition supplements for kidney cancer patients? I am flying back to my country and would like to buy some for my father before I leave. Thanks a lot!!!!!!!!!!! Currently I've bought the following: Ensure Nutrition Drink Powder, Vanilla Flavor, 14 oz Can (397 g) Amazing Grass Organic…
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Just Diagnosed
I was just diagnosed with a mass on my left kidney and was told there is an 80% chance it is cancer. Have been referred to a specialist on April 2nd for consultation. I am a very large woman and my urologist said this would make things harder to handle. Anyone out there in the same situation. I am terrified.
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CT with Contrast. Info Needed.
My urologist had told me that the time would come when I would need a CT scan with contrast but I wasn’t expecting that time for another six months. My GP is suggesting a CT scan with contrast for an issue not necessarily related to my kidney cancer. He has advised me of the risks to my remaining kidney, risks I was…
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Just Starting the Fight - updated
I want to thank everyone for their support and update you on what is going on and some strange additions: -Brain scan and Bone scan taken on April 1st both came out normal Here is the summary of opinion #1 (my main doc) -7cm mass on left kidney, mass on side (about a small golf ball), related lung nodule -surgery to remove…
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Trial over and feeling great
Hi All, So I just finished up the Everolimus trial, took my last pills on 3/20. I had a scan on Monday and oncologist appointment today. NED!! Feeling really good right now. I am not sure if I was getting the placebo or not but I definitely feel like I have more energy now. The Doc told me he has patients on Affinitor that…
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Chuck's a go for the week of April 22
The Doctors office just called... Chuck is starting the trial(IPI and Anti PD 1) the week of April 22.. we go for an EKG,ECHO, Scans and Labs next week... the schedular is going to call with the exact day...for the testing.. waiting stinks ... I am the most impatient person in the world...and I have to say the Scans part…
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Just Starting The Fight
I am a 35 year old male who is just starting the fight against kidney cancer. Back in January 2013, I noticed a small little bump, almost like a bug bite, on the side of my stomach just under the skin. I did not like it and wanted it removed and went to 3 doctors...all of them said it was a harmless lipoma and I should…
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Foreskin rash - side effect of sutent or BP meds?
Nick has just completed his second month on Sutent. The Vit B compound has really helped the mouth soreness and ulcers and even helped the taste a bit. Although we are trying new things in the next cycle for that. He has had his first post drug scan and we get the news about that on Thursday so fingers crossed. However in…
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New here. Can't move on and should I see oncologist?
Hello! I'm 44 years old. I was dx. with kidney cancer in December, Christmas day. I went to hospital for phantom pain in my stomach/inestine. I thought I had food poisoning or something. CT scan showed nothing wrong, but a mass on right kidney. Jan. 21 I had partial nephrectomy. Tumor was 2.7 x 2.7 x 4. Stage 1. Pathology…
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Votrient. How long?
How long have you been on Votrient? I started in September 2012. I am told it stops working after awhile.
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Fatigue Post-Neprectomy
It's been on my mind a great deal. Last year before my tumor was found, I was suffering from fatigue and I'd say even some depression for quite a few months. After the tumor was found, I was wondering if the tumor wasn't the culprit. I'd just been thinking it was the normal way to feel at 50. Since I've had the tumor…
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Fuzzy Head
Does anyone suffer with a fuzzy head every so often?? Its like a lightheadedness but bot if that makes sense? Eims x
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New & hopeful
Hi, I'm new here and on Feb 10, 2013 I found out i have a 20cm tumor on my right kidney. On Feb 12, 2013 I found out it was stage 3 cancer. I'm scheduled to have an open radical nephrectomy on Monday March. 11,2013. The tumor is attached to my Inferior Vena Cava so they will be taking part of my artery, along with…
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I need help.
It has been a few months since I posted on this board. TexasWedge was kind enough to send me a message the other day asking how my husband was doing. Between his message and reading Fox's inspiring post, I realized I need help from others experiences. Any feedback is welcome and greatly, greatly appreciated. History: My…
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eGFR Calculation
I came across this online tool to calculate eGFR http://www.medcalc.com/gfr.html
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Thursday Thoughts
If Gary and company can have Friday Funnies, I thought we could have something on another day of the week. This is more of the "warm fuzzy" type of item. Written by my just turned 8 years old granddaughter at the start of the school year last September: Dear Dad I love you your my surap on my pankacs It gos down to my…
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Today is a great NED day!!
Saw my urologist today and went over my 1 yr scans and got the all clear!! He was great answering all my questions and I finally believe that I am cancer free! Best day in a long, long TIME!!
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Swelling after surgery?
Hi there, I am new to this board, but have searched for a network of kidney cancer survivors, and hoping you can help me out. I am now 27 days afer surgery from my removal of part of my kidney to cancer, but am SO SWOLLEN and feel so TIGHT right now on my side....I am wondering if this is normal for everyone that has had…
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Sad Weekend for our family
March 23rd would have been my Dad's 73rd birthday. He was diagnosed with stage 3 Pancreatic Cancer on Feb 19th, 2012. I spent last March 23rd with him in the Emergency Room. The nurses were great and came in and sang Happy Birthday to him. One of them was from Scotland and when she was done singing she started to tell him…
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Is there a general consensus of RCC growth rate?
I have been told by two doctors that they never answer that question as they are not sure. However, I have seen several different posts whereby some suggestions were given by their doctors. Some of which stated that RCC can grow 1/2 cm a year or sometimes even 1 mm a year. I guess it depends on what grade it is. Anyone…
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Accepted... now scared
Chuck was accepted into the trial we found out at his Doctors appointment yesterday... they are rolling patients in so he will be 7 of 110 in the USA and Canada.. now we just have to wait.. for the phone call...I am not going to lie.. I am scared... Phase1 means NEW really new...Both Drugs have already been on trial and…
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Anyone taking the over the counter supplement - Acetylcysteine "NAC" for Kidneys ?
Previously a few peeps on here have written that they take Acetylcysteine "NAC" over the counter supplement <> more or less 600mg/ Day Is this really the same as taking the prescription dosage & same drug?I found it today in the health food store - I'm thinking about taking it since I can't get the prescription version. I…
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Creatinine 1.6 Bun 22 one yr after left kidney and mass removal
Can't believe it has been a year since my husband found out he had a 7.5cm mass, and subsequently a few weeks later had the mass and his left kidney removed, which they determined was cancerous, but thankfully, no spreading to other organs. We just went for his 1 year CT Scan w/contrast. After drinking the wonderful fluid,…