Question of the Day!!

Eims
Eims Member Posts: 423

guys, ok im not freaking out but i was wondering how long it may be til you felt symptoms of something else or could it just be all in the mind?  when i had my initial ct scan and they told me about the kidney he just said the good news is that is is no where else!!  would anything have shown up then if it was there even if it was small?  is this a natural way of thinking?  just throwing it out there for your input....thanks all......

eims x

«1

Comments

  • Djinnie
    Djinnie Member Posts: 945
    Concerns

     

    Hey Eims,

    You are bound to have that sort of concern in the back of your mind. If like me you had a full scan they would have picked up on any other problems at that time. 

    Djinnie x

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    Djinnie said:

    Concerns

     

    Hey Eims,

    You are bound to have that sort of concern in the back of your mind. If like me you had a full scan they would have picked up on any other problems at that time. 

    Djinnie x

     

    Aches and pains

    all take on a new importance. Probably safer than being in denial. Keeps us vigilant.

  • GSRon
    GSRon Member Posts: 1,303 Member
    foxhd said:

    Aches and pains

    all take on a new importance. Probably safer than being in denial. Keeps us vigilant.

    Pre Op Scans

    Hi Eims.!  Proper pre-op scans will find all kinds of potential issues.  In my case  my first scan was not RCC related, but it sure showed several areas of concern for my Surgeon.  He immediately ordered additional scans to identify what he saw.  I have several spine abnormalites, some caused by falling off my bike and some from all the manual work I did in the past.  And yes the blockage in my Renal Vein was indeed RCC.   As my surgeon clearly stated he was NOT opening me up to find any surprizes..  This dilligence saved me a second surgery, and for that I am grateful.!  So, as long as your scan(s) got a proper look see, then it all should be just fine, for now anyway..

    Cheers..!!

    Ron :)

  • MDCinSC
    MDCinSC Member Posts: 574
    Eims, thanks!

    I've wanted to ask that a hundred times! 

    It has been the elephant in the room for a few weeks now.

    I appreciate all the wisdom.

    Michael

  • Eims
    Eims Member Posts: 423
    MDCinSC said:

    Eims, thanks!

    I've wanted to ask that a hundred times! 

    It has been the elephant in the room for a few weeks now.

    I appreciate all the wisdom.

    Michael

    thanks everyone.......ive

    thanks everyone.......ive been thinking all sorts and i think i am stressing even though i think im not!!!  i have my big scan in august so i guess i just have to wait til then.....

    eims x

  • Suekub
    Suekub Member Posts: 137
    Eims said:

    thanks everyone.......ive

    thanks everyone.......ive been thinking all sorts and i think i am stressing even though i think im not!!!  i have my big scan in august so i guess i just have to wait til then.....

    eims x

    It is horrible not knowing

    It is horrible not knowing what is happening inside your body, every little ache or pain sets in motion a whole lot of unwelcome feelings. Best of luck for your scan in August.

  • Limelife50
    Limelife50 Member Posts: 476
    Eims said:

    thanks everyone.......ive

    thanks everyone.......ive been thinking all sorts and i think i am stressing even though i think im not!!!  i have my big scan in august so i guess i just have to wait til then.....

    eims x

    No one is Special

    Could all of us here on this board have RCC that has spread already but not yet detected on our scan, well the the answer  for a few of us is yes and for a few more of us later on maybe 1 2 3 or 5 or 10 or 20 years later the answer will be yes again,but now is there a chance some of us will grow old and die from another cause,the answre is yes again,i do not mean to be cold hearted but there comes a time when we need to embrace our situations and move forward.Be strong Elms,there are so many people who die months later after being dxed with cancer but for a lot of us here we have been blessed with a chance for many years of quality life.

  • Galrim
    Galrim Member Posts: 307
    Eims

    In the end there is no clear answer to your question. Yes there could have been something undetected. Yes there is a lower treshhold to what the scans can pick up. And we are all, despite our prognosis, prone to having mcc circulating...

    But you have to let it go, otherwise you will drive yourself insane and worry every day in and out. You have to remind yourself that the risk is small, but also come to terms with the fact that it is actually there. Not an easy process, but its vital to do for the sake of your quality of life. Adress that fear and show it youre the boss.

    Be vigilant and have attention to your health and symptoms, but find a balance where it doesnt occupy your mind all the time.

    /G

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    Galrim said:

    Eims

    In the end there is no clear answer to your question. Yes there could have been something undetected. Yes there is a lower treshhold to what the scans can pick up. And we are all, despite our prognosis, prone to having mcc circulating...

    But you have to let it go, otherwise you will drive yourself insane and worry every day in and out. You have to remind yourself that the risk is small, but also come to terms with the fact that it is actually there. Not an easy process, but its vital to do for the sake of your quality of life. Adress that fear and show it youre the boss.

    Be vigilant and have attention to your health and symptoms, but find a balance where it doesnt occupy your mind all the time.

    /G

    Eims's question

    Well said, Mike and Galrim - a message that needs to be voiced here on a regular basis for the benefit of newcomers to this game.

  • garym
    garym Member Posts: 1,647
    Normal...

    What you are feeling is normal, as an oldtimer I can tell you that it will lessen over time, but it does not go completely away, at least not yet anyway.  I had perhaps the best pathology a person could hope for and still after nearly 4 years the worry persists, increasing around scan time.  In time it just becomes a part of who you are and I think it helps keep us vigilent over the years.  I'm planning to be a little scared for the next 30 years or so, more like 50 for you.

  • FiatDriver
    FiatDriver Member Posts: 11
    garym said:

    Normal...

    What you are feeling is normal, as an oldtimer I can tell you that it will lessen over time, but it does not go completely away, at least not yet anyway.  I had perhaps the best pathology a person could hope for and still after nearly 4 years the worry persists, increasing around scan time.  In time it just becomes a part of who you are and I think it helps keep us vigilent over the years.  I'm planning to be a little scared for the next 30 years or so, more like 50 for you.

    Normal

    It seems like such an obvious thing but it is comforting to read that people feel the same way.  I also had great pathology and there is no indication that my tumor spread.  It was removed on June 5th.  I find myself already focusing on my first scan which is scheduled for December.  Heaven help me if I get sick and run a fever or have some other weird symptom.  It would put me in a total panic.  I am suddenly turning into a hypochondriac.

  • MDCinSC
    MDCinSC Member Posts: 574

    Normal

    It seems like such an obvious thing but it is comforting to read that people feel the same way.  I also had great pathology and there is no indication that my tumor spread.  It was removed on June 5th.  I find myself already focusing on my first scan which is scheduled for December.  Heaven help me if I get sick and run a fever or have some other weird symptom.  It would put me in a total panic.  I am suddenly turning into a hypochondriac.

    Part of the dues!

    My x-rays come every 90 days. CT scans annually. My first chest x-ray is September. Thats still far enough away that I am

    using gallows humor to cope with it! Smile 

    I'm sure tensions will rise as September nears.  I know I already lookup every discomfort or pain I feel now, at least in my torse, just being sure.  It hell to wake up one morning and have to face the fact I am neither ten feet tall, NOR bullet proof! Cool

    Michael

  • MDCinSC
    MDCinSC Member Posts: 574

    Normal

    It seems like such an obvious thing but it is comforting to read that people feel the same way.  I also had great pathology and there is no indication that my tumor spread.  It was removed on June 5th.  I find myself already focusing on my first scan which is scheduled for December.  Heaven help me if I get sick and run a fever or have some other weird symptom.  It would put me in a total panic.  I am suddenly turning into a hypochondriac.

    Part of the dues!

    My x-rays come every 90 days. CT scans annually. My first chest x-ray is September. Thats still far enough away that I am

    using gallows humor to cope with it! Smile 

    I'm sure tensions will rise as September nears.  I know I already lookup every discomfort or pain I feel now, at least in my torse, just being sure.  It hell to wake up one morning and have to face the fact I am neither ten feet tall, NOR bullet proof! Cool

    Michael

  • Eims
    Eims Member Posts: 423

    Normal

    It seems like such an obvious thing but it is comforting to read that people feel the same way.  I also had great pathology and there is no indication that my tumor spread.  It was removed on June 5th.  I find myself already focusing on my first scan which is scheduled for December.  Heaven help me if I get sick and run a fever or have some other weird symptom.  It would put me in a total panic.  I am suddenly turning into a hypochondriac.

    thanks guys...its nice to

    thanks guys...its nice to know i am not the only one xxxx

  • dhs1963
    dhs1963 Member Posts: 513
    Eims said:

    thanks guys...its nice to

    thanks guys...its nice to know i am not the only one xxxx

    I call it accute hypochondria

    It gets worse the further away from the last scans you get.

    Last April, if something hurt, I knew it was not cancer.  Today, 9 days away from my next scan, I have pain in the lungs (burning and achining), and some other things.  I do not know if it is hypochondria or something real.  I can easily convince myself that it is bad.  The way I deal with it is to not plan for anything after my scan.  On July 17, when I get the results in, I will either plan for treeatment, or plan the next three months. 

    And I will eat some bacon, because that makes me happy.

  • Phoenix Rising
    Phoenix Rising Member Posts: 170
    Quaking in my boots

    I just had the MRI and CT scans done Thursday and will get the results Wednesday.  Every ache in my neck, chest and back is cancer until I get those results.  I have already missed a meeting at work due to being completely scatter-brained and anxious for the results. 

    Then along came Sangria..... and I forgot what I was worried about.

    I look great, I feel good, so what the hey?  I'll trust and believe that I am okay and no matter what the results say, I will be fine.

  • foxhd
    foxhd Member Posts: 3,181 Member
    dhs1963 said:

    I call it accute hypochondria

    It gets worse the further away from the last scans you get.

    Last April, if something hurt, I knew it was not cancer.  Today, 9 days away from my next scan, I have pain in the lungs (burning and achining), and some other things.  I do not know if it is hypochondria or something real.  I can easily convince myself that it is bad.  The way I deal with it is to not plan for anything after my scan.  On July 17, when I get the results in, I will either plan for treeatment, or plan the next three months. 

    And I will eat some bacon, because that makes me happy.

    Eat some bacon

    That's funny. I do similar things too. I have a brain mri this week and it worries me. Oh well, let the fun continue.

  • GSRon
    GSRon Member Posts: 1,303 Member

    Quaking in my boots

    I just had the MRI and CT scans done Thursday and will get the results Wednesday.  Every ache in my neck, chest and back is cancer until I get those results.  I have already missed a meeting at work due to being completely scatter-brained and anxious for the results. 

    Then along came Sangria..... and I forgot what I was worried about.

    I look great, I feel good, so what the hey?  I'll trust and believe that I am okay and no matter what the results say, I will be fine.

    Another joiner

    I guess I too can join this crowd.. had my MRI and CT scans yesterday.. get the results on Wednesday as well..!  My back has been hurting for a couple of weeks now.. but I happen to have a bad back anyway... so I keep telling myself this is the normal pain... sure hope so..!

    Hope we all get good results..!!

    Ron

  • dhs1963
    dhs1963 Member Posts: 513
    foxhd said:

    Eat some bacon

    That's funny. I do similar things too. I have a brain mri this week and it worries me. Oh well, let the fun continue.

    I made Bacon Cures Cancer T-shirts

    Last winter I made T-shirts that say

        Bacon Cures Cancer*

        *You only die once

    on the front, and "what the #$#%, lets get the sports car" on the back.

    With the requisite ribbon, orange lettering on maroon.

     

    I did it as a fund raiser for Caringbridge (My jounal helps me a lot).

    I have a few extra.  PM me your contact, and size, if you want one (and I have your size).

  • Eims
    Eims Member Posts: 423

    Quaking in my boots

    I just had the MRI and CT scans done Thursday and will get the results Wednesday.  Every ache in my neck, chest and back is cancer until I get those results.  I have already missed a meeting at work due to being completely scatter-brained and anxious for the results. 

    Then along came Sangria..... and I forgot what I was worried about.

    I look great, I feel good, so what the hey?  I'll trust and believe that I am okay and no matter what the results say, I will be fine.

    phoenix rising i had a

    phoenix rising i had a maaaahooooooooosive jug of sangria today in this beautiful sunshine and i must say i feel fabulous xxxxx