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Signs of recurrence
hi! I was diagnosed with scc p16+ on December 2017. My primary was ocult, but still went through radio/chemo on March, and have been disease free ever since. Last week I felt lumps in my neck - first atbthe original side, then on both sides, and finally on the back of the neck, where I have chronic pain - as if something…
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Swallowing Difficulty....
Few weeks after vocal cord surgery on right side SCC...laser surgery. NO RADIATION WHEN DRINKING AT TIMES it's getting in airway and causing a bit of coughing. also...sometimes food is feeling stuck. Like when you swallow a pill wrong And get that hard pain in breastbone. will this get better. thanks folks❤️❤️
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Husband newly diagnosed
My husband was just diagnosed with throat cancer.In the lymph nodes, base of tongue and throat near vocal cords.The Dr said that it is too extensive for surgery so that's off the table. The Dr is going to meet with tumor board to see if they will go for curative or palatative care.Does he have hope? What does all of this…
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Aspiration after 5 yrs
hi all, ive had a set back, after a 5 yr all clear I've started aspirating. Ive had double pneumonia and chest infections and yesterday had a barium swallow test which shows 95% of the swallow goes the correct way but a small droplet remains then runs down into my lungs. It puzzling me why with each swallow this small tear…
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Bless Beth Chapman and all others who have passed
I just wanted to say God Bless to Beth Chapman and her family. I don't know her and didn't follow her (don't watch much TV), but her passing at age 51 just shows how much progress still needs to be made to eliminate this disease for good. There should be better treatments available. Hopefully immune therapy will continue…
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stage IV tonsil cancer
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Good News To Share
I am just back from Doctor follow up one week after surgery - I got good news! They caught it early and I will not need to do chemo or radiation Doctor said but I will be monitored closely with follow up again in one month in between that time have appts. with Speech Pathologist, Nutritionist and another Barium swallow. I…
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Tumor #1 killed, Recurrence tumor killed, can we be done now
12/15/17 learned bf had Stage 3/4 hpv+ tonsil cancer. Tumor went from right ear to top of chest. Had emergency trach and feeding tube. Ended treatment of 40 rads and 3 heavy Cisplatin in March, 2018. July scan clean. They were able to remove trach and feeding tube. Wanted 2nd scan at 3 mos, but they sd 6. January 2019 scan…
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Well Differentiated Squamous Cell Carcinoma Stage 1 Tongue Cancer
Hi I am 57 years old female and new to board. I was diagnosed with Stage 1 Well Differentiated Squamous Cell Carcinoma. They scheduled my surgery for June 3 for a partial glossectomy and neck dissection. How long do the tubes stay in? I will have feeeding tube and neck tube? What is the life expectancy? Will I be 100%…
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Nasopharengeal cancer information please help
My brother at 41 has nasopharengeal cancer at state 4. Can anyone tell me what his prognosis is and if anyone out there has gone through this and/or knows someone who has. Are there survivors out there?
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New to everyone...
Hi to all...I would like to offer my prayers of comfort, of healing and of strength to you all. while most of you are in the mist of treatment, and recovering from major surgeries and on going cancer appointments. I feel humbled by your courage and ability to keep pushing forward. I understand that all cancer is serious…
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Gentle massage and stretching exercises for the face and neck
In a post by Irishgypsie about Facial Swelling, I replied and said I would find a little information I posted about 1 1/2 years ago on another site. It is a gentle massage and stretch that a Physical Therapist taught me for the swelling of my face and neck. A simple neck stretch exercise the Cancer Therapist taught me was…
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CLOSED ROLL CALL 2019 - FIRST UPDATE MARCH 3, 2019 CLOSED
PLEASE READ ROLL CALL 2019 First UPDATE March 3, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL Guidelines: A…
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modified radical neck dissection
Surgery~ check. Much easier than I anticipated. On the road to recovery~ check. This new post is to, first and again, thank everyone who replied to my emails. Second, to let others who may find themselves with the same diagnosis know they can reach out. I would love to share my experience to help bring you peace as others…
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Fishbone stuck like feeling in throat for 4+ months
First of all, thank you for opening this post. I guess you'd have seen many such posts. Okay I've been planning to post this for a few weeks now but lazyness got the best of me. Been a smoker for say 1.6 years ( 1 year only J's and J's and cigarettes another 6 months). So it all started around mid December last year. I had…
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leukoplakia of the vocal cords
I saw a post of some one who has leukoplakia of the vocal cords and was diognosed with cancer without a biopsy. I have had 5 surgeries for leukoplakia under general anesthesia. The last surgery I went to a University Medical Center and had removal of the leukoplakia under local anesthesia. If you are not satisfied with…
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Margins
I have been recently diagnosed with Esthesioneuroblastoma, and had my surgery done 2 weeks back. My frozen section margins were negative. Unfortunately, one of the margins for the dura came back as positive, on the permanent section report. Ideally, I would like a second surgery to get negative margins. I am meeting with…
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Tongue Cancer flap reconstruction help me please
I am 57 year old female have been on this discussion board for a few days just found out from my pre op appt that they are gonig to do a glossectomy, neck dissection and flap reconstruction what does all that mean? Can someone tell me what to expect what is flap reconstruction> please help me understand. I am scared so…
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Lifetime feeding tube
Has anyone else with neck and throat cancer been given a lifetime sentence of having to take their nutrition and hydration solely by a feeding tube and machine or bolus? If so, why? That is if I may ask. Mine was the result of a swallow test I underwent about 2-months ago which showed that I am aspirating every time I…
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Can't eat
Thank you all for replying. I appreciate all your feedback. I'm hoping that someday I will be able to eat again. This is by far the hardest battle to fight. Don't want sympathy just encouragement that things will get better. My radiologist said it can take up to 2 years for the radiation side effects to go away. I almost…
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Help hubby wants to end treatment early
i am at a loss as to what to saY. Hubby wants to ask to end his treatments at 4 weeks, heal and then see if they got it, then if not repeat the 4 weeks. He is only stage 1 with no lymph nodes involved. Just right tonsil. He is stubborn and I feel doesn’t want to really deal with the mounting side effects, not to mention he…
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Attitude is everything
A little background as to where this post is coming from. I was diagnosed a few months after my 34th birthday with Stage IV SCC of the Tongue. It started with issues swallowing which the local ENT diagnosed as a sinus infection. After my primary care doctor took a look he suggested getting a Biopsy. This is how it was…
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HPV related cancer
I am devasted. I am currently 3 years out from Base of Tongue cancer treatment , HPV related. I liv e with the ongoing side effects , teeth problems, Thyroid issues , dry mouth , swallowing difficulty and now eye problems apparently from chemo. I had advanced cancer, it was a helluva battle. So life goes on , return to the…
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First Time diagnosed with Stage 1 SCC of tongue What to expect need help
I am 57 years old female - first time diagnosed with Stage 1 SCC of tongue. I am having a partial glossectomy and they said they are going to reconstruct my tongue with a thigh graft. I will have a feeding tube and neck dissection as well to take out lymph nodes. Can anyone tell me what to expect - do the tubes stay in for…
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Twin Update - Cancer Surgery
Hi I am Sabrina's twin sister and we have been writing to this forum ever since we got diagnosed and she had surgery on Monday. The Doctors initally prepared her and told her they were going to do a glossectomy and neck dissection and flap reconstruction. She was in surgery on Monday and Surgeon came out and said the tumor…
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modified radical neck dissection
Hi all! Just putting out a new thread so it is not lost. A few have already shared their experiences. Thank you again!! Surgery next week and hoping there is someone out there that just had this surgery and wants to share. Or if you are a year out--how the recovery has been? Everyone on this website have given me strength…
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Stage 1 Cancer under left side of tongue front of tongue
Has anyone been diagnosed with tongue cancer under the tongue - will have operation on June 3rd. Is having tongue cancer in the front of your tongue worse than having it in back of the tongue. I never dealt with anything this before and just wondering. Can you all tell me the experiences with tongue cancer and what I…
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Great news
Latest pet scan this week was cancer free. Neck lumps at surgery site are swelling lymph nodes and no threat. Very relieved. Chemo and Radiation ended July 2017. Permanent dry mouth, hearing loss and nerve damage etc. since has made life miserable but cancer free is a major relief. Best to all of you who are living with…
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Upcoming appointments with my medical team!!
HI all H&N members. Just wanted to let you guys know I have a swallowing xray next Wednesday and in mid-June an appt with my ENT. I still can't eat or drink and look forward to seeing if my scar tissue is still my issue. My ENT told me before that it's going to take me more time. Ugh.. Been on feeding tube 1 year. I feel…
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Clear pet scan came back normal before surgery in a few days
I am 57 year old female - I had a pet scan done a couple days before my glossectomy and neck dissection and tongue reconstruction surgery with thigh graft. All that happens on June 3rd - Pet Scan - It came back normal. Is that a good sign I might not need radiation?