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MPNST of the neck

smylin
smylin CSN Member Posts: 2
edited March 2014 in Head and Neck Cancer #1
Hi.. Can anyone give me info on Malignant Peripheral Nerve Sheath Tumor? Have you had treatment? If so, what kind? Any diet recommended or supplements? I was born with Neurofibromatosis Type 1 which can turn malignant and I had three large MPNSTs removed from my neck 2 years ago. I have a recurrance with a growing tumor under my jaw that is inoperable. Any info from anyone would be appreciated. My wonderful husband and six terrific children are so worried about me and I want to live with all my heart to spare them from pain and sorrow. Help me with some info if you can. Thanks and God bless.
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