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Skiffin16 - Update
Friends, Just a quick update…. I had my routine CT and blood work this week. Yesterday I went for the follow-up consultation with my Chemo MD. All of scan images were good, nothing new to be concerned about. All blood work is good, actually finally after almost 15 months my blood is all back in normal ranges. Kidney and…
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MRI and Biopsy Report!!! Help Needed
My father got the results of a TONGUE biopsy today..in the end it is written that "squamous carcinoma " MRI report suggested that.. enhancing soft tissue lesion seen in left half of tongue reaching upto midline.It measures 50 x 22 x 28 mm in AP,transverse and cc axis.the base of toungue is uninvolved Please help me to…
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Basal Cell Adenocarcinoma - Parotid Gland
I survived this rare cancer about a year ago, and I would LOVE to talk to anybody who has/had this or even knows anybody that went through this. I really need some support. I have most of my taste buds back, but my saliva is almost non-existent (I live on Biotene spray, mouthwash, gel, etc.). My biggest problem is still…
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Just radiation
I just got back from San Francisco, after talking with the Radiologiest. Their plan is to treat me with just radiation since I am a Kidney transplant recepiant. Most if not all froms of chemo that we have discussed cause renal rejection. The doc's said that in the last two weeks of seven that I will be having radiation…
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Water Bottles
Hi I know this is going to sound darn trivial to people who are right in the middle of treatment and so on at the moment, but can anyone advise on "THE PERFECT WATER BOTTLE" one that is good for sipping from when in "high company" or during singing so that it is discreet, and one that is suitable for sports, or any…
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Hyperbaric Medicine
Four and a half years after tonsil cancer treatment another phase of the cancer journey has entered my life. While eating a few weeks ago I bit down on a piece of food and felt what I thought was a loose crown.I immediately made a dentist appointment. A quick exam revealed a loose tooth as opposed to a loose crown. The…
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HPV
It seems that so many of you did not smoke and mostly all were HPV positive. I am really trying not to live in fear but I want to do everything I can to minimize my chances of getting head/neck cancer. Since my husband was HPV positive, I am at risk. It is now possible to spread via kissing.(so I've read) I do live a…
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Thyroid
As many of you may know I am not a cancer patient but a caregiver. On another note I do have hypothyroidism and have been on medication (synthroid) for many years. I was always told that I didn't have a problem until I had gone to the ER with severe headaches and they ran tests and asked if I had ever been on thyroid…
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Smoking
Hello everyone, My husband is in his second phase of treatment, the first round we finished in Sept but the PET showed areas in the chest that is now being treated with more chemo. I have read so much on this site about what everyone else has been going through and I want to do everything I can to keep me and my husband…
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Diagnosed last Monday (Squamous Cell -throat cancer)
Hi, I'm very new at this. I had a lymph node removed a week ago and when the results of the biopsy came back the ENT surgeon said it really surprised him and his colleague, as they were sure it was Hodgkin's lymphoma, but it turned out to be Squamous Cell and throat cancer with an unknown primary. I'm to undergo a Pet scan…
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post treatment pain and gunk
My husband is almost 4 wks post treatment... he is still having a lot of pain in his throat and a lot of gunk that comes up with odor. He can't eat or drink anything. He is getting physically stronger.. and the feeding tube is working well ... but I was wondering if you could give me some idea how long this should last…
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Please Welcome Coupe35
Team, I pulled the following post from Mary's So Afraid post. Coupe 35 is new to the community here. I thought Coupe35 might get lost in the shuffle, so am starting a new thread. Here's Coupe35's first post: Looks like I have this rare cancer. Had the PET scan and one node in the neck and the nasal area lit up. I will be…
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Just Starting the Journey
I am 55 years old and live in the UK. I was diagnosed with tonsil cancer after having my left tonsil removed in December. My treatment plan is 30 sessions of radiotherapy to left side of my neck and throat area. I have now had 8 treatments and already I am finding difficulty eating because of the taste. I know this is…
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Chef
Anyone heard from Chef? Hope I just missed his posts. I've been worried about him.
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Tongue and Mouth Ulcers
I am currently going through radiation for tongue cancer (only 11 treatments left!) and I was wondering if anyone had any suggestions on how to stave off mouth ulcers or how to control them. About two weeks ago, at the end of my third week of radiation, I had an outbreak of sores. They covered 2/3 of my tongue, my lips and…
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Mental/Life Outlook
I went this morning to get my haircut and the 2 barbers at the shop of course were asking me how I was doing. They have both known me since I was a kid back in the late 60's. I updated them on my recovery assuming they meant the physical part which when anyone asks is how I respond but they wanted to know if it had changed…
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TransOral Robotic Surgery (TORS)
I am posting my story in the hope it might help somebody. In July 2008, at the age of 51, I was diagnosed with a Stage IV T4 N2b SCC of the base of the tongue. The local cancer board quickly came up with a treatment plan consisting of radiation and chemo therapy, which was explained to me by the local radio-oncologists. I…
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pounding
Hi All, Well I start my chemo and radiation tomorrow. But I am special. I get the bonus package. Start chemo at 10:30 then go to RO at 3:00 for the dry run, 1st radiation treatment special. What a deal huh? Went Thursday for the dry run and the machine was broke. So I get the package deal tomorrow. Keep me in your thoughts…
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Hi everyone!!
I just thought I'd drop in again. I am still hanging in there:) And slowly (I mean slowly), feeling better. My throat is still sore (4 months out of treatment now, and I've got those darn sores on the inside of my mouth. MD prescribed Magic Mouthwash again. Doesn't seem to be helping. I go next month to see the ear,nose…
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Man, when does the "WANT" come back...
Some of you guys are familiar with my story, but just a brief, Squamous Cell Carcinoma, base of tongue, 36 years old, 3 chemo, 35 radiation. My last radiation was Dec. 17th, 2009. My nausea is finally subsiding, my saliva is still pretty much non existent, it comes and goes, nights are worst, Ive trained my self to sleep…
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Testing image posting
My apologies. This is not really related, but was just wondering if we could post an image if we want to emphasize a point. [IMG]http://i47.tinypic.com/kdalb4.jpg[/IMG]
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Eating
For the past three days I have not felt like eating (chemo 5 days ago). I am eating a little, but man my stomach feels bloated. I'm assuming it's the cisplatin because I didn't feel like this the day of the treatment. The bloated feeling has put me off food altogether. I am trying to eat a little frequently. I think…
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Lesser Evil - Pain Meds or Eating?
Need to whine. Which is worse - taking pain meds, or not eating? Took hydrocodone/APAP solution for pain a little while ago. I don't want to take pain meds. At this point, don't need them if I'm just sitting around - only took it just now so I can try to eat. Swallowing food seems to not be worth the effort. But I want to…
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Midwest people...
|Just wondering if anyone is from Minn...IA....Wisc..midwest. Just thinking if anyone has had Treatment at U Of Mn Hospital/Mesonic Cancer. Bob had a wonderful onc/Radiation team who treated him so well. We have a Trama Hosp. 2 miles away, but choose the U..the drive was worth it. I am so glad it's over for Bob going…
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Catch
Hi all Yea it is still me in the pick, only instead of a fish, I am now holding the biggest and best catch of my life. Best to all, Steve
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Help with "chicken neck" post treatment?
Well at least that is what my husband calls it...He is about 4 months post treatment for stage IV tonsil cancer, he went through surgery, 2 months of chemo, 2 months of radiation. He is slowly getting back to "normal", but he is complaining of this "chicken neck"--hanging, flabby skin under his chin. His surgeon said it is…
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New Treatments for Early Stage 0-1
Mike, my husband was diagnosed with Esophageal Cancer May of last year. His cancer was most likely caused by Acid Reflux (Barretts Esophagus). He was scheduled for surgery to remove his esophagus in June at the recommendation of his gastroenterologist. This surgery is the standard in the U.S. for esophageal cancer. His…
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Where to go from here...
Being new to this site, I have had treatment for squamous cancer. I opted out of the surgery thing as the details were frightening! It (surgery) would have been a complete overhaul on my face and neck. Plus the fact that it would not guarantee a prolonged living. It would only maybe give me a year if not longer. I opted…
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Getting back to work.
I was wondering how many of you were able to get back to work after this ordeal? I have not been able to go back to my job. I was a manager of a shoe store. My job was very physical, and long hours. I had to work 48hrs a week, and had to close the store 3 nights per week. I would do two 12.5 hr days a week. There is no way…
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Primary found... the journey continues
PET-CT Tuesday showed asymetric increased metabolism in the right side of the tongue base and hypermetabolic bilateral cervical lymph nodes. Also, a 4 mm right upper lobe nodule of the lung (non-specific and below the resolution of the PET). Wednesday, my ENT did a Direct Laryngoscopy, Brochoscopy, and Esophagoscopy, with…