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voice
I have just started Chemo (first week) and Rad (three treatments) and seem to have lost my voice. I have a trach in and now I just seem to blow wind all day. What is happening here?
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first treatment
I am on my first treatments, and this really sucks. How can I be suffering from just one week under my belt? I am sitting her drooling down myself, my trache is a mess. The peg tube is very painful and leaking what appears to be alot more than it did last week. I went up 7 lbs, so I am wondering if that is the reason it…
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Bye bye hair
Well I was hopeful that since most of you didn't suffer major hair loss, then neither would I. WRONG. Over a week ago my hair started falling out in chunks. It was so depressing. In just 3 days my hair had gotten terribly thin. My husband kept telling me "let's just cut it!" it took me 2 more days but I finally gave in,…
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Hair
OK,,,just reading bye bye hair and not sure if I should post this. Seems like a small problem. BUT I really, really want to color my hair one last time .....just looks so bad. Did anyone else color their hair durning treatment, as my book says NO SHOULD DO...but my head is cleaerly yelling DO IT before its too late. Let it…
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ear pain
hi all I hope everyone is well have any of you experience ear pain? that is what is going on not bad but its noticiable my appt with my ent is next monday ear pain along with a little blood in mucus off and on im wondering should I try to see him before then or is this some sort of side effect? God bless and thank you for…
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PEG TUBE CLEANING
My PEG is one of my best buds, as it is a permanent (more or less (a lot more than less) fixture in my abdomen (invokes comments like, nice abs, Awesome Tube!), due to the collateral damage that was done to my esophagus during rad treatment (no friend of the body, as my doc says). The radiation sealed the entrance to my…
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Neck cramps
Hi, I am new to this discussion group but have posted on the skin cancer board a few times. I had a left neck dissection, alnd, and part of my scapula removed along with levels 1 to 5 lymph nodes removed in April 09. Radiation and chemo completed July 09. For the past 8 or 9 months I get frequent painful neck and upper…
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Good Report
Doctors gave me excellent Blood Count today,no cancer!!, though I have a pin hole in my neck from trach removal, the healing process is taking longer due to the radiation, and told me no way to try have any skin grafts or cosmetic surgery done, I had 2 trach holes and a botched inplant done, they said the healing was a…
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Olfactory Neuroblastoma treatment
Hi Has anyone had this type of tumour treated by radiotherapy using RapidArc? I live in the UK and had endescopic surgery to remove an olfactory nueroblastoma in July 2010. I am due to start radiotherapy treatment next week and can't find anyone online in the UK with this type of tumour. RapidArc is a new IMRT radiation…
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New Survivor here!
Hi community, I just wanted to drop a quick "hi". I was diagnoses with squamous cell carcinoma of the tongue 11 years ago, and I may be interviewed by the American Cancer society for one of their publications - I was the youngest male in the USA (at the time) diagnosed with that type. Anyway, I'm finally getting around to…
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Trip to His Folks
Hi all! Basketcase here. I'm leaving after church this morning to go to NC to see Charlie's family. This will be my first trip in without him. (Actually he's going with me, his mother wants me to bring the urn!. I know it will be hard at first but I need to get this first one behind me. I'm doing okay, it's just so hard. I…
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Caphosol?
Did anyone have insurance that actually covered Caphosol? We are getting no where with insurance (running in circles on the phone). They say they will cover it as a 'medical device' but no medical supply company will/can order it. I was told by EUSA Pharma (the makers of Caphosol) that my insurance was the ONLY insurance…
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"Graduation Day" for the Bigfuzzydoug
Just to let you all know that I'v ereached my first milestone on my way to recovery and cure: Today was my 35th and final radiation treatment. I've graduated, my diploma: http://www.caringbridge.org/tres/images/photos/2/0/2/9/202994/l.CvLqkECqbuZaCOcg.jpg (There's supposed to be a dot-jpg after 'cg' instead of the…
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FYI: Incase you didnt know!! This is what the docs deciscions are based on!!
In case some of you are wondering what the standard is this what the docs across the country are going by!! Hopefully in the future the protocols will be seperated into hpv vs non-hpv!! You have to log-in/ Register (it's free); then goto physician clinic guidlines, head and neck cancer!…
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Saliva Question
Hi Guys I know this topic comes up alot but I can not understand this part of the saliva. I am almost 2 months out of all the chemo and radiation treatments that means no more of that stuff. But my question is why now after month or so being done I have no saliva or little bit of it I mean during chemo and radiation…
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What is?
Can some tell me about high grade dyselastic
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Scam Scan
Just back from a very long day in HK at the AM Med Cancer Clinic where I was treated last year, to get the big PET CT. 1 year out of treatment next week and first scan since mid December last year. It was a very big one for me. I was truly blessed today with a completely clear Scan. I am a little too tired to do my jig but…
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How long does it take to feed through the peg?
Hi guys this is Jason again, D-Byrds son. I hope you guys are doing okay this morning and feeling good. I have a question requarding the peg feeding. How long does it ake for you to do one feeding, and how many cans do you do in one feeding session? My dad does 2 cans in one session and seems to feel horrible after each…
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i have a question
well in truth two, but the most important on is what do i do to show our secetary how much i appreciate her help. I missed one appointment because i got busy and lost track of time, after that she made sure to come out and not only tell me the time but drove me back and forth. She took time out of her busy day to help me…
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SIDE EFFECTS SO SOON
Hello, hope everyone in this group has had a great day. I just completed my 15th Radiation treatment and will start my 2nd Cisplatin treatment next monday. I contracted Thrush probably shortly after my Surgeries and it has been a struggle trying to get rid of it ever since. I know the Thrush can cause pain in the areas of…
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Question Regarding Chemo w/ Pump
Hi there, everyone ... First, let me apologize for all these questions. During this journey, I've found that if I know what to expect, I can handle things a little better. Even though you have *no* control over what happens ... it gives you the sense of having a bit of control. Anyhow ... My husband was diagnosed with…
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Coughing/Aspiration
It's been 5 weeks today since my last radiation tx. and I am just sipping water. For the last 2-3 days I have been coughing a bit during the day (not much) but then I cough all night. Did anyone else experience this once they started swallowing liquids after treatment. Should I be concerned that I could be aspirating? Any…
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Starting up again
After meeting with the radiation oncologist yesterday it looks like I'm starting radiation and chemo the 11th of next month. I had just finished up 3 rounds of Cisplatin and Gemzar and had a clean PET scan at the end of August so I was hopeful that I might be done. But the protocol calls for the 35 rad and Cisplatin…
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Having problems sleeping
Hi everyone I am D-Byrds son Jason, and I was just wondering if any of you guys have problems sleeping? My father sleeps around 3 to 4 hrs a night and it is starting to get to him. He went to the doctor last week to see if he was sick because he was feeling dizzy all the time and the Dr. said he was fine. He is not that…
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Prayers for a friend
Everyone Just got some terrible news today that a friend of mine that had melonoma, has been told he is terminal. It is really hard to take as I had just spoken to him a couple of months ago as he was finishing up his rads. He and his wife were concerned about him still losing weight and when he returned that is when they…
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esophageal dilation scheduled
Hello friends. On Nov 3rd Dr G will try and open up the old esophagus. It is considered surgery so I'll be checking into Kaiser Hospital in Oakland (where they did the neck dissection back in January). He said during his assessment that after the procedure he's hopeful I'll be able to "have the coffee, but probably not the…
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99.9% Happy but Confused from PET/CT Scan
Hello, I just got off the phone with my oncologist after receiving a PET/CT scan yesterday.I also had a MRI of head and neck two weeks ago which showed an enlarged lymph node which is why he ordered the PET.I was currently fighting a nasty head cold.The MRI showed no tumor growth in my nasophyarnx.I am happy to be told my…
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BIG DAY for Glenna and Irishgypsie!
Today, I believe Glenna celebrates one year post treatment! Congratulations Glenna!! Many have said that at the year point you have regained all that you will regain. Can you please let us know what 1 year looks like. Good job girl...keep moving forward!! Irishgypsie has his first PET today...let us all send all the good…
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What is your Hobby?
While I was in treatment and long after I finished treatment I found keeping my mind busy was the best way to help me heal. As a kid I always loved models so I got into building model Rockets, Boats, and Air Planes. This is a picture of my P51 I crashed it twice and had to rebuild it each time, I found because my brain is…
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Colds causing enlarged lymph nodes 1 year post treatment
Hello, I have just reached my one year post treatment for nasophyarengeal carcinoma on September 3rd.I have had two favorable MRI,s with no disease found.Last week I had my third MRI which showed an enlarged lymph node in my neck.I was fighting a nasty headcold at the time.My oncologist has reasured my that it is probally…