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Salagen ( Pilocarpine) 5 mg TABS

RayTodd
RayTodd CSN Member Posts: 187
in Head and Neck Cancer #1
Anyone tried ,used, these. As they are not available in tab form in Australia I have ordered them from overseas.I have tried the eye drop solution (rinsed in mouth) it worked but I seated like a pig for the 8 hrs it was effective for. What frequency do you take tab.,does it take any time period before it starts working E.G. I have seen it saying it can take up to 10 weeks,the liquid took approx 30 min.,Its very expensive to import but as anyone out there with dry mouth for a long time will agree you get desperate.

PS I am re posting this on FB to test the effectiveness of FB

Ray Todd
AKA in Bali Wayan Rai hehehehe
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Comments

  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #2
    the starting dose is 5 mg tid
    and u can increase to 10 mg tid. the ten week thing is just that it can take that long to respond to the drug. i tried salagen in the first year after mr rads, back in 1998. it didnt work for me but i eventually got my saliva back anyway. what is the expensive part of importing this Ray?
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  • RayTodd
    RayTodd CSN Member Posts: 187
    #3
    longtermsurvivor said:

    the starting dose is 5 mg tid
    and u can increase to 10 mg tid. the ten week thing is just that it can take that long to respond to the drug. i tried salagen in the first year after mr rads, back in 1998. it didnt work for me but i eventually got my saliva back anyway. what is the expensive part of importing this Ray?

    If taking three a day
    It costs over $100-00 a month If they were on script here would prob cost me $20-00 a month
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  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #4
    RayTodd said:

    If taking three a day
    It costs over $100-00 a month If they were on script here would prob cost me $20-00 a month

    ouch
    have u considered just ordering them online? u can buy 200 for about $50.
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  • RayTodd
    RayTodd CSN Member Posts: 187
    #5
    longtermsurvivor said:

    ouch
    have u considered just ordering them online? u can buy 200 for about $50.

    that was on line
    That was my online price maybe I went to the wrong place I got them here internationaldrugmart.
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  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #6
    RayTodd said:

    that was on line
    That was my online price maybe I went to the wrong place I got them here internationaldrugmart.

    u might look at some other sites.
    I got that number from a google search from a standard canadian source.
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  • RayTodd
    RayTodd CSN Member Posts: 187
    #7
    longtermsurvivor said:

    u might look at some other sites.
    I got that number from a google search from a standard canadian source.

    do they write out script for you
    Are you on H & N Warriors FB
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  • ian1511
    ian1511 CSN Member Posts: 42
    #8
    RayTodd said:

    do they write out script for you
    Are you on H & N Warriors FB

    I was on this
    I was on pilocarpine. It worked quite well. I thought I had died and gone to heaven. I tried 5 mg and it works just right. I tried 10 mg and it was too much. My whole body began to perspire (saliva was great), but it made me feel very jittery at this dosage. Perhaps it would not have been so if I had slowly built up.

    I no longer use it, as my saliva has returned, not totally the way it was, but enough to lick a stamp, and that's good enough for me.

    Good luck Ray.
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  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #9
    RayTodd said:

    do they write out script for you
    Are you on H & N Warriors FB

    Sorry, I don't know what that is.....
    they don't require a script.
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