MISSING FROM ROLL CALL - Have not checked in

HAWVET

It has been over a year and prior to January 1, 2012 since we heard from the below folks.  If you know the status of any of the listed members, please post and give their status.  DO NOT ENROLL or REPORT your personal status on this thread.  I would appreciate it if it is posted on the actual ROLL CALL roster.  Mahalo.

HAWVET

The following were enrolled

The following were enrolled and have not reported back.

Adamson 091654, state unk, enrolled January 24, 2011. DX’d HPV-16 neck cancer in January 2011. Tumor removed 01/03/2011.

Agatha, Toronto, Canada, enrolled January 4, 2011. DX stage IV left side of tongue in 2010.

 

Adventurebob, California, enrolled on August 21, 2010. DX’dNasopharyngeal stage IV in May 2010. Checked in January 20, 2011.

Aeromech, state unk, enrolled July 21, 2011. DX stage 1 SCC right tonsil on September 24, 2011, enrolled July 21, 2011

Akotke, Alabama, DX. Enrolled August 12, 2011. DX’d tonsil stage 4b scc tonsil in November 2010.

Army_Guy, Maryland, enrolled January 16, 2011. DX’d SCC right base of tongue-April 30, 2010, left salivary gland-May 2010.

Areomech, Cincinnati, Ohio, enrolled January 5, 2011. DX I1N0M0 on September 24, 2010.

Arjenkins, state unk, enrolled dad diagnosed stage IV cancer base of tongue w/lymph node on both sides. Enrolled January 20, 2011.

Arndog64, DX left tongue base tumor w/lymph node invasion on January 28, 2011. Enrolled April 18, 2011.

Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010. Checked in August 13, 2011.

Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010. Checked in August 4, 2011.

Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August 5, 2008.

Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III

Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.

Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.

CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010, Checked in August 7, 2011.

Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009

Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.

Cwctcher, Virginia. Tonsillar in 1997, enrolled November 6, 2008

Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010. Checked in January 17, 2011.

Denistd, Tennessee, enrolled January 8, 2012, DX March 2009 w/larygeal cancer, stage 3, still going strong.

Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011. Rehired after losing job/works a few days. Making small, but positive steps.

Devildawg, Michigan, 2004, Nasopharyngeal. Enrolled August 29, 2008

DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010. Checked in November 30, 2011.

Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010. Checked in August 15, 2011

Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.

Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010

Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010, Checked in January 16, 2011

Ed_PortOrange, state unk, diagnosed SCC of Valledupar-December 2009. Enrolled on January 17, 2011. Checked in July 29, 2011.

Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.

Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)

Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010. Reported by Hondo on December 17, 2011 that he is in treatment for second NPC and doing well.

Garyr, New Mexico. 1999, Throat & Lymph glands Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV.

Geezer, Florida, Tonsilar in 2006, enrolled August 5, 2008

Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 6, 2011.

Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010. Second time in 2005 and last in March 2006. Checked back in July 25, 2010. Reported back in on January 20, 2011. Will be five years from treatment in March 2011. Checked in Aug 5, 2011.

Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.

Jan Trinks, Atlanta, Georgia, posted as being in forum on August 12, 2011.

Janymac, UK, DX in 2002, enrolled on April 18, 2011.

Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010. Checked back in July 16, 2011.

Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005. Enrolled August 30, 2008

Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010. Checked in August 7, 2011.

Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.

Kokom, state unknown, enrolled August 12, 2011, spouse treated for NPC in year 2006.

KristynRuth, Texas, Enrolled January 6, 2012, DS SCC of a lymphnode, unknown primary, completed treatment October 25, 2010. Considered "cured".

Kteacher, California, DX SCC HPV - Spindel cell varient, perineural involvement, enrolled July 20, 2011. Checked in December 27, 2011.

Ktjt, state unk, diagnosed SCC NPC in May 2010, SCC on check, Mohs Sx, BCC Jan 2011 Mohs Sx, enrolled January 24, 2011.

Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.

Landranger25, state unk 2009, enrolled on 01-31-2010. Checked in January 24, 2011

Lena Rose, New Jersey, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010. Checked back in January 16, 2011.

Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs

Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)

Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)

Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie

 

MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.

Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, enrolled August 28, 2008

Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma

Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010. Checked in January 21, 2011.

Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010. Checked in August 4, 2011.

Michdjp, New York, daughter Michelle enrolled Dad on December 28, 2011. DX’ed with right tonsil and lymph stage IV, hpv.

Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010

Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,

Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010

MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.

Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone

Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.

Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.

Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube. Checked in November 30, 2011.

Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”

Olybee, Washington, DX March 2011 on tonsil/lymph node. Enrolled July 21, 2011.

PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010. Checked in October 30, 2011.

Pattyanny, New York, Undiagnosed primary head and neck in June 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back. Checked in August 1, 2011. Posted on October 25, 2011 appreciating the list.

Paula002, Montreal, 2007, Nasopharyngeal , enrolled November 7, 2008. Reported by Soccerfreaks on November 30, 2011 that he was still around.

PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good

Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil, enrolled August 25, 2008

Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete

Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.

Rarph123 responded to an entry on January 17, 2011 but did not enroll.

Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011. Checked back January 16, 2011.

Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan

Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010. Reported on Aug 5, 2011 by Skiffin 15 and Hondo that he left the forum. Reported by Hondo on December 17, 2011 that he is doing well working between Vietnam/Singapore and had no more problems with cancer.

Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011.

SeenanN, Maryland, DX 2004 NPC state 4 metastasis to lung, enrolled July 21, 2011.

Shoemandanl, state unknown, enrolled January 5, 2012. DX March 2011. Had neck disection and 19 lympnoids removed. Pet scan was clear in November 2011. Scope also clear in December 2011.

SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus

and Naspharnyx,,

Sienna Finch. Checked in 03-25-2009, doing okay completed June 2009. Followup. PET and CT were clean. (John)

Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.

Slickwilly, Michigan, Large B-cell lymphoma, cancer from sinus to jaw bone in 2003, enrolled, August 7, 2008

Checked in 01-20-2009

Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)

Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009

Swartpb, state unk, DX SCC right side tongue on July 21, 2010. Enrolled March 6, 2011.

Tanager75, Washington, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010. Checked in August 4, 2011.

TereB, Houston, Texas, Milignant Paraganglioma (started as glomus jugulare tumor) in 1987, enrolled August 6, 2008.

Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.

TIM_WWJD, Oregon, 2009, Checked in 01-31-2010. SCC Stage 4, left tonsil, last ENT clear, chest X-Ray clear. Was removing port in early February.

Tom55, Michigan. 2006, Medullary thyroidTootsie47, Oregon, 2009, enrolled November 7, 2008. Checked in 01-31-2010, husband Dx June 2009, occult primary, clean scan 12-2009Train-nut, Oklahoma. 2007? Checked in on 01-31-2010, SCC of the hypopharnx. Thanks for keeping tab. It's great to see such a long list. Still doing well. Keeping on eye on my teeth. Otherwise, I'm putting on too much weight. I may have to increase dosage of thyroid medication.

Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.

Trainnut, Tulsa, Oklahoma, hypo pharyngeal cancer in 2007, enrolled August 5, 2008

Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.

Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.

Wboaz, Oregon, 2006 Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne

Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010. Checked in January 20, 2011. Checked in August 16, 2011.

longtermsurvivor

Here are a few:

Arndog is around.  Mrs Arndog posts from time to time and the last she posted he was doing pretty well.

Hal61 is in Houston now.  I've seen him in person in the last few weeks. He's doing great.

Michdjp has posted within the last month or two.

Rarph posted just awhile back.  He has made a great recovery and is doing well.  Had a workup for possible reccurrance in December, I think, and it was negative.

Ed-Port Orange had a significant reocurrance quite awhile back and has not posted for a long time.  Skiffin seemed to know something about him.

Mitchjdp has posted within the last several months.  I'm not aware of problems.

KTeacher had a metastasis appear in the orbit of one of her eyes recently. She had a very major surgery and I believe planned radiation.  A sister just reccently posted she had a major infectious complication from the surgery and was in the hospital.

Jan Trinks has posted within the last two weeks.

Denistd posted back in December.  He had surgery for a malignant lung mass.  I don't know if it was a new primary or a met from his other problem.  I know there were some significant problems after surgery, but don't think he has posted since then.

denistd

longtermsurvivor said:

Here are a few:

Arndog is around.  Mrs Arndog posts from time to time and the last she posted he was doing pretty well.

Hal61 is in Houston now.  I've seen him in person in the last few weeks. He's doing great.

Michdjp has posted within the last month or two.

Rarph posted just awhile back.  He has made a great recovery and is doing well.  Had a workup for possible reccurrance in December, I think, and it was negative.

Ed-Port Orange had a significant reocurrance quite awhile back and has not posted for a long time.  Skiffin seemed to know something about him.

Mitchjdp has posted within the last several months.  I'm not aware of problems.

KTeacher had a metastasis appear in the orbit of one of her eyes recently. She had a very major surgery and I believe planned radiation.  A sister just reccently posted she had a major infectious complication from the surgery and was in the hospital.

Jan Trinks has posted within the last two weeks.

Denistd posted back in December.  He had surgery for a malignant lung mass.  I don't know if it was a new primary or a met from his other problem.  I know there were some significant problems after surgery, but don't think he has posted since then.

Check In

I have posted some stuff over the past few months. Pat is right, I had some surgery for a cancerous nodule in my lung, it was a new primary adenoid carcinoma stage 1, the nodule was about 1 cm, glad I got the surgery done, my other oncologist wanted to wait six months as he did not think it was cancer, biopsy proved him wrong. Did have some issues a week after getting out of hospital, and was admitted to my local hospital with a Urinary Tract and blood infection. Some major mistakes by a doctor and nurse, totally unacceptable. I had the lung surgery in October and don't go back until March 7 for a CT scan. Feeling good now, but some permanent damage done by my Urologist and a nurse in the emergency room. I will see how things look this week. Denis

longtermsurvivor

denistd said:

Check In

I have posted some stuff over the past few months. Pat is right, I had some surgery for a cancerous nodule in my lung, it was a new primary adenoid carcinoma stage 1, the nodule was about 1 cm, glad I got the surgery done, my other oncologist wanted to wait six months as he did not think it was cancer, biopsy proved him wrong. Did have some issues a week after getting out of hospital, and was admitted to my local hospital with a Urinary Tract and blood infection. Some major mistakes by a doctor and nurse, totally unacceptable. I had the lung surgery in October and don't go back until March 7 for a CT scan. Feeling good now, but some permanent damage done by my Urologist and a nurse in the emergency room. I will see how things look this week. Denis

wow

Sorry for the problems.  It sounds like your lung situation has a good prognosis.  I can understand your being happy you got the surgery, a delay wouldn't have been in your best interest.

 

best

 

Pat