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abdominal pain after radiation?
Hello all! My husband finished treatment for stage 3 BOT in September. So far, clear CT's and scopes! Yeah! One new-ish problem is lower left abdominal pain. It is not related to BM's, and is intermittent. He has it daily, but sometimes it lasts 20 min and sometimes hours. A dull to sharp, deep, achy type of pain. It has…
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Oscar Sierra
Or in less polite circles "oh (expletive deleted) I had my second post rads PET/CT yesterday and the results were not what I'd anticipated. There is still a hot spot. The really odd part is that the same spot was seen on my first post rads PET last October. At first they were going to take a 'wait and see' approach,…
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should have listened!
Boy do I have nerves jumping tonight. Against P's advice, I might have over searched the internet this past week, researching every word on my ultrasound report. My findings are they have lists of words that make a nodule suspicious, and those that don't. Of my 6 little friends (2 are huge, in reality) all of the words…
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Wife undergoing treatment for stage 2 tongue cancer
hello i am new to this forum. as I type, I am sitting in hospital room with my wife who has just undergone surgery for tongue cancer. They removed about 1/3 of her tongue and put flesh from her arm in its place and flesh from her leg in the arms place. She is thought to be stage 2 but we havent got pathology report back…
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Scanxiety; it sneaks up on you
I have a chest CT with contrast on Monday, the 4th. So, of course, I woke up this morning unable to swallow, with throat edema, tight neck muscles, a suspicious new 'lump' under my ear, jerky tongue, dry eyes, and various other worrisome aches and pains... Darn that scanxiety. Had to wait over three months for the…
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End of Radiation
Well folks, Monday was my last radiation treatment, lets hope it did its job. Now for the remaining Erbitux and beginning Cisplantin whatever that will be like. The doc said the lump hasn't shrunk as much as he liked but feels chemo will knock it out. I probably won't be able to speak well but I am hoping to be able to…
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I'm back! But.......
Well, it's been since nov 30th that i've finished rads (30). I have some taste back (maybe 50-60%) and some saliva (maybe 25%). But i wake up every morning with this build up of "flem or mucous" i guess it is, at the back of my throat that is extremely difficult to clear. My voicebox is affected by it, i sound like Darth…
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It's been a long time
It’s been 2 ½ years sense treatment and the mucus is worse how long does it last. My cancer Doctor said she don’t know any thing to try to control it I wake up in the morning choking I get up coughing and blowing my nose I guess it gets in my head, Anybody know of any relief I need some help. Robert
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It's my Birthday and my results were less than I had hoped for
Well, I had my swallow survey and I am aspirating. Very disappointing as I was just to the point where I could down an entire insure and was working on trying new foods daily. Now I'm on a big STOP until I meet with my therapist. Add to this my Onc told me today that he wants to do a CT scan next week. I asked why he was…
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New here...Things that are easy to swallow?
Hello, This is my first post, though I've been reading this forum for a few weeks and have learned a ton from you all. My mom was diagnosed with Stage IV throat cancer in January. So far she has had 3 of 7 chemo treatments, and 5 out of 35 rad treatments. Her tumor is large, and her esophogus was already narrow to begin…
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levothyroxine and psa levels
hi everyone i am a two year survivor of scc.just had a routine physical that included screening for prostate cancer. the psa nunbers came back very high 24 and 10 days later 41. i have been on levothyroxine therapy which has recently been increased. this leads to my question has anyone experienced elevated psa levels due…
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Chefdaddy
chefdaddy, pls. give me an update on your status. I haven't been on for probably 2 yrs but thot of u often. I hope all is well with you.
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Peg tube Bleeding
Hi everyone, tonight I had bleeding at my peg tube site. I removed gauze I put under the plastic thingy to hold it because it has these raised square disks on it that push into my skin and hurt. So every morning and night I change it and clean it and replace gauze it always has dried blood on it and never thought anything…
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osteoradionecrosis of the maxilla
I was wondering how often is that seen as a complication among those who had 70Gy and concurrent chemo? I know that maxilla has a better supply of Oxygen (via collateral vessel supply) than the mandible. I realize that it depends on the (primary) tumor location, but I am still willing to know if extraction, deep cleaning…
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Healing strenghth and unconditional love
Hello everyone ! Vale brought up a good subject in another topic. One I feel is very true. I am an animal lover, and have always had pets....at one time even a pet goose. I lost my german shepard Chassie and my cat Tubby at the very beginning of my journey with the beast. And I swore I would never have another pet. Fast…
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~~~We are NED!!!~~~
Well folks I can now say we are NED after our very long road since August!! Kreg is still recovering as we are 12wks post. He is still having problems with his stomach and the achiness all over. But, it's a small price to pay to beat this crap! For those of you starting out I hope you keep your faith and know that this is…
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The Wedding...Photos
Thought I'd share a few photos from my trip to Northern San Francisco for my son's wedding. The event was north of San Francisco in a beautiful coastal area. The venue was at an old launch for hire boat house, very rustic, totally beautifully decorated....(I know as I got there two days early to help, LOL)... Launch for…
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Hubby Home From Hospital
Surgery went as planned. Thirteen teeth extracted. Mouth full of stitches. Port and G-tube placed. Can barely walk or get up and down, never unassisted. I think he was released too soon. They never determined if he could walk at the hospital. Just managed to get him in wheelcahair and out the door. I had to rent a car for…
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Mucoepidermoid carcinoma of the salivary glands (I write from Italy)
Hello to you all. I am an Italian woman, 49 years old and I found this forum with the hope of talking to someone who had my condition. I hope it is understandable what I write because I use online translator. In Italy there are few people who have had this type of cancer ... maybe because rare or because Italy is a small…
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Our New Journey
Thank you so much for the kind words and thoughts from you all. I call this "Our" New Journey, because my dear wife and life's mate of 40+ years is making it with me. Being a retired military family, we were fortunate enough to travel the world, we were able to see things and visit places that most people only get to read…
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my own scan fear
Hey guys, Sorry for another post, but your all so good at making anxiety go away. Whe I had pnuemonia in December 2012, they did ct-scan and it showed spots on both lungs that they were pretty sure was from the pnuemonia. I have to get a follow up chest ct-scan at 3 months and that is here, will get script on dr appt 3/12,…
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My warrior is gone...
My friends, Your loving messages over the past couple of days were beyond eanything I could have hoped for. Sadly, Dad died last night. My husband, sister, brother, and brother-in-law, and I were there and with him as he was removed from the c-PAP. 1940s music softly played and he moved a bit to Glenn Miller's "String of…
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Post tx leg/body pain from drug withdrawls?
Finally were told the leg pain and overall body aches after tx are being caused by the narcatic withdrawls? He has come off his fentayl patches and Dillaudid in the last month and started feeling more pain. He was then given Vicodin to help. It helps take away the pain and as soon as it wears off, the pain is back in high…
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Meet Jack - WARNING: GRAPHIC IMAGES
I asked my surgeon to take photos so I could see what I was fighting against. He sent them this morning. I thought you might find it interesting to see what many of you have gone through and what it looks like. Surgery started with TORS with the DaVinci Robot to excise the back of my tongue for biopsies and remove the…
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Update on dad's confussion
Hi everyone, Dad saw the oncologist Friday and he was pretty happy with the progress he is making. The dr. thinks the confusion is coming from the fentenyal and the nausea meds. This is being made even worse because of the horrible withdrawl. He changed his nausea meds and wants to see him next week. He also thinks the…
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Too much Mucous??
Too much Mucous?? My husband is in week 5 for radiation and this weekend was very bad nonstop coughing, MUCOUS and vomiting. He lost 5 pound over the weekend. Is that normal to have blood in your vomit? What we can do to make this side effect easy on him? Any suggestions please? Thanks, Hetal
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Taste and saliva
Hello, I know there have been posts on this already but I wanted to start a new thread. So my story, I am 23 years old and have head and neck cancer. I have to do 35 rounds of radiation, which I am on number 19 and 9 weekly doses of chemo, on 6 I believe and then 3 more monthly doses of chemo. Shortly after starting…
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Back to head and neck treatment
David still has his hip replacement scheduled for March 7, bu after seeing the hematologist today we found out they are suspending treatment of his plasma cell leukemia so that they can go back and finish his head and neck cancer treatments. He has 19 radiation treatments and they will discuss whether to complete the…
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Caregiver down for the count
Friday night my hubby ended up taking me to the ER. I had norovirus. I got IV fluids and Zofran and reglan. I have never been so miserable. I have slowly been recovering ....up to saltines and applesauce today. What I am most upset about is the possibility of giving this to,my hubby. He is 3-4 weeks out of treatment and…
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Now Cellulitis
A week ago, the needle sliped and the Taxol dumped into the arm tissue rather than the vein. So I limpt home and treated my sore arm with an ice pack and some extra pain meds. Fast forward a week to my next visit. The PA looked shocked when she saw my arm. "It's infected" Oh Good. Your neutraphils are in the tank also. So…