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After two weeks of treatment -
I'm feeling more tired today than I expected. I was hoping I would "bounce back" this weekend more than I have. I finished 2 weeks plus a day of radiation on Friday. My mouth is drier and my throat has periods of pain, but not too bad so far. I'm already tired of being sick and tired and still 5 weeks to go. I'm getting…
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Has Anyone Here Used Hydrocodone (APAP) In Order To Control Pain ?
Hello all ! I was just wondering if anyone found it effective. Thanks, Dennis
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Unknown Primary
my husbands pathology from his tonsillectomy came back and it was negative. So, we have joined the rest of you that have a dx of "unknown primary". I understand the radiation field will be a bit different but was told the amount will be pretty much the same - 6 wks. I don't know if this includes any chemo- we will meet…
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Need a recommendation for a juicer
Hi and hope all is well. I've decided to start juicing and need a recommendation(s) for type of machine, and best buy for the $$'s. don't think I need a commercial food grade model, but not looking for one that will shoit crap quickly. Thanks Mike
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5 appts today, 2 patient updates
Today Dan saw both his ENT Surgeons, and his oncologist-- all raving reviews of his weight gain (still holding his 20 lb gain at 160, and TPN is only 5 nights a week now! Everyone is happy. He also got a surprise visit from his dietician, and she too is thrilled to see him, and also a little concerned like me that as the…
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Help- In Treatment - Dry Mouth
I hope you can help. My husband is receiving Chemo(Cisplatin) and Radiation for a mass on the base of his tongue. He is struggling terribly with a disgusting taste in his mouth and lack of saliva, he's nauseus and he constantly is bringing up a foamy substance. They just put in a feeding tube because he cant even tollerate…
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Tongue burning and cut
Hi to all my dad is one and a half years out from chemo and radiation for tonsil and recently began complaining abut a burning tongue and if I look at it it has lines like cuts in it and he says it burns when he eats how can I help him with this? Anyone have suggestions how to clear this up? It is effecting this eating…
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A question concerning couples and cancer
I hope I am not offending anyone, but I was wondering since a cancer diagnosis changes the normal in everyday life, how does a couple going through it keep intimacy, romance and love making somewhat normal though this all. I read about care givers and how wonderful you all are and how you must put so many things asside for…
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ENT Visit Was Good - Thanks for Good Wishes and Prayers
Thanks to all for your wishes and payers. The ENT doctor said all looks good. Normal to have hoarse voice for a year to forever. Always great to get a "things look good" information, but then we, or at least I aways think what about next visit. Gets better after a little time passes. I suppose if we thought about it all…
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Tired of being a widow
OK I wish I could say I am doing better with my loss than I am. I miss David, hell I miss people. You know other than the neighbor across the way and my mother-in-law not one person has come to check on me. People will make plans with me and then bail in the morning with lame excuses. I feel so alone and unloved. What is…
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Hypothyroidism
Have been have digestive problems lately, mostly constipation and a little nausea. Saw the Gastro doctor yesterday at Penn State Hershey. She did the usual stuff, pressing around the tummy, listening to bowel sounds etc. She said I have a hiatial hernia but that is not the reason for the digestive problems. Had blood…
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Thank You All So Much For Your Prayers & Healing Thoughts
I will sleep very little, if at all, tonight. I made the decision today to have my beloved husband removed from life support systems at noon tomorrow. His condition has rapidly deteriorated over the last two days. The ventilator is now completely breathing for him and the pacemaker has taken over 100%. He is in a drugged…
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Q for those who used Amifostine/Ethyol
To those who have used Amifostine/Ethyol, I am on my third day of it and getting very nauseous and weak. I am taking both Zofran and Compazine to counteract the nausea but I still don't feel very good. My question is whether my body will adapt and the side effects of Amifostine will lessen, or is this as good as it will…
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If this is as good as it gets
it's good enough for me! Just returned from my visit to Stanford. Tuesday, microvascular surgeon--he was happy with healing, would like to do some clean-up work but elective--I choose no surgery for the time being. Dr. Sunwoo, H&N surgeon poked and prodded and poked some more, he thinks sinus problem is due to radiation,…
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Very nervous
Hi everyone - it's coming up on 5 months post treatment and I just found a bulge in my groin area- at first I thought it has to be a hernia- going to general practitioner next Friday. But then I realized the last time I saw a lump I thought it was a swollen gland. I am making myself nuts. I am praying its not C
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l-glutamine experiences?
As I start designing and mixing new blenderized drinks the topic of glutamine comes up and I'm wondering what experiences you had using it as a supplement during radiation treatment to help rebuilding those blasted throat areas. Here are four links from the Superthreads -- it must have been a pretty common point of…
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Bladder pain since having chemo and radiation for squamous cell carcinoma in lymph nodes of neck
Has anyone developed bladder pain during chemo and radiation for squamous cell carcinoma of the lymph nodes in the neck. Just about finished with chemo and radiation and the pain in the bladder has developed. Really, this pain has been there during most of the treatment. I am not eating or drinking anything by mouth. Had a…
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End of Scanxiety -- NED Again!
Doc just called and the knot in hubby's neck is likely scar tissue from radiation and latest CT scan shows NO EVIDENCE OF DISEASE! This scan came 6 months after post-tx PET last October. Knew the 6-month scan was coming but had not expected the new "knot" in his neck discovered about 4 weeks before the scheduled 6-mth…
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Kari update. NJSHORE
I just got a text from Dan. Kari did great and is in recovery. She got out of surgery at 3:10 and the nurse said everything went smoothly. I was very happy to get report and wanted to share it.
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PLAN B FINALIZED
I have a final plan. I'm moving to Austin Wednesday and got into a clinical trial using a standard line drug Taxophere, combined with a 50/50 chance of getting another drug, or just a bag full of sugar water. I get the drug once every 3 weeks and scanned every 6 weeks. I am going through a group called Texas Oncology, Dr…
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Thinking of Wolfen and Family
Just to let you know that I am thinking of you and praying for your Husband , you, and your Family .
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Very sad to report Charm from OCF has passed
I know there are folks here who also check OCF but really sad to report Charm has lost his battle with Cancer. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=164514&page=3
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Kari
Just want you to know That I said a prayer for you and that I am thinking about you . We are all waiting to hear good news from you. Peggy
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My Heart Is Breaking
My daughter & son-in-law arrived about 8 this morning. We met with the Pulmonologist & the Pallative Care team. The chances for my husband's recovery are slim to none. Too many systems are failing at once. If he is to stay on the ventilator, he will eventually have a trach & live in a nursing facility, which I know he…
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Good news on 1st pet fears after treatment
i am happy to report all clear today on husband's 1st pet scan after treatment . Thanks and God Bless each and everyone for your prayers and positive comments! You are the best ! We will definitely get a good night's sleep tonight! Laura
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It has been four weeks
Today marks four weeks since David's passing. I got a call today and his disability was approved (lol). I am having such a hard time being alone. I want to be in the safety of marriage. This really sucks. Sorry I don't feel like I can be real anywhere else. Everyone is watching and I don't feel like if I said what I really…
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Sorry for my absence
Hey everyone, i thought I had Couple of bad days the I came back and saw some dear to us back to fighting hard again. I didn't want anyone to think I forgot them. first I got a new iPhone, it was time to upgrade and all this talk of FaceTime I wanted to play, but I had to reload everything except contacts so sine I am…
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in treatment & struggling with my attitude
I'm about two weeks into radiation, looking at 5 more with chemo along the way. I'm really struggling with fears and negativity about the treatment. When I was diagnosed my oncologist was very up-beat and positive about my chances for cure. Along the way, as I was staged E3 and had a health stumble, the docs have been very…
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New here and possibly some type of oral cancer
Hello, First, I would like to say that I have read many of your stories and I think you are very couragous. I admire your strenght and only hope I have half as much as you all do. My story start in mid-March when I started feeling pain on my tongue. Other than swollen papillas on the right side, I can't see anything else…
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4 Month PET Scan after glossectomy
Saw both surgeons today. They scoped Chuck and thought everything looked good. Ordered a PET Scan on May 8th. Kinda worried (oaky not kinda of, extremely). We have been one of those people where this only happens to 1% of the people going thru this. Chuck has been that 1%. I just want this PET scan to show nothing. We have…