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If this is as good as it gets
it's good enough for me! Just returned from my visit to Stanford. Tuesday, microvascular surgeon--he was happy with healing, would like to do some clean-up work but elective--I choose no surgery for the time being. Dr. Sunwoo, H&N surgeon poked and prodded and poked some more, he thinks sinus problem is due to radiation,…
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Very nervous
Hi everyone - it's coming up on 5 months post treatment and I just found a bulge in my groin area- at first I thought it has to be a hernia- going to general practitioner next Friday. But then I realized the last time I saw a lump I thought it was a swollen gland. I am making myself nuts. I am praying its not C
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l-glutamine experiences?
As I start designing and mixing new blenderized drinks the topic of glutamine comes up and I'm wondering what experiences you had using it as a supplement during radiation treatment to help rebuilding those blasted throat areas. Here are four links from the Superthreads -- it must have been a pretty common point of…
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Bladder pain since having chemo and radiation for squamous cell carcinoma in lymph nodes of neck
Has anyone developed bladder pain during chemo and radiation for squamous cell carcinoma of the lymph nodes in the neck. Just about finished with chemo and radiation and the pain in the bladder has developed. Really, this pain has been there during most of the treatment. I am not eating or drinking anything by mouth. Had a…
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End of Scanxiety -- NED Again!
Doc just called and the knot in hubby's neck is likely scar tissue from radiation and latest CT scan shows NO EVIDENCE OF DISEASE! This scan came 6 months after post-tx PET last October. Knew the 6-month scan was coming but had not expected the new "knot" in his neck discovered about 4 weeks before the scheduled 6-mth…
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Kari update. NJSHORE
I just got a text from Dan. Kari did great and is in recovery. She got out of surgery at 3:10 and the nurse said everything went smoothly. I was very happy to get report and wanted to share it.
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PLAN B FINALIZED
I have a final plan. I'm moving to Austin Wednesday and got into a clinical trial using a standard line drug Taxophere, combined with a 50/50 chance of getting another drug, or just a bag full of sugar water. I get the drug once every 3 weeks and scanned every 6 weeks. I am going through a group called Texas Oncology, Dr…
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Thinking of Wolfen and Family
Just to let you know that I am thinking of you and praying for your Husband , you, and your Family .
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Very sad to report Charm from OCF has passed
I know there are folks here who also check OCF but really sad to report Charm has lost his battle with Cancer. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=164514&page=3
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Kari
Just want you to know That I said a prayer for you and that I am thinking about you . We are all waiting to hear good news from you. Peggy
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My Heart Is Breaking
My daughter & son-in-law arrived about 8 this morning. We met with the Pulmonologist & the Pallative Care team. The chances for my husband's recovery are slim to none. Too many systems are failing at once. If he is to stay on the ventilator, he will eventually have a trach & live in a nursing facility, which I know he…
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Good news on 1st pet fears after treatment
i am happy to report all clear today on husband's 1st pet scan after treatment . Thanks and God Bless each and everyone for your prayers and positive comments! You are the best ! We will definitely get a good night's sleep tonight! Laura
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It has been four weeks
Today marks four weeks since David's passing. I got a call today and his disability was approved (lol). I am having such a hard time being alone. I want to be in the safety of marriage. This really sucks. Sorry I don't feel like I can be real anywhere else. Everyone is watching and I don't feel like if I said what I really…
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Sorry for my absence
Hey everyone, i thought I had Couple of bad days the I came back and saw some dear to us back to fighting hard again. I didn't want anyone to think I forgot them. first I got a new iPhone, it was time to upgrade and all this talk of FaceTime I wanted to play, but I had to reload everything except contacts so sine I am…
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in treatment & struggling with my attitude
I'm about two weeks into radiation, looking at 5 more with chemo along the way. I'm really struggling with fears and negativity about the treatment. When I was diagnosed my oncologist was very up-beat and positive about my chances for cure. Along the way, as I was staged E3 and had a health stumble, the docs have been very…
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New here and possibly some type of oral cancer
Hello, First, I would like to say that I have read many of your stories and I think you are very couragous. I admire your strenght and only hope I have half as much as you all do. My story start in mid-March when I started feeling pain on my tongue. Other than swollen papillas on the right side, I can't see anything else…
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4 Month PET Scan after glossectomy
Saw both surgeons today. They scoped Chuck and thought everything looked good. Ordered a PET Scan on May 8th. Kinda worried (oaky not kinda of, extremely). We have been one of those people where this only happens to 1% of the people going thru this. Chuck has been that 1%. I just want this PET scan to show nothing. We have…
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PET scan coverage... and hello!
I was thinking of posting a check-in over the weekend, and was reminded just now when I got the call that my insurance (Blue Shield) doesn't cover PET scans for surveillance for head and neck cancer, after the first post-treatment scan. I think the doctor is trying to find a way around it, but I'm overdue and I don't want…
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All My Special Friends
Your many prayers are working. Hubby was more alert today and understands partly whats going on. He's frustrated not being able to talk with the ventilator. Tried writing, but not good. Our son can interpret want he wants much better than I. He understands that our daughter is on her way & asks for her. The Nephrologist…
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ENT Visit - A Prayer Would Help
I am still stuggling with a hoarse voice and my chemo doc saying a week ago it could be a tumor. Thanks for all of your replies to my post about my doc's off the cuff comment about a tumor. I think he thought; not likely, but just his style. Anyway that and my continuing hoarse voice four and a half months out of treatment…
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With your permission
I will continue to be in the NED clan for now, no CT or Pet scan but did see the Onc/and ENT today,, she sent the fire hose down my nose and all looks good, gained 7lbs so the icecream is working. Just wanted to say thanks to all for prayers that I know we all do for our friends on this site and I have grabed a few of…
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1st post fear with upcoming pet
Three years ago my husband had swollen glands on the left side of his neck. A trip to our family physician resulted in a week of antiobiotic which did nothing. He was then referred to a local ENT. A biopsy was done whitch were inconclusive. Then surgery was done to biopsy. Area and some surrounding tissue proved to be do…
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Shaving after radiation
It’s been 1 month since my husband done with his radiation treatment and he really hates electric razor and wants to go back regulate shaving. When does he can shave regularly? Any advice will be helpful. Thanks Hetal
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Paralyzed by Fear - NO MORE = NED - UPDATED
When he told me it was NED it was almost like I couldn't hear him. For some reason, like never before in my life, (my service in the Army, my years of racing sports cars, the CT just 6 weeks prior, asking my wife to marry me :I, this one test got the best of me and for the life of me I can't say why. I'm very grateful to…
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thrush
what does thrush look like? is it white sores? does it get on the gums and jaws? if this is thrush, what can i use to ease the pain and get rid of it? thanks for any advice. God bless, dj
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Asking For Prayers, Please
My husband has taken a turn for the worse. I am in ICU with him & a nurse has brought me this computer to use. At 10 AM, he was wanting to get off the blood machine & get on with rehab. By noon, when I arrived, he had spiked a 104 fever & been moved to ICU. They think he vomited & aspirated. He is now semi-conscious & has…
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Alternate medicine
Today I had a friend of the family call to discuss "alternative medicine" vs radiation treatment. By the time I got off the phone I was in tears- do people think I want to see my husband go through all this treatment and Get so ill ?Do they not think we haven't thought and researched through everything out there? What do I…
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I'm Sorry, But I'm Just So Sad
I think the reality of my hubby's situation has just hit me real hard tonight. He sleeps fitfully as I sit by his bedside, mostly mumbling parts of drugged dreams. He can't sit up to urinate, so I hold the urinal for him as he lays. When awake, he is coherent. He sees what the near future holds. Social Services called…
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Dad Update Oncologist visit
Dad saw the oncologist today. It was not good and not bad. As far as the spot they saw on his lung at rehab, the oncologist knew nothing about it. Told me he did not see anything on the CT that he ordered a couple of weeks before that. He wants to wait for another 4 weeks and then rescan. If he appears stronger and…
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thrush
sorry