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PLAN B FINALIZED
I have a final plan. I'm moving to Austin Wednesday and got into a clinical trial using a standard line drug Taxophere, combined with a 50/50 chance of getting another drug, or just a bag full of sugar water. I get the drug once every 3 weeks and scanned every 6 weeks. I am going through a group called Texas Oncology, Dr…
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Thinking of Wolfen and Family
Just to let you know that I am thinking of you and praying for your Husband , you, and your Family .
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Very sad to report Charm from OCF has passed
I know there are folks here who also check OCF but really sad to report Charm has lost his battle with Cancer. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=164514&page=3
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Kari
Just want you to know That I said a prayer for you and that I am thinking about you . We are all waiting to hear good news from you. Peggy
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My Heart Is Breaking
My daughter & son-in-law arrived about 8 this morning. We met with the Pulmonologist & the Pallative Care team. The chances for my husband's recovery are slim to none. Too many systems are failing at once. If he is to stay on the ventilator, he will eventually have a trach & live in a nursing facility, which I know he…
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Good news on 1st pet fears after treatment
i am happy to report all clear today on husband's 1st pet scan after treatment . Thanks and God Bless each and everyone for your prayers and positive comments! You are the best ! We will definitely get a good night's sleep tonight! Laura
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It has been four weeks
Today marks four weeks since David's passing. I got a call today and his disability was approved (lol). I am having such a hard time being alone. I want to be in the safety of marriage. This really sucks. Sorry I don't feel like I can be real anywhere else. Everyone is watching and I don't feel like if I said what I really…
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Sorry for my absence
Hey everyone, i thought I had Couple of bad days the I came back and saw some dear to us back to fighting hard again. I didn't want anyone to think I forgot them. first I got a new iPhone, it was time to upgrade and all this talk of FaceTime I wanted to play, but I had to reload everything except contacts so sine I am…
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in treatment & struggling with my attitude
I'm about two weeks into radiation, looking at 5 more with chemo along the way. I'm really struggling with fears and negativity about the treatment. When I was diagnosed my oncologist was very up-beat and positive about my chances for cure. Along the way, as I was staged E3 and had a health stumble, the docs have been very…
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New here and possibly some type of oral cancer
Hello, First, I would like to say that I have read many of your stories and I think you are very couragous. I admire your strenght and only hope I have half as much as you all do. My story start in mid-March when I started feeling pain on my tongue. Other than swollen papillas on the right side, I can't see anything else…
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4 Month PET Scan after glossectomy
Saw both surgeons today. They scoped Chuck and thought everything looked good. Ordered a PET Scan on May 8th. Kinda worried (oaky not kinda of, extremely). We have been one of those people where this only happens to 1% of the people going thru this. Chuck has been that 1%. I just want this PET scan to show nothing. We have…
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PET scan coverage... and hello!
I was thinking of posting a check-in over the weekend, and was reminded just now when I got the call that my insurance (Blue Shield) doesn't cover PET scans for surveillance for head and neck cancer, after the first post-treatment scan. I think the doctor is trying to find a way around it, but I'm overdue and I don't want…
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All My Special Friends
Your many prayers are working. Hubby was more alert today and understands partly whats going on. He's frustrated not being able to talk with the ventilator. Tried writing, but not good. Our son can interpret want he wants much better than I. He understands that our daughter is on her way & asks for her. The Nephrologist…
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ENT Visit - A Prayer Would Help
I am still stuggling with a hoarse voice and my chemo doc saying a week ago it could be a tumor. Thanks for all of your replies to my post about my doc's off the cuff comment about a tumor. I think he thought; not likely, but just his style. Anyway that and my continuing hoarse voice four and a half months out of treatment…
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With your permission
I will continue to be in the NED clan for now, no CT or Pet scan but did see the Onc/and ENT today,, she sent the fire hose down my nose and all looks good, gained 7lbs so the icecream is working. Just wanted to say thanks to all for prayers that I know we all do for our friends on this site and I have grabed a few of…
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1st post fear with upcoming pet
Three years ago my husband had swollen glands on the left side of his neck. A trip to our family physician resulted in a week of antiobiotic which did nothing. He was then referred to a local ENT. A biopsy was done whitch were inconclusive. Then surgery was done to biopsy. Area and some surrounding tissue proved to be do…
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Shaving after radiation
It’s been 1 month since my husband done with his radiation treatment and he really hates electric razor and wants to go back regulate shaving. When does he can shave regularly? Any advice will be helpful. Thanks Hetal
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Paralyzed by Fear - NO MORE = NED - UPDATED
When he told me it was NED it was almost like I couldn't hear him. For some reason, like never before in my life, (my service in the Army, my years of racing sports cars, the CT just 6 weeks prior, asking my wife to marry me :I, this one test got the best of me and for the life of me I can't say why. I'm very grateful to…
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thrush
what does thrush look like? is it white sores? does it get on the gums and jaws? if this is thrush, what can i use to ease the pain and get rid of it? thanks for any advice. God bless, dj
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Asking For Prayers, Please
My husband has taken a turn for the worse. I am in ICU with him & a nurse has brought me this computer to use. At 10 AM, he was wanting to get off the blood machine & get on with rehab. By noon, when I arrived, he had spiked a 104 fever & been moved to ICU. They think he vomited & aspirated. He is now semi-conscious & has…
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Alternate medicine
Today I had a friend of the family call to discuss "alternative medicine" vs radiation treatment. By the time I got off the phone I was in tears- do people think I want to see my husband go through all this treatment and Get so ill ?Do they not think we haven't thought and researched through everything out there? What do I…
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I'm Sorry, But I'm Just So Sad
I think the reality of my hubby's situation has just hit me real hard tonight. He sleeps fitfully as I sit by his bedside, mostly mumbling parts of drugged dreams. He can't sit up to urinate, so I hold the urinal for him as he lays. When awake, he is coherent. He sees what the near future holds. Social Services called…
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Dad Update Oncologist visit
Dad saw the oncologist today. It was not good and not bad. As far as the spot they saw on his lung at rehab, the oncologist knew nothing about it. Told me he did not see anything on the CT that he ordered a couple of weeks before that. He wants to wait for another 4 weeks and then rescan. If he appears stronger and…
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thrush
sorry
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So sad and lost and overwhelmed
Dad has been home two weeks and it has been a true rollercoaster. He seems so much worse then he did in rehab. He will only stay up and hour or two at the most when therapy is not there. He will work really hard for the therapist and they say how great he is doing, but when they leave it is nothing. At times he seems…
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Another Week: Treatment Goes On
Had yet another of my weekly trips to Seattle Cancer Care Alliance (SCCA), my home away from home. I also had an extra trip of Wednesday for a CT Scan. I saw the medical oncologist, himself, (rather than his PA). I see the medical oncologist about once every three weeks. The report of the CT was not back, but the MO reads…
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Monday is not such a bad day...
That's right, Monday is not such a bad day. I had my 5 week re-visit with the ENT surgeon who performed by second neck dissection in late March and was told that I was healing "fantastically" and that my tongue (site of the primary tumor) and throat were clean, clear and normal in all respects, and she said again "No…
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Bone Disease / cancer due to Radiation
Has anyone had any issues - side effects with their bones as a result of their cancer treatments? I ask as 5 years ago I had radation to my sinus / neck for Esthesionueroblastoma. Over the past 16 months my alkaline phosphatase levels (found in blood tests) are increasing and are in the "High" levels. Over the past 8…
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Jim & I scan results???
Jim & Deb....just checking in on your scan results and see how all is going ...... not that you have to share of course....just letting you know you are being thought of and prayed for.... Tim
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Lidocaine Viscous
Rob is in a severe amount of pain. He is taking only liquid Vicodin and it takes the edge off for about 2 hours. He just does not want to drink because it hurts so bad. This man was in tears today and he doesn't cry, ever. Wondering if anyone has used Lidocaine orally and did it help to numb enough to eat. We will be…