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Tomorrow is PEG day
I ended up in the ER getting 4 more hours of IV fluids today (just had 4 hours of them Monday), I had lost 5 lbs since then and the oncologist was beyond concerned. My oncologist (not my fave) is on vacation for 2 weeks so the one I like is seeing me. He sent me right over to the ER and got fluids going and then asked why…
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My Sweetheart has cancer
Hello everyone! I imagine you will be my best friends throughout the next few months. My husband was recently diagnosed with tonsil and lymphnode cancer. We go to Stanford Hospital on Monday to find out the plan for his treatment. We've been told by the referring doctor that he will have surgery and radiaton but we are not…
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Article from Alligatorpointer...."1884 Ulysses S. Grant dx with Throat Cancer"
Hi all......Alligatorpointer shared this article on one of my posts. I wanted others to be sure and read it...very interesting... http://www.thehistorychannelclub.com/articles/articletype/articleview/articleid/136/whats-in-grants-tumor ~C
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Finally a computer!! Not cancer related...
But I MISSED you guys so will take advantage while I'm at my friend's house, to say hi to everybody...I can read everything, but can't write from my phone...drives me crazy (so hard for me to just sit back and say nothing....LOL). I'll be home Tues. night, tho....and will catch up with everybody then. p
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Memorial Park Opening
Yesterday was a happy/sad day for me and my family. In 2006 my cousins son, Shane 6yrs old, starting sleep walking then complaining about headaches that were severe and quick on set and just as quick to disappear. Being an extremely athlethic boy along with Identical twin Zach and older brother Colin, my cousin Mark and…
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Caught the fish, made a link, need help with pic
I would like to use this as a profile pic but my membership page has stumped me on trying to upload it. I figured out how to make a clickable link to the photo of me with a black drum that I caught surfcasting from the beach on Alligator Point. Would appreciate any suggestions on how to convert it to a profile pic. Thanks,…
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Happy Fathers Day
To all the fathers out there, to all the people who have had fathers , I wish you all a very happy Fathers Day. May you all be blessed with many more happy, healthy and loving Fathers Days in the future! Hang tough and God bless!
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Bumbed
Man the salvia glands on the right side started working. Then bam quit will it start back any idea how long until it does .I am so tired of takeing 1 step forward and 2 back . It's been 4 months since I finished treatment. thank you susan
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Good saying....
"Look back in forgiveness, forward in hope, down in compassion and up with gratitude."- Zig Ziglar
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mugard
had ron's oncologist fax in an order for the mugard, they said if insurance wouldnt cover it it would be about $1500 for a months supply! well, was told my insurance wouldnt cover it. so gave up on it. got a call today from mugard rep. they are sending a months supply to rons oncologist in his name, no charge. told me that…
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I'm done
I have decided today to not finish my final 6 treatments. I'm sicker than I've ever been and the weight loss is getting concerning. In order to stop vomiting, I'm drugged constantly. I was given a clear path report back in March after my surgeries and rads were just to be done as a precaution. I physically can not…
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Last radiation treatment today
I've been out of touch for awhile, surviving my treatment, but today I received my last radiation treatment and had them throw the g#*! mask away. I received Amifostene/Ethyol shots throughout and still have good saliva production.....although I can't taste anything. I have bad radiation burn on my neck ....I guess I…
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Motorcycle ride and fish fry on a beautiful day....
What a beautiful day it was! Was able to take the bike out today and drive along the gorgeous lake.....then stopped for a good perch fry! Boy, it's nice to feel normal. Hope everyone was able to enjoy their weekend!! ~C
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No one is invincible to cancer....
I just wanted to say that no one is invincible to cancer.... I came across this story about Steve Perry (ex lead vocalist for the group Journey) and his girlfriend and it just made me cry. I've always been a fan of Steve Perry's and have followed his life. As much good that had come to his life, equally there was as much…
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trout and flounder
Thanks everyone for the good thoughts. Jim's catch today was a flounder and 22 inch trout. Definately lifted his spirits. John, how do I attach a picture? Please explain for dummies:)
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3rd Round of Cisplatin
My husband is being treated for Stage 4a tonsil cancer (HPV - SCC) with 30 rounds of radiation and 3 rounds of Cisplatin (at the beginning, middle and end of the RAD treatments). He finished his last RAD on Wednesday 6/12 and was to have his 3rd round of Cisplatin on Tuesday 6/11 but lab report showed low white cell, red…
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Just checking in
Good morning, I have not posted much at all as still getting settled in from my move from STL to Austin Tx. I'm sitting at the treatment center waiting for my bloodwork to come back so I can hopefully start my second seventy three week dose of Taxotere. I have my next scan coming on June 21 or June 24. 21 is my B Day and…
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Dry mouth
Hey everyone, My dad is going to treatment today and going to mention to the docs that his mouth is starting to feel slightly dry. Is there anything you can recommend that worked for you? I just want to get some ideas that I can mention to dad. He's been staying pretty hydrated so far, but didn't know if there was a tip or…
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Howdy!
Checking in. Tired as hell. Brain won't cooperate. Besides that, I'm peachy keen. Get another scan in 2 months. I'd like to add another NED to the file. hope all is well!
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Tim6003 Update and a few prayers could be used if you all don't mind
Hey All. Sure have missed talking to all of you as well as missed keeping up. I apologize in advance if I have not responded to posts to say I'm thinking about, whispering prayers and what have you. Some of you may not know, I went to Daytona Beach to check on my mother, the visit was 10 days and upon the first day or two…
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I see you / you see me ? photo no show
I tried ... and failed ... to upload a pic to my profile page. I like being able to see a face when reading posts and comments, so thought it only fair to have a profile pic myself. The browse area seemed to find the photo but after I clicked 'save' no photo appeared anywhere on my page. Guess I will have to remain…
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If y'all kick me off of here, I'll understand..
How sick are y'all of my rollercoaster of treatments? I know I am. So, the oncologist that I like (but never get to see) consulted with my oncologist (the older one) and my surgeon. He is concerned about my symptoms and is reevaluating if I should finish. He thinks my body is reacting to the radiation in an almost…
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Ok, Ok, I give...
My surgeon recommended finishing treatment if I can. I've cried all afternoon, but I guess this is what I have to do. How long will they "give me a break" as I can't lay flat without vomiting. I'm rinsing, swishing, taking Mucinex and doing all I can to try and thin this crap out. Frustrated, starving, and very, very…
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update on Jim
Jim saw the oncologist Friday. He said the pain was from pluresy. The ER xray showed less than normal lung function in the left lung. The pain has lessened a lot and doc said Jim doing great considering. What a relief! I was really scared. Thanks for all the prayers and support. Don't know what I would do without this…
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Thanks for information on USAUNA (scam)
I'm sure that a few of you will recall me posting about my uncle trying to push these antioxidant pills on my father not long ago. It was really ticking me off bc he thought they were miracle pills-yet not FDA approved or anything. Thanks to your information about antioxidants and how they replenish cancer cells, along…
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Another First Followup After Treatment
Have my first set of followup appointments this Monday-Wednesday at MD Anderson in Houston. A little anxious about the whole thing but know it is something I need to get used to at least for the next five years of my life. Any advice going into this from those who have gone before... Thanks!
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When was everyone able to start
eating again? If you had a PEG when where you able to start eating real food by mouth again after finishing treatment. Rob is almost 2 weeks out and says he is worse now than 2 weeks ago. Maybe I am just in a rush to get something in his mouth. I have noticed he is not spitting as much, but it is hard for him to talk and…
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Update on dad
Just wanted to take a minute and update everyone on my pops! He has 29 (out of 35) radiation treatments left and 2 chemos left. 29 seems like way too many more for him to go through... it's scary to think about. So far no nausea or any other side effects that I'm aware of. I spoke to him for a minute this morning before I…
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5 Weeks Post Treatment - Need to Transition from Peg
I am now 5 weeks post treatment, and I need to transition from PEG. (7weeks/35 rads, and 7 weeks cisplatin). Lost 35 lbs. Swallowing water fine, Boost can do but tastes like cardboard and towards the end of the bottle induces the vomit reflex. Pretty much the same with the smoothies I made. Applesauce, pudding, everything,…
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trental and scar tissue
my new radiation oncologist just gave me a script for Trental (Pentoxifylline), and instructed taking it with Vitamin E to break up scar tissue in the throat. getting home and looking this stuff up, I started wondering. I don't suffer from the common usages listed: obstructed arteries in the limbs, neuropathy, vascular…