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Just A Little Teary Eyed Today
Hello All, I'm afraid I've been hit with the "What If's" today. I guess it doesn't make sense, but I just keep thinking "What if I had only given permission to remove my hubby's vent, but continue with dialysis & all the meds for infection, heart & diabetes? Would he ever have recovered enough to even fight the cancer, or…
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Diappearing Adam's Apple -- Where did that neck come from???
Friends, Starting to have mild lympdeamia on the neck...any thoughts? Does it eventually find its way further south instead of in the neck region....thanks! Jon
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Peg tube feeding and care info
Have to apologise ,I responded several times to people that the web site for Peg tube info was the Olney Foundation its the Oley Foundation . Sorry for the misinformation
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I met NED again!!
It's been a year since I finished rads, and of course had many scopes and scans but today was a milestone for me. Been kind of worried, as my voice more "iffy" but so far, so good!! The Dr. says no more scans unless something else develops, which kind of worries me but guess with my CA it will show visibly/vocally before…
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JUST CHECKING IN!
I haven't been on here for a while and wanted to check in. I stop by and read up on everyone but just hadn't posted in a while. 10 months out of treatment and am doing pretty well. I will have a cat scan of the head and neck and a chest x-ray on Monday so would appreciate prayers for another NED. Just got back from a 6…
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Radiation Oncologist in Denial
Today I had my 3-year follow-up appointment with my local chemo oncologist and radiation oncologist. They are now seeing me every six months. These folks are different from my local ENT and my Stanford Head/Neck Surgical Oncologist who seem to be doing me a lot more good. I attempted to initiate a conversation with my…
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NED!!
Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients…
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Double rad treatment in one day?
Has anyone had two treatments in one day? They want to double me up tomorrow so I'll be completely DONE! I'm very excited at the possibility of ringing that bell at 3:30pm tomorrow, but nervous about two treatments in one day. They will be almost 8 hours apart. I'm feeling SO much better with the PEG, but this saliva,…
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Magic Mouthwash
I just tried Magic Mouthwash for the first time today and I am disappointed with the results (especially for the price). It is primarily my throat and upper palate that are sore and make it difficult for me to drink things like fruit juice or V8 juice. I have twice used it as directed, gargled with it, swallowed it down…
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What foods could you manage?
Hey everyone, Today was a good day, but also tough one. I met up with my parents at Olive Garden and dad wasn't eating much. I ended up switching him meals bc he could tolerate mine more (Chicken Alfredo). Everything is starting to taste bad to him. I am really really worried about him not eating or not getting enough…
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NED Visited Again
Saw my onco today got the NED results..whew!!!....BUT, seems that my left carotid artery shows 50% blockage, this was the side of the neck with the least rads ..as the WHAT THE XXXX rolled off my lips I said how..she said a gift from radiation, I said tell me how 4 clean PET scans , now a 2nd CT all in the last 18 months…
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Got some good news the hard way
I'm ct young this from my hospital room as I had to check into club med for a couple of days too get IV antibiotics to deal with a self imposed pneumonia. As part of the drill, they sent me for a chest CT with contrast to see where the pneumonia was. Long story short, it also revealed my tumors in my Mediastynum have…
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Missed all of you
Hi guys, I wanted to thank all of you for your sweet words after my father passed away. I can not believe that it has been 1 month since mom and I lost him. He was such a fighter and stayed strong right up to the end. The ER docotrs told us it was pneumonia, but I think he has another stroke and also his cancer had spread…
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Back on track!!
I started back treatments yesterday. Had mine today already....it was NOT easy. The massive amounts of saliva (thick, nasty, evil stuff) has made being flat on the table a challenge. My belly is a little sore still from the PEG so it takes two of them to get me on the table and back off :) Anyway...I'm getting it done. The…
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Wanted to wish all the Dad's Happy Father's Day
Hey everyone ! I'm a bit early with this....but I'll be gone for a few day's. I'll be spending a few day's with my Father Lloyd, who is 80 yrs. young. He has plans for fishing and agate picking with all of us. I know we have tons of Father's on our board, and I wish you all the best day ever. Enjoy the day with your…
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Hello and intraduction..
A month from finding out i have SCC on right tonsil with lymphnodes involved. update day 5 in hospital for prep work. I now have a tracheostomy a port and a peg. Did all as precautions cuz was not breathing at night when sleeping. Going to dr kremple and dr boguardus and dr razoc at the stephenson cancer center. Might have…
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Just Wishing For A Break(Not Cancer Related)
This is not cancer related, but has been another day of extreme sadness for my family and me. We were preparing to go to the cabin to list it with a realtor. My son's dog was all happy & excited as she likes to travel. As she's done a hundred times before, she leaped for the Jeep seat. She lost her grip and fell flat on…
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life is a bowl of cherries !
Got back from my lung re-check today. A little more than mind spun. My lung function has dropped to 27%....10 points in 4 months. In the left lung the noduals have stayed stable (no growth). But the right lung, one node is not behaving as well. Up to 3 cm's. So they sent me home with predinsone and yet another inhaler. I…
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PEG installed-
Hi everyone- I finished the primary Cisplatin and concurrent radiation on May 10th and finally succumbed to PEG on Friday June7th. I started the adjuvant chemotherapy on May 30th and the 5FU tore up my mouth and throat way worse than the Cisplatan or Radiation and the DOCS all agreed the weightloss was too much. I seem to…
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CT Scan Today
Just had my CT scan today , will get the results from my onco when I see her on Wed. While it's not the PET scan I am more confortable with , but there seems no way of fighting with the insurance companies when they deem the PET as medicaly un-necessary..any way 18 months and still counting , life is good, or my new…
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Tomorrow is PEG day
I ended up in the ER getting 4 more hours of IV fluids today (just had 4 hours of them Monday), I had lost 5 lbs since then and the oncologist was beyond concerned. My oncologist (not my fave) is on vacation for 2 weeks so the one I like is seeing me. He sent me right over to the ER and got fluids going and then asked why…
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My Sweetheart has cancer
Hello everyone! I imagine you will be my best friends throughout the next few months. My husband was recently diagnosed with tonsil and lymphnode cancer. We go to Stanford Hospital on Monday to find out the plan for his treatment. We've been told by the referring doctor that he will have surgery and radiaton but we are not…
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Article from Alligatorpointer...."1884 Ulysses S. Grant dx with Throat Cancer"
Hi all......Alligatorpointer shared this article on one of my posts. I wanted others to be sure and read it...very interesting... http://www.thehistorychannelclub.com/articles/articletype/articleview/articleid/136/whats-in-grants-tumor ~C
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Finally a computer!! Not cancer related...
But I MISSED you guys so will take advantage while I'm at my friend's house, to say hi to everybody...I can read everything, but can't write from my phone...drives me crazy (so hard for me to just sit back and say nothing....LOL). I'll be home Tues. night, tho....and will catch up with everybody then. p
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Memorial Park Opening
Yesterday was a happy/sad day for me and my family. In 2006 my cousins son, Shane 6yrs old, starting sleep walking then complaining about headaches that were severe and quick on set and just as quick to disappear. Being an extremely athlethic boy along with Identical twin Zach and older brother Colin, my cousin Mark and…
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Caught the fish, made a link, need help with pic
I would like to use this as a profile pic but my membership page has stumped me on trying to upload it. I figured out how to make a clickable link to the photo of me with a black drum that I caught surfcasting from the beach on Alligator Point. Would appreciate any suggestions on how to convert it to a profile pic. Thanks,…
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Happy Fathers Day
To all the fathers out there, to all the people who have had fathers , I wish you all a very happy Fathers Day. May you all be blessed with many more happy, healthy and loving Fathers Days in the future! Hang tough and God bless!
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Bumbed
Man the salvia glands on the right side started working. Then bam quit will it start back any idea how long until it does .I am so tired of takeing 1 step forward and 2 back . It's been 4 months since I finished treatment. thank you susan
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Good saying....
"Look back in forgiveness, forward in hope, down in compassion and up with gratitude."- Zig Ziglar
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mugard
had ron's oncologist fax in an order for the mugard, they said if insurance wouldnt cover it it would be about $1500 for a months supply! well, was told my insurance wouldnt cover it. so gave up on it. got a call today from mugard rep. they are sending a months supply to rons oncologist in his name, no charge. told me that…