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WBC's Down - 6 mon out of tx
Hi Folks.... Kreg had some routine blood work done that his MD has him do for his heart and we noticed his WBC's were down to 3.1(has low written beside it) and his RBC's at 4.27. Does anyone know if this is normal to have low WBC this 6 months out from tx ending? During tx they did have to give him boosts of neulasta to…
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Biopsy this morning
Hi again, The biopsy went well and my ENT says that he is 95% sure that I am ok accordind to the samples he took. He had told me before the biopsy that he usually knows byt the samples if the tissues are malignant. I am changing jobs and told him that prior, so that if it was bad, I would stay where I am to get the health…
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2nd pet scan tomorrow
Wish me luck team- I am going in for my 2 nd pet scan tomorrow -
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Relapse "AA" style
Hello friends,so far Im Cancer free,for that Im grateful.....I Had stage 3 or 4 Patroid Cancer....it varied WHICH docitor I talked to,first they said 4 then 3 one even saidit was said stage 2!!!...but my problem is im an Alcoholic AND drug addict....when they told me I had Cancer I was coming up on 4 years soberity,going…
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ENT and radiation Onc visit
Yesterday I had my appointment with the ENT at Penn State Hershey Cancer Institute. They first did the videostrobe of my throat, then the doctor came in and we went over it, everything looked great. He felt all around my neck and felt nothing, (the numbness has now gone) he said it has now been four years since treatment,…
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Not what I want to hear...
Everyone following my dad's progress kind of knows where he is. I was talking earlier about him not wanting to eat and that is the biggest obstacle. Now there is talk of a feeding tube. I will probably know more tomorrow, but it is somewhat upsetting to hear that it's still early sort of. I know that most of you say, it's…
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My computer or this site?
Am I the only one who has been fighting getting in here the last 3 days? I tend to blame my computer more often than not, but it's not having problems at any other sites....and....it may be my provider, too.....they've been known to have problems with optic-fiber lines and say nothing nor notify a soul of what's going on. p
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through to the other side
Hi everyone, I haven't posted in a while and wanted to thank you for your support and to report good news about my friend. Although I had no idea about his treatment or care, I learned via the grapevine that he's NED - and I saw him Friday at a work function! We spoke briefly, and then we spoke on the phone later that day.…
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Necrosis
I am looking for information (any) reguarding necrosis of the mandibul. four years after tooth extraction it appears to be on the lower jaw bone. i have not had a problem till now. any information on how they treated it would be helpful. thanks john history.... SCC in neck with 38 rad. treatments, chemo, radical neck…
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I Think I Have Tongue Cancer.
Hello, First some history. My name's Gavin and I'm 35 years old. For about five or six years I've had an area of what I now think is white leukoplakia on the right hand side of my tongue. Because the outline of the leukoplakia is the same as three very sharp, uneven back teeth myself and my dentist have been putting this…
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Cardiologist Visit
No vent about the doc and the tests he has me scheduled for , in fact he was in the room with me less than 10 minutes , his PA spent more time with me than he did... My vent is, and maybe I'm being a little over sensative ; the PA was asking me about the chemo drugs and radiation treatments I had , she the asked what the…
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Sleepless in NY
I go in for my double hernia operation 6 am tomorrow morning. Its been a tough week - gout acted up for the first time in 15 years and I couldn't walk, although they now have a pill that cuts right through all the inflammation and that's almost a done deal. Just a little antsy about going under the knife again.they tell me…
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Survivor checking in at one year mark
I just filled in rollcall and realized exactly one year ago, i finished my radition on june 27th. When i was going thru treatment I really liked to read about feedback from patients who have gone thru same. I am doing really well, here is a update: 1. My energy level is alomost back to what it was before 2. My weight is…
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9 weeks after radiation therapy..
Hello, I've had chemo and 35 sessions of radiotherapy which finished 9 weeks ago, and i am still unable to eat. How long will I have to wait til I'm able to eat food again??? Any advice also for a quicker road to recovery?
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Radiation, DONE
31 radiation sessions later, my husband is done. He was very lucky that he only had to have one side of the neck radiated, so his side effects were very limited. He will go in for a scope in a month, then every 3 months for the next year. I cannot begin to express how much you all helped me ( us) throughout this past 6…
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For those with swallow issues
Hey guys and gals, if you have or had issues and webt through any treatment for Dysphagia, when do you know to try harder things? I am so bored with diet would live some tips! thanks, Rachel
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Feeling taken advantage of
Title says it all. I am tired and not sure how much more I can do. Rob says he is not any better. We are 3 weeks out of treatment. His thrush is still bad. He won't call the docs to tell them. He says "I ahve been on high doses of diflucan and it isn't workin". Okay I look up alternative at home remedies to help. Will he…
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Disability and transition back to work
Hello friends,I live in California,Ive been off work for one year my temp disability has ran out.......my doc says Im ready for work....at times i do feel ready...but most of the time,i dont im recovering from stage 4 Patroid Cancer 33 rounds of radation,and a Eyelid operation,because my left eye would not close...I DRIVE…
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Feedback from radiation done TWICE : (
I am 43 (and a man sorry no profile pic) and have gone through photon radiation at 25 for squamous cell carcinoma of the nasopharynx and then proton therapy for the same cancer at 39. I also went through chemo for hodgkins. I was wondering if anyone has had trouble with your soft pallet. Mine does not work now so I have to…
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Dad's 1st chemo yesterday, rad begins wednesday
Hey everyone, You have all been so supportive so I thought I would update everyone on my dad. He made it through yesterday's treatment okay. After 6 hours no nausea or tiredness. He was out mowing the new land yesterday and today he is doing some errands and working on the new place as well. I know pretty much everyone has…
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Understanding PEG document draft posted
Hello, Thanks for all the lively comment and feedback last week on an early version of the PEG docment. I have reframed the entire view of the content and the new name is Understanding PEG for HNC patients I did my best to integrated the comments yet make the document still have some flow and logical grouping of subject…
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The date is coming and I am getting quite anxious
Hi again to all of you, I am feeling quite anxious as the date of my biopsy is July 2nd. I have to go for pre-op tomorrow and I am so scared they'll find something else. I read the horror stories of finding lung cancer while doing an x-ray for something else. For some reason, this scares the "poop" out of me. My ear pain…
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Been to hospital about tongue...
Well I've just had my appointment. I was seen by two oral surgeons. The first said he couldn't feel anything so went and got his consultant, who had a feel too. He said he COULD feel a lump but said he wasn't worried and told me he thought it was a tonsil. Apparently they increase and decrease in size now and again. He…
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I am new to this site and need advise/support... my dad was recently diagnosed with Squamous Cancer
My dad, Glenn, has never been a smoker or a drinker... he was recently diagnosed with Squamous Cell Cancer. To say the least we were all in a state of shock when he was diagnosed. The location is in his neck and back of the throat. (HPV) He has been in Radiation treatments for three weeks, he has three more weeks to go. He…
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Soon to be
I got the call today from my onco's office...I'm scheduled to be de-PORT-ed on July 5th ...yeah, not that the little beast ever bothered me, it was a godsend during chemo and any labs I had to have, besides you can barely see the bump in my chest, the de-port-ation is another milestone, I count each one as blessing . My…
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Almost a Year from Rad
I guess I am a survivor of Squamis cell on the back of my tongue. I went through surgery Last year May and had a tumor along with 2/3 of my tongue removed. They also removed my limthnodes form left side of my neck. After a couple months of healing I went through 40 rad treatments. The oral mucus got so bad I could not…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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a bit off the subject
Hey everyone, This is not c related, but very near and dear to my heart. Today is my husband's Birthday. He has struggled with diabetes, and related health issues since he was in his 20's. Rolie has been through the ropes seriously....eye surgeries, heart attack, loss of his vision, serious kidney damge. And yet he puts me…
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Ding, ding, ding...I did it! Rads=done
I rang that bell today!! I had two rads (one at 7:15am and one at 3pm) to complete my 30 treatments! I had a really rough time, my body didn't react well to rads and I was an overall mess....but I made it. Y'all have been such an incredible group of people who have encouraged me, given me inspiration and provided me with…
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I met DonFoo yesterday....
FINALLY I met someone from the board who doesn't live in this town (helps that I actually left this town...LOL). I flew out of the Oakland airport, so he came down and we talked and chit chatted....it was fun. The funny part, was we were trying to find one another....by talking on our cell phones....we were only 10 feet…