-
I Think I Have Tongue Cancer.
Hello, First some history. My name's Gavin and I'm 35 years old. For about five or six years I've had an area of what I now think is white leukoplakia on the right hand side of my tongue. Because the outline of the leukoplakia is the same as three very sharp, uneven back teeth myself and my dentist have been putting this…
-
Cardiologist Visit
No vent about the doc and the tests he has me scheduled for , in fact he was in the room with me less than 10 minutes , his PA spent more time with me than he did... My vent is, and maybe I'm being a little over sensative ; the PA was asking me about the chemo drugs and radiation treatments I had , she the asked what the…
-
Sleepless in NY
I go in for my double hernia operation 6 am tomorrow morning. Its been a tough week - gout acted up for the first time in 15 years and I couldn't walk, although they now have a pill that cuts right through all the inflammation and that's almost a done deal. Just a little antsy about going under the knife again.they tell me…
-
Survivor checking in at one year mark
I just filled in rollcall and realized exactly one year ago, i finished my radition on june 27th. When i was going thru treatment I really liked to read about feedback from patients who have gone thru same. I am doing really well, here is a update: 1. My energy level is alomost back to what it was before 2. My weight is…
-
9 weeks after radiation therapy..
Hello, I've had chemo and 35 sessions of radiotherapy which finished 9 weeks ago, and i am still unable to eat. How long will I have to wait til I'm able to eat food again??? Any advice also for a quicker road to recovery?
-
Radiation, DONE
31 radiation sessions later, my husband is done. He was very lucky that he only had to have one side of the neck radiated, so his side effects were very limited. He will go in for a scope in a month, then every 3 months for the next year. I cannot begin to express how much you all helped me ( us) throughout this past 6…
-
For those with swallow issues
Hey guys and gals, if you have or had issues and webt through any treatment for Dysphagia, when do you know to try harder things? I am so bored with diet would live some tips! thanks, Rachel
-
Feeling taken advantage of
Title says it all. I am tired and not sure how much more I can do. Rob says he is not any better. We are 3 weeks out of treatment. His thrush is still bad. He won't call the docs to tell them. He says "I ahve been on high doses of diflucan and it isn't workin". Okay I look up alternative at home remedies to help. Will he…
-
Disability and transition back to work
Hello friends,I live in California,Ive been off work for one year my temp disability has ran out.......my doc says Im ready for work....at times i do feel ready...but most of the time,i dont im recovering from stage 4 Patroid Cancer 33 rounds of radation,and a Eyelid operation,because my left eye would not close...I DRIVE…
-
Feedback from radiation done TWICE : (
I am 43 (and a man sorry no profile pic) and have gone through photon radiation at 25 for squamous cell carcinoma of the nasopharynx and then proton therapy for the same cancer at 39. I also went through chemo for hodgkins. I was wondering if anyone has had trouble with your soft pallet. Mine does not work now so I have to…
-
Dad's 1st chemo yesterday, rad begins wednesday
Hey everyone, You have all been so supportive so I thought I would update everyone on my dad. He made it through yesterday's treatment okay. After 6 hours no nausea or tiredness. He was out mowing the new land yesterday and today he is doing some errands and working on the new place as well. I know pretty much everyone has…
-
Understanding PEG document draft posted
Hello, Thanks for all the lively comment and feedback last week on an early version of the PEG docment. I have reframed the entire view of the content and the new name is Understanding PEG for HNC patients I did my best to integrated the comments yet make the document still have some flow and logical grouping of subject…
-
The date is coming and I am getting quite anxious
Hi again to all of you, I am feeling quite anxious as the date of my biopsy is July 2nd. I have to go for pre-op tomorrow and I am so scared they'll find something else. I read the horror stories of finding lung cancer while doing an x-ray for something else. For some reason, this scares the "poop" out of me. My ear pain…
-
Been to hospital about tongue...
Well I've just had my appointment. I was seen by two oral surgeons. The first said he couldn't feel anything so went and got his consultant, who had a feel too. He said he COULD feel a lump but said he wasn't worried and told me he thought it was a tonsil. Apparently they increase and decrease in size now and again. He…
-
I am new to this site and need advise/support... my dad was recently diagnosed with Squamous Cancer
My dad, Glenn, has never been a smoker or a drinker... he was recently diagnosed with Squamous Cell Cancer. To say the least we were all in a state of shock when he was diagnosed. The location is in his neck and back of the throat. (HPV) He has been in Radiation treatments for three weeks, he has three more weeks to go. He…
-
Soon to be
I got the call today from my onco's office...I'm scheduled to be de-PORT-ed on July 5th ...yeah, not that the little beast ever bothered me, it was a godsend during chemo and any labs I had to have, besides you can barely see the bump in my chest, the de-port-ation is another milestone, I count each one as blessing . My…
-
Almost a Year from Rad
I guess I am a survivor of Squamis cell on the back of my tongue. I went through surgery Last year May and had a tumor along with 2/3 of my tongue removed. They also removed my limthnodes form left side of my neck. After a couple months of healing I went through 40 rad treatments. The oral mucus got so bad I could not…
-
Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
-
a bit off the subject
Hey everyone, This is not c related, but very near and dear to my heart. Today is my husband's Birthday. He has struggled with diabetes, and related health issues since he was in his 20's. Rolie has been through the ropes seriously....eye surgeries, heart attack, loss of his vision, serious kidney damge. And yet he puts me…
-
Ding, ding, ding...I did it! Rads=done
I rang that bell today!! I had two rads (one at 7:15am and one at 3pm) to complete my 30 treatments! I had a really rough time, my body didn't react well to rads and I was an overall mess....but I made it. Y'all have been such an incredible group of people who have encouraged me, given me inspiration and provided me with…
-
I met DonFoo yesterday....
FINALLY I met someone from the board who doesn't live in this town (helps that I actually left this town...LOL). I flew out of the Oakland airport, so he came down and we talked and chit chatted....it was fun. The funny part, was we were trying to find one another....by talking on our cell phones....we were only 10 feet…
-
Just A Little Teary Eyed Today
Hello All, I'm afraid I've been hit with the "What If's" today. I guess it doesn't make sense, but I just keep thinking "What if I had only given permission to remove my hubby's vent, but continue with dialysis & all the meds for infection, heart & diabetes? Would he ever have recovered enough to even fight the cancer, or…
-
Diappearing Adam's Apple -- Where did that neck come from???
Friends, Starting to have mild lympdeamia on the neck...any thoughts? Does it eventually find its way further south instead of in the neck region....thanks! Jon
-
Peg tube feeding and care info
Have to apologise ,I responded several times to people that the web site for Peg tube info was the Olney Foundation its the Oley Foundation . Sorry for the misinformation
-
I met NED again!!
It's been a year since I finished rads, and of course had many scopes and scans but today was a milestone for me. Been kind of worried, as my voice more "iffy" but so far, so good!! The Dr. says no more scans unless something else develops, which kind of worries me but guess with my CA it will show visibly/vocally before…
-
JUST CHECKING IN!
I haven't been on here for a while and wanted to check in. I stop by and read up on everyone but just hadn't posted in a while. 10 months out of treatment and am doing pretty well. I will have a cat scan of the head and neck and a chest x-ray on Monday so would appreciate prayers for another NED. Just got back from a 6…
-
Radiation Oncologist in Denial
Today I had my 3-year follow-up appointment with my local chemo oncologist and radiation oncologist. They are now seeing me every six months. These folks are different from my local ENT and my Stanford Head/Neck Surgical Oncologist who seem to be doing me a lot more good. I attempted to initiate a conversation with my…
-
NED!!
Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients…
-
Double rad treatment in one day?
Has anyone had two treatments in one day? They want to double me up tomorrow so I'll be completely DONE! I'm very excited at the possibility of ringing that bell at 3:30pm tomorrow, but nervous about two treatments in one day. They will be almost 8 hours apart. I'm feeling SO much better with the PEG, but this saliva,…
-
Magic Mouthwash
I just tried Magic Mouthwash for the first time today and I am disappointed with the results (especially for the price). It is primarily my throat and upper palate that are sore and make it difficult for me to drink things like fruit juice or V8 juice. I have twice used it as directed, gargled with it, swallowed it down…