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Understanding PEG document draft posted
Hello, Thanks for all the lively comment and feedback last week on an early version of the PEG docment. I have reframed the entire view of the content and the new name is Understanding PEG for HNC patients I did my best to integrated the comments yet make the document still have some flow and logical grouping of subject…
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The date is coming and I am getting quite anxious
Hi again to all of you, I am feeling quite anxious as the date of my biopsy is July 2nd. I have to go for pre-op tomorrow and I am so scared they'll find something else. I read the horror stories of finding lung cancer while doing an x-ray for something else. For some reason, this scares the "poop" out of me. My ear pain…
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Been to hospital about tongue...
Well I've just had my appointment. I was seen by two oral surgeons. The first said he couldn't feel anything so went and got his consultant, who had a feel too. He said he COULD feel a lump but said he wasn't worried and told me he thought it was a tonsil. Apparently they increase and decrease in size now and again. He…
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I am new to this site and need advise/support... my dad was recently diagnosed with Squamous Cancer
My dad, Glenn, has never been a smoker or a drinker... he was recently diagnosed with Squamous Cell Cancer. To say the least we were all in a state of shock when he was diagnosed. The location is in his neck and back of the throat. (HPV) He has been in Radiation treatments for three weeks, he has three more weeks to go. He…
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Soon to be
I got the call today from my onco's office...I'm scheduled to be de-PORT-ed on July 5th ...yeah, not that the little beast ever bothered me, it was a godsend during chemo and any labs I had to have, besides you can barely see the bump in my chest, the de-port-ation is another milestone, I count each one as blessing . My…
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Almost a Year from Rad
I guess I am a survivor of Squamis cell on the back of my tongue. I went through surgery Last year May and had a tumor along with 2/3 of my tongue removed. They also removed my limthnodes form left side of my neck. After a couple months of healing I went through 40 rad treatments. The oral mucus got so bad I could not…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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a bit off the subject
Hey everyone, This is not c related, but very near and dear to my heart. Today is my husband's Birthday. He has struggled with diabetes, and related health issues since he was in his 20's. Rolie has been through the ropes seriously....eye surgeries, heart attack, loss of his vision, serious kidney damge. And yet he puts me…
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Ding, ding, ding...I did it! Rads=done
I rang that bell today!! I had two rads (one at 7:15am and one at 3pm) to complete my 30 treatments! I had a really rough time, my body didn't react well to rads and I was an overall mess....but I made it. Y'all have been such an incredible group of people who have encouraged me, given me inspiration and provided me with…
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I met DonFoo yesterday....
FINALLY I met someone from the board who doesn't live in this town (helps that I actually left this town...LOL). I flew out of the Oakland airport, so he came down and we talked and chit chatted....it was fun. The funny part, was we were trying to find one another....by talking on our cell phones....we were only 10 feet…
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Just A Little Teary Eyed Today
Hello All, I'm afraid I've been hit with the "What If's" today. I guess it doesn't make sense, but I just keep thinking "What if I had only given permission to remove my hubby's vent, but continue with dialysis & all the meds for infection, heart & diabetes? Would he ever have recovered enough to even fight the cancer, or…
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Diappearing Adam's Apple -- Where did that neck come from???
Friends, Starting to have mild lympdeamia on the neck...any thoughts? Does it eventually find its way further south instead of in the neck region....thanks! Jon
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Peg tube feeding and care info
Have to apologise ,I responded several times to people that the web site for Peg tube info was the Olney Foundation its the Oley Foundation . Sorry for the misinformation
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I met NED again!!
It's been a year since I finished rads, and of course had many scopes and scans but today was a milestone for me. Been kind of worried, as my voice more "iffy" but so far, so good!! The Dr. says no more scans unless something else develops, which kind of worries me but guess with my CA it will show visibly/vocally before…
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JUST CHECKING IN!
I haven't been on here for a while and wanted to check in. I stop by and read up on everyone but just hadn't posted in a while. 10 months out of treatment and am doing pretty well. I will have a cat scan of the head and neck and a chest x-ray on Monday so would appreciate prayers for another NED. Just got back from a 6…
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Radiation Oncologist in Denial
Today I had my 3-year follow-up appointment with my local chemo oncologist and radiation oncologist. They are now seeing me every six months. These folks are different from my local ENT and my Stanford Head/Neck Surgical Oncologist who seem to be doing me a lot more good. I attempted to initiate a conversation with my…
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NED!!
Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients…
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Double rad treatment in one day?
Has anyone had two treatments in one day? They want to double me up tomorrow so I'll be completely DONE! I'm very excited at the possibility of ringing that bell at 3:30pm tomorrow, but nervous about two treatments in one day. They will be almost 8 hours apart. I'm feeling SO much better with the PEG, but this saliva,…
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Magic Mouthwash
I just tried Magic Mouthwash for the first time today and I am disappointed with the results (especially for the price). It is primarily my throat and upper palate that are sore and make it difficult for me to drink things like fruit juice or V8 juice. I have twice used it as directed, gargled with it, swallowed it down…
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What foods could you manage?
Hey everyone, Today was a good day, but also tough one. I met up with my parents at Olive Garden and dad wasn't eating much. I ended up switching him meals bc he could tolerate mine more (Chicken Alfredo). Everything is starting to taste bad to him. I am really really worried about him not eating or not getting enough…
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NED Visited Again
Saw my onco today got the NED results..whew!!!....BUT, seems that my left carotid artery shows 50% blockage, this was the side of the neck with the least rads ..as the WHAT THE XXXX rolled off my lips I said how..she said a gift from radiation, I said tell me how 4 clean PET scans , now a 2nd CT all in the last 18 months…
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Got some good news the hard way
I'm ct young this from my hospital room as I had to check into club med for a couple of days too get IV antibiotics to deal with a self imposed pneumonia. As part of the drill, they sent me for a chest CT with contrast to see where the pneumonia was. Long story short, it also revealed my tumors in my Mediastynum have…
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Missed all of you
Hi guys, I wanted to thank all of you for your sweet words after my father passed away. I can not believe that it has been 1 month since mom and I lost him. He was such a fighter and stayed strong right up to the end. The ER docotrs told us it was pneumonia, but I think he has another stroke and also his cancer had spread…
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Back on track!!
I started back treatments yesterday. Had mine today already....it was NOT easy. The massive amounts of saliva (thick, nasty, evil stuff) has made being flat on the table a challenge. My belly is a little sore still from the PEG so it takes two of them to get me on the table and back off :) Anyway...I'm getting it done. The…
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Wanted to wish all the Dad's Happy Father's Day
Hey everyone ! I'm a bit early with this....but I'll be gone for a few day's. I'll be spending a few day's with my Father Lloyd, who is 80 yrs. young. He has plans for fishing and agate picking with all of us. I know we have tons of Father's on our board, and I wish you all the best day ever. Enjoy the day with your…
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Hello and intraduction..
A month from finding out i have SCC on right tonsil with lymphnodes involved. update day 5 in hospital for prep work. I now have a tracheostomy a port and a peg. Did all as precautions cuz was not breathing at night when sleeping. Going to dr kremple and dr boguardus and dr razoc at the stephenson cancer center. Might have…
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Just Wishing For A Break(Not Cancer Related)
This is not cancer related, but has been another day of extreme sadness for my family and me. We were preparing to go to the cabin to list it with a realtor. My son's dog was all happy & excited as she likes to travel. As she's done a hundred times before, she leaped for the Jeep seat. She lost her grip and fell flat on…
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life is a bowl of cherries !
Got back from my lung re-check today. A little more than mind spun. My lung function has dropped to 27%....10 points in 4 months. In the left lung the noduals have stayed stable (no growth). But the right lung, one node is not behaving as well. Up to 3 cm's. So they sent me home with predinsone and yet another inhaler. I…
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PEG installed-
Hi everyone- I finished the primary Cisplatin and concurrent radiation on May 10th and finally succumbed to PEG on Friday June7th. I started the adjuvant chemotherapy on May 30th and the 5FU tore up my mouth and throat way worse than the Cisplatan or Radiation and the DOCS all agreed the weightloss was too much. I seem to…
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CT Scan Today
Just had my CT scan today , will get the results from my onco when I see her on Wed. While it's not the PET scan I am more confortable with , but there seems no way of fighting with the insurance companies when they deem the PET as medicaly un-necessary..any way 18 months and still counting , life is good, or my new…