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Esophagus Pain Question(s)
Hi all, sorry I have not be on here more, but was on a vacation away from Internet and phone. Nice to do but a little scary when I don’t have contact. I developed yesterday a sharp pain in my esophagus when swallowing. It is mostly in the lower part by what I guess is where it connects to my stomach. It is also painful in…
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Pain Pain and More Pain
9 weeks post treatment (chemo and radiation), you would think things would be better. 2nd bout with thrush. Into the 9th day of the 14 days of treatment for it. Swallowing is painful, whether it is water, or food--painful. Could the thrush be the culprit? Mouth looks clear and has been clear since day 3 of the thrush…
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Husband gets PET results tomorrow 12 weeks post treatment. ANXIOUS!
Husband was diagnosed 2/2013 with right tonsil cancer, T1N2a, HPV positive. Underwent concurrent chemo and rads. 2 rounds of Cisplatin and 35 rads. 6 weeks post tx had a CT scan of neck and chest. Lymph node was decreased in size, but still present. Had PET last Thursday (12 weeks post tx) and gets results tomorrow. I know…
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Ned yay
I have been out of commission with a horrible virus- fever - sweats and sleeping all day llong . But my 2 nd pet scan was NED. Thanks for the prayers. The doc has me on strong antibiotics and cough medicine. I can't swallow most foods so I am back to soups and ensure , then on top of it all I have been having a horrible…
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Vivian
Hello My Friends, I am still lurking in the shadows, silently cheering each of you forward. The days are long and the nights are longer, but I am still putting one foot in front of the other. My son has decided to sell his place and he & my grandson will be moving in with me later this year. I know he's putting his life…
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Today's News (not about me)
I struggled for a while with the subject for this post since I didn't want anyone to think it was about me. My dad called today to say that my mom collapsed and is in the hospital. They thought it was a stroke at first but it's actually a brain tumor. They can't do a biopsy for a couple days until the swelling goes down--…
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Ensure-Better Price??
I was wondering, with such high prices for cases of ensure, does anyone know where my dad can find it cheaper or maybe some kind of program that gives people who have cancer discounts for ensure? With all of the medical bills piling up that would be one less thing for him to worry about.
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First Gig Post Tx
Hi Folks, I'll be posting this and hitting the shower to get ready for my first gig post treatment. It's a wedding I booked last year for a lovely couple I met while performing on the Skyline Drive at Skyland resort. I hired a violinist to perform with me. Fortunately, this gig doesn't require vocals and is instrumental…
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My taste buds are trying SO hard
To come back to me!! I'm 3 weeks out of treatment (can't believe it's been that long already!) and I wouldn't say I could totally TASTE things but its getting close. It's more like the taste is trying to come through a bad taste in my mouth. Weird description but that's what it's like for me. Eggs, French toast, green…
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has anyones cancer spread to mesentery nodes?
Hello everyone. I do not post a lot however I do read everyday. My mom has a histroy of tonsil/tongue cancer since 2010, she had total of 3 surgeries including 2 neck dissections, 1 on each side. On the last PET scan which was in January she was all clear on the head and neck part (last surgey on 3/1/2012) so it's now been…
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Time to stir the pot - Why all the fanboys for canned sugar?
I see post after post where advice is given to drink that Ensure and Jevity and all other variations of carbo sugar crap, sprinkled with a few vitamins and minerals. Is it people choose this path or are just not aware of the far better benefits of a protein based drink? This is not rocket science by any stretch of the…
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ENT on thursday
Hey everyone ! Have another three month check up with the H/N guy. No scans that I'm aware of until Nov. But hee-hee we all know this can change up on us in a blink of an eye. So I'm assumming scoped....the good old once over with the lump checking....and I swear if he gives me that (what I call the long face) again I may…
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Neck Dissection
Hello all, My husband’s 3 month pat scan came positive and both ENT and oncologist suggested Neck Dissection surgery. I have read about it here but not sure how it's worked and ENT was also talking about removing neck muscles and I am not sure if I am comfortable with that. Any suggestions and experience would be helpful.…
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GreenD ~ Another Fallen Warrior..
I have been trying to get a hold of GreenD (Denny Green) on here, and through emails for awhile... I had messaged him a few times on FaceBook... But you know how it is, you get busy, time passes and you forget. This afternoon I decided to dig a little deeper, looking down his pages, and noticed on his wifes page that Denny…
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Dad in surgery NOW, getting PEG
Just wondering if everyone could keep dad and my family in your prayers. Dad went in this morning to get PEG. Wish I was there, but had to be at work :( . I took off yesterday though so I could drive him to radiation and glad I did bc he's not feeling great. I can tell he's miserable so I hope this PEG really helps. Anyone…
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Debbie Downers and Negative Nellies...
Whew..I have encountered some very bitter, negative and downright depressing people lately. I've been easing back into working half days (with my handy dandy spit bag in hand) and of course have gotten some attention from people who did not know I'd had surgery, treatment or cancer in general. Here are a few of my…
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Single Digits
Hi everyone. My brother finished his last double digit radiation tx today! Yay, he is into single digits. So far he has lost about 35 lbs, has one mouth ulcer, lost the hair in the back of his neck, needs to use his tube and had to spend one day in the hospital because of constipation (not fun), but other than that, I…
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How long will this pain last??
I am 3 weeks post chemo and radiation. The pain when I swallow is excrutiating, so I use my G-Tube for nutrition. I swallow little bits of water or tea, but that's all I am willing to do for now. I rarely take my tylenol 3 for pain, because I don't like the way I feel on the meds, and it constipates me. I do feel less pain…
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test post - ignore
having incredible time with the site, being blocked from responding to my own posts but ok with others. Oh well
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tobegolden
rick, i'm hoping u get on to read and just haven't posted. just wanted to say we miss u being on here. i hope u r feeling ok. u r always n my thots and prayers. take care my friend. dj
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Help
Hi all, I have been lurking/learning for the past 5 weeks. The stories and information here have been a huge help. My wife is in week 5 of 7 of her treatments SSC IVA BOT (chemo once a week and reds mon. thru fri. weekly). Here is where I need help, she will only make a token effort at taking in nutrition (her ENT rec. a…
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Preexisting condition?
Hi All, My husband is contemplating a new job offer. He is 7 months out of treatment and so far, cancer free. He has really good life insurance that we got through his current employer before his tonsil cancer diagnosis. If we switch companies, he will have to get new life insurance I assume. So...here's my…
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Skiffin16 ~ Presence or Lack Of...
Hi all, just wanted to let you know that I'm alive and OK... It's just been a rough week or two personally... My sister Colleen that many of you have known has her own battles going on with cancer..., isn't doing so well. She went to a hospice a few days ago, last Dx with more than likely having only a few months left. But…
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Today I Celebrate
It’s sobering how we can go through such an ordeal and come out the other side with war wounds we thought unimaginable prior to our battle allowing us to call ourselves survivors. The people on the staged TV series don’t have a clue in the true meaning of becoming a survivor. Two months prior to being told I had cancer I…
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Pain after biopsy
As you all know, I had a biopsy on July 2nd. The ENT to pieces of my lfet and right lingual tonsils. I still feel some throat and ear pain on the right side. How long should it hurt after the biopsy ? This scares me, because I keep thinking that he awoke the beast and now it's running wild in my throat and ear. Thanks for…
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Prayers Requested
Today the city of Prescott , AZ lost 19 hot shot firefighters , high winds reversed the direction of the fire and blew over them. May God bless their souls , and bring comfort to their families during this difficult time.
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Slept through the night!
This may not be as exciting to anyone but y'all who truly understand. I slept through the night the last two nights in a row. 7 straight, solid hours of sleep. I've been waking up every 2 hours to gag/choke/rinse and spit. But, these last two nights I slept right on through and the gagfest once I got up wasn't too bad. I…
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Suggestions for reducing mucus?
Hubby is 8 weeks post-treatment and improving. However, the mconstant still constant (although changing in viscosity and taste), so he can't tolerate taking anything but water by mouth. Not on pain meds, so only issue is mucus. he is using NutraSal constantly plus Mucinex twice daily. Any suggestions for anything else that…
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NED!!
NED!! CAT SCAN IS CLEAR! Dr. says everything looks great. Will have another one in 6 months. Saw both the Radiation Oncologist and the Medical Oncologist today and they were both very pleased with how I am doing. Going out to eat soon with a few of the friends who stood beside me and cheered me on thru out this journey. I…
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my daddy has passes
26 March 2013 1710 my beloved Daddy has passed away. He will be missed. I love u Daddy.