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isn't cancer until they say it is
Jim has a place on his lip that has to looked at immediately. I can only say 1) I am not a doctor but 2) it looks suspiciously like the some of the things we have been warned to watch for. Asking for prayers. *And I don't know about anyone else but I can't adjust the font size today.
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HELP..doctors change their opinion about second time radiation??
Both doctors change their opinion about second time radiation?? So both of my husband’s doctors are suggesting to see some one at university for any clinical trials if there is any. My husband story: Diagnosed with stage 4 hpv originate head and neck cancer 36 radiation treatments done/ high does for Chemo done and after 3…
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This is such a roller coaster ride...
We went on a wonderful vacation last week to the beach. Just me, my hubby and two kids. It was a great family time and a break that we all needed so badly! I healed SO much in the week we were there. I started eating real food, cut my tube feedings down to just one a day and eating real meals, all my spitting…
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billie
i haven't seen billie post 4 some time, has anyone heard from her? dj
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PET Scan Tommorrow
I head for the Hospital at the University of Pennsylvania tomorrow morning at 6:00 AM for a PET scan. They are now eight months apart so the anxiety isn’t nearly as bad as the first one or two but because I am heading to the beach for a week Saturday, I will call them before my appointment with the surgeon scheduled the…
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SUPERTHREAD Read only ~ Contributed by SweetBlood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send me a private message (PM) if you have something you think should be included here.…
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Finally an end to dad's trtment in sight!
Hey everyone, I haven't been on too much lately, one because I've had problems logging on and two because I've been with dad a lot and helping mom n dad. I've been going over and sanitizing a lot cuz mom was sick so we didn't want dad exposed to that! He seems to be a little more positive now that he is getting…
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hyper taste?, etc.
Hi all, Just wraqpping up three weeks post from a very non-typical cancer survivor. From all I read and planned was that 3 weeks out I was expecting the effects of rads just starting to back off. All the other reported side effects such as mucous, soreness, pain, etc. would also be sprinkled around. I have no idea why I am…
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Talia Castellano, 13 year old face of CoverGirl
gained her angel wings today. Prayers to her family. This warrior fought cancer for over 5 years! My heart is so sad to hear this... http://www.today.com/news/cancer-stricken-covergirl-talia-castellano-dies-13-6C10651620
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How long does sore throat last?
For anyone who underwent radiation treatment for tonsil or base of tongue cancer, how long did your throat remain sore after treatment?
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Sugar & Spice
& everything nice....thst's what little girls are made of! We found out today that we are having another little girl! We have chosen the name Cora Jayne. Cora means life. Jayne means God is gracious. I feel like her name is fitting following my battle with cancer last year. We are so excited about welcoming her into our…
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Checking In
Wanted to check in with everyone. Hope everyone is doing well and trying to enjoy their summer Rob is now 5 weeks out of treatment and doing real good. Still tires but not as easily, hardly napping anymore. Mouth has healed real well. Maintaning his weight and maybe gaining a few. Back on solid foods and can taste some,…
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99.9 % official
Wow !! I am speachless and shaking like a leaf. i called my ENT's office this morning to see if I can have my resluts. The secretary told me that she would look at my file to see if they are in and if the results are ok she would call me back. She just did and all she said was " Chantal, I am confirming that we will still…
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Dad has bubbling blisters
When I saw dad yesterday he had quite a few bubbling blisters that were yellowish (almost a greenish) in color around the side of his neck where its being radiated. It alarmed me, he's using some type of skin repair cream the doc gave him even though it's not prescription. Anyone have any suggestions of things that may…
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2nd round of radiation and Chemo IN same year
2nd round of radiation and Chemo After my husband’s Neck Dissection surgery the pathology report showed more cancer cell and his oncologist of radiation suggested doing more radiation and chemo. I am trying to find if anyone has this kind of second round of radiation and chemo treatment? Thanks for your help and…
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Problem posting on CSN lately? Try this
I was having trouble posting here and got a tip from John that might help others. Do NOT click the smiley button. I know you all just want to make everyone feel good by seeing those little yellow round faces but DO NOT do that. LOL Honestly, as soon as I just posted plain text, my posting issues were a thing of the past.…
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NeutraSal to help stimulate saliva?
Has anyone used this product? My doctor started me on this for the stated purpose of helping to stimulate my own natural saliva. I have been using it twice daily since my treatment ended, but so far I do not notice any improvement. If you have used it, have you benefited from it? How many times per day, and for how long,…
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rons progress
been a tough ride so far first week was a tough one, mondays are long days starting with rads then labs and oncology appt and radiologist appt then 4 hours of chemo. first chemo was hell, fatigue set in immediately and was very tough week. second week was slightly better but by tuesday pm hit the wall of fatigue and…
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PEG tube question
I'm not having any trouble with my PEG except for the tape rash. It's really the most comfortable when I have it taped upward...near my bra. Hanging free or tucked into my waistband is very uncomfortable, so I've been taping. I bought the kind that isn't supposed to irritate your skin. Well, I have nasty tape rash and…
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First Anniversary
It is hard to think that it has been one full year since I rang the bell at the end of rads! I recall how bad I felt, how much pain, the nasty skin burns, the loss of saliva, no sense of taste, fatigue and the overall crappy feeling and now it is amazing to see how good I feel! I am back to work full time, saliva is about…
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Esophagus Pain Question(s)
Hi all, sorry I have not be on here more, but was on a vacation away from Internet and phone. Nice to do but a little scary when I don’t have contact. I developed yesterday a sharp pain in my esophagus when swallowing. It is mostly in the lower part by what I guess is where it connects to my stomach. It is also painful in…
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Pain Pain and More Pain
9 weeks post treatment (chemo and radiation), you would think things would be better. 2nd bout with thrush. Into the 9th day of the 14 days of treatment for it. Swallowing is painful, whether it is water, or food--painful. Could the thrush be the culprit? Mouth looks clear and has been clear since day 3 of the thrush…
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Husband gets PET results tomorrow 12 weeks post treatment. ANXIOUS!
Husband was diagnosed 2/2013 with right tonsil cancer, T1N2a, HPV positive. Underwent concurrent chemo and rads. 2 rounds of Cisplatin and 35 rads. 6 weeks post tx had a CT scan of neck and chest. Lymph node was decreased in size, but still present. Had PET last Thursday (12 weeks post tx) and gets results tomorrow. I know…
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Ned yay
I have been out of commission with a horrible virus- fever - sweats and sleeping all day llong . But my 2 nd pet scan was NED. Thanks for the prayers. The doc has me on strong antibiotics and cough medicine. I can't swallow most foods so I am back to soups and ensure , then on top of it all I have been having a horrible…
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Vivian
Hello My Friends, I am still lurking in the shadows, silently cheering each of you forward. The days are long and the nights are longer, but I am still putting one foot in front of the other. My son has decided to sell his place and he & my grandson will be moving in with me later this year. I know he's putting his life…
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Today's News (not about me)
I struggled for a while with the subject for this post since I didn't want anyone to think it was about me. My dad called today to say that my mom collapsed and is in the hospital. They thought it was a stroke at first but it's actually a brain tumor. They can't do a biopsy for a couple days until the swelling goes down--…
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Ensure-Better Price??
I was wondering, with such high prices for cases of ensure, does anyone know where my dad can find it cheaper or maybe some kind of program that gives people who have cancer discounts for ensure? With all of the medical bills piling up that would be one less thing for him to worry about.
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First Gig Post Tx
Hi Folks, I'll be posting this and hitting the shower to get ready for my first gig post treatment. It's a wedding I booked last year for a lovely couple I met while performing on the Skyline Drive at Skyland resort. I hired a violinist to perform with me. Fortunately, this gig doesn't require vocals and is instrumental…
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My taste buds are trying SO hard
To come back to me!! I'm 3 weeks out of treatment (can't believe it's been that long already!) and I wouldn't say I could totally TASTE things but its getting close. It's more like the taste is trying to come through a bad taste in my mouth. Weird description but that's what it's like for me. Eggs, French toast, green…
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has anyones cancer spread to mesentery nodes?
Hello everyone. I do not post a lot however I do read everyday. My mom has a histroy of tonsil/tongue cancer since 2010, she had total of 3 surgeries including 2 neck dissections, 1 on each side. On the last PET scan which was in January she was all clear on the head and neck part (last surgey on 3/1/2012) so it's now been…