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C and me
Got home at 5 this afternoon, had been to Penn State hershey to get results of a biopsy I had on my prostate 3 weeks. Doc said that in two of the 12 needle biopsy cores there was a couple of cancer cells in each one. he went on to state that this not uncommon in most men my age and then gave me options. Do nothing and keep…
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day 1, 2hours in.
Ok here goes. Starting my first day of chemo with 3 types. Cisplatin, taxotere and 5fu. Looks like a long day in the chair with wonderful wife by my side im ready I think. just a little Nervous for the most part. Tony
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Office Visit Tongue Biopsy
Went to my 3 month appt expecting NED but getting a tongue biopsy instead. It was my first visit without my wife as she had to stay home with our daughter who wasn't feeling well. As soon as my doc started pokling around in my mouth I knew he saw something he didn't like. A small little legion was visible on the lower left…
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Feeling good
I just want to tell everyone that might be starting on this journey or just finishing treatment that I will be 7 months out of treatment in a few weeks and that I am finally starting get my taste back and my life is finally beginning to get back to normal('whatever that means) so hang in there and listen to your doctors…
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PapaPaul's journey continues
Hi everyone! Again I need to apologize for not posting is such a long time. I have been checking in (almost) daily, however just haven’t taken the time to do any posting…Please forgive my laziness! Tomorrow (Monday) will be 15 weeks post treatment! I wish I could say that it went ok, but there were some setbacks and issues…
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Chemo option left up to us - 1 week to decide
Hi everyone. My dad was diagnosed with SCC Stage 4 T1N2bM0 back on June 3rd. He had surgery to remove what they thought was a benign cyst. Come to find out it was cancerous, the primary was in the tonsil and it had spread to 3 lymph nodes. His margins were clear and there was no extracapsular spread. We are definitely…
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Delayed Onset Neuropathy?
I'm 9 weeks post Tx. two weeks ago I started getting nerve pain in my upper body from my head to my chest and arms. It's as if my skin is over sensitive, much the way my neck felt for weeks after my selective neck dissection. Touching my skin is painful but not in a deep tissue way. It's more like painful over-stimulation…
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Hi Everybody .....sure do miss you all ..UPDATED ENT Visit
Hello all .... I know this may sound corny ..but I sure do miss "yapping" and seeing all your posts. I so wish I could get caught up. UPDATE: As many of you know, I have mom in my care right now trying to figure out where to go and what to do for her detiorated state of mind (moderate dementia is the word the neurologist…
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Papapauls news
Hi All! just a quick note to share my good news! I had my first post tx PET scan yesterday and today met with my ROC. The report............No Evidence of Disease!!!!!! Yep, after 15 weeks, I finally got to meet NED officially. ROC says everythings looks great and that the report was one of the best he could give. I won't…
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Dad is a little over half done
Just wanted to thank everyone again for all your advice and support (from me and my family). The past few weeks have been rough, but we are trying to hang in there as best as we can! As of today, dad has 16 (out of 35) rads left and 1 chemo here in a few weeks to complete. Oddly enough he was feeling a little better this…
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WBC's Down - 6 mon out of tx
Hi Folks.... Kreg had some routine blood work done that his MD has him do for his heart and we noticed his WBC's were down to 3.1(has low written beside it) and his RBC's at 4.27. Does anyone know if this is normal to have low WBC this 6 months out from tx ending? During tx they did have to give him boosts of neulasta to…
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Biopsy this morning
Hi again, The biopsy went well and my ENT says that he is 95% sure that I am ok accordind to the samples he took. He had told me before the biopsy that he usually knows byt the samples if the tissues are malignant. I am changing jobs and told him that prior, so that if it was bad, I would stay where I am to get the health…
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2nd pet scan tomorrow
Wish me luck team- I am going in for my 2 nd pet scan tomorrow -
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Relapse "AA" style
Hello friends,so far Im Cancer free,for that Im grateful.....I Had stage 3 or 4 Patroid Cancer....it varied WHICH docitor I talked to,first they said 4 then 3 one even saidit was said stage 2!!!...but my problem is im an Alcoholic AND drug addict....when they told me I had Cancer I was coming up on 4 years soberity,going…
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ENT and radiation Onc visit
Yesterday I had my appointment with the ENT at Penn State Hershey Cancer Institute. They first did the videostrobe of my throat, then the doctor came in and we went over it, everything looked great. He felt all around my neck and felt nothing, (the numbness has now gone) he said it has now been four years since treatment,…
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Not what I want to hear...
Everyone following my dad's progress kind of knows where he is. I was talking earlier about him not wanting to eat and that is the biggest obstacle. Now there is talk of a feeding tube. I will probably know more tomorrow, but it is somewhat upsetting to hear that it's still early sort of. I know that most of you say, it's…
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My computer or this site?
Am I the only one who has been fighting getting in here the last 3 days? I tend to blame my computer more often than not, but it's not having problems at any other sites....and....it may be my provider, too.....they've been known to have problems with optic-fiber lines and say nothing nor notify a soul of what's going on. p
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through to the other side
Hi everyone, I haven't posted in a while and wanted to thank you for your support and to report good news about my friend. Although I had no idea about his treatment or care, I learned via the grapevine that he's NED - and I saw him Friday at a work function! We spoke briefly, and then we spoke on the phone later that day.…
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Necrosis
I am looking for information (any) reguarding necrosis of the mandibul. four years after tooth extraction it appears to be on the lower jaw bone. i have not had a problem till now. any information on how they treated it would be helpful. thanks john history.... SCC in neck with 38 rad. treatments, chemo, radical neck…
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I Think I Have Tongue Cancer.
Hello, First some history. My name's Gavin and I'm 35 years old. For about five or six years I've had an area of what I now think is white leukoplakia on the right hand side of my tongue. Because the outline of the leukoplakia is the same as three very sharp, uneven back teeth myself and my dentist have been putting this…
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Cardiologist Visit
No vent about the doc and the tests he has me scheduled for , in fact he was in the room with me less than 10 minutes , his PA spent more time with me than he did... My vent is, and maybe I'm being a little over sensative ; the PA was asking me about the chemo drugs and radiation treatments I had , she the asked what the…
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Sleepless in NY
I go in for my double hernia operation 6 am tomorrow morning. Its been a tough week - gout acted up for the first time in 15 years and I couldn't walk, although they now have a pill that cuts right through all the inflammation and that's almost a done deal. Just a little antsy about going under the knife again.they tell me…
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Survivor checking in at one year mark
I just filled in rollcall and realized exactly one year ago, i finished my radition on june 27th. When i was going thru treatment I really liked to read about feedback from patients who have gone thru same. I am doing really well, here is a update: 1. My energy level is alomost back to what it was before 2. My weight is…
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9 weeks after radiation therapy..
Hello, I've had chemo and 35 sessions of radiotherapy which finished 9 weeks ago, and i am still unable to eat. How long will I have to wait til I'm able to eat food again??? Any advice also for a quicker road to recovery?
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Radiation, DONE
31 radiation sessions later, my husband is done. He was very lucky that he only had to have one side of the neck radiated, so his side effects were very limited. He will go in for a scope in a month, then every 3 months for the next year. I cannot begin to express how much you all helped me ( us) throughout this past 6…
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For those with swallow issues
Hey guys and gals, if you have or had issues and webt through any treatment for Dysphagia, when do you know to try harder things? I am so bored with diet would live some tips! thanks, Rachel
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Feeling taken advantage of
Title says it all. I am tired and not sure how much more I can do. Rob says he is not any better. We are 3 weeks out of treatment. His thrush is still bad. He won't call the docs to tell them. He says "I ahve been on high doses of diflucan and it isn't workin". Okay I look up alternative at home remedies to help. Will he…
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Disability and transition back to work
Hello friends,I live in California,Ive been off work for one year my temp disability has ran out.......my doc says Im ready for work....at times i do feel ready...but most of the time,i dont im recovering from stage 4 Patroid Cancer 33 rounds of radation,and a Eyelid operation,because my left eye would not close...I DRIVE…
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Feedback from radiation done TWICE : (
I am 43 (and a man sorry no profile pic) and have gone through photon radiation at 25 for squamous cell carcinoma of the nasopharynx and then proton therapy for the same cancer at 39. I also went through chemo for hodgkins. I was wondering if anyone has had trouble with your soft pallet. Mine does not work now so I have to…
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Dad's 1st chemo yesterday, rad begins wednesday
Hey everyone, You have all been so supportive so I thought I would update everyone on my dad. He made it through yesterday's treatment okay. After 6 hours no nausea or tiredness. He was out mowing the new land yesterday and today he is doing some errands and working on the new place as well. I know pretty much everyone has…