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Time to stir the pot - Why all the fanboys for canned sugar?
I see post after post where advice is given to drink that Ensure and Jevity and all other variations of carbo sugar crap, sprinkled with a few vitamins and minerals. Is it people choose this path or are just not aware of the far better benefits of a protein based drink? This is not rocket science by any stretch of the…
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ENT on thursday
Hey everyone ! Have another three month check up with the H/N guy. No scans that I'm aware of until Nov. But hee-hee we all know this can change up on us in a blink of an eye. So I'm assumming scoped....the good old once over with the lump checking....and I swear if he gives me that (what I call the long face) again I may…
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Neck Dissection
Hello all, My husband’s 3 month pat scan came positive and both ENT and oncologist suggested Neck Dissection surgery. I have read about it here but not sure how it's worked and ENT was also talking about removing neck muscles and I am not sure if I am comfortable with that. Any suggestions and experience would be helpful.…
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GreenD ~ Another Fallen Warrior..
I have been trying to get a hold of GreenD (Denny Green) on here, and through emails for awhile... I had messaged him a few times on FaceBook... But you know how it is, you get busy, time passes and you forget. This afternoon I decided to dig a little deeper, looking down his pages, and noticed on his wifes page that Denny…
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Dad in surgery NOW, getting PEG
Just wondering if everyone could keep dad and my family in your prayers. Dad went in this morning to get PEG. Wish I was there, but had to be at work :( . I took off yesterday though so I could drive him to radiation and glad I did bc he's not feeling great. I can tell he's miserable so I hope this PEG really helps. Anyone…
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Debbie Downers and Negative Nellies...
Whew..I have encountered some very bitter, negative and downright depressing people lately. I've been easing back into working half days (with my handy dandy spit bag in hand) and of course have gotten some attention from people who did not know I'd had surgery, treatment or cancer in general. Here are a few of my…
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Single Digits
Hi everyone. My brother finished his last double digit radiation tx today! Yay, he is into single digits. So far he has lost about 35 lbs, has one mouth ulcer, lost the hair in the back of his neck, needs to use his tube and had to spend one day in the hospital because of constipation (not fun), but other than that, I…
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How long will this pain last??
I am 3 weeks post chemo and radiation. The pain when I swallow is excrutiating, so I use my G-Tube for nutrition. I swallow little bits of water or tea, but that's all I am willing to do for now. I rarely take my tylenol 3 for pain, because I don't like the way I feel on the meds, and it constipates me. I do feel less pain…
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test post - ignore
having incredible time with the site, being blocked from responding to my own posts but ok with others. Oh well
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tobegolden
rick, i'm hoping u get on to read and just haven't posted. just wanted to say we miss u being on here. i hope u r feeling ok. u r always n my thots and prayers. take care my friend. dj
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Help
Hi all, I have been lurking/learning for the past 5 weeks. The stories and information here have been a huge help. My wife is in week 5 of 7 of her treatments SSC IVA BOT (chemo once a week and reds mon. thru fri. weekly). Here is where I need help, she will only make a token effort at taking in nutrition (her ENT rec. a…
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Preexisting condition?
Hi All, My husband is contemplating a new job offer. He is 7 months out of treatment and so far, cancer free. He has really good life insurance that we got through his current employer before his tonsil cancer diagnosis. If we switch companies, he will have to get new life insurance I assume. So...here's my…
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Skiffin16 ~ Presence or Lack Of...
Hi all, just wanted to let you know that I'm alive and OK... It's just been a rough week or two personally... My sister Colleen that many of you have known has her own battles going on with cancer..., isn't doing so well. She went to a hospice a few days ago, last Dx with more than likely having only a few months left. But…
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Today I Celebrate
It’s sobering how we can go through such an ordeal and come out the other side with war wounds we thought unimaginable prior to our battle allowing us to call ourselves survivors. The people on the staged TV series don’t have a clue in the true meaning of becoming a survivor. Two months prior to being told I had cancer I…
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Pain after biopsy
As you all know, I had a biopsy on July 2nd. The ENT to pieces of my lfet and right lingual tonsils. I still feel some throat and ear pain on the right side. How long should it hurt after the biopsy ? This scares me, because I keep thinking that he awoke the beast and now it's running wild in my throat and ear. Thanks for…
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Prayers Requested
Today the city of Prescott , AZ lost 19 hot shot firefighters , high winds reversed the direction of the fire and blew over them. May God bless their souls , and bring comfort to their families during this difficult time.
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Slept through the night!
This may not be as exciting to anyone but y'all who truly understand. I slept through the night the last two nights in a row. 7 straight, solid hours of sleep. I've been waking up every 2 hours to gag/choke/rinse and spit. But, these last two nights I slept right on through and the gagfest once I got up wasn't too bad. I…
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Suggestions for reducing mucus?
Hubby is 8 weeks post-treatment and improving. However, the mconstant still constant (although changing in viscosity and taste), so he can't tolerate taking anything but water by mouth. Not on pain meds, so only issue is mucus. he is using NutraSal constantly plus Mucinex twice daily. Any suggestions for anything else that…
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NED!!
NED!! CAT SCAN IS CLEAR! Dr. says everything looks great. Will have another one in 6 months. Saw both the Radiation Oncologist and the Medical Oncologist today and they were both very pleased with how I am doing. Going out to eat soon with a few of the friends who stood beside me and cheered me on thru out this journey. I…
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my daddy has passes
26 March 2013 1710 my beloved Daddy has passed away. He will be missed. I love u Daddy.
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C and me
Got home at 5 this afternoon, had been to Penn State hershey to get results of a biopsy I had on my prostate 3 weeks. Doc said that in two of the 12 needle biopsy cores there was a couple of cancer cells in each one. he went on to state that this not uncommon in most men my age and then gave me options. Do nothing and keep…
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day 1, 2hours in.
Ok here goes. Starting my first day of chemo with 3 types. Cisplatin, taxotere and 5fu. Looks like a long day in the chair with wonderful wife by my side im ready I think. just a little Nervous for the most part. Tony
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Office Visit Tongue Biopsy
Went to my 3 month appt expecting NED but getting a tongue biopsy instead. It was my first visit without my wife as she had to stay home with our daughter who wasn't feeling well. As soon as my doc started pokling around in my mouth I knew he saw something he didn't like. A small little legion was visible on the lower left…
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Feeling good
I just want to tell everyone that might be starting on this journey or just finishing treatment that I will be 7 months out of treatment in a few weeks and that I am finally starting get my taste back and my life is finally beginning to get back to normal('whatever that means) so hang in there and listen to your doctors…
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PapaPaul's journey continues
Hi everyone! Again I need to apologize for not posting is such a long time. I have been checking in (almost) daily, however just haven’t taken the time to do any posting…Please forgive my laziness! Tomorrow (Monday) will be 15 weeks post treatment! I wish I could say that it went ok, but there were some setbacks and issues…
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Chemo option left up to us - 1 week to decide
Hi everyone. My dad was diagnosed with SCC Stage 4 T1N2bM0 back on June 3rd. He had surgery to remove what they thought was a benign cyst. Come to find out it was cancerous, the primary was in the tonsil and it had spread to 3 lymph nodes. His margins were clear and there was no extracapsular spread. We are definitely…
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Delayed Onset Neuropathy?
I'm 9 weeks post Tx. two weeks ago I started getting nerve pain in my upper body from my head to my chest and arms. It's as if my skin is over sensitive, much the way my neck felt for weeks after my selective neck dissection. Touching my skin is painful but not in a deep tissue way. It's more like painful over-stimulation…
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Hi Everybody .....sure do miss you all ..UPDATED ENT Visit
Hello all .... I know this may sound corny ..but I sure do miss "yapping" and seeing all your posts. I so wish I could get caught up. UPDATE: As many of you know, I have mom in my care right now trying to figure out where to go and what to do for her detiorated state of mind (moderate dementia is the word the neurologist…
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Papapauls news
Hi All! just a quick note to share my good news! I had my first post tx PET scan yesterday and today met with my ROC. The report............No Evidence of Disease!!!!!! Yep, after 15 weeks, I finally got to meet NED officially. ROC says everythings looks great and that the report was one of the best he could give. I won't…
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Dad is a little over half done
Just wanted to thank everyone again for all your advice and support (from me and my family). The past few weeks have been rough, but we are trying to hang in there as best as we can! As of today, dad has 16 (out of 35) rads left and 1 chemo here in a few weeks to complete. Oddly enough he was feeling a little better this…