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Tomorrow
The day has finally arrived, after a delay by the hospital , I'm going to be "de-ported"...yeah!!!! Arthroscopic knee surgery last Friday now the port..my new abi-normal life still moving forward. Linda
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new discussion board announcement
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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peg question
Can you control how slow your peg takes in liquid. Tonite mom used the dial on it to open, then put syringe of ensure in the tube and let it drop in without plunger part. Seemed a lil fast. Is this typical? Dad felt a lil sick afterward but I'm guessing it's bc nothings been in his stomach for weeks. Any tips to make…
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post-treatment update
I haven't posted since about half-way through my treatment of stage 3 laryngeal cancer. My 35 days of radiation and concurrent chemo ended June 7. After a couple of weeks of post-treatment hell I'm on the way to feeling well. I'm back to work full time and other than a little pain and a raspy voice I'm doing pretty well.…
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Just want to say thanks, Skiffin!!
Thank you John. I don't know what you said or how you did it, but moving around this site has not been this easy since I have been coming around. I was about to stop checking in because it was so bad. Let's hope it stays this way. You are the bomb, and your efforts are truly appreciated! I don't think anyone says "you are…
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Few Days in Ohio...
Just thought I'd throw this out there.... I'm flying in to Columbus this Thursday evening, driving up to Mansfield, flying out Sunday morning... I know there are a few on the board that are around that area... If by chances you have a few minutes, and wouldn't mind killing them for a Starbucks or just a meet, I'm in...…
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Not cancer
Hi all, Just came back from Dr. Office and it is not cancer. I told him what happened with his secretary and he got really upset. He then proceeded to show me my medical file and it was written "Call Ms Nadeau on July 6th (when my results came in) and tell her she has no cancer and that I want to see her in 4 weeks for a…
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Frustrated
I really thought by now I would be doing great but I'm not . My saliva glands were working then quit was starting to eat getting back to being me then bam quit working no saliva for 3 weeks now the dry mouth is horrible I have tried it all all I can do is sip water all the time. Can't eat or talk have not been out of those…
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Site Access
Fingers crossed..... I've been sending all of your screen comments, error messages, time outs, connection failures and everything else trying to get the message across that the site is very limited. That it's dying a slow painful death.... As of last night I know a lot of additional changes have been made... Fingers…
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SuperThread Updates...
It's not gone..., LOL, just misplaced... You all don't think I wouldn't have a copy do you... I just have to fix a few of the links on the one I have and do a little updating, but I have it. I spoke with Greta, and she's aware that it's MIA... Once I get the few things fixed I'll post it again and she can pin it. But while…
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isn't cancer until they say it is
Jim has a place on his lip that has to looked at immediately. I can only say 1) I am not a doctor but 2) it looks suspiciously like the some of the things we have been warned to watch for. Asking for prayers. *And I don't know about anyone else but I can't adjust the font size today.
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HELP..doctors change their opinion about second time radiation??
Both doctors change their opinion about second time radiation?? So both of my husband’s doctors are suggesting to see some one at university for any clinical trials if there is any. My husband story: Diagnosed with stage 4 hpv originate head and neck cancer 36 radiation treatments done/ high does for Chemo done and after 3…
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This is such a roller coaster ride...
We went on a wonderful vacation last week to the beach. Just me, my hubby and two kids. It was a great family time and a break that we all needed so badly! I healed SO much in the week we were there. I started eating real food, cut my tube feedings down to just one a day and eating real meals, all my spitting…
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billie
i haven't seen billie post 4 some time, has anyone heard from her? dj
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PET Scan Tommorrow
I head for the Hospital at the University of Pennsylvania tomorrow morning at 6:00 AM for a PET scan. They are now eight months apart so the anxiety isn’t nearly as bad as the first one or two but because I am heading to the beach for a week Saturday, I will call them before my appointment with the surgeon scheduled the…
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SUPERTHREAD Read only ~ Contributed by SweetBlood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send me a private message (PM) if you have something you think should be included here.…
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Finally an end to dad's trtment in sight!
Hey everyone, I haven't been on too much lately, one because I've had problems logging on and two because I've been with dad a lot and helping mom n dad. I've been going over and sanitizing a lot cuz mom was sick so we didn't want dad exposed to that! He seems to be a little more positive now that he is getting…
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hyper taste?, etc.
Hi all, Just wraqpping up three weeks post from a very non-typical cancer survivor. From all I read and planned was that 3 weeks out I was expecting the effects of rads just starting to back off. All the other reported side effects such as mucous, soreness, pain, etc. would also be sprinkled around. I have no idea why I am…
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Talia Castellano, 13 year old face of CoverGirl
gained her angel wings today. Prayers to her family. This warrior fought cancer for over 5 years! My heart is so sad to hear this... http://www.today.com/news/cancer-stricken-covergirl-talia-castellano-dies-13-6C10651620
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How long does sore throat last?
For anyone who underwent radiation treatment for tonsil or base of tongue cancer, how long did your throat remain sore after treatment?
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Sugar & Spice
& everything nice....thst's what little girls are made of! We found out today that we are having another little girl! We have chosen the name Cora Jayne. Cora means life. Jayne means God is gracious. I feel like her name is fitting following my battle with cancer last year. We are so excited about welcoming her into our…
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Checking In
Wanted to check in with everyone. Hope everyone is doing well and trying to enjoy their summer Rob is now 5 weeks out of treatment and doing real good. Still tires but not as easily, hardly napping anymore. Mouth has healed real well. Maintaning his weight and maybe gaining a few. Back on solid foods and can taste some,…
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99.9 % official
Wow !! I am speachless and shaking like a leaf. i called my ENT's office this morning to see if I can have my resluts. The secretary told me that she would look at my file to see if they are in and if the results are ok she would call me back. She just did and all she said was " Chantal, I am confirming that we will still…
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Dad has bubbling blisters
When I saw dad yesterday he had quite a few bubbling blisters that were yellowish (almost a greenish) in color around the side of his neck where its being radiated. It alarmed me, he's using some type of skin repair cream the doc gave him even though it's not prescription. Anyone have any suggestions of things that may…
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2nd round of radiation and Chemo IN same year
2nd round of radiation and Chemo After my husband’s Neck Dissection surgery the pathology report showed more cancer cell and his oncologist of radiation suggested doing more radiation and chemo. I am trying to find if anyone has this kind of second round of radiation and chemo treatment? Thanks for your help and…
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Problem posting on CSN lately? Try this
I was having trouble posting here and got a tip from John that might help others. Do NOT click the smiley button. I know you all just want to make everyone feel good by seeing those little yellow round faces but DO NOT do that. LOL Honestly, as soon as I just posted plain text, my posting issues were a thing of the past.…
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NeutraSal to help stimulate saliva?
Has anyone used this product? My doctor started me on this for the stated purpose of helping to stimulate my own natural saliva. I have been using it twice daily since my treatment ended, but so far I do not notice any improvement. If you have used it, have you benefited from it? How many times per day, and for how long,…
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rons progress
been a tough ride so far first week was a tough one, mondays are long days starting with rads then labs and oncology appt and radiologist appt then 4 hours of chemo. first chemo was hell, fatigue set in immediately and was very tough week. second week was slightly better but by tuesday pm hit the wall of fatigue and…
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PEG tube question
I'm not having any trouble with my PEG except for the tape rash. It's really the most comfortable when I have it taped upward...near my bra. Hanging free or tucked into my waistband is very uncomfortable, so I've been taping. I bought the kind that isn't supposed to irritate your skin. Well, I have nasty tape rash and…
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First Anniversary
It is hard to think that it has been one full year since I rang the bell at the end of rads! I recall how bad I felt, how much pain, the nasty skin burns, the loss of saliva, no sense of taste, fatigue and the overall crappy feeling and now it is amazing to see how good I feel! I am back to work full time, saliva is about…