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they say morbid and radical surgery
This is a first post for me - I have squamous cell - cheek , nose, lip with nerve involvement . Their primary course of action would remove my nose (half missing already), my cheek bone because the CA is following nerve, hopefully not my eye ( "see when we get in there"), and my upper lip. This followed by radiation. I…
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throat dilation
i will b getting my throat dilated next week. for the first time it will b done in the office w/o any medicine. i've always been asleep when this was done. has anyone had it done in the office? does it hurt? how long after does ur throat hurt? i've had so much pain from different things in this past year that anything that…
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I need your help! (not cancer related)
So as some of you may know... dad's only has one day left of treatment after today. His birthday is Friday- the day after ending treatment. He keeps telling me "nah, don't get me nothing...I don't want you to," etc... I need your help. I'm having troubles trying to figure out something special he can enjoy right now. He…
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Side effects from Eribtux and Carboplatin
My mom is starting this new chemo tomorrow and the doctor told her she could get a rash from one of these drugs. I am wondering if anyone that has taken these chemo drugs experienced any side effects? she is very nervous due to the last chemo combo ended with her in the hospital for 16 days. My mother has SCC of pharynx…
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HELP Please -Different protocol from different doctor at University of Chicago.
Hello, Different protocol from different doctor at University of Chicago. We just got back from doctor at university of Chicago. He is not happy that my husband has to do second round of radiation and chemo. Per him my husband will have following treatment. One week twice a day radiation and chemo with 3 different…
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side effect question
I am going to see my ENT on tuesday but i figured you guys know more anyway so i am going to throw it out here. Question: i think i have thrush but i am not sure. i am not showing the familiar white spots on my tongue, however anytime i drink anything with bubles like soda or a beer or anything with a high level of acidity…
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Checking IN
Good Morning CSN Buds! Well, it's finally here! I'm 60 today! Checks start next month. I did get approved for the hamp program for my house which is a big plus! Starting celebrating last nite as went to free concert on the square with some friends and will be going to dinner with them tonite to celebrate. Then, tomorrow…
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NED
Had my 1 year 8 month scope and checkup today, my Dr is quite happy with my progress. He told me usually if a reoccurance of the cancer ,I HAD , is going to happen, it's in the first 2 years. So, the next 4 months is going to be the biggie. Of course, he also added, that a declaration of clear of cancer doesn't come until…
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Follow up with surgeon this morning
Woohoo!! Got my final path report...NEGATIVE for residual cancer cells! Check ups every 3 months done by EENT and dentist. No scans needed unless something during the physical exam concerns them. Everything is healing very nicely. I still have PEGgy as the surgeon didn't order it, he couldn't remove it. He did say to go to…
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Tim
Tim popped into my thoughts tonight, hoping he's making progress on His Mom's care . He is such a great. gentle Christian man~~pray all is well
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How to deal with insurance for 3rd opinion??
After week long emotional roller-coaster ride and when you see all hope and faith is fading away. Well we are thinking to get 3rd opinion at M. D. Anderson Cancer Center in TX. The question for all of you is you have experience dealing with insurance on this is… How we can get approval from insurance to get out of network…
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All is Well
Ruben is approx. 6 weeks out from completing 35 rads with concurrent 3 rounds of Cisplatin, and is doing amazingly well per his medical team. Throughout the treatment, when asked how things are going, Ruben's response was almost always "All is well". He kept the faith, even in the darkest hours. For those of you who are…
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I CAN TALK!!!
on 2/28/12 i had a complete laryngectomy for cancer of the larynx, stage 3 (i had 35 rad trmnts in sept./oct., 09, this was a recurrence). since the surgery, i've tried several devices to make me talk. one was a sticky thing that stuck to my neck around the stoma. trouble was they never lasted more than 10 minutes b/c i…
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Is return of taste associated with return of saliva?
Has anyone who has gotten their taste back early gotten most or all of their saliva back? My taste is largely back at just 4 weeks out from treatment, but I still have dry mouth. But I'm wondering since I have a lot of taste back so soon if I can also expect to get all or most of my saliva back as well? My doctor said…
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A touching story....
http://www.wnem.com/story/22913077/father-daughter-dance-for-dying-dad Came across this story on our local news website. It is of a father dx with pancreatic cancer and his daughter who wants to fulfill a dream. They are from CA. Very touching. Thought I'd share it. ~C
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Magic Mouthwash and Taste Buds
I was in to see my doctor yesterday for a 4-week follow-up (everything looks good, by the way) and wanted to pass on something she told me about Magic Mouthwash. If you use it before eating it may dull the taste buds (temporarily, not permanently). I found this to be true; I was using it before eating to make eating more…
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Drinking wine post treatment?
Hi everyone. I'm 16 days out from treatment and doing very well. Some taste has even started to come back. I wanted to know if anyone is able to drink wine or enjoy it post treatment? I am a gourmet cook and used to really enjoy wine with dinner. I'm afraid now I will never be able to again. I don't mean do you have…
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week 7 for ron
halfway thru week 7 with ron so far so good. 7 chemos done , 1 to go , and 7 left of 39 rads. he has done very well, wednesdays and thursdays are tough, nausea doesnt seem to be curbed much with any med they have tried. no taste but knows to eat to survive. does still eat soft foods. cant get him to touch the ensure…
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Photo Posting 101
You first save the photo you want on your DeskTop or some where you can find it... and then; 1. Click the small Tree Icon from the Menu Bar under Comment: 2. This opens a box - Insert/Edit Image 3. Click the small file box icon to the right of - General URL 4. That opens a box called - File Browser 5. Click - Upload 6. A…
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Hi, this is my first post.
I was diagnosed on May 9, 2013 with Squamous Carcinoma of the left tonsil pillar. I started treatment on June 19th and I have had 12 of the prescribed 35 radiation treatments so far. No chemo as the pathologist said mine was in the very early stages. So far I can eat but it’s a job. I eat soft stuff like cream of wheat…
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Been gone for a while
Sorry about being out but have been back to work and am eating just about what I want to now (whew).I have been on from time to time reading your post.Just wanted to say hello to all still out there and to thank all those that have helped me through this fight.Will be getting my(12 week) pet scan tommorow and will learn of…
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Heading into the wilderness
For two nights and three days....Greg and I won the trip at an auction for our injured horse shoer a couple months ago. Nice little cabin, no phones, no wireless, no internet....but horses and river rides....fishing and spectacular scenery all via the raft or atop one of the horses. They do have electricity, tho...thank…
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Popping in to say hello
Just wanted to pop in to say hello to some friends. Clear
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2 in a row!
Clean PET/CT scans that is! It's a new record for me. Not bad for stage 4 NPC with mets to bone. Now if only the Giants would start winning some games. Wishing you all the joy and freedom that I'm feeling today, AB
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Man have I been gone..
Hey everyone, I have been off the board for sometime. Just wanted to pop in and see how everyone's doing. My husband is offshore working, he is doing well. His mouth, teeth, gums and tongue are a complete mess. The doc tried to cut back his pain meds and my husband tried, but he could not eat. His teeth, gums and togue…
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cant gain weight
it took me 7 months to gain 10 lbs. after my hernia operation i got sick for a week and lost it all. i just had my first double quarter pounder with cheese and fries and a coke since last year when all this crap began. i drink 3 ensures a day, bagel and cream cheese for breakfast and usually a good dinner. i cant figure it…
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Narcotic Withdrawal
I've been on some kind of pain killer since last December with my 1st tonsillectomy. I went off briefly and right back on after my 2nd surgery in February and then third surgery less than two weeks later. I started treatment and have been on them since. Oxycododone, Oxycontin, Hydrocodone and most recently Lyrica and…
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My Brother Has Rung The Bell!!
Well, it has been a long 7 weeks, but my brother has finally finished with his treatments. He is doing pretty well, I guess. He spent one day in the hospital because of severe constipation (not fun), this neck has blistered and is dealing with the typical sores in his mouth. His attitude is still great, however, and he is…
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Clean and Green
Hi All Had the PET Scan Thursday morning and asked them when I could call the doc to get the results and they told me he would have them in a few hours but I should wait until yesterday. I dashed from that area of the hospital to the coffee shop next door for my long awaited coffee. I had to rid my mind of the scanxiety so…
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Interesting Study from England
20 July 2013 Last updated at 19:22 ET HPV virus 'linked to third of throat cancer cases' There are more than 100 types of HPV One third of people diagnosed with throat cancer are infected with a form of the HPV virus, a study suggests. HPV (human papilloma virus) is the major cause of cervical cancer, and the virus is…