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    • Head and Neck Cancer

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    Head and Neck Cancer

     

    Discussion List

    • User: "Tim6003"

      A Down Day After Treatments - My Story for the many newbies on here

      NOTE: This story is shared not to depress but to ensure others who may have to take this path that even though you have days such as this, there is light at the end of the tunnel. For me personally I …
      14 views
      8 comments
      0 point
      Started by Tim6003
      Most recent by TracyLynn72
      Head and Neck Cancer
    • User: "peggylulu"

      Rachel ?

      Just wondering and hoping that Rachel is ok . I haven't seen her on here in a good while . Has anyone heard from her or talked to her ?
      6 views
      7 comments
      0 point
      Started by peggylulu
      Most recent by Duggie88
      Head and Neck Cancer
    • User: "mrbmx70"

      phlegm

      It's been almost a month post rads & chemo and the phlegm is still here and now it is much thicker and very hard to get rid of. Seems to be more so in my nasal area now and seems to be getting darker …
      6 views
      6 comments
      0 point
      Started by mrbmx70
      Most recent by Tim6003
      Head and Neck Cancer
    • User: "jim and i"

      matastic

      Jim has recently statrted experiencing pain and wakness in left hip when standing after sitting. Does anyone know if this could be a sign that the cancer has spread to the bone? The pain in his left l…
      177 views
      18 comments
      0 point
      Started by jim and i
      Most recent by Tim6003
      Head and Neck Cancer
    • User: "denistd"

      Fanconi's anemia

      For those of you that weren't around when Dawn (sweetblood) was a major factor on this board. A fantastic lady and true soldier. Dawn had something called fanconi's anemia, I had never heard of it pre…
      16 views
      7 comments
      0 point
      Started by denistd
      Most recent by peggylulu
      Head and Neck Cancer
    • User: "Nascarchristy"

      Question about radiation therapy after surgey timeframe

      Hi I have a question regarding the treatment window for radiation therapy and chemo after surgery. My husbad has Squamous cell carcinoma of his right tonsil that spread to his lymph nodes on the same …
      27 views
      13 comments
      0 point
      Started by Nascarchristy
      Most recent by Nascarchristy
      Head and Neck Cancer
    • User: "Molly'sMom"

      Oxygen device for prone sleepers?

      Hubby is in the dry mouth stage post-treatment and is unable to sleep. He resists all my suggestions that he needs to sleep in a recliner or with numerous pillows, claiming he just can't sleep upright…
      38 views
      9 comments
      0 point
      Started by Molly'sMom
      Most recent by fishmanpa
      Head and Neck Cancer
    • User: "fishmanpa"

      Statistics

      There have been some fantastic NED reports as well as some very sobering recurrances on the boards lately. There are thousands of members that read/lurk and only a very small percentage that post. Eve…
      88 views
      18 comments
      0 point
      Started by fishmanpa
      Most recent by Ruben and Jude
      Head and Neck Cancer
    • User: "alligatorpointer"

      concern about mouthwash

      I am one of the caregivers who posts occasionally on this forum. I have not had any radiation damage to my mouth and teeth like many of you. However, I wanted to make you aware of something that I dis…
      3 views
      3 comments
      0 point
      Started by alligatorpointer
      Most recent by Ladylacy
      Head and Neck Cancer
    • User: "boardwalkgirl"

      1 year later

      As of tomorrow I will have been out of treatment for 1 year so according to my Dr. as he calculates it I am a 1 year survivor!!! I thank God every day for that and for letting me find all of you last …
      17 views
      9 comments
      0 point
      Started by boardwalkgirl
      Most recent by VanessaSLO
      Head and Neck Cancer
    • User: "catfish_58"

      Roll Call

      I was just browsing and came across something they called roll call,i was just wondering where you might sign up for that,plus where is it posted.Thanks for any info
      16 views
      8 comments
      0 point
      Started by catfish_58
      Most recent by HAWVET
      Head and Neck Cancer
    • User: "katenorwood"

      Thank you !

      I wanted to update my previous post. First of all.....the abinormal....pstd, or whatever we each call it sometimes rears it's ugly head where we need to step back and re-evaluate where we are at in li…
      2 views
      11 comments
      0 point
      Started by katenorwood
      Most recent by patricke
      Head and Neck Cancer
    • User: "dlygoblue"

      Radiation Retinopathy

      Hi, I’m 2 yr post-treatment for Esthesioneuroblastoma and now suffering radiation retinopathy (slight blindness in eye caused by fluid/blood in retina area due to radiation). Retina specialists are re…
      2 views
      3 comments
      0 point
      Started by dlygoblue
      Most recent by alligatorpointer
      Head and Neck Cancer
    • User: "Roar"

      I learned something new

      I went to my ENT yesterday complaining about Thrush and sure enough that is what it was. I told the ENT I was sick a few weeks ago and my Doctor prescribed antibiotics. ENT told me that once you recei…
      31 views
      20 comments
      0 point
      Started by Roar
      Most recent by peggylulu
      Head and Neck Cancer
    • User: "sin9775"

      A Lot of Happy/Sad Posts of Late

      My children and grandchildren have been here from Oh. I have been reading with great interest/happiness/sadness all of the posts that have been put up the last few days but have not had the time to po…
      14 views
      6 comments
      0 point
      Started by sin9775
      Most recent by TracyLynn72
      Head and Neck Cancer
    • User: "GavinP"

      Dysplasia Treatment Successful

      Hi all, Just to let you know everything went well at my post op appointment at hospital yesterday. The biopsy's they did after the laser treatment came back "moderate dysplasia" so no worse than the o…
      13 views
      9 comments
      0 point
      Started by GavinP
      Most recent by GavinP
      Head and Neck Cancer
    • User: "robswife87"

      PEG gone

      Another step in the right direction. Rob got the PEG pulled on Wednesday. Said it burned like HELL for about a minute. He worked up a real good sweat. Walked hunched to the car and was great by evenin…
      46 views
      19 comments
      0 point
      Started by robswife87
      Most recent by Ruben and Jude
      Head and Neck Cancer
    • User: "janetluvsron"

      Ron is done with treatments as of today!!!!!!!!!!!!!

      RON FINISHED RADS TODAY!!!!!!!!!!!!!!!!!!!!!!!!! YEAH!!!!!!!!!!!!!!!! long tough road but he got thru it without a peg and one mouth sore. he has lost 35 pounds and looks ragged. terrible fatigue, sti…
      67 views
      28 comments
      0 point
      Started by janetluvsron
      Most recent by janetluvsron
      Head and Neck Cancer
    • User: "sin9775"

      Pretty Scared Here

      Hi All. Here's the deal, as many of you know, my brother, who is 54, just finished up his cancer tx. I would love to put down exactly what he is being treated for, but also as many of you know, my bro…
      59 views
      15 comments
      0 point
      Started by sin9775
      Most recent by donfoo
      Head and Neck Cancer
    • User: "Hummingbird3"

      Questions about mouth sores during head and neck radiation

      Hi, 7 weeks out from surgery. This is the third regrowth in 7 years. The first two removals were done thinking it was a cyst. The second pathology showed it was a pleomorphic adenoma on the parotid gl…
      54 views
      9 comments
      0 point
      Started by Hummingbird3
      Most recent by TracyLynn72
      Head and Neck Cancer
    • User: "robswife87"

      Mugard

      We have at least 3 full unopned bottles of Mugard. Can we give this to someone here whose insurance won't pay for it? 
      21 views
      6 comments
      0 point
      Started by robswife87
      Most recent by robswife87
      Head and Neck Cancer
    • User: "CherieLW"

      Question/Request

      I have heard quite a few people say this on here... that things will never be the same once treatment is over. It may sound silly to ask, but what is it that never is the same again? Is it emotionally…
      23 views
      17 comments
      0 point
      Started by CherieLW
      Most recent by jcortney
      Head and Neck Cancer
    • User: "katenorwood"

      Feeling lost

      Feeling a bit lost and unsure. It's been 19 months since my dx of adcc. Many of you know it's been kind of a wild, uncharted ride I've been on. I did a relatively dumb thing...cancelling my ENT appoin…
      41 views
      21 comments
      0 point
      Started by katenorwood
      Most recent by patricke
      Head and Neck Cancer
    • User: "Roar"

      inspirational quote of the day

      i read these inspirational quotes every day and every once in while it hits home - so here is todays Once you start recognizing the truth of your story, finish the story. It happened but you're still …
      12 views
      5 comments
      0 point
      Started by Roar
      Most recent by boardwalkgirl
      Head and Neck Cancer
    • User: "CherieLW"

      Dad's treatment DONE

      Hi Everyone, Dad had his last radiation treatment a few hours ago. Now I hope everything goes well and things start looking up. I know you all have said these next few months he may still be miserable…
      72 views
      34 comments
      0 point
      Started by CherieLW
      Most recent by debbiejeanne
      Head and Neck Cancer
    • User: "CherieLW"

      Scared- please read

      I know that I may be a little out of line here since I myself was not diagnosed with cancer. However, about a month ago my dad was diagnosed with a "highly treatable" cancer in his sinus cavity and th…
      216 views
      65 comments
      0 point
      Started by CherieLW
      Most recent by CherieLW
      Head and Neck Cancer
    • User: "Tim6003"

      Tim6003 Hello CSN family

      Hello to my online family. Man do I miss chatting you all up! I'm hoping to get back on and post more often pretty soon. Mom is officially now in an assisted living facility. I won't pretend she is ha…
      23 views
      17 comments
      0 point
      Started by Tim6003
      Most recent by CherieLW
      Head and Neck Cancer
    • User: "catfish_58"

      NED is the word

      Went in for my results on the pet scan and was told by my doctor that I'm NED .He also stated that I wouldn't have to have another pet scan.I asked if that where true and that i thought i would have t…
      13 views
      7 comments
      0 point
      Started by catfish_58
      Most recent by debbiejeanne
      Head and Neck Cancer
    • User: "Grandmax4"

      enough is enough

      Since my surgery in November 2011, I have put on so much weight I can't stand it! I lost 50 lbs right after surgery, feeding tube, etc, but now, I find myself at the highest weight I've ever been, eve…
      12 views
      7 comments
      0 point
      Started by Grandmax4
      Most recent by fishmanpa
      Head and Neck Cancer
    • User: "jthornsbury"

      FNA Biopsy Negative

      It would appear that the FNA on my slighly enlarged node was necrotic and there were no viable cancer cells...so they canceled the selective neck dissection and said see you in six weeks for my post t…
      13 views
      7 comments
      0 point
      Started by jthornsbury
      Most recent by VanessaSLO
      Head and Neck Cancer
     

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