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Head and Neck Cancer

A Down Day After Treatments - My Story for the many newbies on here
NOTE: This story is shared not to depress but to ensure others who may have to take this path that even though you have days such as this, there is light at the end of the tunnel. For me personally I could not have made it without my Lord's comfort and hope that there is a reason for all I was going through, and in the end…
Rachel ?
Just wondering and hoping that Rachel is ok . I haven't seen her on here in a good while . Has anyone heard from her or talked to her ?
phlegm
It's been almost a month post rads & chemo and the phlegm is still here and now it is much thicker and very hard to get rid of. Seems to be more so in my nasal area now and seems to be getting darker yellow in color. Has anyone experienced this? Is it normal? Should I be getting a hold of my doctor? Thanks Tony
matastic
Jim has recently statrted experiencing pain and wakness in left hip when standing after sitting. Does anyone know if this could be a sign that the cancer has spread to the bone? The pain in his left lung has intensified as well. His energy is gewtting less as well. On the plus side, his weight has finally reached normal.…
Fanconi's anemia
For those of you that weren't around when Dawn (sweetblood) was a major factor on this board. A fantastic lady and true soldier. Dawn had something called fanconi's anemia, I had never heard of it pre C. Well Dawn had fanconi's and developed head and neck cancer, people with Fanconi's nearly always develop cancer, I…
Question about radiation therapy after surgey timeframe
Hi I have a question regarding the treatment window for radiation therapy and chemo after surgery. My husbad has Squamous cell carcinoma of his right tonsil that spread to his lymph nodes on the same side, removal of both tonsils and radical neck disection on June 12th. They removed about 30 lymph nodes from his neck only…
Oxygen device for prone sleepers?
Hubby is in the dry mouth stage post-treatment and is unable to sleep. He resists all my suggestions that he needs to sleep in a recliner or with numerous pillows, claiming he just can't sleep upright. Urggggh. Of course, he is dozing in his chair right now, but that is not the deep sleep he needs. When he goes to bed,…
Statistics
There have been some fantastic NED reports as well as some very sobering recurrances on the boards lately. There are thousands of members that read/lurk and only a very small percentage that post. Even at that, we see the positives and the negatives of our disease manifest itself in so many ways. From the patient's…
concern about mouthwash
I am one of the caregivers who posts occasionally on this forum. I have not had any radiation damage to my mouth and teeth like many of you. However, I wanted to make you aware of something that I discovered about a certain mouthwash that might be even more of a problem for oral cancer patients. I called my son (who had…
1 year later
As of tomorrow I will have been out of treatment for 1 year so according to my Dr. as he calculates it I am a 1 year survivor!!! I thank God every day for that and for letting me find all of you last year when I was beginning this journey. I learned so much and got so much inspiration from all of you and I can never thank…
Roll Call
I was just browsing and came across something they called roll call,i was just wondering where you might sign up for that,plus where is it posted.Thanks for any info
Thank you !
I wanted to update my previous post. First of all.....the abinormal....pstd, or whatever we each call it sometimes rears it's ugly head where we need to step back and re-evaluate where we are at in life. I recently reached out for some extra help through my county....not hospice....but kind of a transitioning between. Here…
Radiation Retinopathy
Hi, I’m 2 yr post-treatment for Esthesioneuroblastoma and now suffering radiation retinopathy (slight blindness in eye caused by fluid/blood in retina area due to radiation). Retina specialists are recommending steroid shots (yes…in the eye), and wondering how any of you have dealt with this. Thanks.
I learned something new
I went to my ENT yesterday complaining about Thrush and sure enough that is what it was. I told the ENT I was sick a few weeks ago and my Doctor prescribed antibiotics. ENT told me that once you receive radiation to the head and neck we will always be exposed to the possibility of getting thrush whenever you take…
A Lot of Happy/Sad Posts of Late
My children and grandchildren have been here from Oh. I have been reading with great interest/happiness/sadness all of the posts that have been put up the last few days but have not had the time to post myself. Everyone is off doing their own thing now and I get the privilege to stay home and watch my six year old Autisic…
Dysplasia Treatment Successful
Hi all, Just to let you know everything went well at my post op appointment at hospital yesterday. The biopsy's they did after the laser treatment came back "moderate dysplasia" so no worse than the origonal biopsy - No evidence of carcinoma-in-situ - So the final and definative verdict is that I didn't have cancer . They…
PEG gone
Another step in the right direction. Rob got the PEG pulled on Wednesday. Said it burned like HELL for about a minute. He worked up a real good sweat. Walked hunched to the car and was great by evening. Outside pretty muched closed as of today. I wasn't there for it, absolutely thrilled it is gone. He is off all meds…
Ron is done with treatments as of today!!!!!!!!!!!!!
RON FINISHED RADS TODAY!!!!!!!!!!!!!!!!!!!!!!!!! YEAH!!!!!!!!!!!!!!!! long tough road but he got thru it without a peg and one mouth sore. he has lost 35 pounds and looks ragged. terrible fatigue, still having nausea from mondays chemo, which was his last. now he waits, and rests. THANK YOU ALL who have helped with advice…
Pretty Scared Here
Hi All. Here's the deal, as many of you know, my brother, who is 54, just finished up his cancer tx. I would love to put down exactly what he is being treated for, but also as many of you know, my brother doesn't really know, or care. He doesn't know what stage he has, he knows it was in at least one lymph node. He does…
Questions about mouth sores during head and neck radiation
Hi, 7 weeks out from surgery. This is the third regrowth in 7 years. The first two removals were done thinking it was a cyst. The second pathology showed it was a pleomorphic adenoma on the parotid gland. I saw an ENT/head and neck surgeon last August. We Watched the area with MRI’s and decided to go forth with the…
Mugard
We have at least 3 full unopned bottles of Mugard. Can we give this to someone here whose insurance won't pay for it?
Question/Request
I have heard quite a few people say this on here... that things will never be the same once treatment is over. It may sound silly to ask, but what is it that never is the same again? Is it emotionally, physically, etc... I just kind of want to know what to expect with dad as time goes on... Also, a friend of mine's…
Feeling lost
Feeling a bit lost and unsure. It's been 19 months since my dx of adcc. Many of you know it's been kind of a wild, uncharted ride I've been on. I did a relatively dumb thing...cancelling my ENT appointment last month. I found a pretty large lump just below the resect site of my original tumor. Feels identical to the…
inspirational quote of the day
i read these inspirational quotes every day and every once in while it hits home - so here is todays Once you start recognizing the truth of your story, finish the story. It happened but you're still here, you're still capable, powerful, you're not your circumstance. It happened and you made it through. You're still fully…
Dad's treatment DONE
Hi Everyone, Dad had his last radiation treatment a few hours ago. Now I hope everything goes well and things start looking up. I know you all have said these next few months he may still be miserable, but if that means no more chemo/rads he will make it through! This treatment in my opinion was one of the worst I have…
Scared- please read
I know that I may be a little out of line here since I myself was not diagnosed with cancer. However, about a month ago my dad was diagnosed with a "highly treatable" cancer in his sinus cavity and the doctors found the same type of cancer in one of his lymph nodes. My family has had a really hard time accepting this and I…
Tim6003 Hello CSN family
Hello to my online family. Man do I miss chatting you all up! I'm hoping to get back on and post more often pretty soon. Mom is officially now in an assisted living facility. I won't pretend she is happy and all is well, in fact she is quite mean spirited and downright angry at me right now, but I know it has to do with…
NED is the word
Went in for my results on the pet scan and was told by my doctor that I'm NED .He also stated that I wouldn't have to have another pet scan.I asked if that where true and that i thought i would have to have one every 3 mos. he said usually if your first pet scan came back as a NED then it was around about 90% to 95% chance…
enough is enough
Since my surgery in November 2011, I have put on so much weight I can't stand it! I lost 50 lbs right after surgery, feeding tube, etc, but now, I find myself at the highest weight I've ever been, even while pregnant for a 10lb,1 ounze boy. The Dr tested my thyroid and it came back normal, I've talked to him about this,…
FNA Biopsy Negative
It would appear that the FNA on my slighly enlarged node was necrotic and there were no viable cancer cells...so they canceled the selective neck dissection and said see you in six weeks for my post treatment PT Scan! Great news but still a little on edge about the first Pet Scan... Jon

Head and Neck Cancer

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