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No Fishing Today
Jim's pain is increasing. It kept him up most of the night. He skipped fishing and finally agreed to take some pain med this afternoon. It doesn't seem to make him as goofy as the other pain med he had during tx. It does however make him dizzy and sleepy, but he is always sleepy. I have convinced him to take it tonight…
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ultra-sound check
Hey everyone, Went to my primary yesterday for updates. Caught the goop from the grandkids, 2 were sick when I watched them a week ago. Now grannies got a touch of pneumonia, go figure ! Course of antibiotics and neb at home. Also told him about the lump the specialist were saying was related to the carotid artery. Had an…
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Everything looks fantastic
That's the exact quote the pulmonary doctor said as she entered the room. Had the scan at 8am and the results at 9am. She showed me the scan on the computer in the room. The nodule has not changed and there are no new ones, they also scanned the throat and she said it looked good but she is not an H&N doc, will see him…
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Phew...
Dodged that bullet.....NED NED NED!!! They never called today, and just let me stew some more.....but when I got there the Onc gave me the relieving news.....Now we'll see if my plugged ear stops feeling plugged, or if that's going to be a new part of abi-normal for me. I can live with it, as long as I know I'm NED NED…
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Another dental question...
When I was diagnosed with cancer, they knew immediately it was a BIG tumor and it was IN my lower left jaw. I had a tooth on my lower right side that needed a root canal. No one wanted to do it before surgery because I had to use the right side to eat and so we waited. Well, after surgery, I still (of course) had to use…
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Anf the leg bone's connected to the...shin bone?
After over a year of waiting and seeing how my ORN was developing, a recent PET scan confirmed that it's still progressing and other tissue has become involved. So, I am in the prep stage to have a jaw resecting (replacement) in the future. Based on some travel and work timing, I am hoping to hold off until next April, but…
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To wait or not to wait (feeding tube - radiation)
Hi All: My mom just got her feeding tube put in this morning. She is feeling a bit groggy and some (mild) pain in her throat on also on her stomach. The question is, should she wait until after the weekend to start the radiation, or should she start this tomorrow? Thank you.
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debbiejeanne!!!!!!!!
Did you ever get your ct results?
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Que Pasa and Whats Happening?
Hi all" Basketcase checking in here! Been awhile I know but I do try to keep up with what's going on! Well, I am finally officially a Retired Georgia Teacher as of Aug. !! Also Charlie's SS benefits started on 8/28 so I can now breathe a little easier. Still working at Jo-Ann's part time but will probably give that up mid…
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Rating of Doctors
Hi All: I was wondering if there is a trusted website that I can go to to look up my mom's oncologist? She lives in a very small town and has already experienced a bunch of issues with her doctor / hospital. I did a general google search and found some info, but I would like to see if there are any infractions against her…
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Something to Thank God for.
About three Months ago I had to get a tooth pulled and you know with me it is a major event. The doctor would only pull the tooth while I was under and in a Surgery center just in case the tooth or Jaw broke and he would have to go in and drill the tooth out of my mouth. The other problem if you remember is I can’t open my…
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Sad Day To Happy Day
A bit off topic Today is 4 years that I lost my Dad. I memtioned before he was a very healthy 80 year old who just decided to take his own life for no apparent reason. For the last 3 years September 3rd has always haunted me until today. This morning my son and his girlfreind had a baby girl, it was pretty much planned (by…
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On the Journey
Friends, Completed treatment 30 rads IMRT on April 19 and am close to five months out. Have gone back to "regular" food but watch the spices and the chips...yet my mouth still out of nowhere stings and hurts. It comes and goes and is not really tied to a certain food. Is this part of the journey? Still waiting on my first…
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A few questions
Hi All, It has been almost 9 months since I first posted here on behalf of my father's disease. (http://csn.cancer.org/node/251404). I did get immense support from many here, thank you for that. My father was on Stage 4 pharyngial cancer, with a bone metastasis when the treatment started. After 9 chemo sessions and 33…
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When you get sick after your treatment
When you get sick after your treatment specially radiation treatment!! My husband was done with his treatment in April with 35 radiation and chemo. Recently My daughter was sick from cold and fever and of course my husband got sick too.. But this is his first cold after his treatment and symptoms were different than ever.…
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Rang the bell AGAIN!
Finished the last of 5 SBRT tx yesterday and am back home with lots of optimism and hope. I feel so blessed to have had the opportunity to go to Mayo. I had the major anxiety attack last week with the simulation MRI with mask that my brother, sister-in-law and 2 sisters all went up with me. I did so good with the first tx…
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More (after tx) dental comments :)
Well, long story short...my onc dropped the ball and didn't call my dentist back, or consult with the other doctor, or call me back, or do anything he said he would. I had to verbally give the other doctor permission to make decisions for me. So, my dentist got in touch with the other onc who decided to let me go ahead and…
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Must admit
Have to admit that this is the most anxiety ever about a scan, probably because it's to track a nodule in my lung. All the PET scans, cat scans, x-rays, scopes, probes that I have gone through the past 4 years or so you would think would put some steel in my backbone, but but this one's got me worried. 8am in the machine…
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Phrannie!!!!!!!
Any news? Been thinking about you ALL day!!!!
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Hi Everyone and Thank You.
I came into this forum only after receiving my treatment of 20/33 radiation and 2/3 of chemo/cisplatin and I am glad to read what am I going to expect during and after treatment. Thank God, its never too late. On 24 Jan 2013, I had a left mandibular surgery (15 hours) which I lost my jaw bone and 5 teeth. I had my biopsy,…
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Radiation or not
I had squamous cell cancer and had my voice box removed, I have a laryngectomy, that will be permanent. It is certainly not easy getting use to having a hole in my neck. But I figure I will learn the ins and outs and learn to live with it. The Doctor (Surgeon) says he is sure he got all the cancer cells with the surgery…
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Squamous Cell Carcinoma (Throat)
I am terminal and already outlived Dr. giving me July-Aug to die. I'm still on my feet, but not every day. I had 3 really bad weeks and then 2 very good weeks. Always weak and tired, but exercise legs every day on my adult tricycle. Please pass this on> My Dr. gave me what is called Magic Mouthwash and it has made all the…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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No biopsy needed !
Crazy quick trip through the Masonic today. Kinda felt as if I was on a assembly belt. ENT... lump in neck is my cartiod artery enlarged. This usually is very deep under a fairly good sized muscle. Went through a CT and labs. CT was clear of any new disease. (head area) Hurray. Lungs still very shakey. I asked about…
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PhotoDynamic Therapy Photos
Well as mentioned from a previous post..., had the procedure Tuesday. First they scrub your face with Acetone (nail polish remover), then alcohol..., next they apply a photosensitive mecication and rub it in good... Next they sent me to the lobby for an hour wearing a big floppy hat.... Next the put googles (like swim…
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traumatic neuroma
I couldn't help myself......I googled cartoid artery and radical neck dissections. I was pleasantly surprised with the articles from specialists I found. non-neoplastic exaggerated response to nerve injury....showing up 1-2 yrs after surgery. (rare-not everyone will experience it) Simply put my nerve endings are trying to…
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Another Bump On My Tongue
I had stage 4 squamas cell carcinoma in July 2010. I had 90 to 95% of my tongue removed and replaced with my thigh. I also had a double neck dissection with cancer on the left side. They removed 38 cancer lyphnodes. I also had chemo ( CIsplatnim ) and radiation. I had 76 grey radiation. Saturday night when i went to brush…
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Amalgam Fillings
I am curious how many here either have or have had Amalgam fillings (or other metal alloys) in their teeth, how many and if you still have them or not. I recently had the last of about 8 + amalgam fillings replaced with Resin. I have had them since I was a child. There is also research showing the trapped bacteria within…
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Somebody grab my feet and
pull me back down to earth!!! My nerves about the upcoming scan are about to send me into orbit. I cannot believe how strong my sub-concious is when it starts handing out symptoms. So far, I've had on and off ear aches, a sore throat....equilibruim problems....a headache that lasted for 5 days.....a jaw that is getting…
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Mr. Ned
P, Don, Denis, KTeach and anyone else getting scanned, scoped, irradiated, infused, poked or prodded.... May Mr. NED come and hang out with you! Positive thoughts and prayers "T"