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Pain
Don't want to be a Debbie Downer but I was wondering about your pain level. I haven't had pain related to diagnosis of my previous cancer(s). Lump on lip wasn't painful until after surgery and removal of 1 inch of lip, 50 stitches. A year later, lump on neck, no pain pre surgery. Neck dissection. My weird eye situation was…
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Base tongue and lymph gland op
I had a neck dissection 4 weeks ago to remove a tumour from the base of my tongue and removal of lymph glands between below right ear and jaw line. The surgeon gave me a choice of having a repair to the tongue with a section from my chest or the inside of my mouth. I chose inside of my mouth (he said he'd done 27 so far…
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Metastatic Melanoma
Just found out that my cancer has spread to my lungs. It's very early and very small. 10mm x 7 mm. I thought it was all over. I have been cancer free for four years. It started on top of my head. Very small, very shallow. Dr said "nothing to worry about." Two years later it was very small and about two inches over. This…
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First Chemo Treatment
Yea! So far so good. 5 more treatments of chemo. with MDA PCC proticol. It was great knowing we r finally shrinking and killing the beast. He is feeling fine right now. Actually better than me! Taking his N/V med as ordered. Next treatment in one week. Today we will get on our routine of neck and mouth excersises, in…
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Lump is "probably" scar tissue
Hi Everyone. As an update, my brother finished up his treatments on July 22, so he's almost 5 weeks out. He is slowly but surely eating real foods by mouth and is gaining energy every day. He told me that he can feel a lump on the side of his neck. I am not certain if it is the same one he had before or a new one. I do…
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Taste, Swallowing
Hi, I just came back from my 8 weel checkup and I am all good. I finished 6 weeks of radiation and six sessions of chemo Nov 15 2012. I still am not able to taste sweet. My doctor said it takes about 18 months to get back to my new normal. I strongly suggest that any one with some dry mouth watch what they eat; one can…
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another biopsy scheduled
So, it was squamous cell carcinoma of the lip a few weeks ago which was completely removed (according to the perky twelve year old nurse). I let Jim go to ONE appointment without me because I had spinal fusion surgery - just ONE appointment, mind you - and he ends up having a special scan because something looks suspicious…
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I have a tx plan
Another 3 days at Mayo this week and I am set to go back next Mon-Fri for SBRT high dose precicison radiation. They consulted with MDAnderson and neither saw an advantage with proton therapy over SBRT. With proton therapy, it targets the tumor and stops but there isn't much in the way of studies on long term yet to look…
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Dad 3 weeks post treatment
Hey everyone I have been MIA the past week and a half or so, just wanted to pop in and check on everyone and wish you all well... it's been crazy trying to balance school, help dad, getting my parents ready to move, work, and now my brother in law fell from a ladder last Friday breaking his rib and banging himself up…
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Interesting theory regarding 'high oxygen and low sugar'
After reading this article at the following link, I thought the part of the theory about 'high oxygen and low sugar' as cancer inhibitors was interesting. Link: http://tinyurl.com/kyptrr7
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The RECHARGE Low Carbohydrate Diet Trial for Metastatic Cancer
Says study completed. http://www.clinicaltrials.gov/ct2/show/NCT00444054 http://clinical-trials.findthedata.org/l/62109/The-RECHARGE-Low-Carbohydrate-Diet-Trial-for-Metastatic-Cancer…
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We've lost a friend
Not sure if everyone is aware but we've lost our friend Scambuster. Apparently he has been censored/banned from this board. I'm not sure exactly why but my guess is that he might have posted one too many times about alternatives to conventional cancer treatment and the conventional diet that is recommended by most…
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Not cancer related.........we have a new family member.....
Decided that I need more to do now that I'm retired (and my old horse is also retired).....so today we brought this girl home. She's a Tennessee Walking horse....the only "ride" for old ladies....nice and smooth . Greg named her Reba, since my other horse is named Waylon....trying to keep it country....LOL. I guess this…
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Checking in!
Hey guys, summer is over :( ! I still go to the lake house on weekends but last week full week there for this summer! Next year should be different since we are planning to move to Orefield Pa. Sometime in June! Very excited for Faith and I to start our new chapter with Chris. Praying disability comes through, i need to…
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Time flies! Can you believe...
I finished rads 2 months ago??? It seems like yesterday that I was so sick and didn't think I'd make it those last 6 treatments. Thanks to PEGgy, y'all supporting me and urging me to fight, The Lord for giving me strength and my family and friends showing me all kinds of love...I did it. I am now PEG-free, eating well,…
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Rob Update
I am happy to say Rob is doing very well. Some taste has come back. He says that he would rather have saliva than taste. Time i tell him, just give it time. He no longer is napping in the day although I can hold the couch down pretty well on the weekend. We also joked that he should be a barcalounger tester and I a couch…
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magic mouthwash question
My parents were wondering if dad should not use the magic mouthwash after trtmnts. Does anyone know if this is ok to use still? He's 3 weeks post trtmnt... any thoughts? I think he thought just to use this for pain!
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So I am back with updates and what I have been going through.
SO I think my last post was talking about some of the symptoms I was having and the surgery that followed. But in case I didn't I will give a little breakdown. In Feb I had mt tonsiles removed and my adnoys. My ENT (who I hate, and that is the nice way of saying that) said he got everything and all margins were clear.…
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from diagnosis to treatment time
my husband was diagonsed with stage 4a tonsil hpv cancer. Biopsy done on july 26 2013. Went to radiation oncologists on followin friday aug 2 and medical oncologists. Petscan done on moday aug 12. Bone biopsy done aug 16th as there was hotspots there and lungs. Is this time frame acceptable. Last week dentist and…
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No more treatment!!!
No more treatment We were about to start my husband treatment at university of Chicago from this coming Sunday and we just got news from them today…that my husband doesn’t need any more treatment!!! They finally reviewed pathology form my husband neck dissection form last month after insurance approval and they have…
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We are over loaded with information!
Everyone is so great in helping us learn about what we are up against. But, gosh, right now I hv to say it is overwhelming. Just coping with the acceptance of CA the up coming first day of testing, and then the chemo. It is driving us a little over the edge. we need to know all this, because I don't want our lack of…
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One Year Survivor
Hi to all, Just wanted to check in and share that next week is the one year anniversary of my surgery. I will be 10 months post rad also. I lost 1/3 of my tongue, had radical neck dissection, a skin graft from my leg to my tongue and a tracheotomy for several days while in the hospital. Then a nightmare of treatment that…
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I Visited With My Brother
Hi Everyone! I have been MIA the last couple of weeks because of out-of-town guests and then a much needed trip to OH to visit with my brother. As many know, my brother finished up his treatment on July 22. On my way over to his house, I kept praying that I would be able to control my facial expressions when I first saw…
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Mayo tomorrow
I am flying to Mayo tomorrow for blood tests and MRI and then we meet with the team on Friday. Praying they can offer options. Physically, I feel good but this has been overwhelming. A flurry of phone calls and gathering records, pathology slides, etc. Met with lawyer today to get my affairs in order, something we should…
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Clear Scope!
My husband had his first scope since he finished radiation tx end of June- happy dance for sure! Yay! We were talking about these past few months; from finding the lump on his neck to all that followed- scans, two surgeries, radiation ( 31).... How scary all of it was. and now? Dr appts and scopes every 3 months... We'll…
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AdCC Six month post treatment CT scan.
Hi all, It's been awhile since I've posted but I do read many posts. First 90 day post treatment MRI was surgical site where they removed submandibular gland with tumor in it. NED. Had a CT of chest last week and my appointment today with ENT\Surgeon. No evidence of disease in lungs. That’s 180 days post tx. Whew! I have…
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Routine doctor's appointment
NOT. . .no not me! Went to Stanford Tuesday for one of 2 appointments post treatment. Microvascular surgeon was getting ready for a little nip, tuck (spot in incision site, graft opens up at least once a month). I reminded him about the pain that I have been having and have gone back on pain meds. He talked to Onc.…
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Husband's 1st post tx PET scan = no cancer
Hi everyone, Like some others, I've been lurking....not much to report until today. the last 12 weeks have been pretty tense. We both feel like a huge weight has been lifted, but we're still not back to "normal" by any stretch. Thom is still feeling better every day, but eating is a bit of a struggle. He's down 50 pounds,…
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Anxiety
I thought I'd bring this topic up for discussion. Recently, on another OC forum, there have been several posters asking about symptoms of OC and expressing fear concerning cancer. This is totally natural and understandable. We all went through a period of worry and anxiety when we were in the diagnostic stages of our…
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Alternative Cancer Treatment does it work or is it a Myth.
I have always found that it is hard to talk about something if you don’t have a common frame of reference. A lot of us here can talk about Conventional Cancer Treatment because we were all treated for cancer and we are either living or dead. I take nothing away for our doctors; they are people just like us and everyday…