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We are over loaded with information!
Everyone is so great in helping us learn about what we are up against. But, gosh, right now I hv to say it is overwhelming. Just coping with the acceptance of CA the up coming first day of testing, and then the chemo. It is driving us a little over the edge. we need to know all this, because I don't want our lack of…
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One Year Survivor
Hi to all, Just wanted to check in and share that next week is the one year anniversary of my surgery. I will be 10 months post rad also. I lost 1/3 of my tongue, had radical neck dissection, a skin graft from my leg to my tongue and a tracheotomy for several days while in the hospital. Then a nightmare of treatment that…
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I Visited With My Brother
Hi Everyone! I have been MIA the last couple of weeks because of out-of-town guests and then a much needed trip to OH to visit with my brother. As many know, my brother finished up his treatment on July 22. On my way over to his house, I kept praying that I would be able to control my facial expressions when I first saw…
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Mayo tomorrow
I am flying to Mayo tomorrow for blood tests and MRI and then we meet with the team on Friday. Praying they can offer options. Physically, I feel good but this has been overwhelming. A flurry of phone calls and gathering records, pathology slides, etc. Met with lawyer today to get my affairs in order, something we should…
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Clear Scope!
My husband had his first scope since he finished radiation tx end of June- happy dance for sure! Yay! We were talking about these past few months; from finding the lump on his neck to all that followed- scans, two surgeries, radiation ( 31).... How scary all of it was. and now? Dr appts and scopes every 3 months... We'll…
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AdCC Six month post treatment CT scan.
Hi all, It's been awhile since I've posted but I do read many posts. First 90 day post treatment MRI was surgical site where they removed submandibular gland with tumor in it. NED. Had a CT of chest last week and my appointment today with ENT\Surgeon. No evidence of disease in lungs. That’s 180 days post tx. Whew! I have…
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Routine doctor's appointment
NOT. . .no not me! Went to Stanford Tuesday for one of 2 appointments post treatment. Microvascular surgeon was getting ready for a little nip, tuck (spot in incision site, graft opens up at least once a month). I reminded him about the pain that I have been having and have gone back on pain meds. He talked to Onc.…
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Husband's 1st post tx PET scan = no cancer
Hi everyone, Like some others, I've been lurking....not much to report until today. the last 12 weeks have been pretty tense. We both feel like a huge weight has been lifted, but we're still not back to "normal" by any stretch. Thom is still feeling better every day, but eating is a bit of a struggle. He's down 50 pounds,…
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Anxiety
I thought I'd bring this topic up for discussion. Recently, on another OC forum, there have been several posters asking about symptoms of OC and expressing fear concerning cancer. This is totally natural and understandable. We all went through a period of worry and anxiety when we were in the diagnostic stages of our…
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Alternative Cancer Treatment does it work or is it a Myth.
I have always found that it is hard to talk about something if you don’t have a common frame of reference. A lot of us here can talk about Conventional Cancer Treatment because we were all treated for cancer and we are either living or dead. I take nothing away for our doctors; they are people just like us and everyday…
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We are starting our journey to recovery
We were enjoying life when it turned on us with a diagnoses of scc tonsil hbv T2N2bMO. First I am having trouble getting over my husband being missed dx for at least 6m and 3 docs and a CT. Just sore throat doing its job! I guess that is the angry part of this nasty C. Fortunately God put a great ENT in our lives two weeks…
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Contemplating 2nd Jaw Surgery
Help me out here, I've had a trach and feeding tube from my last go round with NPC and don't have a trach or feeding tube anymore. I need to finish the jaw surgery by getting the bone out of the back of the leg, but I'm just dreading waking up again with a trach, feeding tube, catherder and a sore leg and jaw. My jaws…
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Photodynamic Therapy (PDT)
Went to my Dermo the other day for my semi-annual check-up.... As you know I fish a lot, live in Florida, and I'm fair complexion... Anyways, I usually have a spot or two that gets frozen, tops of my ears occasionally, etc... MD recommended me having Photodynamic Therapy (PDT) which my insurance covers. It usually (from…
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nine years on
Just a bit concerned about sensations I am having around the scar of the removal of a 21/2 cm lump nine years ago. I am feeling a numbness on left side of face ans a strange sensation under my teth LHS. I had all clear after five years of check ups. The tumor was low grade and surrounding area all clear. I feel silly about…
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pro-active instead of re-active
Hey everyone ! Well made the appointment with the onc's at the U. Rolie also has a re-check with his team for his annual diabetes check the same day. Killing two birds with one stone so to speak. Our daughter's will be coming with....because of Rolies vision and our appointments being so close together.....one will stay…
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Toes in the Water ~ Fishin
Well, the week-end is here... Time to relax, reflect, and get out of the office and on to the water.... Last week-end was a Banner Day.... I was on the water early, tide was looking good, perfect for my Flounder area... I was supposed to take someone, but he bailed on me, so I had to go it alone.., rough I know huh...,…
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Your prayers and mojo worked!!!
Once again my CSN buds pulled me from the abyss. My scanhash owed continued shrinkage of the lung tumors and the mediastinal nodes. The beast continues to try to silence me, and all I have to say to the beast is F$&K you!! You will eventually get me, but it will be on my terms, not yours. You all rock!! I do not post…
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An Annoying day
so I was scheduled for my 6 month PET, at 9:30 this morning managed to get there with not too much scanxiety and about halfway to the appointment I get a call saying there meds were screwed up and rescheduled me for 2:45 instead, which would have been fine, excepth that you cant eat, so by 2:45 I was hungry cranky, tired,…
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What would you do?
So you are meeting with your Oncologist four years out with zero evidence of cancer. You have had lung nodules detected in the previous four years but they remain unchanged. Your Insurance company denied your last scans because you were asypmtomatic. Your Oncologist suggests you have a recurrent cough that is creating…
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Nasopharyngeal Cancer
I am 45 yrs old, was diagnosed May 2012 with Nasopharyengeal Cancer (sinus). Went through Chemo and Radiation, rough times! Then took CT and other scans, came back it had spread. Taken Chemo again, but last scan showed no new growth so I am on a break from Chemo for now. Happy time! Was just wondering if any others out…
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Update on the whatisit in my head
Hey folks! Just wanted to stop in for a quick hello and update. I'm still around, responding to posts here and there even if life is hectic right now. When I saw the new ENT here in LA in late April, he ran a follow-up PET scan. At that point it was about a year after diagnosis (HPV+ SCC Stg. IV) and about 9 months after…
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Financial worries and guilt
As Jim's condition continues to decline I feel guilty about worring over my financial situation when I am alone. I will not be able to stay in our home on my retirement and Social Security alone. Rent is higher than my current payment. We live in a manufactured home, which is paid for but lot rent goes up every year. We…
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Interesting and clearly written article, from my favorite Webpage.
http://www.sciencebasedmedicine.org/cunnilingus-michael-douglass-cancer-and-the-hpv-vaccine/#more-27830 The repeated use of the other "c" word, however, seems to be primarily for it's shock value. Deb
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MEC Time Frame
Hi All, I haven't posted a thread here in probably a year because everything has been going relatively well since my treatment. Just had my 3rd PET scan last week but my Dr. didn't set up an appt. for the results. If all is well they will probably mail me the results. Being only 16 months out of radiation treatment I am…
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My new tshirts!
I visited the site www.choosehope.com and found some really nice merchandise and they donate proceeds toward cancer research. Here is the necklace, keychain, and shirt I got myself (with the head and neck ribbon color).... Then a fellow warrior got me this as a sweet gift when I finished treatment...she has 6 rads to go...
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More Chemo
About six weeks ago, I was told that there would be no more chemo for my metastasis to the lung and ribs. This threw me into a deep depression with extreme insomnia. However, at the next monthly visit, my medical oncologist offerred a series of Methotrixate infusions. Received one. The following week, I was running a…
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Caring for the caregiver
Good morning! Finally feeling a little human again. Sweet husband cancer survivor Jim had the misfortune/opportunity to take care of me for the past couple of weeks. As one who has degenerative spine and disk disease, from the time to time I have to have a spinal fusion. I managed to put this last one off until we got the…
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Anniversary of Sorts
2 years ago today I had my first all day chemo treatment , cisplatin, taxotore, and my favorite the 5FU pump, I would have 2 more of these all day treatments each 21 days from August to Oct before starting 7 1/2 weeks of rads with 1 infusion of carboplatin for ever week of rads. As I sit and remember the last 2 years , I…
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Restless Leg Syndrome
I have to admit, I used to think this wasn't a "real" thing. I had heard of it and my mom swears she has it, so I blew it off because she is one of those people who has EVERYTHING. Well, I have been proven way wrong. After surgery,they kept those leg compression things on me for the whole 12 days I was in the hospital.…
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Update on mets
First, thank you to everyone for their well wishes and support. I had the PET scan yesterday and my sister, brother, husband and I met with the doctor. The good news is no uptakes in lungs, liver or bones so reoccurance is isolated. Tumor board is meeting tonight but some type of radiation will likely be the tx. even if…