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Stage IV QUESTIONS
im stage IV have had chemo then surgeryRobotic LAR with no ostomy, liver resection and abalation and another month later another liver abalation. Liver biopsies all came back negative for ca. Colon resection had clean margins. I had 7/ 19 positive lymph nodes. Currently on a 4 treatment course of Flofiri with avastin as…
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See if your doctor takes drug company money
Dollars for docs website: https://projects.propublica.org/docdollars/
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Clear colonoscopy but still have blood and mucus in stool - very concerned.
Hi all I am 44 and have some concerning symptoms. Last year I had blood when I wiped but didn't think too much of it because I had a clear colonoscopy in 2011 for pelvic pain. Well now for the past few months I noticed blood and mucus in the stool. So then I became a bit freaked out . I had a colonoscopy in May but nothing…
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Alpha Mangostin or Mangosteen
Does anyone have any thoughts or experience with alpha mangostin or mangosteen as a dietary supplement? It is supposed to help make 5FU more effective, at least in test-tube experiments. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5083978/ Thanks.
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New Chemical
My nurse just emailed me to tell me the name of the new chemical I will begin Wednesday in addition to the Folfox. The new chemical name is Cyramza (Ramucirumab). Has anyone had any experience with this target chemo and if so, what side effects did you experience?
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Been so sick since I got Neulasta shot
I am not feeling well since the day I got the Neulasta shot on Sunday!! Got nauseated, stomach upset, fatigued, and everything I ate taste bitter!! Water tastes different too. This neulasta shot isn't good at all. Although everything tastes terrible I have to eat otherwise I won't have any energy left in me!! Oh did I…
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Last Week was Hell
I'm sharing this in case there's something in here that's of some help to someone. I've just had the crappiest week. Warning, I'm crabby and upset and probably not going to type in as nice of a way as I susually do, but more like how I really talk. Last Saturday I got up and was so sick. Stomach cramps, noises like the…
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Xelox for stage 3
Hi, I start chemo next week, xelox- iv oxaliplatin (3 hour infusion 1st day of cycle and xeloda oral pills 2 weeks then 1 week break-3 week cycle. Can you share your experience on this regimen? How did your body react to the oxaliplatin and xeloda? For oxaliplatin, were your side effects immediate? How long before you were…
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5 Years
Tomorrow (June 28) marks my official 5 years from when I had my liver resection done. As I have been told by the liver specialists, oncologist, and other doctors that 5 years is a big deal. Plus the fact that I was stage 4. I had my lab, CT, and oncologist visit last Tuesday and everything looked great. My oncologist said…
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Do you get port draw/flush on your infusion day?
I don't understand why do I get port draw/flush on my infusion day? Why it has to be on the port every time now? I thought port draw is done every month not twice a month? I know I should make a list of questions for my onc. She might have all the answers. She seems nice and understandable and kind doctor. She's from…
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Chemo but no radiation?
For Stage 4, does Chemo and radiation go hand in hand? Reading some of the posts it seems like chemo is used regularly for treatment but not too many mentions of radiation. Is Chemo without radiation an option some oncologists go with? Obviously it depends on the person but just trying to get any overall idea. Thanks!
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Surgery Questions
I've read on here a number of times where someone said their doctor didn't want to do surgery but they found someone who would and they're now doing well. What I'd like to know is why the first doctor didn't want to do it? What are the different reasons? I got my ct scan results today and they're not good and now I'm…
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Are fruits rich in Vit C ok to eat? Curious...
I am kind of curious about eating fruits rich in Vit C as in oranges, pineapple and so on, since we can't take Vit C supplement. Is this possible?
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I just read this article about colon cleansing
I just read this article, and sounds interesting!! https://jerseydemic.com/remove-20-pounds-toxins-colon-2-ingredients-2/
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And back on the topic of Neuropathy...
I've never fully recovered, and now know I won't (chemo ended 9 years ago.) However, the part that is bothering me more now is that my heels feel as if there is absolutely no padding. Thus everything I do without properly padded/insoled shoes is quite painful. When I get out of bed in the morning, I'm unsteady because my…
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Surgeon explained about cancer
I am a bit on a downside today, all day long. It's all about this chemo thingy and stuff!! I hated everything about this chemo!! It is toxic to our body...and the side effect & other stuff sucks!! I remembered what my surgeon explained to me when I get so down and upset..that after my surgery, the cancer were gone. The…
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How to deal with fatigue?
I've been on Xeloda for a couple of months now and my onc has been bumping up my dosage slowly because she's worried after my toxic reaction to the last one. I'm at 80% now and will go up to 90% next week. I feel like I've had few side effects but since the last bump up I think I'm getting fatigue. I'm not working and have…
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How to deal with upset stomach after the pump pulled out
Yesterday, a few minutes after I left the hospital, where they usually pull the pump out, I felt like I was about to throw up. I have upset stomach. And I don't know how to deal with it. I don't know what to eat for breakfast to ease this yucky stuff!! Any suggestion will help. Please!!
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Can we take Vit C while we're on Folfox?
I always forget to ask my onc if taking Vit C would interfere with Folfox. Have you ever take any kind of Vitamins while on treatment?
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Grape Seed Extract
Does anyone have any thoughts or knowledge about Grape Seed Extract and its effect on colorectal cancer? There appear to be some initially encouraging test tube studies, but I do not see anything about humans. Maybe someone else has completed this research or has personal experience? Here is some of what I found:…
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Throat hurts when drinking/eating
I hate it, and I don't quite get it!! Usually I get back to normal in 5 days after pump is pulled out of this alien port...but this time is different. My throat hurts when I swallow water or any kind of food. Then both corner of my mouth has sore and so is the sides of my tongue!! This something new to me!! Have you ever…
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Just read about fingernails/toenails indicator
I've read an article on Fingernails or toenails with very small lunula (the half moon formed on our nails) usually indicates low immunity & indigestion problem. It days it may happen due to slow metabolism and TOXIN OVERLOAD in the body. And I, myself, surely found out I had all my fingernails and toenails this way now!!…
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Surgery Follow up
I had my 15 month surgery follow up this morning. My surgeon is checking me very closely as I have now had 3 surgeries and so much of my colon removed. It seemed to go pretty well. He looked at the most recent incision (yup, I am sure you all are familiar with that scope) and said everything looked good. No scar tissue or…
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Interesting articles - Updated July 6th
Various articles I have found concerning Cancer, around the world. http://www.bbc.com/news/health-38013566 - I don't think anyone can really 'get it' unless they live it, or live with someone with it - and then some of them don't even get it; other do.…
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Xeloda and joint pain
I responded to a post the other day about being on Xeloda and having joint pain. Now I can't find it. I've been off the Xeloda for two days because I get a week break between three week sessions. And my pain has already reduced by quite a bit. But at the same time I'm noticing quite an increase in gas and tummy cramps.…
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When to eat ice cream?
Next Friday will be my 6th infusion on FOLFOX. It's summer and very hot!! I haven't had an ice cream yet and I am craving for it so badly!!! But I am so scared that I might have a throat 'spasm'. I know by experience the jaw spasm goes away a few days after the pump is taken off, but how about the throat? I need your…
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Late after effects of chemo
Hi, I finished 6 treatments of Xeloda and Oxaliplaxen at the end of January. For the past couple of weeks I've been feeling very fatigued, joint pain and muscle ache. It's almost worse than the original chemo. Has anyone else had this happen? I was so happy to be done and within a couple weeks, I was feeling pretty good.…
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Avastin used for colorectal mestasi to liver
Looking for anyone who has had all side effects avastin gives you. I am just fine, feeling fine , if I don't have avastin.
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Happy July 4th
Wishing you a wonderful July 4th celebration. Enjoy the day!
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2 years and counting!
July 9th 2015 was the date my husband heard 'you have cancer'. A month later found it was stage 4. He is still doing chemo, treatment #47 this wednesday! But hey, he is still alive and kicking the cancer!