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20% survival for Liver mets??!!
Hi, Ugh..not a fun afternoon. I went to my first appt with an Oncologist at my HMO. It was disapointing in many respects. I have a referal to go to my local University Hospital for surgery and was hoping to be able to get referred there for Oncology as well. The HMO Oncologist was not at all supportive of it of the…
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New Member/ d.dreamer/ anal cancer support
Few people on this site have posted about anal cancer reoccurrence who had the standard treatment (5FU, mitomycin, radiation). No one has ever posted a reoccurance when they have participated in the current anal cancer clinical trial (as of 2/05). When you consider that only 5% participate in cancer clinical trails (due to…
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Jaelithe UK 2-15-05 on anal cancer
Clinical trial sites for your anal neoplasia (discovered because you had vulva cancer) are at the Kobler Centre in London. St Stephen's Centre, Chelsea and Westminster Hospital, 369 Fulham Road, London SW10 9TH PHONE 020 8846 6504 Contact: Jonathon Samuel Ask him why you have to wait 6 months to determine if the anal…
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Replies are in 2005
It's difficult to communicate on the CSN site because you cannot tell what is a new posting.
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To grandma047 and all of you
First, I want to say how much each of you have meant to me. I dont post a lot because mainly, being a single, working mom, I dont have a lot of time, but I do try to read and keep up with you all and I have used your experiences, advice, encouragement and knowledge more than any of you could know. You are right, when you…
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Response to Judy
I first want to say that the last thing I was trying to do was to drive you away from the forum. I remember when you had your original surgery and colostomy and infection and so forth. I also have had cancer "3 times". Actually it was all one time, just kinda drawn out. I have had 3 surgeries since I was diagnosed for a…
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Adhesions?
Okay, here's another one...In Mid-November I ate a big steak and was doubled over in pain, went to hospital, partial bowel obstruction, no food, just clear liquids for 4 days, then my surgeon said it was probably adhesions, and if it continued, I would have to have another surgery to get it taken care of... On friday I…
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Cancer Centers
Hi! Hope everyone is doing ok. I'm doing ok. I have my first appointment with an oncologist tomorrow. I'm hoping to learn a lot about what the likely "plan of attack" will be. I still don't know for certain that the mass in my liver is cancer. I got a referal to go to the University of Washington to see a surgeon. I'm…
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metastatic neuroendocrine carcinoma of pancreas
My mom (75 yrs old) was recently diagnosed with a metastatic neuroendocrine carcinoma (high grade)on the middle of her pancreas. She had colorectal cancer two years ago identified as adenocarcinoma and carcinoid carcinoma mixed in the tumor (only after the tumor was removed and biopsied - her initial biopsies only showed…
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Update on My Mom
Hello everyone! No, I have not fallen off the face of the earth but I have been remiss about posting lately. I do read posts as often as I can, but a number of things have occurred recently besides just having a hectic and busy life that has prevented me from getting on line as much as I would like. Enough of the lame…
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A Heartfelt Thanks
To all my semi-colon friends: Thank you for all your inspiration, advice and laughter throughout our journey this past year. You are all truly angels. Scott and I have read the replies to my previous post with tears of both sorrow & joy. We wish everyone on these boards a long and healthy life. We will keep you posted…
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Goodbye
Susan(schmurciakova)- I want to apologize for maybe being too harsh in my previous post under the question for Emily, but noone knows what another is going through. I believe that each person has to decide what the right treatment is for them, and go with it. For me, it the chemo route and surgery again. For someone else,…
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Thank you
I wanted to say thanks to those who responded re anal fissure. I am not doing significantly better with it and will probably need surgery when i come back from vacation. Surgeon confirmed that botox injection would't give me relief in time for vacation, so i am sticking with the nifedipine gel for now. I read all the…
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Question about NED
Diagnosed and had colon resection March 2004 with 1 node of 30 was positive, tumor had penetrated colon wall (not a good thing). I also completed 12 folfox chemo treatments that ended last October. So far all has gone fairly well. The one question I have is that quite often some on this site have posted NED as reported by…
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Thanks for all the answers & input
Hi all, Just wanted to say thanks for the good replies. I did ask my oncologist if I needed one right b-4 I started chemo & he said "No not at this time" so maybe he is waiting until after chemo treatments. I just wondered IF is was protocol to have one after all this surgery, yes they looked around the bowel etc, while in…
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HAPPY VALENTINE'S DAY!!!
Good morning all! Wishing you all a FABULOUS Valentine's Day! I hope it is a day bursting with love, laughter and friendship (and too much food, wine, cheesy love movies and chocolate of course!). I already received Superwoman and Spongebob PJ's. Now, how cool is that?! May all your Valentine wishes come true:) All my…
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coming up on a year since last chemo treatmen
March I will be celebrating a year since my last treatment due to stage 3 colon cancer. I had surgery for that also with a full hysterectomy. Since that time I have been diagnosed with a slow thyroid, vitamin deficiencies and have put on over 25 lbs. But I am so happy to be alive. I will tell you that had I not pushed my…
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Question for Emily
Hi, Someone gave me info about NONI for cancer. Do you know anything about this???? Seems to have helped alot of people, whether doing chemo or not. Says if doing chemo, it will with side effects. I know you know a lot about alternative treatments and figured you had heard of this, Talk to you soon. Love and prayers,…
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hey sponge bob is that true ?????
hey sponger andrea said she received sponge bob pj's. myself and all the semi's would like to know if you are giving your pj's away. what do you think kanga???? what is next the speedo,thong.... i knew that jennifer was seeing other guys but still. all the best bruce
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Finished last (?!) chemo treatment
Hi everyone, Last night I finished my last round of 12 Folfox treatments, three days each, beginning in September '04, I'm so glad that no matter what, now I get a break! Of course I'm nervous about the next business of "surveillance"--I haven't had a CT scan or any other testing since last summer, so who knows what I'm…
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hanging in there
Hi, thanks for all the encouragement. I try really hard to think of one day at a time one session at time, but sometimes when I feel icky all over after the chemo it seems to get me down. I go again this week for my 2nd time the 48 hours yes it is hard because I feel like a carved up turkey with 2 operations, port…
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Bad News
Hi all, hope everyone is doing well. You are all in our prayers. Well we had meeting with surgical oncologist yesterday. We were to find out if Scott was a candidate for the Intraoperative Peritoneal Chemo treatments (same as Fitlisa). He is not. His cancer is spreading at a rapid rate. They said to go in now would only…
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Biopsy is over.......
Hey there semi's.......... Well the biopsy's are over and we'll have results on Monday....or so they say. I hope they got what they needed this time around because we won't do that again. My sedation consisted of Demerol/Visceral........HELLO!!! No it didn't work.....I asked for sedation and that's what I got. Now that…
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CANCER FREE....Again!
Sometimes, it's good to hear good news, so I want to encourage you all! in 2002, at age 29, I was DX with stage 3 colon cancer and underwent chemo for six months. I spent about 8 months out of chemo before I had a reoccurance and was diagnosed with mets to the liver. Officially, stage IV. So, I started the Folfox regeim…
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thanks for reply for stage IV
Hi,again thank you for your replies. I understand what everyone is telling me and I try to keep thinking positive but somedays are harder than others especially doing the chemo again this time around I notice it is harder, diahria lasted longer,very fatigued and achy I did chemo from june/October /04. Now am doing it…
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Had to cancel this round of chemo
Hi all, Well I had chemo yesterday and they also put me on round the clock morphine and upped my zofran. Well, got up to go to chemo this morning and I got really sick. I started vomiting, even with taking the medicine. I tried to call the chemo doctor's office and they were in a meeting, so we went ahead and went in. I…
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Family Members Depression
Hi gang Iam still here, I was referred to a Liver specialist named Dr, Koneru of University Hospital in Newark New Jersey. Yes I'm a Jersey girl. This Doctor was on the team of surgeons for the first Liver Transplant,not that I have been told I need a transplant. There are procedures I have to go thru before the team…
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1.5 Years since surgery
On Monday of this week, I had a follow-up colonscopy because they found two polyps three months ago and one they could not remove all. On Monday, they could find no sign of ANY polyps and she "washed" me clean and could find nothing anywhere. And I dont have to have another one for two years!! Hurray and Praise God for…
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Watch Oprah Winfrey Today ! ! !
Hi Everyone, Be sure and watch the Oprah Winfrey Show today. Her special guests are Lance Armstrong and his girlfriend Sheryl Crow. Remember Lance fought a stage 4 testicular cancer and won his battle.... Lisa
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Malpractice Lawsuits - Missed Detection
Hi, I'm newly diagnosed with rectal cancer at age 33. Am going through a lot of frustration about how I and others missed detecting the cancer earlier, which I imagine is pretty common. Interested in anyone's views on seeing lawyers at some point. My priority, of course, should be treating my cancer, but I guess I need to…