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Liver biopsy
This has been a SUCK A-- day! My husband is in day 2 of folfox treatment three (for rectal cancer). We found out last nite that a lifelong friend succumbed to brain cancer that started in his arm. A co-worker had surgery today to remove scar tissue from a previous colon polyp removal and a malignancy was diagnosed. I don't…
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Sponger...where art thou?
G'day mate...sorry I missed you post of good news. Jen's got me so busy here that I have to make an appointment just to see her....lol! Great to hear that you still have NED as a mate. I got this pre-emptive sick feelin in me stomach that my time is almost due for my specialist to take another look "where tha sun don't…
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Eurbitux & Avastin side effects
My dad has Stage IV colon cancer and has been going through chemo for 19 months. Nothing has worked and the cancer spread to his liver, lymph nodes, spleen and pancreas. It has been 19 months of continuous pain and discomfort. The latest side effects have been extreme pain in his shoulder. They are so bad that he cant even…
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Hurry up and wait
Chris goes in for a biopsy today to try to determine the origin of the cancer, PET scan is tomorrow and game day visit to the oncologist on Monday (makes for a fun weekend). The neurological damage is worsening and he's in a lot of pain. Apparently the tumor is blocking one kidney so he only has one that's functioning as…
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Can alternative supplements increase CEA levels ?
I'm concerned that my father's CEA levels are not coming down to pre-surgery levels after he finished his chemo (Xeloda) back in early March. His CEA levels are as follows: CEA = 5.4 on 9/14/05 (before surgery) CEA = 4.0 on 10/4/05 (3 weeks after hemicolectomy) CEA = 14.1 on 3/14/06 (1 week after last cycle of Xeloda…
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Happy Birthday Mom
As some of you know my mom died on March 21st of stage 4 cc. Today would have been her 63rd birthday and I miss her so much. I will never understand why a such a beautiful person could ever be put through the torture she was put through mentally and physically...and then not even survive it. Happy Birthday Mom - you were…
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I have some questions
Hi all, I have posted here once before, but I come here just about everyday to check things out. My prayers are with you all, especailly you Mindy. I also lost my father some years ago to cancer Kathi you make me laugh when I need it most. I come to this site when I am at work as my husband does not believe in sharing what…
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ambush are you out there
i tried to email you but could not get it to work i need prayers, i had to leave my home last night for the saftey of myself and daughter. some men from my chruch are going to meet with him tonight at 7 for an intervention i would appreciate your prayers your friend catherinee
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CPT 11/Camptosar ?
My dad recovered from liver resection at the end of April and just started his chemo treatment with Cpt-11, 5-FU in his hepatic pump, Avastin. He is having diarrhea of his lifetime from cpt-11. Can someone tell me how long these diarrhea will last? He finally took Imodium yesterday (after 3-4 days of diarrhea) and said…
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been an ostrich
I have been awol for awhile trying to enjoy the relative peace that my husband being on treatment allows...he is doing really well on the second line treatment of xeloda and oxaliplatin..not too may unmangeable side effects...he seems to be REALLY WELL..enjoying golfing etc...will have a CT the second week of August and I…
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colon cancer has most post?????
I just have to ask why this is one of the biggest groups? I know it affects more people than other cancers but I still question the number of post. Just me being.... me. gracegirlnow
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Can anyone share their experiences with Camptosar?
Hi All: I was just curious if anyone who has been on/ is on Camptosar would be able to tell me about the side effects, results, successes, etc. they experienced. My father was recently put on this drug after all others had failed, so I'm very curious to see how it has worked for other people. He seems to have less stomach…
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Deja vu all over again...
Hello all. A few of you old timers may remember me from my husband Chris's rectal ca diagnosis in the spring of '03. Stage II at that time, they beat him up with chemo and radiation and follow up surgery that left him with a permanent colostomy but a promising outlook for an eventual cure. All follow up scans, bloodword…
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RFL Suggestions?
Hi all, I'm helping out with a local Relay coming up in August and have volunteered with Survivorship. I'm to: -Recruit Survivors -Keep track of all the survivors -In conjunction With Central Entertainment plan how you will honor survivors and the opening ceremony, and plan one survivor related ceremony. Since I'm still…
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Colonpalooza Pics
Very soon, I will start putting together a website for Colonpalooza ... highlighting past events and advertising future events. So ... I need pictures of past Colonpaloozas. As many pictures as possible. If you have any pictures of past events, please send me a CSN email. Thanks! RT
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Would Like To Share My Experience
Hi everyone, hope you all are doing well. I just wanted to let anyone out there that is a caretaker taking care of a loved one who are at end stage if you would like me to share my experience with you I would love to. When my dad was going through end stage Colon Cancer I had so many questions on what to expect, what are…
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ct scan tomorrow Tuesday.
Hi everybody, tomorrow at 12 noon, I will be in the big doughnut again. in a previous post there was mention of everyone here holding the scanees hand. I would love to feel that some of you were doing this for me. Please. XXXXX Margo
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Colorectal with liver mets?
They put my husband in the hospital today. They think possibly he has a blockage. His pain has been tremendous the past week. They cannot operate on the colon for another 2 to 4 weeks as he just stopped chemo/rads 2 weeks ago. Has anyone had this similar type cancer and problems? Any information you can give me will be…
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Quality of Life
A "routine" colonoscopy for my 83 year old father revealed three minor non-cancerous polyps and a suspicious, albeit tiny area (so tiny it was tattooed to insure detection should it prove to be malignant). The biopsy of the area confirmed colon cancer and a CT scan staged the growth as Stage II. Laparoscopic surgery was…
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PETSCAN, UPPER ENDO NED
In my continuing saga of the questionable elevated pancreatic enzymes. I found out yesterday that the petscan was okay. I had the upper endo done on Thursday where the Dr. said he did not find any thing but a hiatal hernia. I guess I have to add that to my medical list!! He scoped the remaining part of the rectum which…
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Question about hairloss
Hi everyone! I tried to post this yesterday, but I don't think it went through.....I hope you all had a wonderful holiday weekend ;-) I know this is going to sound really trivial, but, over the past few weeks, my hair has really been thinning! I am on my 9th week of chemo, 5FU/Leucovorin. My doctor told me that this med…
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Getting back to normal
I am a 42 year old gay man who has just completed his chemo/radiotherapy. I am now thinking about getting back to normal. For me that includes having anal sex. Does anyone have any advice?
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Back from 'the Springs'...I'm Jello!
Well, I am now back from Palm Springs...It was 85 degrees at 10:30pm!!!!! I am now officially JELLO, after 4 1/2 hours of facial, massage, and doing this thing called 'taking of the waters'...first wet sauna, then dry sauna, then aromatherapy dry sauna, then soaking in water from tribal (this is Indian land) hot springs,…
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Im home from the hospital - surgery went well!
Hello everyone. i wanted to say thank you for all the warm wishes and the prayers. I had my surgery Monday and I came home today. They removed all the tumor lapriscopicly (spelling is wrong!) They did find some cancer on the vaginal wall so they had to remove some of that and due to the location of that I had to have all…
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surgery done
hi all, just thought i would let you all know my surgery is over and was a sucess. i had rectum and anus removed with permenant colostomy on june 30th still feeling quite sore and have to get use to this whole colostomy thing but today it worked for the first time so that is a big relief. a little or should i say alot…
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yea haw
great news!! cancer stage 2, no lymph nodes involved. so i say good riddance to the a-hole that was once mine!!
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questions
Hi everyone, just a couple of questions, I have been having a lot of bowl movements lately, is this normal, and also my voice when I talk is getting horse, people have said that I should not be the horse over a month from the hospital. I asked the oncologist and he looked in my throat, did not say anything, should I ask…
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Friday Giggles
Hi All: Here's a couple of short jokes for a short week. Have a great weekend! Cheers, Ying - - - Clinton, Bush, and Washington... Bill Clinton, George Bush and George Washington were on the Titanic. As the boat was sinking, George Washington heroically shouts, ''Save the women!'' George Bush hysterically screeches,…
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Low Plateletts
Hi Everyone, I don't post too many questions here so let me give you a background. I'm stage 3 one node semi-colon dx Dec 19th (one day before my birthday). I'm on folfox chemo and found out my plateletts are low. My onc said that the only way to raise them is to take a week off chemo or get an infussion. Does anyone have…
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using metamucil
had rectal cancer...low anterior resection in March 2006...been using imodium at night to try and regulate...would like to try metamucil to bulk it up...in order to go less frequently....please let me know of any success you've had with this. thank you