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MRI OF ABDOMEN NED
Hi everybody. I had my MRI of the abdomen done on WED.nite to determine why my pancreatic enzymes continue to rise since May 30th. My oncoligist stated all was clear in that there were no focal lesions in the pancreas, liver, adrenals or kidneys. THANK GOD. How ever the lipase which is a pancreatic enzyme continues to rise…
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Does survivorship cause OCD?
Do any of you feel like you have Obsessive Compulsive Disorder? I just had my scans/bloodwork done 1 year and 8 months NED. I had clear scans but when I asked the results of my CEA I was told it was 0.5/perfect! Well, one year ago I was told my CEA was "less than" 0.5. So I am like "What, it isn't below 0.5???" The nurse…
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In Love with NED!!!!
Hi all - Your good vibes, prayers, wishes, hugs etc. must have done the trick. My PET and CT scans from yesterday are NEGATIVE!!!! The radiologist (one of the few who will talk to patients) actually called me because my oncologist is on vacation today. He told me about the great results and then asked how my treatments…
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Need help after sphincter-sparing surgery
My brother age 51 had sphincter-sparing surgery 2 months ago for resection of a Stage 2 rectal cancer, his nodes are negative, all margins clear thankfully. The board certified colo-rectal surgeons were unable to do a J-pouch because of his narrow pelvis, they did a colo-anal anastomosis. He developed a rectal/pelvic…
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More in the news....
FDA Grants Priority Review Of Panitumumab For Treatment Of Patients With Metastatic Colorectal Cancer THOUSAND OAKS, Calif., Jun 12, 2006 (BUSINESS WIRE) -- Amgen (Nasdaq:AMGN), the world's largest biotechnology company, today announced that the U.S. Food and Drug Administration (FDA) has accepted the Biologic License…
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I'm back...
Hi everyone, I had to take a short break. Things have been a bit crazy in my life for the past couple of weeks. As most of you know, my mom had a heart attack and was in the hospital for a week. I was there with her everyday practically all day. Then, this week we had another scare and thought she had another heart attack,…
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Trying again!
On Wednesday they are going to try me on Folfox again. Last time I had a reaction and spiked a high temperature. I've been given a prescription for Dexatheasone (corticosteroid) and will take 20mg x 2 on the day before I'm to be infused. Anyone used this and had good results in being able to take Folfox.
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Happy 4th of July
I just wanted to wish everyone a Happy 4th of July. I walk with a group of 4 women in the evening and tonight one of the women had 4th of july hats, with the top being the flag, and stars around the brim, it was a hard plastic had with glitter, some of the comments were, that we should have had bags of candy with us and…
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Not so great PET results
I do not post very often, but read all posts daily. My husband originally dx 09/02 then mets to lungs 05/05 went today for his PET results. The mets are adapting to the current meds 5fu/leucovorin/camptosar with Avastin. Was on Oxiplatin (sp) for about 3-months after mets dx, side effect pretty bad so changed to Camptosar…
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Post-op pain
After completing my treatments and surgery, I have suffered severe pain in my hips. I have a permanant colostomy. Does anyone else have this problem? My pelvic muscles do not work, and suffer from incontinence. I believe it was caused by the radiation.
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New Here :(
Hi all. Just checking in to see what I can find out about this "crappy" disease. Pun intended. I had a colonoscopy yesterday after enduring seven years of on-again-off-again diahhrea that my doctor called Irritable Bowel Syndrome. The gastroenterologist found something he highly suspects (to the tune of 80% certainty) to…
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Recovery
Some will know me from the past but I haven't posted a lot lately. I am a 33 year old stage 3 rectal cancer survivor, two years post op in England (from New Zealland originally). The reason for this post is to ask people for any reflections they have on the concept of recovery. I work as a psychiatrist in England and…
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Who is NED and how can I become him? LOL!!!
OK, I get it. It's an acronym for something..... but what? Can anybody point me to a glossary of colorectal acronyms used on this board? Thanks!
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Possible new test....
Shining a Light on Colon Testing Researchers at Northwestern University have been developing a technique called enhanced backscattering spectroscopy, or EBS, which will help in early colon cancer detection. With EBS, light sent through a fiber optic cable shines on human tissue and scatters. About 10 percent of the…
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Confused on scans
This board seems to be more active than the breast cancer board, so I am going to ask here. It is my understanding that a CT Scan checks your organs and a Bone Scan checks your bones. What does a PET Scan check? Is a Bone Scan & PET Scan the same Scan? Thanks in advance. LoVonna
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Friday Giggles
Hi All: Happy Canada Day and Happy 4th of July! Here's something to help get your weekend off on a silly giggling start! Have a great weekend! Ying - - - There once was pirate captain who, whenever it looked like a battle would be imminent would change into a red shirt. After observing this behavior for a few months, one…
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NED BABY
Hi All, I had my CT scan today and NED. AHHHHHHHHHHHHHHHHHHHHHH. crap that feels good. the Onc wanted to do a pet/ct in 60 days and i said naw lets go 90 days - I want my summer and I dont want to think about a glow worm test. he agreed. He did mention to me that although Chemo usually does not cure cancer, all looks…
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vacation bible school
It over for another year, hooray, what a lot of work. Now for some peace and quiet. I have a lot of reading to catch up on. I love mystery books, but have been too busy to read any. Now's my chance. Thanks everyone for their support, it has meant so much. Thanks again Ladybug
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Article on Colon Cancer Detection
There was an interesting article entitled Cancer Detection Makes a Stride in Thursday's Kansas City Star. Here's the article in case you didn't see it: Scientists have developed a simple formula that can help find colon cancer patients with certain inherited bad genes. The information can help determine the best course of…
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You can't get rid of me THAT easy!
You guys didn't think you could get rid of me THAT easy???? Huh????? I'm still hanging.... Thank you all for the kind words! I went and had a BIG dinner Tuesday night (paid for it yesterday with an upset tummy..hehehehe). I am going to a spa in Palm Springs after the 4th of July....just me....to celebrate! Hugs, Kathi
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CT/PET scan on Thursday.
Hi all, my first pet/ct scan since ending chemo for the 2nd time and having surgery. i spent the week at the lake forcing myself to not think about it. The demons got in my head today. sometimes it is really tough to turn this over to God. Thanks to this site, wonderful kids and a supportive partner. and a good friend that…
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Can I make up an acronym? NES!
I just had to share our news!! My hubby got results of PET scan yesterday and he has NES (no evidence of spreading)! For us, that is good news! His liver and colon tumors are shrinking and there's no spreading!! This is NES and we are HAPPY to see her! I was chasing Kathi down the street dancing (I was the one with clothes…
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3 years today
I had my surgery for my stage 3 rectal cancer on 6/26/2003. I celebrate all my milestones, but this is a big one. I had a cat scan in May and remain NED. So much has happened in the last 3 years. For all the newbies, I never thought I would get better. My life is almost normal now. I say almost normal now, because I don't…
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Hi all ... newbie here
Hi all, I am on my third year of dealing with colorectal cancer. I had chemo, surgery, radiation and then chemo again three years ago. I guess that is a big trend here. I have never posted on a meassage board about this. I am new to the site. I am just looking for others who deal with what I am dealing with each day. I had…
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Thanks for all your good wishes
Thanks all for the good wishes and great images. I'm off to the scanner and will be taking them all with me. You guys are the best! Betsy
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When do you start counting?
Hi all, I'm doing well today..I'm sorry to read that others aren't. I got another clear CT Scan today since being dx'ed in Feb 2005. The weird thing is though that my oncologist told me today that he considers me to be 15 months out. I started chemo in Mar 2005. That was 15 months ago. So according to my doctor, I am 9…
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spiritual question
I lie awake at night wondering if there is a dog. I am a dyslexic, insomniac agnostic.
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NAKED happy dance!!!! DONE!!!!
Yes, good friends, I had my LAST radiation treatment TODAY.....no more!!!! MAN, I am going to sleep FOREVER!!!! No having to drive EVERY DARN DAY to treatment...and all the blue marks, and....well....if you see a newspaper article about a woman with multiple scars dancing naked down the street....that will be ME!!!!!!…
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FYI
I found this in Mondays paper: Leroy Sievers, a respected veteran ABC News producer and cancer survivor, will launch a monthly series of commentaries,"My Cancer," to air on National Public Radio's morning edition,starting today ( MOnday). He was diagnosed with colon cancer 5 years ago and is currently undergoing chemo…
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NED !
Hi everyone - I just wanted to share some more happy news. My mom (originally diagnosed Jan 2004/Stage III) went for a follow up colonoscopy today and everything looked perfect. For those of you who don't know, a few months afer my moms original surgery, a local recurrence was detected during a follow up colonoscopy, and…