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Recovery
Some will know me from the past but I haven't posted a lot lately. I am a 33 year old stage 3 rectal cancer survivor, two years post op in England (from New Zealland originally). The reason for this post is to ask people for any reflections they have on the concept of recovery. I work as a psychiatrist in England and…
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Who is NED and how can I become him? LOL!!!
OK, I get it. It's an acronym for something..... but what? Can anybody point me to a glossary of colorectal acronyms used on this board? Thanks!
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Possible new test....
Shining a Light on Colon Testing Researchers at Northwestern University have been developing a technique called enhanced backscattering spectroscopy, or EBS, which will help in early colon cancer detection. With EBS, light sent through a fiber optic cable shines on human tissue and scatters. About 10 percent of the…
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Confused on scans
This board seems to be more active than the breast cancer board, so I am going to ask here. It is my understanding that a CT Scan checks your organs and a Bone Scan checks your bones. What does a PET Scan check? Is a Bone Scan & PET Scan the same Scan? Thanks in advance. LoVonna
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Friday Giggles
Hi All: Happy Canada Day and Happy 4th of July! Here's something to help get your weekend off on a silly giggling start! Have a great weekend! Ying - - - There once was pirate captain who, whenever it looked like a battle would be imminent would change into a red shirt. After observing this behavior for a few months, one…
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NED BABY
Hi All, I had my CT scan today and NED. AHHHHHHHHHHHHHHHHHHHHHH. crap that feels good. the Onc wanted to do a pet/ct in 60 days and i said naw lets go 90 days - I want my summer and I dont want to think about a glow worm test. he agreed. He did mention to me that although Chemo usually does not cure cancer, all looks…
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vacation bible school
It over for another year, hooray, what a lot of work. Now for some peace and quiet. I have a lot of reading to catch up on. I love mystery books, but have been too busy to read any. Now's my chance. Thanks everyone for their support, it has meant so much. Thanks again Ladybug
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Article on Colon Cancer Detection
There was an interesting article entitled Cancer Detection Makes a Stride in Thursday's Kansas City Star. Here's the article in case you didn't see it: Scientists have developed a simple formula that can help find colon cancer patients with certain inherited bad genes. The information can help determine the best course of…
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You can't get rid of me THAT easy!
You guys didn't think you could get rid of me THAT easy???? Huh????? I'm still hanging.... Thank you all for the kind words! I went and had a BIG dinner Tuesday night (paid for it yesterday with an upset tummy..hehehehe). I am going to a spa in Palm Springs after the 4th of July....just me....to celebrate! Hugs, Kathi
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CT/PET scan on Thursday.
Hi all, my first pet/ct scan since ending chemo for the 2nd time and having surgery. i spent the week at the lake forcing myself to not think about it. The demons got in my head today. sometimes it is really tough to turn this over to God. Thanks to this site, wonderful kids and a supportive partner. and a good friend that…
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Can I make up an acronym? NES!
I just had to share our news!! My hubby got results of PET scan yesterday and he has NES (no evidence of spreading)! For us, that is good news! His liver and colon tumors are shrinking and there's no spreading!! This is NES and we are HAPPY to see her! I was chasing Kathi down the street dancing (I was the one with clothes…
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3 years today
I had my surgery for my stage 3 rectal cancer on 6/26/2003. I celebrate all my milestones, but this is a big one. I had a cat scan in May and remain NED. So much has happened in the last 3 years. For all the newbies, I never thought I would get better. My life is almost normal now. I say almost normal now, because I don't…
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Hi all ... newbie here
Hi all, I am on my third year of dealing with colorectal cancer. I had chemo, surgery, radiation and then chemo again three years ago. I guess that is a big trend here. I have never posted on a meassage board about this. I am new to the site. I am just looking for others who deal with what I am dealing with each day. I had…
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Thanks for all your good wishes
Thanks all for the good wishes and great images. I'm off to the scanner and will be taking them all with me. You guys are the best! Betsy
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When do you start counting?
Hi all, I'm doing well today..I'm sorry to read that others aren't. I got another clear CT Scan today since being dx'ed in Feb 2005. The weird thing is though that my oncologist told me today that he considers me to be 15 months out. I started chemo in Mar 2005. That was 15 months ago. So according to my doctor, I am 9…
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spiritual question
I lie awake at night wondering if there is a dog. I am a dyslexic, insomniac agnostic.
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NAKED happy dance!!!! DONE!!!!
Yes, good friends, I had my LAST radiation treatment TODAY.....no more!!!! MAN, I am going to sleep FOREVER!!!! No having to drive EVERY DARN DAY to treatment...and all the blue marks, and....well....if you see a newspaper article about a woman with multiple scars dancing naked down the street....that will be ME!!!!!!…
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FYI
I found this in Mondays paper: Leroy Sievers, a respected veteran ABC News producer and cancer survivor, will launch a monthly series of commentaries,"My Cancer," to air on National Public Radio's morning edition,starting today ( MOnday). He was diagnosed with colon cancer 5 years ago and is currently undergoing chemo…
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NED !
Hi everyone - I just wanted to share some more happy news. My mom (originally diagnosed Jan 2004/Stage III) went for a follow up colonoscopy today and everything looked perfect. For those of you who don't know, a few months afer my moms original surgery, a local recurrence was detected during a follow up colonoscopy, and…
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Going to Say Goodbye to my Dad
Hi everyone, well Im having a tough night here. I got the call that my dad has 2 days left. Im traveling tomorrow to say my last goodbyes. I just got back Sunday after a 3 day visit and I was an emotional reck. He was out of it most of the the time but I had a few special moments with him. I held his hand and sang to him…
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nutrition
My Oncologist says there is not a special diet that is needed for the cancer that I had. I just got the book Beating Cancer W/Nutrition by Patrick Quillian. I do need to start eating healthier. I am over the hump with Vacation Bible School, only two more days to go. I told my pastor that I am taking the rest of the summer…
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CT or PET for follow-up
Hi again everyone, What are people who are considered NED getting for scan as follow-up? My oncologist plans on doing CTs instead of PETs. I asked him why and he said it gives a better picture. That PET scans are better for monitoring response of existing cancers to treatment. I though I was going to get PET scans for…
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correction
actually - i was just re-reading my post - my mom was diagnosed in January 2003, not 2004.. Time flies - it has already been 3.5 years..
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Boston Mini Palooza in August?
Hi Guys: I am coming to Boston for work on July 30 - August 4. babs211, judiths and I have been thinking about getting together for our very own mini-Palooza on one of those evenings. So if you live in the Boston area and would like to join us for a fun evening of laughs, comaraderie and lively dicussions of bodily…
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IT ISN'T FRIDAY, BUT...
I couldn't let this one pass you all by: Cinderella is now 95 years old. After a fulfilling life with the now dead prince, she happily sits upon her rocking chair, watching the world go by from her front porch, with a cat named Bud for companionship. One sunny afternoon out of nowhere, appeared the fairy godmother.…
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NED NED NED NED NED!!!!
I am extremely HAPPY to say that dad remains NED after being diagnosed stage 3 in July 2004. I can't believe next week will be two years already.He had the scan done this morning and I was so scared all day even breaking down a couple of times, but thank our good God, he remains cancer free. Now I have to schedule the…
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NED
Thanks for all your prayers. Husband had colonoscopy today. No signs of cancer. Did have one small polyp. Colonoscopy again in another 6 months. The doc found a small polyp six months ago and told us today that he would continue to do one every six months if he found any polyps. Again, thanks for your prayers and God bless…
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Seeking Good Wishes
Hi all - I have my next PET / CT this coming Thursday, and even though my last one was NED and just at the end of April, for some reason I am more nervous than ever about this one. The results will be what they will be and I am sure I won't get them until after the 4th, but I'd like to take as many good vibes as I can into…
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Endoscopic ultrasound ?
Saw my GI today to review endoscopy results. He saw no signs of cancer or polyps,but we are still not sure what is making the PET scan light up. Next week I will probably be having an endoscopic ultrasound at the medical university where I had my surgeries. I've never had this test before. If anyone can give me an idea of…
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oxaliplatin
Hi everyone! Havent written for a while due to major surgery. Went in for a sigmoidoscopy and my doc perforated my colon. Took out some tumor while he was in there but it was touch and go for a while. Renal failure, pneumonia, you name it. I'm lucky to be alive today after 3 weeks in intensive care. Started oxaliplatin…