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Going to Say Goodbye to my Dad
Hi everyone, well Im having a tough night here. I got the call that my dad has 2 days left. Im traveling tomorrow to say my last goodbyes. I just got back Sunday after a 3 day visit and I was an emotional reck. He was out of it most of the the time but I had a few special moments with him. I held his hand and sang to him…
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nutrition
My Oncologist says there is not a special diet that is needed for the cancer that I had. I just got the book Beating Cancer W/Nutrition by Patrick Quillian. I do need to start eating healthier. I am over the hump with Vacation Bible School, only two more days to go. I told my pastor that I am taking the rest of the summer…
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CT or PET for follow-up
Hi again everyone, What are people who are considered NED getting for scan as follow-up? My oncologist plans on doing CTs instead of PETs. I asked him why and he said it gives a better picture. That PET scans are better for monitoring response of existing cancers to treatment. I though I was going to get PET scans for…
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correction
actually - i was just re-reading my post - my mom was diagnosed in January 2003, not 2004.. Time flies - it has already been 3.5 years..
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Boston Mini Palooza in August?
Hi Guys: I am coming to Boston for work on July 30 - August 4. babs211, judiths and I have been thinking about getting together for our very own mini-Palooza on one of those evenings. So if you live in the Boston area and would like to join us for a fun evening of laughs, comaraderie and lively dicussions of bodily…
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IT ISN'T FRIDAY, BUT...
I couldn't let this one pass you all by: Cinderella is now 95 years old. After a fulfilling life with the now dead prince, she happily sits upon her rocking chair, watching the world go by from her front porch, with a cat named Bud for companionship. One sunny afternoon out of nowhere, appeared the fairy godmother.…
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NED NED NED NED NED!!!!
I am extremely HAPPY to say that dad remains NED after being diagnosed stage 3 in July 2004. I can't believe next week will be two years already.He had the scan done this morning and I was so scared all day even breaking down a couple of times, but thank our good God, he remains cancer free. Now I have to schedule the…
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NED
Thanks for all your prayers. Husband had colonoscopy today. No signs of cancer. Did have one small polyp. Colonoscopy again in another 6 months. The doc found a small polyp six months ago and told us today that he would continue to do one every six months if he found any polyps. Again, thanks for your prayers and God bless…
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Seeking Good Wishes
Hi all - I have my next PET / CT this coming Thursday, and even though my last one was NED and just at the end of April, for some reason I am more nervous than ever about this one. The results will be what they will be and I am sure I won't get them until after the 4th, but I'd like to take as many good vibes as I can into…
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Endoscopic ultrasound ?
Saw my GI today to review endoscopy results. He saw no signs of cancer or polyps,but we are still not sure what is making the PET scan light up. Next week I will probably be having an endoscopic ultrasound at the medical university where I had my surgeries. I've never had this test before. If anyone can give me an idea of…
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oxaliplatin
Hi everyone! Havent written for a while due to major surgery. Went in for a sigmoidoscopy and my doc perforated my colon. Took out some tumor while he was in there but it was touch and go for a while. Renal failure, pneumonia, you name it. I'm lucky to be alive today after 3 weeks in intensive care. Started oxaliplatin…
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upcoming scan - freaking out
Hi All, I haven't posted (much) for a while -- but you have all been in my mind and heart. I have a PET scan next Monday (3 June). Of course that is always a somewhat stressful time, but I seem to be exceptionally tense this time. (Brief history: diagnosed Dec 02 with Stage III rectal cancer. Treated in 2003 with…
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so tired
Hi everyone: I am so tired, i am a sunday school superintendant, who is getting ready to start a 5 day vbs, this sunday evening. Everything seems to be coming together, i have been at the church about everyday. It was a month today that I had my surgery, I am so tired. I can't sleep at night. We have been having storms so…
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CA19.9 TUMOR MARKER TEST
Frantic here again(Fran)- I slept pretty well last night and am trying to think things out more clearly. Just waiting to have that MRI test June 28th of the pancreas and liver. Does any one out there ever have along with their blood work for colon cancer this CA19.9 test?. Mine is elevated at 65. I did some research and it…
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Does anyone else feel guilty for surviving?
Hi everyone. It has been a while since I've posted to this board. I am 42 years old and a rectal cancer survivor (just passed my 3 year mark). I was feeling elated when I left my oncologist office 2 weeks ago when my follow-up blood work was good. Then a couple of days later, my 16 year old niece was killed in a car…
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Oxi revisited!
Had 2 treatments of oxiplatin (Folfox) 1st was no problem however 2 spiked a high temperature. Went on to radiation/continuous chemo 5fu 28 rounds completed. Went to see my oncologist to-day and I am going to try Oxi again. This time I will be VERY closely monitored, and will be taking pre-med and a much slower infusion. I…
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JUST FLEW IN FROM SAN DIEGO
And boy are my arms tired. Sorry I've been AWOL - I was in San Diego (actually La Jolla) for the past week on business - I know, it's a dirty job but someone's got to do it. Thank you, American taxpayers. Been a busy board over the past week or so. I commented on a lot of posts via e-mail. Hope everyone is well. Kathi,…
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Prayers
Its time again for my husband's 6 month colonoscopy. Dx 10/03, surgery 02/04. NED since. Would appreciate it if you guys would keep us in your prayers Monday, 26th. God bless, Kaye
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Radiation Treatment
Hi. I'm new to this site. Was diagnosed with rectal cancer Apr 06. Just completed six weeks of chemoradiation treatment to reduce the size of the tumor prior to surgery. Scheduled for a CT scan next month to restage and see how much the tumor responded to the radiation. Interested in hearing from someone who has gone…
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My husband wants to die......
I know this site is for survivor spirit, but my husband had III stage cc in 2001...IV stage recurrence in 2005 with mets to liver, and prostate cancer...in treatment since 9/2005, the tumors continue to grow...he is either vomitting, diarrhea, sometimes at same time..lost strength to walk, is in a wheelchair and can go…
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AGE AT DIAGNOSIS
Hey all you groovy Semi-Colons! So, I thought I would start a thread comparing our ages at dx so Kathi can compile some data for her Big Mouth Campaign. 39 (but tumor was there 5-10 years) 29 (my sister was dx'ed but had been sick for years and misdiagnosed b/c of her age so when they finally found the tumor it was…
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cat scan results ~ sigh ~
Cat scan results of yesterday show growth in all my tumors in the lungs. They are still considered small. Last scan was in Jan which had showed a decrease in size on oxali. But since Jan i've spent more time off of the oxali than on because of what it's done to my liver studies. I resumed half dose. Onc isn't happy with…
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Anyone know about new drug.......
Hi everyone, A friend of mine has colon cancer that spread to the lungs and liver. She has been on chemo for almost 2 years to shrink the tumors in the colon and lungs. It has been switched to stronger doses and other combinations over this time. However, the chemo is not working on the lung tumors. And recently the colon…
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Monkey says HI!
It's been a while since I've posted so you may not remember me (and that's okay seeing as I have 'chemo brain' and can't remember stuff myself sometimes). I was diagnosed in late Dec 2005, had surgery early Jan 2006 (talk about starting off the year in an interesting manner huh?). I am a TII NO (tumor did not breech the…
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ELEVATED AMYLASE AND LIPASE
Hello everyone, Frantic here again. Even though I do not post I do read the messages as you all are the best. I have been doing fairly well. Brief hx. (Although I am never brief). Ca/colon Aug.2003, Locally advanced stage 4, 8/20 lymph nodes positive. Had complications after surgey. The rest of my story is posted on the…
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Friday giggles
Hi All: I am in a bit of a post-chemo funk and badly in need of some sillies. So here's one to share with all of you. Have a great weekend! Ying - - - A Russian and an American wrestler were set to square off for the Olympic gold medal. Before the final match, the American wrestlers trainer came to him and said, Now,…
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breast cancer
I tried to copy website for you but it doesn't work. There is a breast cancer doctors don't know about and are calling a bug bite, and it doesn't show up in a mam. or self exam. It is called: Inflanatory Breast Cancer (IBC) If you can, watch the video. I'm sure you can find something about it online, and all women need to…
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Thank you! and Sorry for scaring.
You guys are so wonderful, I am so lucky to have found my family here! I am going to my primary on Monday, but it looks like my hip may just be 'old lady' hip! I am using a cane (wow! that stops traffic) so that I don't fall. With my luck, if I fell, with my osteoporosis I would BREAK something...hehehehehe I'm sorry I…
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Stage 4 survivor stories
I found this site when I was first diagnosed I go back and read it whenever I am having a bad day . Hope you enjoy it and find Hope to keep on fighting !!!! http://www.ccalliance.org/patient/personal/stories_stage4.html Take Care and God Bless . Debra
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let's do Lunch!
I've been in NYC for 3 weks visiting family and running around. I checked the board when I could get access. Anyway, I have 4 more weeks off! Who would like to do lunnch in Ausrin, TX? Kay and Kerry- I hope you're in! I met Sunfish while in NYC- What a great gal! Want to share pics and aspirations of CP4 in Halifax! How…