-
Hello everyone
I hope your all doing well We have a question for you How do we know the chemo is working? How do they know if the cancer is coming back, Gone ect.... I did read about a test C.E.A ? that they check but if it's that easy why didn't they check that in the first place or on anyone they think may have cancer ? Thank you my…
-
TO CELEBREX OR NOT TO CELEBREX
That is a question... I saw two article banners today, one from Forbes Magazine that says Celebrex does NOT have a role in preventing colon cancer. The other one from UPI said that it does. Confused? I was, too. As many of you may know, the COX-2 inhibitor pain reliever Celebrex (yep, related to Vioxx although not proven…
-
3rd delay in a row
well, just back from the clinic and his plateletts are still too low for chemo..that is the third time in a row...very very discouraging since 3 weeks ago we got the news that his liver mets are shrinking then we are in limbo and can't continue his treatment (oxaliplatin/xeloda)...his Dr wan't there today (had just left…
-
Not sure I can find real peace in chemo....
I know it is often said that being at peace with our treatment plan is key to success. Well, I start chemo tomorrow and even though I am committed to going through the process as my best alternative, I am not at peace about it in many ways. For instance, my mindset is thus: I go in at 8 to draw blood so they can see if my…
-
Celebration on the Hill is less than 3 weeks!
My journey to Washington, DC is less than 3 weeks from now....September 20 is the 'big relay' day. If there is someone you all would like to buy (sorry, it's $10 each) a luminaria for, you can go to http://celebrationonthehill.org/ and click on the luminaria button. These will be part of the walk of silence around the…
-
Night Sweats
My husband has very severe night sweats. I'm talking about "wet" bed covers, not damp. He must put something dry under him different times throughout the night and still wakes up with a very wet bed. Does anyone have any idea what causes this and are there any suggestions on how to deal with it? His forehead is damp and…
-
is this a resonable plan and time sequence?
Thank you so much. It does seem overwhelming. I meet with the surgeon. He is certified from American colo -rectal, very respected, checked his references and feel good. He said surgery is necessary, and quicker is better than any waiting. I was concerned about doing this in Santa Barbara or perhaps going to someplace like…
-
Call out to KathiM!!!!
Kathi, how are you holding up? Did the doc schedule the MRI yet? Been thinking about you. Hang in there.
-
one more thing....
I will be doing the following test...Here is my chance to find out if juicing, vitamins ( transfer factor...is vitamins that I take to increase my inmune system..I take 9 of them a day)...alkaline diet,,,no red meat...no sugar...meditation and visualization ( my husband is an expert) reiki ( my husband took the…
-
got 2nd opinion, feel much better
Hi Everyone, I went for a second opinion today. The oncologist that I saw was in complete agreement with my oncologist though he did have some suggestions regarding chemo after lung surgery. Surgery is scheduled for Sept. 11. I feel much better about the whole thing and am glad that I went for a second opinion. Take care…
-
Clear PET Scan
Hi Ya'll: Sorry I've been so out of touch lately. Life and work have resumed their pre-cancer pace, and it's just grand! No more nausea, and the finger-tip tinglies are subsiding too. If only I can just lose the 10lbs of chemo-fat :) Anyway, some great news to pass along - I had a clear PET scan!!! They didn't find…
-
No Avastin for me
I just heard from my oncologist and I have been randomized into Arm A of the study that provides the 6 months bi-weekly regimen of Folfox but does not add on the Avastin. That would be Arm B. I had told my onc that I hoped to be in Arm B and he held up his hand and said, "don't say that. When we did the tumor testing you…
-
update
Thanks for your response....went to my oncologist today....he gave me a few options...Surgery (which he doesnt recomend because it will just be to biopsy the lymph and the recup time is a month ) or to wait 3 weeks and have another ct...and blood test..if it grow, then we know what it is...I'm not blaming my oncologist at…
-
A surgeons OOPPSS..need advice
well..here's my update...for the ones that dont remember...had ct..found 2 spots on psoas muscle..had Pt scan...same results...had biopsy last Friday....and results today...they made an ooppss !... they pulled the wrong tissue...I'm pretty upset because if I want to make sure that my cancer is back there is no other way to…
-
CEA STILL RISING
I was told 2 weeks ago that I have colitus. My CEA count went up as of Monday. I was hoping with the medicine that it would go down. It's now at 35 it was 17 4 weeks ago. I have to go back in 3 weeks for more blood work. I'm not sure what the plan is going to be if after 3 weeks it's up some more. I'm guessing CT scans…
-
WE WON THE LOTTERY!!!!!!!!!!!
Or at least very close to it. Our own Rodney from this site has made huge progress on our very own WEBSITE!!!!!!! Colonpalooza.com...... check it out to learn more about the paloozas that have already occured and about the upcoming ones. Rodney has worked his tail off on the site and has done a phenomenial job and I can't…
-
question about prep for colonoscopy
she told me i will be using the fleet something soda ? She said I could have breakfast that morning(day before) and that was it. It it nasty? is there alot of it? Thanks Danielle
-
Guess I'm NED?
Hi all, Colonoscopy this am. Removed a less than 1/4 inch polyp. Doc said not to give it a second thought.( and he gives me the straight dope!) Sent it out for testing, but regardless, it's out. 6 month sigs and 1 year colonoscopies. Yea! I think! Barb
-
Please don't let it be 3!
Saturday night I had a visual aura...but no migraine headache after. Blurry vision. Then Sunday morning, nosebleeds off and on for the morning. Smelled burning when nothing was Sunday evening. Called and saw my gentle, dear primary care doc today. Bless him, he sat and listened to it all, including my clumsy attempt at…
-
I'm getting a tat
of the dark blue ribbon on my wrist, That's the right color for colon cancer right? I will be in touch and I will keep you all up to date, I'm sure I will have many question........Thank you ALL once again xox
-
Fentnyl Patches for Pain
Has any one out there had success using the Fentnyl pain patches? They have my husband's at 75mg and plan to increase it today to 100mp in hopes of keeping him more comfortable. He is using Oxycodone for break-through pain. It seems his pain is increasing daily. When they first started the patches, he remained quite…
-
Duey is home
Hey everybody My Duey is home and feeling really good, He can't wait to get back to work....That's how he is I will talk to you all soon and tell you more Much Love to you all
-
The Big Dig
No, not Boston. Colonoscopy. Tomorrow morning. 9am. I'm so excited, I can't contain myself. Not. But, I can't contain myself. Ick. Later. Peace. Barb
-
Only 2 more weeks
To get the great hotel rate for Colon Palooza 4 in Halifax, Nova Scotia Oct. 12-15. We lose the $127 USD rate Sept 11th (rooms will be $200 per nite after then). A colon palooza is a semi-annual reunion of anyone that has been touched by colorectal cancer and the people here on CSN. It is a wonderful time getting to know…
-
Hey Semi-Colons!
Hey y'all! I am so outta the loop on here that I am sure most of you won't even know me! But if any of my old buddies are still posting I send a big Semi-Colon hug!! I am on my friend's computer and I only have a minute, but I just had to pop on here to say HEY! I hope you all are well. I pray for you every day. Anyway, I…
-
xeloda
I had the radiation with xeloda (low dose) six weeks then surgery and then 5 cycles (15 weeks of xeloda)high dose. I was stage 3 low grade no node involvement but some spread into my fat by the cancer site in my colon. While on Xeloda I had severe hand and foot syndrome and my white blood cells along with platelets fell…
-
cancer back in lung
Hi Everyone, It's been a long time since I posted. I was originally diagnosed with rectal cancer in March 2004. I had radiation and chemo, Zeloda, followed by surgery and another 6 months of Zeloda. The tumor was large, but had not spread. I was clear until October, 2005, when it showed up in my right lung. I was put on…
-
Rectal bleeding always mean cancer?
How often does this mean cancer? I'm afraid to get it checked out. Thanks, Scott www.patient-network.com/msuscottie
-
Thank you, my dear friends!
Thank you, everyone, for your very kind thoughts. In my quest for the answer to 'Why?', I received my answer back...."Because". I was playing a self-elected "Joan of Ark of Cancer". I guess I just felt like a child feels...if you work hard enough, believe strong enough...the victory will be yours. I was forgetting one of…
-
Too funny...had to pass it along....
A nurse was on duty in the Emergency Room, when a young woman with purple hair styled into a punk rocker Mohawk, sporting a variety of tattoos, and wearing strange clothing, entered. It was quickly determined that the patient had acute appendicitis, so she was scheduled for immediate surgery. When she was completely…