re: For Glimmerofhope

musiclover
musiclover CSN Member Posts: 242
edited March 2014 in Colorectal Cancer #1
I read your post for "Mother's Lungs Update." It sounds like you have been through a lot. Did you ever have the liver and/or lung surgery yourself? Have you tried other trials or can you tell me about some of the regimens you've been on? My friend Mark is starting a second trial to see if it will shrink some of his many lesions in the lungs and liver. Your info would be so helpful. Thanks so much. Kathryn

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  • glimmerofhope
    glimmerofhope Member Posts: 53 Member
    #2
    I've had 1/2 my liver cut out, and thoroscopic surgery to both my lungs with 5-7 "wedges" cut out of each lung.
    I will send you an e-mail reply in my next communication. I'm not sure what info about my experiences that you are aware of.... My opinion is that the best thing for shrinking or holding at bay cancerous lung nodules (and apparently liver, also) is Avastin and a little 5FU. It worked better than anything else I've done and was the least toxic...about as good as it gets for colon cancer treatments. I have done a number of other things that I believe help that I will share in e-mail when I have more time...Don't let me forget!

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