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sick, scared, and need of some hope
I just completed my firnst chemo of folfox with 5fu pump. The nausea, exhaustion, and pain has been overwhelming. The posts have enlightened me to what to expect, but I hoped that when they disconnected me, that I would feel better. This is the first of 12 and I worry about making it through. Any help or encouragement…
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Husband is NED
After reading Craig's post tonight I really didn't want to post this note, but I am finally able to breath and sleep tonight. My husband had his first colonoscopy today since diagnosed last april with stage 3C, he also had an endoscopy because his ct scan showed swelling in the esophogus. All was clear today and with his…
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Good news
I had my CEA checked yesterday and got good news today. Still very low! So another 3 months ticked off until I can reach my 5 year mark. I wish I could share the good fortune with those of y'all with so much going on with your cancer right now. *hugs* Gail
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30 days
It was about six months ago when my Onc said i had about a month or two to live. Well it's been six months and I've been visiting him every 2 weeks since then. I've been on Xeloda, avastin every three weeks and oxaliplatin every 6 week. My CEA is 125. It was 55 in July. Of course it was off the charts when I was first…
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In Hospital Still.... Just Got MRI Results
Well.... primary care doc came in with results. There is a spot on the MRI. Om my right buttock area. They are not sure yet what it is. It is either a fracture in my pelvic bone... could be a mestatic area.... or could be swelling. Test did not confirm any of the above. Doc said since I was just DX remission Dec. 1st she…
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cancer free
after pet scans and cat scans to hear those words today, words cannot express!!!!! we will beat this and we will do it sooner than later!!!! love you guys!!!
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LEAVIN HOSPITAL!!!!!!! YEAH!!!!!!
Great News!!!! It's a good thing I have God on my side! Final results.... T7 Vertebre Fracture. Self healing...no surgery or back braces! YEAH! Pelvic Bone??? NO METASTIC LEGIONS!!!..... NO FRACTURES!!!! Just extreme swelling caused by the fall and in turn putting pressure on sciatic nerve making walking...... very…
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Low Platelet Count
Onc got my blood work and I had low platelet count so they are delaying chemo for a week. I've been so focused on this only lasting 6 months, "It's a hockey season", and now a delay. Any experience with this? Could this be a one time delay or should I expect more? Tomorrow was going to be flofox treatment 6, the half way…
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my update
good evening semi's well i finally am going in for my resection surgery 1/13. my catscan came back negative no mets anywhere or lesions. all things considered it looks like the dr got it all when doing the scope but the resection is just a precaution. just wanted to let my fsmily now what is going on . thank you never,ever…
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timing of adjuvent chemo
I had surgery(colorectal, chemo radiation first) 4 mnths ago. I should have begun adjuvent chemo 2 months ago.Has anyone had experience with starting chemo later than standard ? or opinion?
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Got a 'note' from Kimby
Kimby has openly posted this and other info on her Facebook page so I feel it's okay to share. "Sorry Diane, tonight is the first time I've been on Facebook in forever! I haven't been keeping up with email even. I am doing better. The last 4 months have been the worst and scariest of my life. My faith is strong but my will…
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Prayers and Thoughts (Week of January 11)
I try and keep track of the folks on the board that could use some good thoughts and prayers going their way. I know Lisa42 writes them down but I never seem to have a notebook by my laptop. I thought just like there is a weekly Friday riddle thread perhaps we could have a weekly "good thoughts and prayers" thread. Whether…
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Stoma location
Hi, for those of you who have a colostomy can you tell me what procedure you went through to determine where your stoma should be? Was this done immediately before surgery or on a separate day? What did they do to determine the best placement? Thanks, Cheryl
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Calling Pennsylvania survivors.....
I am planning to move from So Calif as a snowbird to State College, Pennsylvania to be near family It looks like Johns Hopkins in Baltimore may be the closest NCI Cancer Center Does anyone have any suggestions about living in a small town in Penn as a survivor needing onc supervision ( and hopefully not, more treatment)…
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last treatment tomorrow
Well, the day is almost here. My last treatment tomorrow. I am so excited but also a little nervous. Nervous because nothing is fighting the cells anymore.
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Robert Courtney - airing now cnbc
Can't believe any pharmacist could do this!! Diltued chemo medication for so many patients! Affected over 2,000 patients, he is now serving 30 years in Missouri prison. This all happened in St Louis a few years back. http://www.cnbc.com/id/23182570/ Just wanted to get this posted, going to bed. Those poor families!
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Are you NED and exercise to help you stay that way?
If so, the cancer center I go to (Univ. North Carolina @ Chapel Hill School of Medicine)is looking for volunteers to participate in a clinical trial helping cancer survivors just out of treatment get into and stay involved in an exercise program. This will be the 5th trial/support effort I have contributed to there in the…
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sick, scared, and need of some hope
I just completed my firnst chemo of folfox with 5fu pump. The nausea, exhaustion, and pain has been overwhelming. The posts have enlightened me to what to expect, but I hoped that when they disconnected me, that I would feel better. This is the first of 12 and I worry about making it through. Any help or encouragement…
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Having spinal surgery
The day is finally here. tomorrow 7 am California time Jan 12. I will completely off the board for quite awhile according to the surgeon. My husband laughed. Told him you don't know my wife do you. Because I figured I could sit straight up and type! Famous last words huh!LOL I could sure use some thoughts and prayers my…
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Money
Yep, I have none and i have told everyone and the calls keep coming, i have paper bills stacked to the ceiling and i am terrified that one day someone will find them if i die. Sick, isn't it but this is what haunts me more than anything, Anyone know what to do, My extended family helps when they can but that is running out…
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losing insurance
Don't know what to do. My long term disability ends in Feb. and since I'm not able to return to work I will lose my ins. Don't know yet if I'll qualify for medicade. Can't afford cobra payments to keep ins. from job. I guess when ins. stops treatment stops. I'm scared and don't know what to do.
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Iliostomy take down in March.. I have a question
Hi guys... I have a question about when they take down my iliostomy. How long did you have to stay in the hospital? I cant stand hospitals so I'm kind of looking at some kind of time frame on how long I'll be in. Also what was the pain like 1 - 10. Life is funny sometimes Brooks
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how did you cope with a cancer diagnosis
My mother was just diagnosed with stage 4 colorectal cancer about 3 weeks ago. The doctors said it is inoperable and her only chance is with chemo. They said if chemo dont work she would not live a year and if it works she could live up to 3 years. Since this news she has become withdrawn and very depressed. She sleeps and…
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Traveling to Madison WI brrrrrrrrrrrrrrrrrrrr
Anyone live in Madison, WI? I will be there on business, next week Tues-Wed, traveling Monday and Thursday! Let me know, thanks!
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Bleeding like a stuck pig....
It's been just over 2 weeks sense my last chemo treatment. This week I've had three nose bleeds and last night I scraped the back of my hand and you would have thought that I might bleed to death. LOL. Is this normal after/during chemo? Bleeding like a stuck pig Brooks
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Good Movie, Blindside
Anyone seen a good movie lately? We saw blindside last week, I highly recommend it. Winney
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Friday Riddle Answer
This week's winner was phillieg. CONGRATS!!!!!!!!!!!!!!!!!! RIDDLE: Three friends check into a motel for the night and the clerk tells them the bill is $30, payable in advance. So, they each pay the clerk $10 and go to their room. A few minutes later, the clerk realizes he has made an error and overcharged the trio by $5.…
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question for ostomates
Hi, The doctors did a real good job on my colostomy however its permanent. The stoma looks great and all DR's and nurses comment on what a good job the surgeon did. I only have one complaint. My belly button is an inny. So when I put the base plate on part of it goes over the area of my bellybutton. There isnt much there…
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To all you caregivers who are our angels:
CAREGIVER'S BILL OF RIGHTS I have the right to take care of myself. This is not an act of selfishness. It will give me the capability of taking better care of my loved one. I have the right to seek help from others even though my loved one may object. I recognize the limits of my own endurance and strength. I have the…
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Pre- tests for Sir Spheres tomorrow
Hello everyone, I am scheduled for my pre tests for Sir Spheres tomorrow. This is a mapping of the arteries and a shunt study. My husband and I are very nervous, this will let me know if I can have the procedure later in the month.Please say a prayer for me that everything goes well. Thanks,Patti