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HNPCC survivors & NED
Hi, Valerie. Dx. 4/08, stage 3 1 positive node out of 18, surgery then 7 mos. chemo. I'm looking for other HNPCC survivors to find out what your maintenance plan is and your schedule for screening. My gastro doc. is telling me that I should not receive another colonoscopy until 2012. My last one was 01/09. I told them that…
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On the other hand as far as eyesight degradation goes,,Avastin users
have any of you noticed a change to the better in your eyesight while using Avastin. It actually starves the tumor by stopping the blood flow to them and I was wondering if the decrease in blood flow to maybe clots in the eyes some of you may have and not be aware of relieves the pressure behind the eyes aiding in relief…
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Have you read Suzanne Sommers book "KNOCKOUT"???
I started her book when I was diagnosed with rectal cancer in November and now I've returned to it. Beginning a whole new research project on the chemo/radiation follow-up. One thing I'm going to start doing immediately--now that cancer has been removed--is get on a supplemntal diet for Recovering Cancer folks. That means…
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Radiation, Surgery, and Chemo is all done.. But still have days that I just don't feel good
I went through radiation, surgery, and my last chemo treatment was 3 weeks ago. SO WHEN WILL ME LEGS STOP HURTING? Has anyone went through everything and still have leg pain? My friend suggested maybe I try acupuncture. I've never tried it before has it helped anyone else on here with pain after chemo?
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MIA: Jenalynet (Audrey) and another person
Gosh, I hate it when I forget a name. Those who have been here more than a year might remember him, tho. This guy posted a couple of months ago that all tx had failed and he was on hospice BUT was running errands and had just cooked a big pot of soup or stew for his family that day. I think Audrey had posted that things…
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Confusing results after PET
My husband, 58, stage IV, mets to liver, colon resection, liver resection, no traces left. After 3-mo chemo, PET scan showed new mets to liver, mets to abdominal wall and 2 abdominal lymph nodes, and adrenal gland. I've searched and just can't find anything discussing those last three results. We meet with the doctor this…
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Walk it Out (Wii) and Walk the Walk (Leslie Sansone)
Oh I'm going to be hurting tomorrow! I love them both. First, my Walk the Walk DVD is actually 3 DVD's to a set. I began 'Miracle Mile' and find the music fun and like how it slowly increases the beat then decreases for a slow down. Loads of fun. There's also a 2 mile walk and a weight loss walk. The 2 mile walk will come…
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things just keep getting worse
Well Thusday I posted that my colon cancer has now spread to my bladder. Then I took my family out to dinner to tell them the bad news. Then I about 1:00 in the morning I told my wife to take me to the emergency room. I had stomach pains so bad that I couldn't even stand. Ends up I had a blockage in my small intestine from…
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just accidentally clicked on the childhood cancer board
There are no words to describe the sadness there. I feel so lucky and blessed to have made it to 41.
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Anybody had an Eye sight degradation while on Oxalyplatin?
Five years ago during my adjuvant Folfox4 chemo with Oxalyplatin I had a retina detachment followed by Laser Eye surgery. Two years ago I had a recurrence and now I am taking Oxalyplatin with Xeloda and Avastin and noticed some vision problems again. I am not sure is this because of the Oxaly or not so I'd like to hear…
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Oxiplatin side effects
My step son (age 32) surgery was diagnosed with rectal cancer Jan. 2, started Oxiplatin and radiation, had surgery April 15th, now has iliostomy. Has had 6 chemo treatments of Oxiplatin post surgery. After the 5th he started experiencing a gag reflex. Dr. advised if it continued after the 6th, he would stop treatment, and…
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blood in urine
Just wanted to give an update, 2weeks ago I went in for round 8 of chemo, when I got there I told my onc. that I was having a problem going to the bathroom. She told me that because I had a pressing issue that she did not want to give me chemo this week. She sent me to see my uroligist and he said I had a urinary tract…
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BSoD
Right now I am dealing with the dreaded "Blue Screen of Death" on my PC so my posting is limited to doing this during "work". I have to figure out and fix what is wrong. I'm pretty sure I can fix it. Being a geek has it's advantages. My PC probably just needs more chemo or maybe some MJ ;-) I know in the scope of things…
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How worried should I be???
Hello, Valerie here, stage 3 colon cancer, 1 out of 18 nodes positive. Had a ct scan this week, the reults show a .7 cm spot on liver. I'm upset right now. Scheduled to go out of town with husband for anniversary, then I get this news. They want me to go for bloodwork and ultrasound for further study. How worried should I…
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KATE58 UPDATE
WELL,if you read my last discussion from about 3 weeks ago, "2010 NOT STARTING GOOD" You know about the tumour in the main bile duct that was removed during the ERCP biopsy. My surgeon wanted to do a major surgery called a 'whipple' which is bad news. worse news-- according to a new pet /ct done 2 weeks ago ,the tumour is…
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Sir Spheres procedure is a go!! UPDATE
They moved the procedure to the 27th because of scheduling problems so, not next week the week after!
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Colonpalooza
Does anyone know where 2010 will be located?
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Getting tired of being the outlier - and questions on anyone else with chest pain or cardiac toxicit
I've mostly been away from the boards for a bit, due to time management issues. Apologies in advance; this is a long post. I had a WONDERFUL extra week off over New Year's and was allowed to go to my place in Mexico where I could walk in the fresh air along the ocean! It was a wonderful time of resting and recharging. I…
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Friday Riddle
Remember, NO googling or searching the Internet ALLOWED!!! GOOD LUCK :) RIDDLE: You are in a room that is an 8x8x8 perfect cube. There are no windows, or doors (don't ask me how you got in there). In the center of the floor there is a 12 inch pipe that is sticking 6 inches out of the floor. In the bottom of the pipe is a…
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follow up quetion
Chris will have the last of his 12 treatments the first week in March. If his scans are clear how often will he have to do blood work and scans to make sure its not returning? Mel
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treatment strategy
I haven't deviated from conventional therapy yet. I'm still awaiting the results from another genetic test. It is the BRCA1 and BRCA2 test. I'm hoping I have one or the other overexpressed. If this is the case then I should be in real good shape. I haven't started the abraxane yet. My Dr and I both feel that I should…
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Oh, what fun!!!!!
I spent the evening in the ER....much to my relief, nothing is broken, but I have an immobilization cast to help with the pain...lol..wear it for a week....nice people there...spoke both dutch and english! But Im down to one hand for typing...lol! Hugs, Kathi
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anyone heard from Rob in vancouver?
Anyone heard from Rob lately, I have not seen any posts in a while. Just checking on him. Patti
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Liver Met Treatment
Anyone heard of these? Sounds a little experimental to me. Interstitial Laser Photocoagulation - Involves insertion of a thin optical fiber into the center of liver tumor and a laser light is emitted from the tip. The exposed cells will then undergo thermal necrosis. Cryosurgery - Destruction of abnormal tissue using…
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Dr's saying colonoscopy not needed!!!
Hello, It's been a while since my last post. Diagnosed 4/08 stage III colon cancer, 1 out of 18 nodes positive. Surgery, then 8 months treatment. My last colonoscopy was 1/27/09. according to me I'm due for one. I have a family history of HNPCC (hereditary nonpolyposis colon cancer). I've tested positive. My doctors told…
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To: The Semi;Colon Nation - I Received Disturbing News Tonight - A New 2010 Sundance Update
Well, I had a long ride home tonight after work – just alone again with my thoughts trying to digest the news I was not expecting to hear from my oncologist. I experienced a very Good High followed by a Low Low – and it all happened in 20 minutes with one phone call from the onc as I was leaving work. Let me back up just a…
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bad news today
I found out today that the reason why I had blood in my urine is the cancer has spread to my bladder. I am really scared right now, its only been 7 months since I had my surgery and already its back. What a horrible day I am having right now, how do I tell my girls this news? Feeling really depressed right now. Pat
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It's been a while
Hi All, It's been a while since I visited here. A lot has happened since the last time I posted. First, I got my 3-year all-clear! That was wonderful. Now I only do blood work every 6 months instead of every 3, and the odds of recurrence within the next 10 years have gone down. No guarantees, I know, but encouraging,…
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Its been a long week
Well its been a really long week. I got the results from my lung biopsy Wed. Not good, cancer. The mets are small, all smaller than 1 cm, but there are quite a few in both lungs. Met with the onc today. I'm glad I was able to get in right away. He had a few options for me. I think I am going to try 5Fu, leuco and avastin.…
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Great News Today
I went in for what I thought was just going to be blood draws for my appointment next week. As it turned out I got to see the Dr today as well. Last time I was in things were a little different as I had to see my Dr's associate, and I must admit I was not that impressed with her. She didn't examine me at all, and never did…