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Colorectal Cancer

Round 4 Oxaliplatin Folfox
Round 4 Oxa done. 5fu pump until Wednesday. A little bit of nausea after oxa infusion and a moment of neuropathy in finger joints. Happy to be half way done!
12 years of NED with side effects to kidneys
Hello All My dad was diagnosed stage 3C in Aug 2008.APR resection and a colostomy followed. 6 rounds of folfox and 30 radiation cycles. cut to 2010-intestinal obstruction occured and another part of intestine was resected. 2012 he started having cysts in his rectum which a horrible oncologist led us to believe was a cancer…
Surgery follow up
Had apt with GI surgeon yesterday. I am 90% healed. I've had no complications so far. No indication of adhesions or anything. Round 4 of chemo coming up Monday. Got to find out if onc is planning on a scan next week. Hopefully he is. Stay safe!
Fasting for bloodwork
Any advice on fasting? How long, what to eat, ect. I will have bloodwork tomorrow morning and just want to see if it will make a difference.
Maglets
I can hardly believe I am here. It all seems so strange ...so long ago. I wonder if anyone is still here from those days when I depended on this site so very deeply. I am still going after colorectal to liver back to liver and then a fresh battle with breast. And now coved 19..I feel so deeply sorry for cancer patients…
Managing bowel symptoms during survivorship
I am 3 years in remission for colorectal cancer. I was diagnosed at the age of 39. I continue to have intestinal cramping, urgency and frequent bowel movements. I have changed my diet to gluten free and that has helped some. Do any of you have any suggestions to Regulate bowel movements and manage symptoms.
cologuard test is positive
So I am quite nervous, I had a cologuard test that was positive. At my most recent check up for my 51st, my bloodwork was fine all in normal range and ideal according to my Dr. But this hits home, my father died at 60 of colon cancer 20 years ago. That being said he was a heavy smoker, ate horrible and showed syptoms for…
Scan results
No evidence of disease! February marked 4 years since original diagnosis of stage 3 rectal cancer! May will mark 2 years NED since recurrence. I post this to let newcomers and those who are going through treatment know that there’s hope. I went from stage 3 to 4 and out! I aggressively fought this disease and you can too.…
Colon cancer returned 6 months later
hi, my grandmother was diagnosed with colon cancer in April 2019. She completed chemo in October 2019. this past Monday my mom took her to the ER because her face was drooping on one side. The doctors have determined that it wasn't a stroke but Bell's Palsy. But they found a mass on her liver, spots on her lungs and a spot…
got this on facebook...feel free to print and post at your home
Scary times
I just lost my little part-time job, and my husband's job is on the line. EDIT: On re-reading my post, I worded that wrong. I didn't LOSE my job as much as it has been put on hold for 30 days - or more, if the powers that be, decide. Our state governor just announced that all non-essential businesses are to shut down for…
Surgery can be soon
Hello, Wherever you are I hope you are all safe. During these times my mom and me are more worried about my dad of course. Still we are taking all precautions we could do. Mom is taking distance, I am not travelling home. Of course docrors visits still need to be done. Blood work needs to be done but my dad will wait in…
Hospital update
Automated call from the major hospital in our state. All patient apts have been canceled to include maternity and end of life care.
18 Years Later
18 Years Later Hello CSN Family, Just wanted to share hope and inspiration to anyone starting this journey. Brief History: Surgery March 20, 2002 Stage 3C rectal cancer with 10 positive lymph nodes. Had follow up Chemo and Chemo/ Radiation Combo No Recurrence Thrilled to be starting my 19th year in Remission Lisa Rose
Considering resection
Stage 4 colon cancer since 09/24/19. full blockage in colon, spots on outside of colon, small intestine, and abdominal wall. Was surprised with ileostomy during original attempt at resection after a false negative on primary tumor during colonoscopy. would have to be chemo free for one month prior too and after surgery.…
Anyone else worried a lockdown might happen, then how to get chemo?
I have hunkered down in my NYC apt. I think my biggest fear right now is if we lockdown, how will I get to chemo since I take a car service.
extra markers
Going to go out on my own tomorrow and order extra markers, ca199 and LDH. As of now I still have no idea if he ordered genetic markers, kras/bras, etc. i hope he did. We are going to have one serious visit next Monday for sure. Last visit I told him about seeing a nutritionalist and gave him the blood work. He wasn't…
Three years
Three years ago, I faced a nearly totally obstructive colon tumor and I did not know if I would live a day, a month or a year. After surgery and a not too happy course of chemo, I have managed to make it through my three year CT and blood tests with no evidence of cancer. There have been side-effects and challenges, some…
picture
Hoow do I add a ptcture? I can't find anywhere that shows it.
Autoimmune?
Forgive me if this is a dumb question, but as a cancer survivor, am I still considered to have a suppressed immune system? I'm 15 years NED. Thanks,
Autoimmune?
Forgive me if this is a dumb question, but as a cancer survivor, am I still considered to have a suppressed immune system? I'm 15 years NED. Thanks,
Scan Not Great, May Try Folfox again, neuropathy tips?
The tumors in my lungs are having a field day. This includes one that is close to (if not actually started to) affect my airway. Yippee. I may be able to have radiation, but it is not clear cut based on the location and potential damage. The chemo options left would, at best, stop growth for a bit. The FOLFORI is…
A message from SandiaBuddy
I am posting a message from Sandia, as he is having trouble doing so. This is my 2nd attempt, so something is not right. I have composed several posts and lost them (blocked???) when I tried to post. In case others have this problem, it might be worthwhile composing in a word processing program, then cutting and pasting to…
Lymphocytes
Good morning! Does anyone have any ideas on how to raise lymphocyte levels?
Cancelled Cruise
Well I know that there are worse things... I know that. But... I'm 67 and for our 25th anniversary we booked a mediterranean cruise. We thought we would chance it even though my blood counts are low. I didn't tell my oncologist because I just knew he would advise against it. I'm not currently on chemo but I've had this…
Apt canceled
Got portal notification that my follow up apt with surgeon has been cancelled for next week. Since I have done so well, no issues, I am at low risk so can miss the apt. Its because of this coronavirus. The plastic surgeon wants to keep apt with him but do it via teledoc style.
Tumor marker CA 19-9
Hey guys, I have a question to the tumor marker CA 19-9. Yes during colon cancer they use CEA a lot. But in the case of my dad they use both CEA and CA 19-9. Apparently, they like to test it when mets are present... Does anybody got tested in this one as well? What are your experiences in treatment with it? Does it rise…
2nd round of folfox
On 2nd roound of folfox and man my stomach is hurting tonight. I took some colace but it takes a while, the bottle says. Any ideas in the meantime?
Hand and foot syndrome
Hi all While on Xeloda, I developed terrible hand and foot syndrome. I could barely walk. i belong to Stage 4 colon cancer group on Facebook. I saw this today: https://www.ncbi.nlm.nih.gov/m/pubmed/29095653/ I wish I had known this. I want to share for anyone on Xeloda now. Cheers k
No scan, bloodwork only.
Ok, I'm going for my second appointment since my surgery on Friday. I thought I was going to get another CT scan, as when I first starting seeing this oncologist he told me I would get a CT scan every 4 months for the first year. I assumed that they would schedule the scan a few days before the appointment, so that the doc…

Colorectal Cancer

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