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First scan since liver resection... UPDATE
Dennis had his first scan since his liver resection (feb 22) and got the news Tuesday that it was clear and all looks good. His CEA is at 4.4 (was at 44 day of surgery). I sure hope and pray that it all continues to stay this way. I am thinking of you guys regularly and hope that all is well, I am trying to avoid spending…
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6 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST UPD
6 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST *** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES BEFORE AND AFTER ALL WALKING, other exercises do relevant **** *** AT THE END OF THIS POST IS A SUMMARY OF OTHER POST…
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Thoughts on recent posts/threads
On this Board there is a wide variety of personalities and opinions, yet we are all united by cancer, and we're here because we want to support each other and find guidance during the darker times. For some, cancer is active and in the front of their minds; for others, the cancer may be gone--or only hiding or sleeping. I…
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New member - Sharing the history of my mum in this disease
I want to share with all of us the history of my mum in this disease. I found this site in February and since then I’ve been reading yours posts and I’ve learned a lot about this. My mum is 64 years old and was dx in October’11 through a test of blood in stool that was made on July, but they don’t did the colonoscopy until…
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hello kids
it's been awhile since i checked in. i had my lastest journey congestive heart failure in march , water in lungs, couid't walk more that 3 feet. ok now they shocked my heart back in sync. i am on 7 meds right now but all is well. i have lost 40 lbs so far with another 60 lbs to go. i am saddened by the lost of some of your…
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Showering
I was reading the post about swimming and was thinking about showering. My husband has only showered once since getting his ileostomy and he changed the bag right afterwards. He just washes with a washcloth, soap and water. Do you all take showers everyday, does the bag stay on with no problem. He's afraid that it will…
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CEA number drops again...!
Sitting here getting my infusion, screwing around on my ipad and got the report that my CEA dropped to 1.1! Stage IV mets-liver and lymph nodes, and I'm on Folfiri and vectibix. This is my 6th infusion, and 6th CEA number and it's dropped everytime. 3 months ago I probably would have said that CEA stands for Colorado…
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Regorafenib
For those who are interested there are four sites in the US that have opened up for the Regorafenib. There are two sites in SC, one in MO and one in Fl. Is there anyone out there who have already been accepted into the trial or are on the compassionate list.
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3rd line chemo
Morning all, my husband started his 3rd line chemo yestarday, he spent all day in the unit, had avastin and oxy, then his xeloda tabs at home, he is trying so hard, it hurts to see him battling all over again, he vomited in the night but hopfully that will subside. Wishing you all the very best.
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getting treatment
Was suppose to get treatment last week but platelets were too low. Today they came back so will get full load. Hopefully I will do better than I did 3 weeks ago. Pray everyone is well. Jeff
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Colonoscopy
Thank you everyone for your prayers, good vibes, and "pictures". Had my colonoscopy today and "thank God" it was normal and no polyps. Asked the doctor to check for my hernia that is about the size of a huge soft ball when in there. Hey, thanks Craig, for the thumbs up on propophal worked like a dream and so much better…
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Good nnews in new treatments . Regoranfenib already in the market and Zaltrap in a few months!
Sanofi's Zaltrap Drug Gets FDA Fast-Track Review In Colon Cancer Published April 05, 2012Dow Jones Newswires DOW JONES NEWSWIRES Sanofi SA (SNY) and U.S.-based partner Regeneron Pharmaceuticals Inc. (REGN) Thursday said their experimental drug Zaltrap missed targeted goals in a late-stage clinical trial for treating…
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Side Effects!
check out my Side Effects post on CaringBridge. http://www.caringbridge.org/visit/joemetzger/journal
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Husband was stage 4, now NED
Hi, My husband is going into his 2nd month after his surgery. He is doing well. He did a follow up with his oncologist and he said everything is clear and NED. At this point we will just go in and have him check and hopes that he stays NED. It's amazing how far he has come. I pray for each and everyone of you each day.…
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What's on your Bucket List?
hello everyone... what's on your Bucket List? let's all plan to be NED sometime soon... and as you think about the things you want to do now or in the future, what are they? JoeMetz
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Please keep myself and my children in prayer
well I am suvivor of colorectal cancer stage 3, had chemo and radiation, feeding tube, etc, many surgeries. even 1 last yr when my bowel was preforated. went back to ER Sunday in horrible pain, thought it was due to pain in my kidney. But it is because I am backed up, so came home, have been taking colace, zofran, and have…
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pet pet scan and liver surgeon
Having a pet scan tomorrow and Thursday have to go see a liver surgeon. The spot on my liver they cant biopsy it. Because where it is. So I have to go see this surgeon to see what he wants to do. So another thing to get through.
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New cc drug in 2012
Hi, I haven't been posting much in the last few months as I try to live a life without this disease lingering in my mind. I need your help and knowledge. Does anyone of you know any new drugs that will be out in 2012? Except regorafenib as my mum had it already and it didn't work. Anything you think it's good for lung met?…
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Colonoscopy - How Often
How often do you get your colonscopy after diagnosis? The last one was two years ago and now I'm nervous for this one. Told nurse today that the twlight medicine never works for me and I'm awake the whole time and she asked me if propophal is what I'd prefer and of course I'd commented about Michael Jackson and I'm afraid…
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Here's an article that, may or may not be related to CRC:
redorbit.com/news/science/1112529528/dinosaur-farts-may-have-caused-prehistoric-warming/ (that IS the thesis)
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Still NED - Keep the Faith
Hello, This is a quick update and most of you won't remember or know me, but I feel compelled to share with all those still fighting the battle and those newly dx. Please do not ever give up hope. My husband is now almost 3 years NED after just getting results today of last weeks scan. I first posted here almost 5-1/2…
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Hi mates IT IS FRIDAY any interesting plan for the weekend?
Im still thinking what to do I'm alone as my wife is in Peru.......! so far away....Probablly will stay with my siblings and Mum . What about you?. Have a nice weekend!
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Update on my George:
Well, two weekends ago I saw he was awfully pale and sleeping more than a newborn, no energy, fatigue, bad bad diarrhea. He would not go to the hospital so when we went to the chemo clinic on Monday sure enough. he needed a blood transfusion. Well, on Tuesday we went for that but I told the nurse there that he is really…
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confusion with pain medication
i am trying to see if anyone had an experience with themselves or a loved one who had to take ocycodone for pain...my dad was doing well but after his abcess was drained in neck he started to become confused...its like his mind is jumbling everything...could this be solely the pain meds or could it be the cancer....(his…
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HIPEC
Hi, I have been in touch with Basingstoke about Hipec surgery, but they say my husband is not eligible for this because he has spot on lung and liver, so his cancer is not curable.
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folfiriox
just been told I need 6 months of this drug. had stage 4 colo/rectal ca in 2010. now mets to liver and lungs, had ablation on liver and resection to lung. PET scan clear but onc wants me to take 6 months of folfiriox has anyone tried it and were the side effects worth it. the doctors talks like side effects are tough. i…
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My first Speech on the need for Colorectal Cancer Testing
Today in COMM1 class I gave my first speech on the NEED for those turning 50 Colorectal Cancer TESTING to a bunch of 18 to 20 something year olds, in this speech, I was speaking to them about their parents, Aunts, Uncles, Grandparents need when they turn 50 for colonoscopy testing. My reward were all the notes about how…
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Betsydoglover-Randy33- Kuastoi. How are you my friends?
Just want to know you are fine! Hugs to both.
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Understanding Your CEA
Ok ... Well here I go. MY CEA is 2.. Great right?.... well not for me.. I have mets in my lungs, tonsil, and spleen. How can this be... Not in everyone can the CEA be an indicator I have learned. I had Thryoid cancer previous to Rectal cancer and when I was doing the follow up for the Thyroid. we thought I was having…
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Finally the ACS steps up, anyone want to pat Pete on the back?
Cancer survivors urged to eat better, exercise Published - Apr 26 2012 12:34PM EST MIKE STOBBE, AP Medical Writer ATLANTA (AP) — A cancer diagnosis often inspires people to exercise and eat healthier. Now the experts say there's strong evidence that both habits may help prevent the disease from coming back. New guidelines…