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Colorectal Cancer

Lynch Syndrome -
Good Morning, Happy Sunday! Just wondering anyone on this site, dx with colon cancer, related to Lynch Syndrome? I recently posted about symptoms...however, I really looking for any Lynchies...on here... If so, what were you symptoms? Treatment options. I have lost a lot weight, and mainly constantly tired. PMS2 gene…
Rang the Bell
Hi everyone! I haven't visited for a long time but wanted to let everyone know that I rang the bell after 12 years fighting Stage 4 colon cancer. No more scans or doctors visits. I am done! As the Greatful Dead put it "what a long strange trip its been." One positive is that i have been living super healthy to prevent…
Looking for the stage 4's
So just got the news that the pet scan showed my dad is stage 4 sucks to even be typing that . It showed spread to his butt muscles and his admonial lining . So my family is once again crushed I just wanted to ask all you stage 4's . Is there different chemo's for stage 4's then stage 3's ? Do you have any tips to helping…
Documentary link
I have just finished watching a documentary about how to talk to Cancer patients about dying. It is very thought provking, very intense, and definitely not for every one to watch. As a Stage IV patient with an Oncologist who is has always been down to earth and straighforward, I am still in two minds where I stand. I…
Neuropathy issues
So originally I was a stage 3 - after my cholectomy it showed up in a bunch of lymph nodes which I took to mean 3C. I have completed 6 months of chemo with Folfox. My CT showed something hinky on my liver and MRI confirmed a 1.2 cm mass. Wasn't there on pretreatment scans. Now they are trying to schedule a biopsy. Along…
It’s been a while
Hello everyone ~ I’m a 8 year Stage IV Colon Cancer Survivor!!! I haven’t been on here much since 2012-2013 when I was in treatment. Cancer was the focus of my life for many years, now it’s not an everyday thing. I was diagnosed at age 49 Stage IV, 12 positive lymph nodes and Mets to liver. 4 children including twins that…
Request for prayers and good vibes for Phil64
Our forum friend, Phil (phil64) has contacted COVID and along with that, is battling Pneumonia. He has battled the beast, Stage IV Cancer, and is winning that battle; but the COVID has bought him down, and he needs the prayers and vibes of his friends. I figured as many people who know about it and care about him, that can…
Curious what the board thinks
So my dad has microscopic amounts of cancer left on his sacrum after his 2nd cancer surgery . We will be going into more treatment for it radiation and chemo after a pet scan . So my dad is clearly having anixety about the whole thing . Today my step mom brings up that we need to find a affortable place to live so when my…
Diagnosis
Good Morning wishing everyone a happy tuesday... I will be having my EGD and colonoscopy next week. Anyone dx , just on a random finding because of the scope and not due to symptoms? If so, what stage?
Someone who knows alot about pet scans please help
So my dads new pet scan/ct scan can in today and it appears to be another gut punch for us . There is a increase in hypermetabolic activity in retroperitoneal fat and in the soft tissue where his bladder was . And 3 hypermetabloic soft tissue masses the biggest 3 cm . One of those 3 in the adominal wall and another is in…
Colorectal Cancer in Lungs
Hello all, I'm reaching out to this community to provide support and to share the story of my girlfriend, Heather. We live in the central PA area. Heather is 44 and was initially diagnosed with early stage 2 C/R cancer in February 2020. The cancer seemed limited to a single, small tumor in the colon, but the surgeon…
hoping you all can help me
I survived uterine cancer, but I just found a dear friend of mine who stood by me through it all was dx with rectal cancer. She told me they found a tumor but will treat with chemo and/or radiation before she has surgery. (she had a surgeon consult but chemo/radiation docs are in the upcoming weeks) I know uterine cancer,…
Joan M
Has anyone heard any news on Joan M. She was having a terrible time late summer. I've been thinking about her. k
Happy Birthday, KAZENMAX
I know time just flies by, but we're here to remember another year celebrated. Have a wonderful day! Tru
Folfox failed is folfiri the right move next ? and one more thing
Folfox did little for my dad's rectal cancer new doctor wants to add folfiri with targerted radiation is that the right move ? I know both are alot alike and I didn't get to ask the doc cause of covid rules so looking for opinions on it thanks . Also the next onc told my dad there was he couldn't be cured now I wasn't in…
Poor prognosis
Hi everyone, I need a few words today. I received a call from my oncologist and he gave me a bleak prognosis, stated that I am not a candidate for surgery and I will be on maintanance chemo for what forseable future I have. I have been with my oncologist for four years, and this is the first time I feel the need to ask for…
My mother and anger
My mother is battling colon cancer. She is going thru her second round of chemo after being in remission. I have moved back into my parents home during the week to help them out. I am 45 years old. Her anger is not easy to deal with. She is constantly screaming at me for nothing. Saying mean, hurtful things. I try to…
Inflammation around lung tumors
My lung tumors have been pretty much "stable" on erbutix. Last couple of scans have mentioned tubular branching opacities, consistent with colloid impaction secondary to tumor which I glean through google is inflammation around tumor. Has anyone had this, and know how to make it go away, or if it means tumor cells or…
Birthday wishes to Cinda
Dear Cinda, I hope you are doing well and that you are able to celebrate a wonderful Birthday. We are thinking of you, here on the CSN forum. Tru
Symptoms
Good evening, Happy Sunday! I was wondering what were some of the symptoms experienced to lead to a colorectal cancer dx? Myself I am in remission with endometrial cancer, and confirmed with Lynch Syndrome PMS2 mutation. I stressed to my gyno/oncologist at my last follow up that I am very tired, no energy, and I have…
MRI and mutations - Update
So hello guys, A month back my dad had a little jaundice. They didnt find anything on the USG, so last week a MRI was scheduled. Today they think that there is a hemangioma in his liver. A benign tumor. They will check it further on Friday after the chemotherapy number 6. He will have 2 more as far as I know. His mutations…
New Here - major anxiety non-stop for my wife
In August 2019, my wife (39 yrs old at the time) was diagnosed with colon cancer. 1 tumour, stage 3. Surgery removed it, cancer found in 3 of 27 lymphnodes. Not terrible, but not perfect. She began chemo - did 4 cyces out of 8 and they discovered metastic lesions on her liver. 2 tiny ones. Cancer then re-staged at 4a. She…
Update on my sweet husband
I haven't posted much since Richard's APR in march 2019. He has adjusted amazingly to the colostomy. Richard has clean scan until January 2020. Then a spot on the liver was found. He had a liver resection in February 2020. he had a clean scans in May then in aug another spot was found in the liver in the portacaval lymph…
In need of support
Hello, My mom was diagnosed with stage 3 colorectal cancer back in March. She went through approximately 5 months of chemotherapy treatment with infusions and pills every three weeks. She then completed 6 weeks of chemo pills and radiation treatments 5 days per week. Through the duration of her treatment, she has been…
Update from Penn State vivit
Just letting you know that the Penn State trip was good as far as the liver resection goes however the chest CT showed some small lung nodules so resection on hold for now and I am back on chemo for a bit. I will re-visit Penn State in January to repeat scans. I am fine about all of this because many of the comments made…
Stage 4 colorectal I need some positive survivor stories right now
So I went to MSK for a second opinion today. The dr told me she would recommend the same treatment my dr recommended. she told me that after liver biopsy that it's in my liver and my rectum and lymph nodes. And there are nodules in my lungs. Also I have ascites in my abdomen and she said it was there too. she didn't seem…
RFA Ablation - Partial?
Hello all, Thank you for your messages of hope and info about treatment strategies, outcomes, and side effects. It's been really helpful for me as I support my fiance through stage IV colon cancer. She has mets in her lymph nodes, ovary, and one spot in the liver. Our oncologist has set up a meeting with the interventional…
BRUV
I had an MRI on Saturday. Scheduling issues caused me to have the doctor's visit today. I had to wait an hour and 1/2 in the office. I wear a fitbit and my heart rate was 3,205 after an hour. They'd already verified via the BP machine that I was having a heart attack. I was breathing harder than Trump on the WH stairs.…
Liver Enzymes high
My dad's liver enzymes are high 100-250 range the doc ordered a ultrasound to check it out . My question is to those who had there cancer spread to the liver is this how it starts ? I'm trying to stay positive but also can't help but wondering and just want to be prepared for the bad news thanks .
Hmm, maybe a strange question...
Hi all, I'm wondering if anyone else thinks about this (I guess this is a stage IV question but maybe for anyone). I'm doing some online shopping for the kids and thinking about the holidays, etc. I see something I might think I would like, like a new pair of jeans. I start to think, am I gonna really need this? Would I be…

Colorectal Cancer

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