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What questions to ask
Thanks to everyone who saw my first post! So here's the story. My dad had his first colonoscopy screening and was told a small tumor was found, and was called a few days later and told it had abnormal cells and he would need to have a foot of colon removed. He had a CT scan with contrast and barium and was told it looked…
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Double Posts
For anyone who is new, here is a little hint to stop double posts. Don't hit the refresh or < button after you have submitted your post, but go to the top of the page and hit the COLORECTAL CANCER part of this line up CSN Home > Discussion Boards > Cancer Specific > COLORECTAL CANCER I remember back in the day, it took me…
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Update on me and my CEA madness.
It's been a while since I've been on the board. So I'll cut to the chase on where things are with me and maybe someone will run across my threads searching on our nemesis CEA. Quick summary for those that are not familiar with my situation. Since March of 2017, I've been chasing abnormal CEA numbers. When I say abnormal, I…
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Any tips for 3rd and 4th day fatigue?
Yesterday was the 3rd day after chemo. Even though I slept 8 hours, I was like a zombie, and ended up taking a 3 hour nap after work. Getting up long enough to feed the cats and myself, watch a little TV, then slept another 8 hours. Got some things done, but ended up taking another 3 hour nap. I am used to always having…
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Blood thinners and chemo ?
So my dad is on blood thinners does anyone know if he would be able to do chemo on them ? He has a new onc and I haven't be able to ask yet so wondering if anyone knows .
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Questions about Folfiri and Oxi for a friend whose brother is struggling in ICU right now
Hi all, I know the difficulties of Oxi because I did that one myself. Is there anything you can tell us that they should be doing, should not be doing. Questions they should be asking. He did Folfox, switched to Folfiri and Oxi. He's in ICU, falling over, pneumonia, intubated, dropping blood pressure. He had surgery/rad…
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Yay! Finally finished the 12th round of Folfox
Hi! I finally finished Folfox! Yay! Thank you for all your support and helping me talk with my doctor. It was very grueling, but I am thankful to have the support of this community. I am not sure what is next... as I was very advanced stage IIIC, but I am taking everything one moment at a time. Thank you for your love…
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Happy Birthday, Melanie67
I hope you are having a very, special day - even amid this awful COVID stuff. Tru
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Biopsy report good or bad onc lying or not ? updated
Hello All , So my dad managed to have his biopsy they said it would take 10 days at least for results . But the next day the results where in his patient portal online does that mean anything good or bad that it's back so quickly ? My dad wants me to wait to look until we go to the onc he is very good at blocking this all…
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Caregiver to MIL, Stage IV
Hi All, I am new here- looking for support as a caregiver. My mother in law was recently diagnosed with Stage IV colon cancer, which has spread to her stomach. She just finished her second dose (round?) of chemo, and is on her 4th day of feeling nauseous, barely able to keep anything down. She is receiving nutrients…
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Stress affect Outcome ?
Hello All , So as we wait to find out my dad's biopsy results a new worry has started to keep me up and night . There has been no shortage of family drama around my dad . My step mom just wants to see her kids from her first marriage all the time which upsets my dad, I don't get along with my stepmom at all cause she…
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Bidet
I'm thinking of purchasing an adapter to my toilet instead of purchasing a bidet toilet which can run up to $1,000. I'm not sure if it would work for me in every situation as sometimes I've got the runs, sometimes it's like mud, especially when an accident happens. Going up to 15 times a day sometimes will use a lot of…
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Joan M
I missed Joan's birthday on Sunday. I sent an message to CSN to see if there was any way they could track Joan down - as they have helped me in the past, but I was told that becasue of privacy they were not able to help me. I am of course worried about her, as many of you are. If anyone on the forum has Joan on their FB…
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Scan Results not posted yet
My scan results are not on the portal yet. Rather than be reasonable and think, they have been so packed lately, it makes sense that they are behind in reading scans, I can't stop worrying that it is something so bad that my oncologist is making sure they don't put it up before he meets with me. Why are scan results always…
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Happy Birthday Sestra17
I hope your day is special beyond measure. TRU
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Blocked ileo-cecal valve and tumor in cecum
Hi First time poster so hope I am doing this right Long story short, my sister has bc with mets throughout her body for the past 5 years. Now she was dx with "hard friable ileo-cecal valve" and a cecum "carpeted" in malignant nodules. On top of this, they could not advance the scope from the ileoecal valve into the…
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Early Age Onset Stage IV CRC
Hi, I am new to this group, looking for those who are considered to be the young, early onset group to share experiences and support. My story is, I just turned 44 in Nov. and found out in Oct. that I have colon cancer with advanced mets. to the liver. There are tumors in both lobes and every segment of my liver. I had no…
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Clinical Trial and Insurance?
My father's liver Mets are progressing quickly after one liver surgery and the first-line treatment (FOLOX) and he might be a candidate for a clinical trial only if the next treatment doesn't work for him (FOLFIRI + bevacizumab ). The Clinical trial is at MSKCC, when I initially tried to make an appointment with MSKCC when…
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Introduction, Sharing experience and some help
Hello All, I've recently come across the CSN and Finally gathered the courage to share the story of my Father. I hope that this will provide me strength and help others dealing with the situations if there they ever come across as we were. I am writing all the details so it will be a long story. It all started right after…
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Treatment decision
I'm struggling right now to make a treatment decision. My back story: Diagnosed Feb. 2018 with colon cancer and had right hemi-colectomy right away. Stage 3 - 1 of 22 lymph nodes. Xeloda as clean-up. Then 6 months later scans show mets to the liver. Folfiri + Avastin (6) then resection surgery for 3 mets. 2 mets were deep…
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Joan M & Butt- any news
Last on the forum July - Butt and Joan in August. Anyone heard any new from either of our lovely forum members? Tru
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Eyes hurt
I have had a new symptom lately. When I wake up sometimes, it feels like my eyelashes are stuck on my eyeball, and oprning my eyes feels like ripping a bandaid off. It then kind of hurts all day. Anyone ever experience that?
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Update on my wife's scan
My wife had a follow-up CT scan this past Wednesday and she got the results yesterday. NED. My wife was diagnosed at 39 yrs old with stage 4 colon cancer with liver mets. Who knows that the future brings but for those in a similar position, just know that there are good stories out there. We've never felt anxiety like we…
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Vectibix---Has anyone taken or on this Targeted Drug?
i am about to start this medication and I am concerned about the side effects! I have metastatic rectal Cancer and I am about to begin this targeted drug and I was wondering if anyone out there is either on it or as tried it and how were the side effects? Was the drug effective? Thank you!
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Another liver met & resection
Richard had his check up at MD Anderson last week. Back towards the end of August a couple lymp nodes in the portacaval area of the liver was detected on the CT. We did not get to meet with the liver surgeon on that trip. Richard met with him on Friday. The area can be resected! We were certain it could not be based on the…
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The all deciding talk UPDATE PET scan
Hello guys, I hope wherever you are that you feel good and safe. I have more or less online classes. Practical classes are a mess. One day you have it, the next day the ward is closed due to covid and you think "did I see this patient?" I like practical classes bit atm it is safer for a med student to not see them. So, for…
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Mets to Retroperitoneal Adominal wall and Gluteus Maximus
So about a week ago my dad's pet scan showed possiable mets to the adominal wall and butt muscles . Now we are waiting for biospy on dec 7 . And we are left with alot of questions about mets since we have only been dealing with it in one spot for almost two years . So is this a bad place to have mets ? Is there worse…
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Life & Legacy of September Cheng
My mom has recently passed on Nov 1, 2020. I was next to her when she took her last breath. I know she's in a better place now. Thank you for all the years of support that I've gotten on here. Now I will be busy with closing her accounts and such which is harder and stressful than you could imaging. I wish you luck for…
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Happy Thanksgiving Hugs To Everyone!!
Just want to say I wish each and everyone of you a day filled with love and running over!! I'm so grateful for this board and all of you who lift, support, and listen no matter who or what....Biggest of hugs!!....M
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Trubrit sick
trubrit posted on facebook that she is real sick (does not say from what). Please offer up your get well wishes, prayers and good vibes for her. Marie who loves kitties