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After Treatment
Hi All Please advice if any one had to deal with this before. My husband had a neck dissection in mid of april where they removed lymp nodes. Since after his surgery he has constant choking feeling, pressure against his windpipe. He feels some one is strangling his throat all the time. He finished radiation and chemo in…
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rollercoster ride part 2
Well the xeloda and temador didn't work this time around. Tumors popping up all over the place. We will try to get into trial this week. Still a few other options too. All prayers welcome! Steve
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Celebrating Special Events
Hi All, another issue to consider how does one incorporate the loved one into a special event? There are several coming up for us, my birthday (today), our daughters graduation and my own masters by research graduation. Grace is immobile so it is very impractical to take her to these graduation ceremonies. Any ideas how…
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Husband still smoking and drinking after cancer
I feel at a loss, my husband is still smoking and drinking after neck dissection and total laryngectomy and partial pharyngectomy. The dr says they got all the cancer and he doesn't need chemo or radiation but he just doesn't seem to care. He thinks it won't hurt him and it is so hard for me to watch.
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Remembering...
June 10 is my father's birthday. But he is not here to celebrate it with me. Seven years ago he had a stroke and, while hospitalized, his doctor discovered a massive and malignant abdominal tumor. He lingered one week and died. I still miss him and sometimes wish I could just sit down and talk to him about so many things.…
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I am afraid...chemo
I am turning here because I am afraid and need help. We found out my Mom had cancer in mid March. Since then my whole life has been turned upsidedown. Her cancer is stage IV and I am so scared of the unknown. And each day it seems that I venture into another day of the unknown. She had her first chemo treatment on Monday.…
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Developing Diabetes during Chemotherapy
My husband has cholyangiocarcenoma,(primary liver cancer of the bile tract). After his third treatment with Gemzar/Cisplatin, his sugar levels went up dramatically. I have read of Chemotherapy induced diabetes as a possibility. Has anyone else had this happen? Is there such a thing? Is the high sugar levels an indication…
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new here - looking for help deciding what to do next
I have been caring for my mother for the past 6+ months. She was being treated for bleeding ulcers and side effects such as low blood pressure, low hemoglobin levels, etc since August. Three weeks ago we received the news that she has stage IV stomach cancer with several lesions on her liver. The oncologist suggested…
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Keeping vigil and lighting the candle for Steve update
Steve is still holding onto this world,the nurses persuaded me to shop for groceries yesterday as the vigil is much longer they than expected.It was very strange to step out into the world again after ten days in the house almost alone except for a nurse. I have tried to post and thank you all several times-but I see my…
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Exhausted and Unsure
Through my dad's battle with cancer I have been so focused on him and his needs, I guess Im suffering my classic "caregivers syndrome" Im so physically and emotionally drained. Hospice came in yesterday and yes it was a relief but yet more for me to deal with. More medications, more paperwork, more phone calls, more…
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Goodbye Bob, my defiant Harley riding husband
I should have known my husband would have the last words even though he was not aware of his surroundings in the end. I guess he showed everyone he was going out on his terms and that meant "when"... No time for Hospice for him! I'm thinking he had a big ride planned and did't want to hang around waiting for us to finish…
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micgrace
Wondering how you and your lady love and the family are doing. It's Memorial Day weekend here in the States - lots of time for thinking. For me anyway :)
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Refusing help
Good Afternoon. This has been a rough few weeks for me and my husband. My mother-in-law has been diagnosed with Stage IV colon cancer. Her colonoscopy showed a large mass in her colon that is cancerous. Then her CT scan showed the cancer had spread to her liver and left lung. She is receiving radiation and light chemo…
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How do I keep strong?
I am in my late 60's and my husband is in his 70's. He was diagnosed with lung cancer in September of 2010. Ben has Hospice but they only come 3 times a week. We have a large family but they are busy and some live away. I am "completely" in charge of Ben. He is also blind so that makes him even more dependant on me. I am…
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The Doctornaut Act -How we can help improve the way we find cures in America.
First, on behalf of the foundation, let me say God Bless, to all of the survivors and caregivers out there. It is an amazing thing to come through such a harrowing experience. We know the struggles that patients and their families go through, and it is our primary purpose as an organization to improve the way we handle…
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An anniversary and a milestone
Within a day of each other. Today marks Doug's 6-month anniversary from when his treatment for tonsil cancer ended. Yesterday, he hit his milestone of finally weighing as much as I do (I tried to help by losing at the same time he was gaining, but really didn't accomplish much). He and I both weigh 161.5 lbs, which is a…
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Almost like the Diagnosis of Cancer all over
Wow it's been awhile since i've even been here... But Here I am Caregiver to my father with stage IV stomach/esophagus cancer. Today was the day we had been waiting for, the day he had his scope and espohagus dialation. We thought just get through today and everything would be fine again. He'd be able to eat and drink…
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bone scan
Because he was having some pain, I sent Jim to see our family doctor. The doctor decided because of the location and Jim's description of the pain, a bone scan needs to be done. Jim finished treatment for hypopharyngeal cancer last August. PET scans showed only residual hot spots. Asking for prayers the scan shows…
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More Good News
We have more chemo tomorrow, started pre-meds today, Dexamethasone 8mg orally 2xdy. So far, so good. The new good news is, though, that my husband had a bizarre rash spreading over his chest that the onc. was totally baffled by...after his mental reaction I did a TON of research, and discovered all of the "weird" stuff was…
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Lonely and Sad
I haven't slept well in the past few nights. 'T' is still at rehab and she is lonely and depressed. She is very deceiving. I think that we are really connecting but then she is totally convinced that there is a secret door in her room that goes to a non-existent basement. It's hard to step into her reality. Until today,…
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Rife Machine Rental
I am looking to rent a rife machine made by Gary Wade for 1 week. I live in North Idaho but would be willing to pay for shipping. Are there any networks that provide these sorts of connections or does anyone out there have one to rent? Feel free to contact me at prairie39@juno.com.
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Do you know if Marinol can be prescribed in Alabama?
Dad's lost his appetite. It wasn't affected during the 15 brain radiation sessions, though some thing didn't taste as good as usual, he still pigged out. the week rads ended, chemo (160 mg Temodar) began. It took over a week to see his appetite begin to fade. Then there was a 3 night stay in the hospital for blood clots in…
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How do I stay strong?
Hello! I'm new to this board. Let me tell a little bit about my mom's story. My mother was diagnosed with Stage 4 Hodgkin’s Disease at age 19, I was 2 months old. My mom went through many bouts of chemo before having a Bone Marrow Transplant in 1993, 10 years after she was diagnosed. I was 12 during the Bone Marrow…
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Need to vent
I'm truly amazed at how callous and uncaring some people can be, even family. You really see who cares and who doesn't when cancer enters your life, or the life of your loved one, don't you? Their true colors come glaring through their bullsh!t, and you see them for the small, hypocritical, selfish, self-absorbed a-holes…
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Saying Goodbye To My Best Friend
I think I'm going to be sick... my head hurts, the tears come when I don't want them to, people hug me when I'm not ready to receive them. I'm so not ready for this! Bob's doctor's appointment on Tuesday, MRI - no new tumors... that was the good news. The days leading up to that appointment were scarey, I didn't think I…
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DOCUMENTARY TONIGHT 8pm on HBO, WHAT U NEED TO KNOW ABOUT MAKING END OF LIFE DESCITIONS&YOUR RIGHTS!
"How to die in oregon" is a documentary that will be airing tonight on hbo at 8 pm. It follows the lives and the struggles of quality of life over quantity of life. It is definitely something to see. Best documentary at Sundance Film Festival. Tell your friends and families unfortunately this is something we will all face.…
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Virtual Hugs To Everyone Here... Can I Give You Back My Ticket For This Roller Coaster Ride?
So once you are on the ride there is no getting off, right? Maybe for some people there is but not for those who lead with their heart. For some of us there is only one ride and that is sitting right beside their loved one holding on for dear life. Because the one person who didn't ask to be on the roller coaster ride of…
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Very new here not a clue about being a caregiver
My wife has just be dxed with a stage 3 glioma. I have not the slightest idea on how to be a caregiver. A role I did not want in a club I did not want to join. But I have been chosen. Suggestions.??
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How many treatments
My husband was diagnosed with colorectal cancer Nov 14, 2010, stage IV with numerous mets to liver. He will be taking his 11th treatment this fri. and number 12 on June 13, 2011, they dropped the oxy due to fear of too much nerve damage still on 5fu. After that the onc is talking about a 3 month break and go from there. I…
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Good News :)
Well, So Sorry I didn't post yesterday, but entire day was devoured by Oncologist, Radiologist (Hector the Awesome), and a drive to the Neurologist who we saw this morning. Now, for the Good News~~MRI shows NO spread to the brain!!!!! My biggest fear after the weekend of Hell was ENTIRELY unfounded! *Jumping for joy* As…