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Help! What do I do?
My husband had treatment today. At first, he was all mean and grouchy toward me. Whenever I asked a question, he would turn it into a debate. When we got to the dr.'s office, he was super grouchy, so I sat quietly. He weighed in..seem to have gained 5 pounds. He wears extra clothes,has lots of fluid. I know... I am getting…
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I'm going to love you through it
All caregivers to listen to this song " I'm going to love you through it" Martina Mcbride very pretty song!!
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Angry, Hurt!!
Hey I just need a sound board before I go home! I had a specialist apt today as I have some issues with my parathyroid glad. She was supposed to come with me. She knew I was scared. She canceled on me this morning. No matter how I feel, no matter what, I'm there. I've never felt so uncared for throw this whole thing until…
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Just Not Feeling?!
I’m not sure what’s struck me, but the past week, being hit with more news, It’s as though I’m just not feeling. I have posted many times on the Brain Cancer discussion board, sharing and gathering information for my boyfriend and for myself with his grade II Oligodendroglioma at 29 years of age. When this all started I…
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lack of apetite
Hi My wife has lost her apetite any ideas how I can tempt her? (no force please)also she seems to sleep allday Janack
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I want to do the NED dance with Jim!
Hey Jim, Don't you think that I forgot, cause I didn't! Wednesday is coming soon and I am pouring all my positive energies towards your CT scan! I will pray and pull for a NED! Will you do the NED dance with me? LOL. Anyone else want to do the NED dance with Jim? Come join us! Hugs, -Michelle
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Help Me Help My Sister
My 63 year old sister has anaplastic oligodendroglioma. She has been fighting this since 1998. She had chemo and radiation treatments in 2007. This stopped the tumor growth until March of this year. She had chemo and the tumor kept growing by leaps and bounds. She has now finished 5 weeks of radiation. She goes back to the…
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Wohoo!!!!
Well we went for surgery yesterday. They were able to get the stint put in and the tube taken out!! She's so excited that she finally gets to take a bath! So looks like bath night tonight. This should be a new adventure!! Next step fix bladder! Wohoo! A happy Tasha means a happy household!!! LOL Thank Jenn
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depressed-help
I am having a rough day, sort of. I know I should not be. I feel like I am just in a war zone. I would think that I would be happy, but I find myself in a bad mood. I am thinking about my mother... last year around this time, I was on a rollercoaster with her. I am sort of anticipating her anniversary death date. I find…
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Twilight Zone
The nurse said you need to call hospice, it's coming and it is going to be quick. Well that was four weeks ago, that is not my definition of quick. She went into psychiatric distress for three days, which was a nightmare for both of us. Thank God for a great nurse, we have changed medication and that is helping. Watching…
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Website to organize caregivers
I'm interested in setting up a website for those interested in pitching in to help a friend who is sick. The website would ideally identify the needs of our friend that people could volunteer for/sign up on the site. Do you have any suggestions?
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Rollercoaster ride again
Hospice gave my Father in law 5 to 14 days last night. (CA liver) it is tearing my wife up(like its not bothering me?) She has spent the last 9 out of 14 days in the hospital and is just now starting to get her strength back. She feels like she is not helping her mom or family with her dads final trip. She has been…
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some good news
We got back the rest of his test results today and the cancer hasnt spread! Yay! We went on our vacation and it was nice, there were times when we forgot he had cancer for hours! :) Now we are back and only 3 days until his surgery. Has anybody else had experience with what he is having done ; using leg bone to rebuild jaw…
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Venting....................... Ok whining
Ok so I know this is probably not the best place to air this dirty laundry but I have nobody to talk to about it. Nobody to say hey your being silly, petty and immature. So Tasha (my partner) finished her treatment as of July 11. 2011. We were given the go ahead to you know as of Aug. 26, 2011. We still have not. I know…
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Too much Chemo for the rest of life
Hey, I posted this somewhere else, but maybe you all can help. My husband, stage iv breast cancer, mets to all bones was told that he had to be on chemo for the rest of his life. He has treatment every 21 days. We have been going through this since September 2009. He was 41 during reocurrence, but he looks like an 80 year…
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Time to introduce myself
My wife found this site and suggested that I start getting help with our journey. Tracie is a stage 3 endometrial cancer patient. She has had her hysterectomy and we are waiting to start treatment. We are in the beginning our journey now and are trying to get information. It has been a frustrating journey starting with how…
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Check the posting dates....
Hi All, I usually post to the Colorectal board, but I've been stopping by here for the past week or so to read the posts from fellow caregivers. However, as I was reading the posts just now, I realized that a few of the newbies have been posting to posts that are over a year old. When this happens on the other board it can…
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+ When Your Loved One Isn't Very Loveable
I've recently read quite a few posts regarding patients who are difficult with their caregivers. I thought the article and site pasted below might be helpful to some of you. I've read so many of your stories and frankly don't know if I could handle it if I were in your shoes. Thank you from the bottom of my heart for being…
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Thought I would share another view...
Hey all, I found another good read on Denial. This one is also very informative for caregivers that are struggling with their patients whom refuse to take their heads out of the sand. I have pasted it below. Hugs! -Michelle Denial as a Coping Mechanism ------------------------------------------------------------- Posted by…
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Glioblastoma IV and personality changes
My husband was diagnosed with a glioblastoma IV in 2004. His treatment consisted of surgery to remove most of the tumor, gammaknife surgery to impede the growth of what was left behind, radiation and chemo. My question is this, since the surgery his personality has changed in that he becomes extremely angry and frustrated…
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Scene from HE11
One chemo sick,'roid raging cancer patient(DH) and a menopausal caregiver (me). Cancer sucks
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Who really knows how long you will live?
Good evening all...I am just frusrated this evening..its been brewing for a few days...my dad is 77 yrs old with stage 3a non small cell lung cancer.I am so upset with some doctors who say he has 18mo to live, then I hear possibly 2 years to live,once I heard 12 months w/o treatment.My dad,mom,husband and myself have been…
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venting.......................
Spent all day yesterday getting his MRI, CT, bloodwork, xrays,met with the anesthesiologist. It was very stressful for both of us, I didnt know that I couldnt even wait with him for the hour he had to sit and wait after getting his IV and having the meds put it. I think I got my first taste of what this is going to be like…
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Newbie-Can you understand me?
I am so glad I came across this sight. I felt like no one understood me or the pain that I am going through. Here, I found that many of you do. I am the only caregiver of my 43 year old husband who has stage IV breast cancer with mets to all of the bones. This is our second go round. Sept. 09, the cancer revisited. I lost…
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Assistance to Cancer patients in Berks Co. PA?
Hello, If anyone could offer knowledge or share experiences, I would be beyond grateful. My great uncle (who is in his 80s) has stage 4 lung cancer and lives alone. He has received radiation and will not continue chemo. He relies upon my mother (who works FT and lives over an hour away) to assist him with cleaning,…
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A good day with Mark
After yesterday's disaster. Today is a much better day. He is staying on the blow up mattress and is not in any pain. His blood sugar level is a bit high but I am taking care of that with the sliding scale and doing a good job. Today while I was talking my nap (I do when he does) I was on the couch and he grabbed my hand…
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Doing the Happy Dance because I got FIRED!
I posted this on the Colo/Rectal Board, but had to share with my fellow caregivers: This is just a morsel of good news, but I feel like maybe we reached the top of the mountain today and are beginning to roll down. I know, you are all saying, what is she blabbering about? Surgeons visit today was great. He fired me from…
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Sad Eyes
those beautiful chocolate brown eyes are full of sadness & she tries so hard to hide it with a smile. I've never seen anyone loose muscle mass so quickly. I'm still angry , but just too tired to feel it any more. I just know it's there. my hope for a miracle or divine intervention is fading faster than she is and I feel…
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Pulling for lots of prayers and hugs for Rita in her loss!
To all, I post in request of prayers and hugs for Rita (ritawaite13) as her loving husband Greg, has passed. She will need our prayers and support to help her through and to lift her up. Hugs to you Rita and my heart is with you. Much love to you! -Michelle
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Unusual 4th Stage Stomach Cancer Patient- Amazing actually
I am not really sure if this is the correct forum to post this inquiry. I have a rather unusual, perhaps it is not unusual. I have a dear friend whose Grandmother has 4th Stage Stomach Cancer, which has metastasized to the following regions: 2 mets on both lungs, liver, bile duct, and several clusters of tumors in her…