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IDC and High-grade/extensive DCIS, both left breast, ER+, PR+, HER2-, Stage 2A, Grade 3+, Waiting on
I was diagnosed in October with invasive ductal carcinoma and high-grade extensive DCIS, Grade 3+, Stage 2A, "unfavorable" Ki67. I chose a lumpectomy and had the surgery on 11/14/14. Originally, the treatment plan was going to be radiation (30 rounds) and Tamoxifen (Hormone therapy) for the first five years, then a…
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restrictions with breast expander
I had my bi lateral mastectomy with expanders 6 weeks ago. Finally can sleep i my bed! Has anyone taken a bath yet instead of a shower? also wondering if the lifting over 10 lbs. lasts the whole time the expanders are in? have slowly been doing more around the house Doc said no vacuming yet wwondering abut laundry? can…
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Oncotyping rating
Does anyone know what the number is for the oncotyping rating when doctors are looking at possible chemo? I thought my oncologist said it had to be over 30% for chemo to be recommended. I'm just wondering if there is a recommended number I should focus on. I meet with the oncologist tomorrow and I'm already building up…
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Metastatic Breast Cancer - anyone had it to brain
Hi, I was diagnosed with early stages of breast cancer in May 1997, I was 31 years old. Had a mastectomy and reconstructive surgery, no chemo or radiation. In May 2000, I was diagnosed with metastatic breast cancer. There was another lump on my reconstructed breast and I had 30 out of 35 lymph nodes under my arm positive…
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A Post from Cypress Cynthia's Sister 12/10/14
I had a smile on my face and tears running down my cheeks when I read this from Eileen's sister today. This morning feeling very sad about my sister and notice a missed call from her on my phone-thought it must be a mistake. I called her husband and Eileen got on the phone and I managed to put my sister Wendy on as well…
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Happy Birthday wishes to Sue / sbmly53 // December 9th
Happy Birthday wishes - Miss Sue - Do enjoy your very special day. Vicki Sam
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Update from Cypress Cynthia's Sister 12/9/14
"I was thinking about Eileen today and know how many of you have sent your thoughts and prayers over the last 18 months. It really did have a positive impact on her and I am sad that she can no longer read your comments. She is quiet now, not speaking much and mostly sleeping. Danny remains at her side and has been an…
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Cypress Cynthia Updated 12/5/14 (New update 12/6/14)
Following is what Eileen's daughter, Katherine, posted yesterday. Let's continue to keep them in our thoughts and prayers. Mom had a rough night, but a pretty good day. She ate a little egg and some popsicle. She even put in jeans and walked to the end of the driveway twice. First time I have seen her in real clothes in at…
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vaginal atrophy
I had an estrogen driven tumor, am post menopausal and have been diagnosed with vaginal atrophy. can't use estrogen products, nothing very effective so far. anybody have experience with this and any advice?
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a bit off topic
long time friend-wife had some issues a month ago. They were told a stoke-after she was released she needed a break after all the testing and went to visit a friend out of state. When she came back she found out she has stage 4 brain cancer. she thought she was coming home from a mini get away from it all to find out this…
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Missrenee
has a birthday today! Love and hugs Sue
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Taxol and Neulasta shot getting me down
Hi everyone, It's been a while since I've posted. I have finished my A/C rounds thankfully and was looking forward to the lesser strength chemo, Taxol. I have had 4 of the neulasta shots after each of my a/c treatments with no problem. So when I tool my Taxol round everything seemed to be fine that first night. I did get a…
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Starting chemo tomorrow
Finally starting my chemo tomorrow. Discovered my lump 6 weeks ago, it's ER+,PR+, & Her2+. And I have one bone met on my left sacrum. I'm not looking forward to it, but anxious to start fighting this. Had a Stage I BC 20 years ago and did AC. Didn't think I'd ever be doing this again. This time around, I'm getting…
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Christmas *Joke* ....
Ten worst gifts to buy a woman 1. Never give a woman any kind of household appliance or something that is going to make "housework" easier. For instance, a blender, a toaster, a new vacuum, one of those mops they advertise on tv that does everything but suck the life out of you, anything in a informercial. One allowed…
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Ornament Exchange
Thank you to GreenEyedGirl for a packagr of Christmas cheer and ornament. So much thought went into thus exchange. I really enjoy thus tradition and am so happy that I was able to participate again. Thank you Melanie. Also thank you to Victoria for taking the time out of your busy life to keep thus tradition. In spite of…
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Breast forms and garment recommendation while healing fr bilateral mastectomy
I will be having a bilateral mastectomy around the middle of January. I am doing chemo before surgery and will be finished December 15. I will be having radiation on one side only following surgery. I have decided not to have immediate reconstruction. I was just curious what some of you in this situation might have done…
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Ornament Exchange -- Not Too Late:)
Hello, There's still time to send in your name and get an exchange buddy. Let's cut it off around December 15th. If you don't know what I'm talking about, see the original post entitled ****Ornament Exchange****. You can't miss it, we keep bumping it up:) Basically we do a Secret Santa kind of thing with ornaments. It's…
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Cypress Cynthia
Has anyone heard anything new about her? I am hoping that she is doing well again. I believe her chemo was to be in the past couple of days if she was able to get it. Hoping for only the best! Clementine
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Welcome to Hogwarts~ A Primer for the New Ones not finding much emotional support at work and with "
These lovely, welcoming words were written by the late Chenheart. No one ever said it better! I know she would want me to bump this up for our newbies: So many new ones have joined our family of Kindred Spirits lately~we sigh that you have had to find us, but of course welcome you with open ♥ You may have noticed, or even…
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Old guard here....busy with life....10 years later....
I am thankful for being able to post this.... 10 years ago, November 27, I was told I needed to "get my affairs in order, you have 6 months to live". I do not follow directions very well (although I DID get my will finished, trust for my disabled daughters established, etc) and so I come to this anniversary I was not…
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Chemo choices, personal experience wanted!
I saw the oncologist today and received the final pathology report, they did find a few (<10) cancerous cells in one of my lymph nodes, which is still technically considered node negative due to such a small number and the type of cells. This doesn't really change anything since I already knew I had to do chemo since my…
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Survivorship Clinic
My infusion center sponsors a Survivorship Clinic, which I attended today. I was surprised when they'd allotted 3 hours for the clinic, but it really did last that long. They had about 4 of us each in our own private exam room, and they had a rotation schedule all written up so that by the end we had all seen who we…
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new to this afraid of chemo
I was diagnosed with early stage 2a invasive ductal cancer. I had a bilateral mastectomy with expanders put in two weeks ago. my surgeon said they got all the tumor it wasn"t attached to anything and the margins were clear. 2 of the lympth nodes were clear but one had a micro milimeter cell that was enclosed and taken out.…
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4th Annual Hershey Pinks Get Together
Last weekend was our 4th annual Hershey weekend. What a great time. We arrived at the Hotel Hershey on Friday. First class accommodations. Enjoyed dinner together on Friday. Saturday morning we went to the Chocolate Spa. I had a chocolate facial (and yes I licked my face). We had a private trolley tour of Hershey. Enjoyed…
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who would have thought being a survivor would sometimes be harder than being a patient
any other breast cancer survivors dealing with this? i am not exagerating when I say its almost like I am experiencing Post traumatic stress incidents. Desperate mother of 3 and grandmother urgently seeking help and advise. any and all would be appreciated. Thank You
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bone mets
Checking in for my daughter, she is 31yrs old, and has mets for 4 yrs. at this point, the mets are quite invasive throughout the bones, many lesions etc.., the onc had her on cytoxan and aromasin, but being that it did not help, started her on Halaven. so, i'd like to ask how good are the results with Halaven? What's next?…
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*****Ornament Exchange*****
Dear Pink Sisters, VickiSam graciously allowed me to have a go at our annual ornament exchange this year. If you'd like to participate, please PM me with your real name and address (or you can remain anonymous if you wish, but I'll need the address) and I'll send you a name and address in return. It's great fun as people…
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Happy Birthday- ladybug 22
Happy birthday wishes to you! Many happy days ahead for you!! Vicki Sam
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Cubetal Lymph Nodes**
Off and on over the years since my lumpectomy/lympectomy....I have had the inside of my left arm get swollen. The first time it happened I never dreamed it had anything at all to do with my cancer and I asked my Regular Family MD about it....we were thinking maybe a blood clot...and he sent me to the hospital for tests…
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HAPPY Birthday - CAMUL (Carol) - November 25th
Happy Birthday Dear Carol -- Hoping you have a wonderful Day celebrating your very special day Vicki Sam