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Survivors??
I wonder if it is just me. I wonder if others truly feel the way I do. I can only be so positive and so full of hope then I have my times where I wonder if I will ever feel whole again. Completely... I wonder if I will ever feel Good again. Well... It has been 5 years. I do things to help myself yet I still struggle daily…
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easier way to get to the survivors' network
Hi everyone! Found awhile ago that is is easier to go to the discussion site and then bookmark it or list in favorites and access it directly. I check the ACS home page when I want to see news but otherwise do not.
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Permanent Hair Loss
Hi. Just wanted to let you know that you can't assume that all your hair will grow back after chemotherapy, especially you all who have been chemo once before. I had the A/C & Taxol three years ago and then the Taxotere this spring when the cancer was found in my bones. Three years ago I had no problems growing back hair,…
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Something I read
Handbook for the Soul a book by Richard Carlson and Benjamin Shield the chapter is Lessons of Love, Lessons of Hope. "Often it is at our lowest points in life that we learn the most. We say 'God, this is too much. Life has disappointed me beyond all belief.'... Those low moments are the magical moments. They are the…
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cyst under lumpectomy scar
I was diagnosed with breast cancer in Feb. 1999, I had a lumpectomy, radiation, and am currently on Tamoxifen. In January of this year I had a suspicious area under the scar and had another biopsy that was negative. Last week I had another mammogram that showed another suspicious area under the scar. My surgeon felt sure…
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Something I read
Handbook for the Soul a book by Richard Carlson and Benjamin Shield the chapter is Lessons of Love, Lessons of Hope.
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Thyroid Levels
I had my first regular check up since lupectomy,chemo and radiation. My Thyroid Stimulating Hormone was quite high indicating Hypothyroid. I did have Hoshimoto's Thyroiditis 25 years ago but have been in normal ranges without medication ever since. Has anyone heard of the chemo effecting the thyroid? My Onc. always checked…
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forgot the URL !
www.acscsn.org
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Xeloda Tablets
Has anyone here taken the chemo called Xeloda in tablet form? I got an email from my girlfriend today and she said this is her latest treatment option. She started last week. She takes the pills twice a day for 14 days and then rests for 7 days before starting the cycle again. She didn't say how long this will go on. Does…
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Retreat for Breast Cancer Survivors
There are two ladies here in Oregon who have started an organization called "Breast Cancer Renewal Project". Their theory is that even when someone has been cleared physically, they still need an emotional healing. This was their second annual retreat. I had the most uplifting, rejuvenating, refreshing experience of my…
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Successfully Swimming With a Wig
Hi everybody it's lilmermaid (Sylvia. I went to the Y today to siwm for the first time with my head shaved and swimming with a wig. I belong to an aquatics class in the Y for people how are physically challenged, I have bone mets so that allows me to be in the class. The instructors are wonderful and give us a lot of TLC.…
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procrit
At my last treatment I was informed my red cell count would likely be low by the time the next treatment rolled around and I would need a shop of procrit. Is there a way to avoid this? What is your experience after having a shot?
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Thank you Friends
Thank you so much all of you! You have emailed with tons of suggestions and prayers. I have contacted a friend who is in the local Church board. He is contacting churches and trying to get us some help. We got word from Social Security that my husband cannot get disability because I make too much money. So now we are…
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No more chemo!!!!!!!!
Just wanted to tell everyone that I don't have to have any more chemo! Earlier I posted a message on if I should finish or not. I went and discussed everything with my oncologist and she then told me that there was no proof that Taxol would actually help me or that I would benefit from it in the long run! I am now just…
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Stage I
I was diagnosed with Stage I breast cancer (2.0 cm; sentinel node; node negative, ER+/PR+) in June. Have finished 2 of 4 A/C chemo and doing pretty well with that. Even though onc says chances of spreading is slim and that is reason for chemo I still worry all the time. I feel like every "ache and pain" is something. It…
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HELP...Black Tongue???
Hi All My tongue has suddenly turned black all over. I have never heard of this side effect from AC. Even my dr says its suprising. I'm in no pain but it looks like I sucked on black candy ... horrible!! Did anyone else experience this? Thanks Reni
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Extremely Tired on AC
Hi my name is Sylvia. I had my second AC treatment Tuesday August 14. Today is Sunday the 19th and I'm not able to do much of anything. Until yesterday I slept most of the day and the night. I'm very weak and tired. Is this normal? My doctor told me I would be getting probabally 8 treatments of AC. This seems very…
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Pain
Hi, Just letting you know that I came through surgery just fine. I am having a lot of pain because of the removal of my left breast, and the pain medication does not help at all. I am also dealing without a lot of nausea for some reason. If you have any suggestions for either problem, I would appreciate if you would let me…
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Life is an experience
Hello friends: I wanted to share something with you today. Recently I met up with an old high school friend whom I haven't seen in years. I knew through the grapevine that she had had Lupus for years, but I was not prepared for how sick she looked. This was on a good day, too. She needed a walker to get around and her face…
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fluid under my arm
I had a masectomy in march of 1995 ,they removed 16 lymph nodes & 1 sweat gland. I have had problemns with it from the first day i had my surgery. I would walk that wall no matter how much pain I was in. I wouldn't stop.Well in this last year it has got so badthat I can't hardly raise my arm .My husband he gets & breaks…
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"I'm Alive and the Doctor's Dead"
Hi Everyone! I wanted to recommend this book to any of you who might be interested. It is written by Sue Buchanan, and is all about her journey through breast cancer and her long survival of ten plus years with her 'sense of humor and her sexuality intact'. I got it through Amazon.com--around 11.oo; paperback. Brenda
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Lymphnodes
Hi fellow breast cancer survivors...I was diagnosed in September 2000. Had 17/23 lymphnodes with cancer. On june 11 I finished 6 mos of chemo and 5 1/2 mos of radiation. I felt I was fighting the fight while I was in treatment. I just try to think positively that I have won the battle!!I too am looking forward to walking…
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Self-examinations
I hope that each of you reading this understands just how important self-examinations of the breast can be to your health. I have had breast cancer twice. Both times the mammogram did not pick up the tumor. Each time I found a lump and went to my doctor where he did futher investigation. I am glad he did because each time…
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Made it - Day 1
Hi all, Praise the Lord I made it very well through the first treatment. I tried to remember all the things you told...not looking at the Adriamycin as it went in, have some relaxing music to listen to... It was a very uneventful even. No pain, no nausea, no nothing. Yeah!!! I am patiently waiting for anything to happen at…
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Quick Question
Hi all, I forgot to ask anyone...can I or should I eat breakfast before I go to chemo? Will I make a 40 minute ride home before the nausea kicks in? Thanks Jayne Thanks, Jayne
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New hair
Sorry about the previous unfinished message...I completed taxol treatment in July. I lost my hair in May and have been sporting a bald head for the summer. My hair is starting to grow back, but I'd like to have a wig made for when I return to work in September. I am African American and I save my locs that I cut off when I…
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Chemo start
Hi all, I am 2 days away from celebrating my 46th birthday with the start of my chemo treatments. I am very confident that this is the road to take, but of all things, I find myself getting very anxious about the hair loss thing. I have looked at wigs and hats, and scarves. Then I look again. I even bought some costume…
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Did I give up?
I went to see my oncologist today. I was to start taxol and herceptin. I have been debating on whether or not to have the taxol. I had done a lot of research on it an found that it was really only helpful in metastatic breast cancer paitients. I asked my Doctor about it and she said if I didn't want to take it, I didn't…
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Egg storage
I've been told there is a possiblity of becoming infertile after the AC chemo treatment. Someone mentioned that I could store my eggs? Does anyone know anything about this? Thanks Reni
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pains after radiation
I finished 6wks or radiation 4mths ago and I am still having aches and pains in my breast. Will they go away eventually? It's almost like a constant toothache! It's the only reminder I have left so I want to feel normal again!!