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my update wiped out again!
This is the fourth time i have tied to post you all and let you know how much i missed you. My computer at home is not working until i fix it and my message keeps dissapearing. It is so frustrating. I have my daughter Jamie here and we are having so much fun. taking her little dog Burkley for walks, going to movies and…
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I beat this !
My name is Loni and I beat this ! I just yesterday got the news from my last Petscan and there is no more cancer to be found ! It all started Jan. 1st 2008. Breast cancer again for the third time. Four tumors in the right lung, and cancer cells in the fluid around that same lung. They called it Plural infussion. Over a…
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gettin out of bed
Does anybody have a suggestion how to get out of bed from laying down? I had a bilateral mast 6 days ago and it hurts so bad to get out of bed. I roll over to my side but when I try to use my chest or arm muscles to get up, the pain is unbearable. Any ideas for me? Thanks
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WOW... THANK YOU!!!
Thank you all so very much! I WAS stressed, I'm not here to stir things up and think I can provide some input from a different perspective.I know YOU certainly have been an inspiration to me. One of the posts in response also made some sense. She thought maybe CSN did it and now that I think about it, it have triggered an…
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So, 'It can't happen to me', right?
I missed the whole discussion about tanning, etc, since I was travelling. Even here in Holland, the tanning capitol of the WORLD, the ads are on TV about using sunscreen to prevent....yes....wait for it....skin cancer.... I am a living, breathing example of you CAN get cancer. And then get cancer AGAIN! I also had a talk…
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Fighting! How?
I told my sister that I did not feel like I was fighting. She told me when I go to the doctors and fallow through I am fighting. Tell me how to fight!!
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Port is in
Ouch !! Hurts a bit. Did not feel anything when it was going in. I was in and out through the procedure. Everyone was super nice, glad another step is over. I guess they did not want the Left side girl to feel left out of everything. Thank you all for all the support, and getting me through another step in this journey.
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confusion tamoxifen/ radiation
I am having lumpectomy in july for stage 0 dcis. I am concerned with the side effects of taking tamoxifen. If radiation will kill all cancer cells in breast wouldn't just getting 6 months mammo be enough to keep an eye on it coming in other breast instead of taking aromatose inhibitor or tamoxifen.I am trying to get…
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wigs (itchy, comfy or sweaty what helps)
I tried on wigs today for the future bald head courtesy of cancer chemo. I found one but I think it will be a long summer of discomfort. Will it be itchy, comfy, sweaty? what will help?
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A bit of a chuckle
Okay, by now you all know I am a grandma again to little Ava. Now take a look at her photo and notice the little bit of spiked hair which happens to occur naturally. Her brohter's say she has a "Rocker hair do" and her Papa has given her her first nickname.....SHARK FIN due to the bit of spiked hair. So our adorable little…
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PICC
uploaded a pic of the picc in my expressions page in case anyone was interested. I would have preferred the port, so much better for daily living, but since mine was a dud, this was my only other option. =^..^=
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metastatic breast cancer and SURVIVING AN ABUSIVE EX-HUSHAND
Dear CSN community,I need your help! A bit of background: I was diagnosed with breast cancer in April of 2005. Had a radical mastectomy, breast reconstruction, was on tamoxifen for years, and then in Feb of 2008 I was diagnosed with metastatic breast cancer. I had chemo (taxol and avastin) for 10 months (3 weeks on, one…
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Obtain A Second Consultation
Just wanted to tell my story, in regards to the first doctor who diagnosed my cancer. Was like playing a "guessing game." He said he tried to call me with the results, which I did not receive a message. When I went to his office, he "read off" the pathology report. Told me to see the oncologist and "get back with him."…
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Congrats on Finishing RADS - crazylady55
I read where you just finished rads on Friday, and, I wanted to say Congrats! That must be great! I can't wait until I am done! Hugs, Kylez
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Just diagnosed with stage ll breast cancer
Since i was diagnosed 2 weeks age I feel like everything is put of my control. Tests ane more tests with friendly and not so friendly people. There are so many loose ends I don't know what to think. I know I need a double mastectomy and chemo. I just don't know when. The waiting is driving me crazy!! My first reaction was…
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Tamoxifen - Long term - Not good results?
I read a post where someone stated that tamoxifen studies for long term were not good. Does anyone know why or where they read that? I always wondered as they only want you on it for 5 years. I always thought, why just 5? Why not your lifetime? Thanks!
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48 Hours But Whose Counting......
Well, surgery is 48 hours away and I'm still shaking at the knees. Guess I would be considered a "sissy", but I've heard some horror stories about the pain when waking up. Am having a modified radical masectomy on the right side for ILC. Maryann
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The Pets of Daft Sods Club (P.O.D.S.)
Our Esteemed Leader of The Daft Sod Club, J (a/k/a Tasha) has formally decreed the instantaneous formation of a new club: THE PETS OF DAFT SODS (or, PODS) And as the newly promoted from Unofficial to Official Secretary of The Daft Sod Club (am quite proud of that - thank you, dear J!), I'm starting this thread so that all…
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Worshipping the Sun.......
Just how long are we meant to live 'In the Shade' after rads? I was sprawled out on the deck yesterday doing my 'Starfish' impression. I got a nice bit of a tan and no burn. I am a year out of treatments now and don't want to carry on looking like Caspar! Jamie and I went shopping this morning and I bought 2 pairs of…
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Not advocating stoppping AI's but...
I wanted to share my experience with my "sisters" who are taking aromatase inhibitors and experiencing side effects including insomnia, constipation, depression, nervousness, muscle and joint pains. For the past two weeks, my oncologist had me take a "vacation" from my Aromasin, so we could switch back to Arimidex. These…
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Have any of you heard of
Ganoderma? A friend just gave me info about it....i know people try to be helpful, and can become overwelming with good advice, but wondered if any of you had heard of this one. Thanks! Jeanne
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*****Bill**** This is for you*****B12
I know sometimes I don't go back to old posts and wanted to make sure you saw this. Bill, please don't look at it as "charity" in the negative sense. I know how that can play on your psychy... Look at in the sense of the words true meaning... love.. people care enough to donate to causes that help others who come into a…
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Teena and Kim ** Good luck with Rads tomorrow!
Teena and Kim, good luck tomorrow with the start of your radiation treatments! My advice, use the cremes the radiation oncologist gives you and get lots of rest! You will do fine! Hugs, Jeanne
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peach fuzz
My hair has started to come back in. It is coming in fast--looks like a mixture of white and dark brown. Started to come in after my 5th treatment of Taxol w/Herceptin. I think at this rate in about 2 months I'll be gelling it. It is so soft. My son, Jake thinks it is really cool. Just hoping the hair on the legs and arm…
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More about pathology reports.
Girls, I went and found a site that explains how to read you pathology report. At the very first it talks about checking you name birthday and date of surgery. I have 2 different reports 1 shows a date of 7/22/2008 the other a date of 7/23/2008 of material being received my surgery wasn't until 7/24/2008.............should…
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Chemo delayed beyond optimal 12 week time.
I am new here so please bear with me. I had to have bilat mast and complete hysterectomy March 13, 2009. Because they had to use staples instead of stitches my wounds opened a week later when staples were removed. My chemo has been delayed multiple times. I am at the end of the 90 day window to start chemo. I wasn't happy…
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Tomorrow... T meets Dr. Onco
Well, tomorrow at 3:30 (that would be central time) it will be T meet Dr. Onco.. how do I feel about this? Aprehensive, pensive, anxious.... let's see.... no, ... no... and nope. What's wrong with me? For two days I couldn't quit crying, since May 20th I've been terrified, scared, sad, pis**d off, over whelmed, I was…
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Relay Update
Hi Everyone: Sorry I haven't posted but have been extremely busy at work. I went back to work full time about 5 weeks ago and I feel overwhelmed. Thank God, my husband knows how to cook because he had to step up to the stove. LOL. Anyway, really was awe inspiring like always and you know for a fact that I had tears running…
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Post Chemo Hair
Hi there, I haven't posted in awhile...now finding I need some advice. My last chemo was in December and my hair is growing in at a normal pace, but rather stangely. It's two different textures. On the back of my head the hair is curly and same texture as my pre-chemo hair, but the top and crown are frizzy and straight. I…
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Post Menopausal - Start bleeding again?
Has anyone here been post menopausal, taken tamoxifen, and, then started their period again? I read where that has happened to some. Thanks!