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mets within 6 months after 1st diagnosis
I first found 2cm lump in jun 2017. 9 months later I have mets in lung lymph nodes and starting clinical trials. I have not run into anyone with growth rate or mets as fast as mine. I hate being alone :( .
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RIBP - Radiation-induced brachial plexopathy
Have any of you heard about RIBP? I have just received the diagnosis. Symptoms are lost of feeling in the hand and/or arm, pain and muscle weakness. I'm told this is a rare effect from radiation. There is no cure and we don't know how far the nerve damage will go. I'm just wondering if anyone else has knowlege about it and…
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Geez oh Pete!
Last Saturday I missed a step and down the stairs I went. I stuck the landing like a ballerina hippo. Twist to the ankle and break to the fibula. The ambulance arrives, they could not get my big butt up off the floor that easily. OH MY GOD I did not know I even knew that many bad words! Lots of tissue damage, ice it, wear…
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Recurrence
Hello everyone, I haven' been here in a long time. I thought I was getting on with my life as well as I could. I was Diagnosed April 2010 with inflammatory breast cancer. Had chemo-surgery (right side mastectomy) then rads for 36 weeks every day. I was burned very bad. They said I was cancer free. NOT!! My cancer came back…
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Happy Valentines Day( best romantic movie?)
Off topic but what is your favorite romantic movie ? I thought it would be fun to do a poll of what movie you absolutley LOVE. Being a hopeless romantic I have a lot but this particular Valentines Day I'm choosing The Bodyguard ( I know it's cheesey). Husband likes Urban Cowboy. What about you? Love Surf
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A simple promising strategy to lower chance of recurrence
Appears to be of benefit to have a longer overnight fast and avoid late evening eating. Longer overnight fasting correlates with lower HbA1c (blood glucose marker). High HbA1c is a marker for diabetes or metabolic syndrome which in turn is correlated to higher cancer incidence. Short talk by Dr. Catherine Marinac…
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My wife has been diagnosed with IDC
I am a prostate cancer survivor for the last 8 years. My wife has just been diagnosed with Invasive ductal carcinoma of the right breast. She is really scared. It is now my turn to take care of her. WE have been married for the last 38 years. We live in the New York area and are looking for the best surgeons. She will have…
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My mom was diagnosed, looking for some support...
Hello all of you lovely warriors! My name is Simone and I'm so excited to find this great forum! I'd love to connect with anyone who went through this bad part of life and hopefully, share some experience. I am 22y old and my mom was diagnosed with cancer that has pretty much spread throughout her entire body. Have you…
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B/C & the Immune system
I had a Mastectomy in September 2017. No chemo or radiation, I only take anastrozole. I know chemotherapy weakens ones immune system but what about having breast cancer in general? I was put on 2 antibiotics for a tooth abcess and about a week later I got sick with what is apparently a virus, which I've been having for 5…
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Reconstruction - How do I know what size to go?!?
This is my first question here and I'm afraid people might think I'm crazy, but here goes anyway. I had a double mastectomy on January 24, 2018. Expanders were put in at the time of surgery and have been filled a few times. Before surgery I was barely an A. I already look bigger than I was before all of this, and it's a…
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Our wonderful Camul has gone over the rainbow bridge.
Last night was the night for Carol. As our resident mentor I know so many of you care. Please pardon my lack of words today, in it itself somewhat of a miracle, but I cannot continue. Sherry
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Help ... I’m freaking out re LDH LEVEL
5 year survivor ... highly elevated LDH I’m a nervous wreck. I successfully conquered triple negative breast cancer in 2012. It was tough, with chemo, radiation, surgery and a 2 week icu stay due to a rare side effect of Taxole. On Tuesday I had my annual check in with A new oncologist because my old one retired from the…
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Immunotherapy
Has anyone sought immunotherapy treatment for breast cancer? Just curious of the effectiveness and developmental research about it.
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and the hair struggle continues....
Trying to cling to what you had and accepting the reality of what you are now can just bite. 7 months out of treatment, my hair still sucks big time. I thought, ok I will get it colored and a new cut. That went to the curb really fast. The color did not grab in all places and the cut did not lay right. At least I did not…
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3 small changes to consider
In this talk, Brent Reynolds, PhD discusses how three natural substances used in combination slows tumor progression. Data is presented. They are discussed at about 15 minutes into talk. Recommend the entire 25 minutes.. https://www.youtube.com/watch?v=D6RW1fv3KD8&t=914s EGCG (green tea), Curcumin (tumeric), sulforaphane…
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Diet's impact on cancer therapy - Dr. Lemanne
Here's a talk by oncologist Dr. Dawn Lemanne. She incorporates dietary measures to enhance chemo and radiation treatments. https://www.youtube.com/watch?v=W_diITmOeCM&t=11s This is consistent with research done by Dr. Seyfried and Dr. Longo who have shown how controlling the amounts and proportions of macronutrients can…
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Anastrozole, no side effects?
Hi everyone. I had a mastectomy this past September, 2017. I'm in my 4th month of taking Anastrozole and have no side effects. (yet) I've read the messages of many of you who've had very serious side effects from these types of medications. Did y'all have side effects right away or did the side effect start as it built up…
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Letrozole/Femara
Good Morning, I have just been prescribed Letrozole/Femara for the senond time. I was not able to tolerate it several years ago but they are hoping it will be different this time to get me off of tamoxifin. They said I need to see if I could ramp up my Calcium and Vitamin D. Last time I tried it i had bone and joint aches…
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I was misdiagnosed-should I pay my bill?
Back in Sept, my cancer was treated as an infected hair follicle with anti biotics. No tests performed. Over 3 weeks it double in size under my armpit and was I given more antibiotics and thank God was sent to a surgeon to have it lanced. My surgeon then tested me for cancer. Anyway, I'm receving a bill for 2 co-pays for…
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swollen vein under right arm
Hi, it's been a while since i have been on this site. i finsided my treatments in March of 2013 and yesterday i noticed that i have a vein in my armpit that is swollen. it is on the same side that i had the cancer and had the nodes removed. is this normal? I am freaking out a bit but don't want to call the doctor and seem…
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Intraoperative Radiation Therapy
Hello friends, My 77-year-old mom was just diagnosed with Stage 1 IDC, grade 3, breast cancer, HER2+. She goes in for lumpectomy on Friday. If lymph nodes are clear, they will try intraoperative radiation therapy during surgery. Has any one here recently had experience with this? I did a quick search and only found…
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Hello...it’s been awhile
Hi all! Haven’t been here in several years. I’ve been in remission since 2010. I’m Hoping someone can help me out. Back in the day, there was a website that provided beautiful silk scarves for those going through BC. I’ve Googled it and can’t remember the name. Trying to help a newly diagnosed mom. Any idea of the name?
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Ice therapy to prevent sore mouth from chemo
Has anyone had any experience with ice therapy for any IV chemo eg sucking on an ice cube during the transfusion in order to prevent a sore mouth developing?
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Tamoxifen and hair perms
I am currently taking tamoxifen - I have had no change in my hair at all. I am wondering if it's ok to get a perm in my hair while taking this?
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Biotin
Hi everyone! This is my first time here. I started taking Anastrazole (sp?) about 3 months ago and I'm losing a good bit of hair. Has anyone tried Biotin and has it helped with hair growth? My surgeon suggested I try it.
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They say I'm running out of time
Hello everyone. I've been fighting breast cancer for more than 7 years. I'm in clinical trials now and I was told to start thinking of my life in months rather than years. I always knew this stage would come, but I'm scared and not ready to leave this life. My children are grown now and my husband and will celebrate our…
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question about scar tissue
so my wife 60 years old went for a mamagram...they saw something they didnt like...she had biopsy done and came back negative looks like scar tissue.....now dr is saying she should have all the scar tissue taken out and thoroughly examined.....anyone ever heard of this...BTW her consutation isnt until march20th...Hmmm also…
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I have a family member who just had a double mastectomy and hysterectomy because she has breast canc
The problem has been told to me through my dad and is that the medications she is on are making her hallucinate, difficulty sleeping and crying a lot. Also, my brother's friend's wife underwent a mastectomy and is on medication that has completely changed her personality...she is very mean to her spouse, so unlike her. Has…
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Tamoxifen and hair thinning
Looking for anyone who shares this side effect. Just completed my first year of tamoxifen - with little side effects but noticed within the past month, significant hair thinning. Had double mastectomy in January 2012 with recon.; BRCA positive. Anyone have any tips or advice? Did you change to another medication?
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Another side effect of cancer treatment.
So previously I had whined about some side effect from the treatments. Sore raw throat, headaches, nausua. MRI's showed no cancer, praise God. So I did take some advice from you ladies and I went to and ENT and found out my whole throat is still burnt all the way down into my stomach from the chemo. It has caused me to…