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Tamoxifen - Scared
Hello everyone, I have gone through chemo and a bilateral masectomy, then an axillary node dissection where 3 out of 19 nodes were shown to have cancer. My onc now wants me to take Tamoxifen and I am scared to death. Just reading all the side effects makes me so nervous. I see some of the other posts about what everyone is…
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Can I Take Vitamin E with Tamoxifen?
Hi all, I'm new here. I was diagnosed with stage 2 breast cancer about a year and 1/2 ago. Had surgery, nothing found in my lymph nodes. I had radiation therapy and was put on tamoxifen. My only problem with the tamoxifen is hot flashes. They don't occur at night, but at random times during the day I get very hot and…
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Follow up on BC through the years
Hi Everyone, I wondered if there is any testing done other than mamograms or ultrasound to check if your cancer has returned. Do they only do further test if you're having some kind of unusual symptoms? Is there blood test that they can do that give them information. Do they do routine bone density test, and would that…
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Continued weight loss
My sister was diagnosed with breast cancer in March 2015. She went through chemo and radiation therapy. Had a lumpectomy. Was put on a anti-hormone dru whose name I cannot remember (starts with an A). In Jan 2017 her breast cancer had metasticized into her brain. She had surgery to remove the small spot. So far so good on…
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Triple Negative Breast Cancer
Does anybody know of any one who had or has this type of breast cancer so that I can compare notes, as I was recently diagnosed of same. Hugs to you all and God bless. May
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Side Effects of Chemo - are they cummulative?
Hi. I had my first Chemo on Monday of this week (this is Thursday) and the side effects seemed minor. Of course, I expected the worst. I'm wondering, however, if session 2 through 6 will add on some more intense side effects. As far as I know, I'm getting the same stuff for every treatment. I was told my hair would fall…
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HAPPY EASTER TO ALL
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Pink Bus Monday for Elaine_wi
We're going on another ride, Monday the 26th! Elaine_wi is having a ten-hour surgery so we'll probably need extra food and drink and, of course, an activities coordinator. We'll be there, start to finish! xoxo Victoria
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Burning and hurting
Hi everyone.Its Been 9 years since Breast Cancer.And in last month I get burning like hurting in same breast.Mamo is in June.Should I call oncologist and get it early.Have any of you had this?At first it wasn’t as often.Now it is.thank you.
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New Diagnosis
Hi everyone, After 22 years and a battle with AML 16 years ago, my wife and I back on a war footing again with a new diagnosis of breast cancer. It was caught early and in the same breast as before but in a different spot. I am told it is HR2 negative and estrogen reactive. Most likely stage 1. Because this is a recurrence…
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Gabapentin, anyone?
Hello, everyone - I've been in surgical menopause since my preventive oophorectomy in January, and have had terrible sleep problems and night sweats since the surgery. I would give anything for a good night's sleep right now. I saw my oncologist yesterday, and he decided we should try Gabapentin. He has other patients in…
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chemo-eyes?
hey ladies, I am seeing my Oncologist tomorrow, so I will ask him, but I thought I'd see if anyone has heard of or experienced what I have lately. I am on 2 chemos (Taxol and Herceptin)doing very well, but twice in the last month or so I have had a small area in the cornea of the right eye just next to the pupil which…
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Tough decision Chemo or potential Heart issues - got 2nd opinion
Realizing that we all have different motivations and options to beat this ugly disease, I wanted to share my personal experience and suggest that a 2nd opinion can be a good thing. Because I've had a mitral valve replacement (mechanical), and now a pacemaker for AFIB, I was very concerned with Chemo side effects of my…
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need advice for carer from patients perspective
Hi, I have a family member who has very recently been diagnosed with stage 3 breast cancer - i don't know the exact in's and out's in terms of location etc but i do know i will likely be their primary support person. My understanding so far is neoadjuvant chemo has been discussed with view to surgery though i will be…
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Stress and Family Indifference
Newly diagnosed (Last Thursday) still a bit in a fog. I had four (4) years of continious stress and I do beleive it has impacted my health. WHile I'm going through the (physical) pain, anger, anxiety et. My living situation is not helping e at all The cause of my stress is my daughter. She has been diagnosed with several…
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Has anyone else been through surgical menopause?
Some of you know that I completed active treatment for breast cancer in 2009, and am 8 ½ years into my 10 years on Tamoxifen. In 2013, I found out that I’m positive for the PALB2 genetic mutation. Because of that result, I had a preventive bilateral mastectomy in 2015, and have now just had a preventive bilateral…
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mets within 6 months after 1st diagnosis
I first found 2cm lump in jun 2017. 9 months later I have mets in lung lymph nodes and starting clinical trials. I have not run into anyone with growth rate or mets as fast as mine. I hate being alone :( .
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RIBP - Radiation-induced brachial plexopathy
Have any of you heard about RIBP? I have just received the diagnosis. Symptoms are lost of feeling in the hand and/or arm, pain and muscle weakness. I'm told this is a rare effect from radiation. There is no cure and we don't know how far the nerve damage will go. I'm just wondering if anyone else has knowlege about it and…
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Geez oh Pete!
Last Saturday I missed a step and down the stairs I went. I stuck the landing like a ballerina hippo. Twist to the ankle and break to the fibula. The ambulance arrives, they could not get my big butt up off the floor that easily. OH MY GOD I did not know I even knew that many bad words! Lots of tissue damage, ice it, wear…
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Recurrence
Hello everyone, I haven' been here in a long time. I thought I was getting on with my life as well as I could. I was Diagnosed April 2010 with inflammatory breast cancer. Had chemo-surgery (right side mastectomy) then rads for 36 weeks every day. I was burned very bad. They said I was cancer free. NOT!! My cancer came back…
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Happy Valentines Day( best romantic movie?)
Off topic but what is your favorite romantic movie ? I thought it would be fun to do a poll of what movie you absolutley LOVE. Being a hopeless romantic I have a lot but this particular Valentines Day I'm choosing The Bodyguard ( I know it's cheesey). Husband likes Urban Cowboy. What about you? Love Surf
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A simple promising strategy to lower chance of recurrence
Appears to be of benefit to have a longer overnight fast and avoid late evening eating. Longer overnight fasting correlates with lower HbA1c (blood glucose marker). High HbA1c is a marker for diabetes or metabolic syndrome which in turn is correlated to higher cancer incidence. Short talk by Dr. Catherine Marinac…
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My wife has been diagnosed with IDC
I am a prostate cancer survivor for the last 8 years. My wife has just been diagnosed with Invasive ductal carcinoma of the right breast. She is really scared. It is now my turn to take care of her. WE have been married for the last 38 years. We live in the New York area and are looking for the best surgeons. She will have…
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My mom was diagnosed, looking for some support...
Hello all of you lovely warriors! My name is Simone and I'm so excited to find this great forum! I'd love to connect with anyone who went through this bad part of life and hopefully, share some experience. I am 22y old and my mom was diagnosed with cancer that has pretty much spread throughout her entire body. Have you…
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B/C & the Immune system
I had a Mastectomy in September 2017. No chemo or radiation, I only take anastrozole. I know chemotherapy weakens ones immune system but what about having breast cancer in general? I was put on 2 antibiotics for a tooth abcess and about a week later I got sick with what is apparently a virus, which I've been having for 5…
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Reconstruction - How do I know what size to go?!?
This is my first question here and I'm afraid people might think I'm crazy, but here goes anyway. I had a double mastectomy on January 24, 2018. Expanders were put in at the time of surgery and have been filled a few times. Before surgery I was barely an A. I already look bigger than I was before all of this, and it's a…
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Our wonderful Camul has gone over the rainbow bridge.
Last night was the night for Carol. As our resident mentor I know so many of you care. Please pardon my lack of words today, in it itself somewhat of a miracle, but I cannot continue. Sherry
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Help ... I’m freaking out re LDH LEVEL
5 year survivor ... highly elevated LDH I’m a nervous wreck. I successfully conquered triple negative breast cancer in 2012. It was tough, with chemo, radiation, surgery and a 2 week icu stay due to a rare side effect of Taxole. On Tuesday I had my annual check in with A new oncologist because my old one retired from the…
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Immunotherapy
Has anyone sought immunotherapy treatment for breast cancer? Just curious of the effectiveness and developmental research about it.
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and the hair struggle continues....
Trying to cling to what you had and accepting the reality of what you are now can just bite. 7 months out of treatment, my hair still sucks big time. I thought, ok I will get it colored and a new cut. That went to the curb really fast. The color did not grab in all places and the cut did not lay right. At least I did not…