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Value in sharing not-so-great experiences?
I'm in an okay place right now, just recently announced as a "survivor," in remission, but wow my journey over the last 3+ years was one damn effed-up thing after another: * ● did the wrong things delaying diagnosis cuz fear and denial, and made my situation worse, had a ridonx tumor the size of a pool-ball * ● the…
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Sweating out the Chemo (Literally)
I don't know if this happened to anyone but after about 2 weeks of completing Chemo, I started getting back on the treadmill. Well, When I started to work up a sweat (about 10 minutes into it) I would develope these raised tiny, itchy bumps. It would continue until I would stop and the sweat would evaporate. This happened…
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Exchange Surgery
I am new here and was diagnosed with breast cancer in both breast last November 2018. By January, I had a double masectomy with the understanding that I did want to do reconstruction surgery later. So, my surgeon left me alot of skin to help with this. Although, I knew that was the plan I was not happy with how I looked…
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New..Found out Friday
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Capecitabine/Xeloda/MRI
I start taking Capecitabine today. I hope that it all goes well. Has anyone else had this treatment? For me it is hopefully a preventive treatment for TNBC coming back. My biggest worry is when I had my MRI they found fluid around my pancreas. I have no symptoms of anything, just the fluid. My oncolgist isn't worried, just…
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Port removal side effects.
Hi everyone I was wondering if anyone after a cheat port removal they continued to lightly bleed for a few days after. My mom just recently had her port taken out about two days ago but she said it was a pretty... well for lack of a better term... aggressive removal. She said there was a lot of pressure and pulling and she…
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visiting over here
I am visiting over here from the uterine cancer page. I have a friend and very close neighbor who is having surgery on this coming Monday. I'm not real clear on the details but they will be using a wire? She was diagnosed with an agressive form of cancer and we are all really hoping it has not gone into her lymph nodes. My…
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Diagnosed with Breast cancer and I’m absolutely terrified
Hello there, I’m 48 years old and found out I have breast cancer on June 26th. All I know right now is that it is an invasive ductal carcinoma in my right breast. I had a mammogram, ultrasound, and biopsy on Mon. I have my consultation with the cancer team next Wednesday to discuss treatment, etc. And I’m absolutely…
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Is anyone else juicing?
I heard a podcast interview recently with a woman who believe juicing saved her life. Then the next day at the thrift store, I found a nice juicer for $9. Tried making some juices today, and liked them. But I have a lot of questions about juicing. Curious if others are doing this.
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Triple Negative Breast Cancer
I have had chemo for triple negative. I had surgery and that had mixed results. I was told that it would be an outpatient surgery, nope I had to stay because the tumor was bigger then they thought it would be and I had three lymph nodes infected plus chemo didn't kill the cancer. I spent 4 hours waiting for a room because…
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AC-T or CMF that is the question
Oncologist #1 was today. He recommends the AC-T, but is open to my wife opting for CMF. He said it is controversal which may be better for triple- . He told us at the end of the appointment that his friend who the Chief of Breast Cancer Medicine at Sloan in Manhattan is the one who is an advocate for the CMF (for triple…
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Follow up treatment
Hi. I had a lumpectomy in January 19 followed by radiation treatment. I did not have chemo. I am ER + PR - and HER2 - I am currently taking Anastrozole. I'd like to know if anyone can tell me what the follow up with your oncologists is and what it involves. Thanks! Ann
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when are you considered cancer free
Post surgery? at follow up? My dr never says anything other all your tests are good.. WHICH OF COURSE IS EXACTLY WHAT I WANT TO HEAR... WHAT DO YOU all go by for cancerversay? date diagnosed, date of surgery, date of last treatment? or different to each person? Denise
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What are the side effects from Zometa IV?
Hi Everyone! I am taking Arimadex and was diagnosed with osteopenia. My doc rec. Zometa IV because "new studies" show this will repair the bone and will give me a 4% less chance of a wandering cancer cell adhering to the weak bone and causing bone cancer. Has anyone gone on Zometa IV and what were your side effects? I know…
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Thank Goodness for my nurse advocate
I just got off the phone with my oncoligist office and was a bit nervous/upset. I was just told that I need a staging ct scan before I start my next round of chemo with Xeldoa/Capectabine. I looked it up on the internet and it just confused me and scared me more. I also have been so confused on how they staged my cancer…
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no further treatment
Hello. I had 4 cycles of TCHP plus Neulasta. I did not tolerate it very well. Proceeded to surgery. Good news - pCR (no cancer found by pathologist in breast tissue from mastectomy nor in lymph nodes 0/5) ! Now I do not think I need further treatment with Herceptin as it makes me sick and I do not tolerate the Neulasta.…
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Scared to make the doctor appointment
Hi! My aunt had breast cancer and has been in remission for quite a few years now. This year, for me, has been awful health wise. I've developed 3 different medication allergies, and this month alone I've had a rash/hives that won't go away, along with flu like symptoms. Recently, this week, I've had night sweats and a…
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Implant not dropping after reconstruction surgery
Hi there. New to the forum b/c I cannot find anything online about breast reconstruction and implants. I had my expanders out on 5/30/19 and my PS put in 750cc round silicone implants. The right side fell into place about 1 week after surgery. The left side is still stuck and will not move! It's very uncomfortable. I have…
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Drainage after surgery
I was diagnosed siwth Stage 2 A estrogen + breast cancer and had a skin saving surgery with sedentary lymph node removal done on my right breast April 18 2019. The lymph nodes were positive fior cancer. I just had my second surgery to remove lymph nodes under my arm.June 18th, 2019. I have a JPEG drain in. After my first…
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Should I be concern?
Can someoe tell me how would a person know if cancer has spread to other parts of your body, how do you feel? I was wondering because people say they went for their checkup or felt lumps??? I am still having affects from the radiation that was finished in March 2019. The radiation was on my left side, underarm, some of my…
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The label "cancer survivor"
Dear fellow list servers, I had a lumpectomy and radiation a year ago for DCIS and have recovered fully. But meanwhile I've become interested in this new label of "cancer survivor" that you and I and many others have been assigned; so interested in fact, that I'm doing a research paper on the subject for a graduate course…
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Kidney removal
So docs have decided to scrap all this painful treatment I am having with this UTUC of the kidney and the kidney comes out July 19th. I keep telling myself this is a good thing and I can do this. I got through a double mastectomy, chemo, adjunct and these nasty pills. You can live with one kidney. It's going to hurt but…
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Reconstruction issues
I had a mastectomy and reconstruction on my left breast the end of 2015. An implant in my "good" breast evened me out so I was supposed to look balanced as I was small breasted to begin with and the reconstruction would make my left side look slightly different from the right side. Recently have had problems with the left…
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Need help dealing with fear of recurrence
I was diagnosed with DCIS in Nov 2017, had bilateral lumpectamy in Jan 2018 and a second DCIS was found in the margins. I didn't want to deal with the worry that I would have to keep undergoing biopsies and lumpectamies so I opted for a BMX with DEIP Flap reconstruction in March 2018. I thought I was done but my oncologist…
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Treatment for HR+/HER- Stage IV metastasized breast cancer - Help!
How did you decide which treatment to use for HR+/HER- mBC? There are so many different options I don't know what side effects to worry about? How do you communicate with your doctors about the different medications?
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Xeloda
I will be starting Xeloda, most likly the genteric form in a couple of weeks. I would appricate any advice and what I may expect with it. The fight goes on! Thanks in advance Linda
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Upset Stomach with Letrozole/Femara
Have others experienced upset stomach with letrozole/femara? What has been helpful for you? Kate
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Looking for Suggestions for Metal Taste in Mouth
Assuming many who have had treatments have suffered from the side effect of the metal taste in the mouth that will not go away. Any suggestions on how you are dealing with that or dealt with this in the past are appreciated!
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Treatment for HER2 Positive Small Tumor?
I was wonderinfg and hoping that someone might have thoughts for me about treatment for HER2 positive but very small breast cancer tumor? I had a mastectomy 1 week ago for what was originally diagnosed as complex DCIS, but the biopsy just came back as invasive, ER positive, PR negative, HER2 positive tumor along with the…
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Radiation /Anastrozole Pills
Hi everyone I really need some feedback on this. I am new to this and feel so upset, sad, and hurting. Let me start by saying I was diagnosed with breast cancer last year. I am 51 years old. At first I had a lumpectomy and the doctor stated the margins were wider and wanted to cut me again. I refused and decided to go…