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Brain Cancer

Grade 4 glioblastoma multiform
My husband was diagnosed with a grade 4 glioblastoma multiform on his brainstem. We were told that it is inoperable. We are on dexamethasone, one week into a 6 week radiation program, and taking temodar. I need some help. Is it inoperable? Does anyone know anywhere that operates on them. We have been told that there is a…
inoperable brain tumor.
my husband was diagnosed with an inoperable brain tumor grade III in oct. he has never had ANY health problems in his 50 yrs. the only symptom he had was loss of balance. he has had 25 radiation treatments and will undergo 5 cyberknife treatments jan 18-22. since the radiation treatments and all of that decadron he is so…
ependymoma at 6yrs and isnow 19yrs old..
my son was diagnosed with an ependymoma on the brain stem in 1997 at the age of 6 he is now 19.Doctors told me that he would live 6 mths with or without treatment. He is still here.He has a shunt in his head.Shunt has been in his head now for 10 yrs he is doing fine but has a few probs.He has double vision and has had that…
side effects of Temodar
I'm about 6 mos. post tumor resection for GBM and have completed RT and concurrent Temodar - now on cycle 2 of monthly Temodar protocol. This cycle started a much higher dosage of the Temodar and the side effects were really much worse than I had expected. Besides the extreme fatigue, the nausea has been severe despite…
6 years old girl with brain stem glioma
WE FINSHED THE RADIATION FOR 1 MONTH NOW & MY LILTTLE GIRLS BECAME VERY VERY WEAK IN TALK AND WATCHIN is that normal or what?
I WAS TOLD I HAD A BRAIN TUMOR
FOR MANY YEARS I WAS TREATED FOR HEADACHES AND DEPRESSION BUT IN 2008 I GOT SO SICK I WAS TAKED TO THE HOSPITAL WHICH THEY DID A MRI WHICH SHOWED A 3" TUMOR. I THEN WAS LIFEFLIGHTED TO ANOTHER PLACE AND THE NEXT MORING HAD EMERGENCY SURGURY DONE .. I WAS TOLD THEY TOOK MOST OF THE TUMOR OUT AND IT WAS CANCER. I HAVE GONE…
lung cancer metastasis to brain
Hi, I am new to this group. My mother was diagnosed with stage 3 lung cancer in June and went through radiation and chemo - about 2 months ago she had a scan and they said she reacted great to treatment and was cancer free. About 2 weeks ago she started having HORRIBLE headaches and falling - she went in for a MRI on…
Mom diagnosed with Stage 4 Lung Cancer a Year Ago - Now 8 Lesions Found in her Brain
Hello All: Boy am I glad I found this site! My mother was diagnosed with stage 4 lung cancer about a year and a half ago. She has had chemo and each visit and scan the tumors continue to shrink and no new growth. Unfortunately last week she was sent for a brain MRI- for a totally different development and thank god- they…
What to expect next ?
My mother is 73 years old and was diagnosed with GBM 4 in June 09. The tumor is not operable. Her doctors told us she would have 6 to 18 months. We started the radiation and chemo on July 6th. She had 7 weeks of radiation and started the temador at the same time. She has been also been taking steroids since her diagnosis,…
Question about seizure meds
I husband has Astrocytoma grade III He had a craniotomy done in early Aug.,his is taking temodor and just finished his radiation last week. My husband was taking dilantion but it was causing really bad stomach pains, his doctor changed to keppra but it has not gotten any better. Any suggestions??? Does anyone know how long…
one year down.
hey, everybody. i have never made my own post on a discussion board before (i posted here as well as on the "caregiver" board), but tonight is an anniversary of sorts. so, i just wanted to do some sharing with some people about the love i have for my husband. one year ago tonight was the beginning of what will prove to be…
Any recent AA3 survivors?
Hi All I posted recently in another thread about my 50 year old darling wife. Heather was disgosed with an anaplastic astrocytoma level 3 in her right front temporal lobe. 80% of the tumour was removed in surgery and she has just finished 6 weeks radiation coupled with Temodal chemotherapy orally. All along we have ben…
Avastin
My husband was put on avastin 2 months ago. This followed 6 weeks of chemo and radiation which did not render good results. We saw the oncologist this morning who said he was very surprised at the results of the most recent MRI. It showed the tumor had decreased by approximately 50%. This does not necessarily change the…
7 mets on the brain
I'm curious to find out what is considered to be large as far as mets on the brain. My Mother-in-law has 7, the largest being approx 1cm. She was diagnosed with Stage IV lung cancer that has met to brain, liver and nyods. Upon discovering the brain mets they started WB radiation within 2 days along with steroids. They told…
Childhood - Pineoblastoma Tumor (PNET)
Good Evening, My name is Alisahia and my 9yr old son was diagnosed with Brain Cancer July of this year. The name of his cancer is Pineoblastoma which is also called (PNET). He has been through 6 weeks of radition and is now going through a 4 week period of no treatments until December of this year. This past Sunday was the…
DCA
Hi. My husband has a GBM. WAs diagnosed over one year ago..had chemo. Temodar and radiation, and surgery. We started him on DCA, extremely low dosage. We are now on a little over 300mg/kg. he weighs approx. 170lb. Recently, I'v noticed weakness in his right side..hand, arm, leg with some shaking. He was doing well, in fact…
What to expect with GBM
In May of 2009 my mother watched me graduate from college. In June she saw my sister get married. On August 13, 2009 she went into the hospital after having a seizure and was told after tests she there was a tumor. The biopsy after her craniotomy showed that it was GBM grade 4. The doctors told my sister and I that she had…
tumors starting to go toward skull and thickening of the dura
Has this happened to anyone before? I read the MRI report that stated I find this MRI to be very interesting. I have been told that it isn't that it hasn't happened before but it isn't normal. Nobody will tell me if this is better or worse or why this may have happened.
i need help please please pleaseeeeeeeeeeee
my llttle girls 6 years old with brainstem glioma we start radiation the doctoers said we cant doing any treatment after that , i want know what that meannnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnn is that mean death help me pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
decadron questions/issues..
I'm 21, I've been on decadron since my surgery on Oct 6th. They successfully removed my 5cm GBM IV and now I'm on 120 mg of Temodar/radiation. I was on 8 mg of Decadron a day, it was lowered to 4 mg 2 weeks ago, lowered again to 2mg a day this past week, and I get to lower it again to 1 mg a day on the 19th and I can stop…
need some inspiring stories
Hi, My husband who is 35 y/o has been reacently diagonsed with at pontine glioma(brain stem glioma). The doctor beleives that it is a low grade tumor... however since they are not able to operate or do a biopsy.. there could be a low chance of it being high grade. He is currently undergoing radiation 5 days a week for 6…
Stereotactic Radiosurgery
Just wondering what to expect. I am scheduled to have it on November 19th and am a little nervous. I've heard that it is really not that bad, but that some people do have some problems with swelling, etc. I am having it for a grade II Astrocytoma in my left temporal lobe. The doctor says that I am young enough and healthy…
BRAIN STEM glioma (6 years old baby)
IS THERE ANY SECOND TREATMANT AFTER RADIATION OR NO THE TUMOER IN THE BRAIN STEM ????? OR IT DEATH I WANT SOME BADY TO TELL ME ?
Very concerned!
Hello I am trying to figure out what a comment on my MRI means, I have been diagnosed with tonsil cancer, and had the MRI for head and neck cancer, but this comment bothers me. I know it means I may have a brain tumor also, but my GP could not explain to me if it was a second primary cancer or if my cancer has…
i want any one to tell me ((( if it can be
i wan to if there in case in this world with a low grade giloma in the brain stem with a 6 years old child live or nooooooooooooooo
anaplastic astrocytoma stage 3 ..... 5yrs +
Anyone out there that falls into this group?
who is that dc
i want to know is doctor ROGER j PACKER a good one in a gilomas in the brain stem or not????? and what the good time to maske MRI after radiation therapy
My Mom & brain cancer
This may sound small compared to yall who are battling cancer. My mother passed in February 6 weeks after being diagnosed with brain cancer. My grandmother also passed from brain cancer. Im scared!!!!!!!!!! Im next right??
Increase symptoms - tumour or side effect of meds?
Hi My husband was put on dex 4 weeks ago because he was complaining of headaches and tremors in his hands. The oncologist thought it was probably increased pressure in the brain and prescribed dexamethasone. Hubby had some short term memory loss after his op in Mar 09 but since July 09 has been pretty good.. Over the last…
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Brain Cancer

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