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(JPA) Juivinal Pilocytic Astrocytoma

nannyslilangel
nannyslilangel CSN Member Posts: 9
edited March 2014 in Brain Cancer #1
I am looking for an adult who has or had been told they have a JPA. I was 27 when the docs found mine. I'm looking for any info you can offer. TY
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  • sue Siwek
    sue Siwek CSN Member Posts: 279
    #2
    i do not have any experience
    i do not have any experience with jpa. i just want to encourage you to go to a teaching hospital. it will have the latest treatments. get on line and find the nearest one in your area.
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  • sue Siwek
    sue Siwek CSN Member Posts: 279
    #3
    i do not have any experience
    i do not have any experience with jpa. i just want to encourage you to go to a teaching hospital. it will have the latest treatments. get on line and find the nearest one in your area.
    Like Care
  • Uncle Sam
    Uncle Sam CSN Member Posts: 1
    #4
    Adult Pilocytic Astrocytoma
    I am not sure you'll get this since your posted in July 09, but I just joined today...nd I was told I had a "malignent looking Astrcytoma" 18 years ago...biopsy showed it may be a Pilocytic astro but not enough tissue to be certain, had radiation since they did not agree with watch and wait. Only 30-40 % was surgically removed....18 years later, I have a lot of raiation necroses,no signs of residual tumor, extreme fatigue...but still alive!, Best wishes to you.
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