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mothers day....
Its May 8, 2012...my mom is not doing well. Everyone is blessed in some way or the other. Our greatest blessing...our mother. Happy mothers day to all! thelma (AMRON)
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Is it possible to recover from left-side weakness?
My 28-year-old daughter is being treated for a second recurrence of a grade III mixed glioma. In January, she rapidly developed left-side weakness. She has a brace for her ankle to prevent it from giving out on her, walks with a cane, has very limited use of her arm/hand, and has no peripheral vision in her left eye. She…
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Clean MRI !!!
Yesterday my son, Scott, had his first MRI since the one immediately following his craniotomy on 12/23/11. The post op swelling has gone down and it his NO was happy to report that it was a total gross resection!! No visible tumor on the MRI! Of course his NO tempered it with, "of course we know it is still…
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David (and my response to sadinholland)
Hi, sadinholland. It's strange...your post where you asked how I was doing just....disappeared. It must have been something that the administrators did because as far as I know, we can't remove posts ourselves. I did flag a comment--some sort of spam---that was promoting a facial mask. I noticed that comment was gone, but…
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Please help i need answers : does radiation theraphy worsen a cancer patients conditions?
My mother was diagnosed last January with lung and brain cancer stage 4. She doesn't recieve any treatment because her doctors were telling us that even if we put her on rad theraphy, things won't change. For me, it was like he was telling us to give up and do nothing. He even told us that radiation theraphy will only…
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plz frnds suggest me the ways to tackle the situation of brain cancer glioblastoma who grade 4
hey frnds , my father 62 years old and recently diagnosed glioblastoma who grade 4 type cancer and this time i dont know what to do next ??how to handle the critical situation of cancer plz suggest me some good and effective ways .which helps me to save my father life . from last two months my dad suffering from memory…
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A Peaceful Passing
Our son David departed this earthly plain peacefully this morning. I was sleeping in the recliner next to his bed and woke up at about 4 am, noticing that the oxygen machine sounded different..quieter. I immediately got up to check him, and he was not breathing. He must have just passed because he was still warm. His eyes…
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Pen Pals
I am looking for penpals. Anyone who also had a brain tummor and now has long term side effects from radiation.
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help me
suggest me some ways...
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Gamma Knife experienced complications.
I am scheduled for gamma knife next week and am concerned about any complications from this procedure , my tumor is on my right visual horn and has been been deteriorating my left visual field. the edema as well as the lesion has been the culprits of my deteriorating my eyesight , as a carpenter im in need of my vision to…
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Glioblastoma Clinical Trial
Has anyone heard of novocure.com? My doctor told me about this clinical trial that I may be qualified for.
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glioblastoma
My brother was diagnosed today with glioblastoma, neuromd said prognosis is poor, I need info please from survivors!!
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Tried Ovarian Cancer board with no reply
Hello all, I am fairly new to ACS I would like to start off by saying hello and god bless. I am a caregiver to my mother she is 63, very young in my eyes. At 40 years of age she was dx with bc, she went through chemo, radiation and had a partial mastectomy. for 20 years she was in remission. Last year at the age of 62 she…
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Proton beam therapy? Lookin for info and/or personal experiences.
Looking for any info regarding proton beam therapy for oligodendroglioma. Has anyone done this?
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Starting on Avastin next week. Not given a lot of hope
Well, we heard from our son's NO this morning, and the Tumor Board recommends Avastin. Apparently, they thought that additional surgery was too risky for creating more severe deficits for the little gain that might be achieved. Also, he doesn't qualify for clinical trials because his Karnofsky score is too low. So Avastin…
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Mother- brain and lung cancer stage 4 from Philippines
Hello, i live in Canada but my mother is living with my 2 sisters in Philippines. Last January of 2012 she was diagnosed with brain ang lung cancer stage 4 inoperable. I hate that her doctor keeps saying negative things instead of keeping our hopes high and to keep fighting no matter what. Once he (doctor) told my sisters…
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Forgetful and cool body temp
Hello All! My husband, Bob (66 years old), was diagnosed in September with GBMIV. Had surgery to remove the tumor from his left temporal lobe. Nobody could believe Bob was sick, except for the shaved head and bandage on the side of his head. He began his six week course of radiation and Temodar. He continued to feel pretty…
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anaplastic astrocytoma grade 3
I have had it twice and made it through both surgeries, i have been getting nervous bc they said its going to come back and just a matter of when. Has anyone gone through my type of cancer a third time and survived. And if so what is your quality of life?
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Ommaya Reservoir
I was diagnosed with glio blastoma in July of last year. after using temodar every day along with radiation everyday for 6 weeks, the tumor had not grown and we seemed to have it under control. I can no longer have anymore radiation. Still on Temador 5 days a month. I developed extreme dizziness and at my last appointment…
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Anaplastic oligoastrocytoma grade 3
anyone out there got face pain with this tumor. like when you touch your face you get sharp pain
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I would like to hear from Spouses who are supporting their partner with GBM
Gday from Australia, My husband (34 years of age) was originally diagnosed with stage 3 Anaplastic Oligod astrocytoma on April 5th 2011. He had surgery on the 8th April, they removed 7cm by 5cm from the right tempral to the occipital lobe. The neurosurgeon could not tell if she fully excised the tumor. 1 week later they…
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David and Avastin and Carboplatin and life in general....
Hello... I'm finally posting about David's response to his treatment and what the nurse said that hit me so hard. First off, I see an improvement in David. Not a huge one, but he is acting better. He is not doing the weird behaviors that make me so upset. He's not nearly as shaky and weak, though I won't leave him alone or…
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Federal Government on Tumors
Today I was watching the news (NBC), and tumors was the subject discussed in medical updates. Apparently, oncologist are being advised to no longer treat tumors of stage 4 patients, as there is apparently no benefit to the patient. (AMA) Bottom line was the money and resources that would be saved. Health insurances would…
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Living with uncertainty
Hi, My husband had surgery in July of 2011 to remove what ended up being a grade II Gemistocytic Astrocytoma. At that stage it was decided that further treatment should be postponed as the doctors believed that it would be a few years before its return. Unfortunately they were wrong and he needed surgery again two weeks…
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cell phones/brain tumors
Interesting video of Dr. David Servan Schreiber discussing the correlation between cell phone use and brain tumors. http://www.youtube.com/watch?v=BjkOmEhO1pw
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PRAYER FOR THE EASTER SEASON!
DEAR LORD, LIFE IS SO PRECIOUS, PLEASE OFFER SUPPORT TO MEDICAL HEALTH CARE TO FIND A CURE, THIS CANCER THAT HAS RAVAGED SO MANY FAMILIES; OFFER GUIDANCE, TO SHOW US THE RIGHT PATH TO FOLLOW; OFFER US COMPASSION AND LOVE FOR ONE ANOTHER, AS WE TAKE CARE OF OUR LOVED ONES; OFFER US SOMETHING TO HANG ONTO, AS WE FIGHT DAILY…
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Anyone dealing with Low Platelet Count?
I received a call yesterday from Oncologist, stating he was not happy with my Low Platelet Count. It has been low since I was admitted in to the Hospital in September. I was given two units, but had 3 surgeries, one to fix screw up from foley cath put in wrong, had over a liter of blood in bladder when airlifted to Fargo,…
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Radiation used on child
My previous husband had radiation used on a small nodule on his forehead as a small child treated with radiation. This past year he died from a very fast moving, invasive form of cancer; I can't help but put the two together.
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Momsworld (MRI)
I just wanted to let you know that my thoughts and prayers are with you and your daughter today. Michelle Mobile, Al
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Musella Foundation for Brain Tumor Research
Maybe a lot of you know about this website, but I just discovered it. Thought I would pass the link along for those who haven't and might find it helpful. There is also a link to a TED lecture about a new clinical trial in Europe using tumor treating electrical fields, which is http://www.virtualtrials.com/musella.cfm…