Brain Cancer

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Brain Cancer

Discussion List

  • User: "Ctink8189"
    Hello to anyone who reads this. This may end up being long, so i apologize in advance. Around this same time in 2004, my mother found out she had a brain tumor. Of all the ways to find out, it all sta…
    16 views
    2 comments
    0 point
    Started by Ctink8189
    Most recent by Ctink8189
  • User: "Cracker1"
    I'm new to this so here it goes...In 1985 I was diagnosed with a malignant brain tumor (Medulloblastoma) at 15yoa. Surgery (@ Shands Hospital Gainesville) was successful in removing 99% of the the tum…
    16 views
    2 comments
    0 point
    Started by Cracker1
    Most recent by Cracker1
  • User: "kulaken"
    MORNING : I was diagnosed with stage 4 GBM last aug , was told that extraction was my best chance ,, but i would loose a good part of my eyesight , as a carpenter i need to see my tools and hands , so…
    1 views
    0 point
    Started by kulaken
  • User: "stacy0611"
    What a day! I had a 2 hour check up with the eye Dr. today. My NO looked at MRI Wed and suggested I see an eye Dr. as soon as I could. We haven't been able to pinpoint the issue yet, but we think I am…
    60 views
    6 comments
    0 point
    Started by stacy0611
    Most recent by kulaken
  • User: "bajo"
    This is a very rare cancer of the brain. I have had one operation to remove some of the tumour in 2003 and have many tiresome symptoms and would like to know if there is anyone out there having the sa…
    15 views
    2 comments
    0 point
    Started by bajo
    Most recent by lexifers
  • User: "dasspears"
    I didn't post very much on this board but I did come here often to gain insight. My sister-in-law passed away yesterday - she is finally at peace. Thank you all for your support and I will keep you in…
    6 views
    3 comments
    0 point
    Started by dasspears
    Most recent by chicken2799
  • User: "kulaken"
    After 10 months , 30 days full brain radiation ,as well as, Gama knife , i still have swelling on the brain ,, steroids help ( Dexamethasone ) but i just had a severe seizure in the last couple days ,…
    14 views
    0 point
    Started by kulaken
  • User: "Rachael18"
    Hello all, This past week, my father who is 56 years old was diagnosed with Glioblastoma Multiforme (GBM). He went in on Tuesday and had his brain surgery Wednesday to removed two tumors in the fronta…
    53 views
    9 comments
    0 point
    Started by Rachael18
    Most recent by peppergirl2314
  • User: "cindysuetoyou"
    I couldn't do it. I wimped out and asked my husband to talk to David about giving his apartment up. I suggested that he approach it like man to man, in a practical way. Saying that it didn't make good…
    31 views
    9 comments
    0 point
    Started by cindysuetoyou
    Most recent by BenLenBo
  • User: "chicken2799"
    I had my four month follow up at UAB on Wednesday, and the MRI is still stable. They said it looks better this time than it did the last time. My next follow up will be in four months! Praise God!!!! …
    46 views
    9 comments
    0 point
    Started by chicken2799
    Most recent by chicken2799
  • User: "ncgrl84"
    So I have a question... My mom started chemo and radiation today and they said she would lose quite a bit of her in the next 10-14 days. They recommended her to go ahead and completely shave her head.…
    2100 views
    7 comments
    0 point
    Started by ncgrl84
    Most recent by corry1964
  • User: "PBJ Austin"
    Hello my friend. I am thinking of you and hoping you and your family are holding up well. Please know that you and everyone on this board are in my thoughts and prayers every day. Pam
    50 views
    8 comments
    0 point
    Started by PBJ Austin
    Most recent by momsworld
  • User: "ncgrl84"
    My mom was diagnosed in April with GBM4. Since then, her memory and decision making has been extremely poor. She has a hard time performing simple tasks such as cooking, bathing, cleaning up after her…
    14 views
    5 comments
    0 point
    Started by ncgrl84
    Most recent by Bennette
  • User: "munurse07"
    HiI'm a 27 yr old single mom of a 2.5 yr old with a hypothalamic hamartoma. He is doing well but needs a lot of extra care and I'm having the most trouble with my diagnosis because I'm too tired to ta…
    22 views
    9 comments
    0 point
    Started by munurse07
    Most recent by munurse07
  • User: "BenLenBo"
    Hello, Just read on another post, my heart is breaking for you at this moment. I can not even image what you are going through. Your love and devotion to David is remarkable, which makes it so hard to…
    2 views
    1 comments
    0 point
    Started by BenLenBo
    Most recent by cindysuetoyou
  • User: "iamkyrieeleison"
    I came to be by the side of a 47 year old man who was diagnosed with GBM in May of 2011. I thought, "I can go be by the side of a dying human and be his friend and happy strength...I got this." I move…
    135 views
    6 comments
    0 point
    Started by iamkyrieeleison
    Most recent by madisonmuzz
  • User: "LeslieLand"
    My husband was diagnosed with DIPG in January 2011. He completed radiotherapy in April 2011. He is currently stable and feeling okay. (His only symptoms were headaches.) I often look up alternative tr…
    16 views
    1 comments
    0 point
    Started by LeslieLand
    Most recent by johngiustino
  • User: "archanasheth"
    MRI today shows that my brain is still there with no extra junk. I am officially in remission. Monday I start a maintenence dose of chemo pills for the next year or so. 5 days on, 23 days off. Back to…
    14 views
    2 comments
    0 point
    Started by archanasheth
    Most recent by auntnita611
  • User: "ncgrl84"
    I'm new here and I'm not quite sure how all this works. I guess I'm pretty much just looking for people I can relate with that are in similar situations. I'm 28 and as of April 6, 2012, I found out my…
    127 views
    20 comments
    0 point
    Started by ncgrl84
    Most recent by auntnita611
  • User: "BenLenBo"
    Hello Cindy & David, Was sitting here thinking about you guys, wondering how your last treatment went.How were the doctors and nursing this time. Hope everything went well, and David is continuing to …
    20 views
    2 comments
    0 point
    Started by BenLenBo
    Most recent by BenLenBo
  • User: "alutiiqmom"
    Hello my fellow brain cancer warriors: Today, we found out that Sarah's MRI and Petscan are stable. There is no sign of reoccurrence. It has only been a month since she finished her chemo, but I will …
    5 views
    1 comments
    0 point
    Started by alutiiqmom
    Most recent by BenLenBo
  • User: "kate2kate"
    Hi, I was trying to find some info about my hubby's tumor and I came across a another person with DPIG. Another adult looking for someone else who has what you hubby has. It is on another cancer board…
    6 views
    1 comments
    0 point
    Started by kate2kate
    Most recent by LeslieLand
  • User: "kate2kate"
    My name is Katie and I am 45 and live in the US. I was diagnosed with a brain stem glioma as well in March 2006. My tumor is very rare as well as is typical a pediatric tumor. But I am extremely lucky…
    75 views
    17 comments
    0 point
    Started by kate2kate
    Most recent by cindysuetoyou
  • User: "kate2kate"
    Hi, My husband Dave was dx with a GMBIV in Nov 2011. He is 40. It is in-operable. His tumor is towards the back of the Corpus Callosum and it has tentacles and some tumor intertwined into the Corpus C…
    67 views
    5 comments
    0 point
    Started by kate2kate
    Most recent by sippican
  • User: "DaltonFiske"
    I hope everyone is happy and healthy this Memorial Day. Kick back, and take it easy... or be like me and go through the stress of flying somewhere for two days, then flying back! I found this while ma…
    2 views
    0 point
    Started by DaltonFiske
  • User: "cindysuetoyou"
    David is scheduled for chemo (carboplatin) and Avastin on Tuesday, if his counts are okay. We'll get bloodwork done tomorrow. David had a better week this week--of course, when I say "better," that's …
    36 views
    13 comments
    0 point
    Started by cindysuetoyou
    Most recent by cindysuetoyou
  • User: "christine anne"
    Hello everyone what a wounderful resource this network is , my darling brother Paul had surgery 5 weeks ago for a brain stem glioma really poor prognosis , he also suffered post op complications ( pnu…
    15 views
    2 comments
    0 point
    Started by christine anne
    Most recent by christine anne
  • User: "DaltonFiske"
    Hi all! I wanted to share this press release from this morning. Good news I hope! 41 US Clinical Trial Sites Now In Operation BETHESDA, MD, May 17, 2012 -- Northwest Biotherapeutics (OTC.BB: NWBO) (NW…
    4 views
    0 point
    Started by DaltonFiske
  • User: "Shortshanks"
    Hi folks I only posted here once and live in the UK. I guess when I posted I knew something was not quite right. Well my world has fallen apart! I wrote that since returning from your wonderful countr…
    4 views
    0 point
    Started by Shortshanks
  • User: "schiermj"
    Has anyone had this and not been able to have surgery? My sister's is as of now inoperable, to deep in her brain and too close to area of the brain that controls motor function and breathing. There ar…
    26 views
    11 comments
    0 point
    Started by schiermj
    Most recent by dolmstcole