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    Brain Cancer

     

    Discussion List

    • User: "momsworld"

      update from momworld

      Hi, I know that it has been awhile since I have been on and that is because my daughter has taken a turn for the worse. She had another brain hemorrhage the week before the 4th of July. Surgery was do…
      22 views
      14 comments
      0 point
      Started by momsworld
      Most recent by alutiiqmom
      Brain Cancer
    • User: "Myria11"

      Grade III: Anaplastic Oligodendroglioma

      Hi everyone, My brother had a seizure (Epileptic attack) while driving and got into a car accident. Fortunately, the doctors did head scans and found to see what looked like calcium deposits on his br…
      88 views
      8 comments
      0 point
      Started by Myria11
      Most recent by greenmawmaw
      Brain Cancer
    • User: "dc9md80"

      Long Term effects after anaplastic astrocytoma

      I was wondering if anyone has any experience with the long term effects of radiation after the diagnosis of a grade 3 anaplastic astrocytoma? My husband was diagnosed in March of 1989 and went thru 2 …
      23 views
      7 comments
      0 point
      Started by dc9md80
      Most recent by greenmawmaw
      Brain Cancer
    • User: "Struggling Girlfriend"

      Struggling with a partners anaplastic oligodendroglioma diagnosis?

      Hello, I am 27 years old and my partner is 29 years old. We have only been together a year but we fell head over heels in love the day we met and have been inseparable since. 3 months ago he had 2 noc…
      29 views
      3 comments
      0 point
      Started by Struggling Girlfriend
      Most recent by coyoteblue
      Brain Cancer
    • User: "Babyfox"

      Medullablastoma survival rates

      Hi, I've just joined and would like to connect with other medullablastoma survivors. I am 33 years old and was diagnosed with a grade IV medullablastoma when I was 31. I had surgery which removed what…
      21 views
      1 comments
      0 point
      Started by Babyfox
      Most recent by connsteele
      Brain Cancer
    • User: "amron"

      lost a mother ......

      Hi its been awhile since i visited this site. I found this site when my mother was diagnosed with lung cancer that spread to her brain, last January 2012. Each day was different, there were good but m…
      3 views
      0 point
      Started by amron
      Brain Cancer
    • User: "Tubbs"

      Anyone with this: Brain stem, strain on voice, swallowing issues...

      My wife (oligoastrcytoma) had avastin and CPT-11 treatments) along with temodar for several weeks until they had to be halted due to an infection from an incision from a previous biopsy. In the last f…
      79 views
      11 comments
      0 point
      Started by Tubbs
      Most recent by Tubbs
      Brain Cancer
    • User: "I_Promise"

      Frustrations -update on my sister dx anaplastic astrocytoma

      Dear all, I did take a break from posting just because I though I could tame my addiction regarding this website. But I follow your posts closely. each one of you is dear to my heart. I think of you e…
      49 views
      18 comments
      0 point
      Started by I_Promise
      Most recent by staceycheek
      Brain Cancer
    • User: "BenLenBo"

      How are all the Oligodendroglioma Survivors doing on this site?

      I get frustrated on this site, and just want to know how all brain tumor survivors or fighters are doing today. I have been on this site since February, and following a few individuals - but wanted to…
      44 views
      6 comments
      0 point
      Started by BenLenBo
      Most recent by JVS12
      Brain Cancer
    • User: "BenLenBo"

      Oli Grade III

      Just had another MRI, clean bill of health for another 3 months, but actually both Oncologist, said that it could be 10, 20 or even 30 years before recurrance. I am totally of all medication, have no …
      37 views
      1 comments
      0 point
      Started by BenLenBo
      Most recent by JVS12
      Brain Cancer
    • User: "Bennette"

      Need help regarding whole brain radiation decision

      I am new to this board, I stared on the kidney cancer board in late Feb, when my mother was diagnosed with stage IV kidney cancer. She has been following treatment guidelines for the kidney cancer and…
      24 views
      12 comments
      0 point
      Started by Bennette
      Most recent by marlee425
      Brain Cancer
    • User: "Best Friend"

      confused

      Ok. My best friend was working with me about a week ago. She punched out from her shift, started to say she felt like she was gonna pass out. So the longer she sat down the worse she became. Eventuall…
      8 views
      0 point
      Started by Best Friend
      Brain Cancer
    • User: "leprechaun2"

      Brain Shunt treated dementia, gait changes and incontinence!

      Hi All, I want to post some good news! Due to extensive chemotherapies, Whole Brain Radiation Therapy and then Autologous Stem Cell Transplant with High Dose Chemotherapy, which has left hub free of d…
      25 views
      2 comments
      0 point
      Started by leprechaun2
      Most recent by leprechaun2
      Brain Cancer
    • User: "ForHope"

      Temozolomide help

      Hello everyone.. My brother is Dx with GBM IV on December 2010 and is currently taking temozolomide. He lives in a country where cancer is unavailable so we had sent him to Thailand to get his initial…
      46 views
      13 comments
      0 point
      Started by ForHope
      Most recent by haidee0069
      Brain Cancer
    • User: "naafitart"

      Fying in commercial jet liners

      I have had GMB4 which has been de bulked last November 2011. Radio hrapy completed . in btween chemo treatments What is the rule regarding flying. Need to fly for around 6-7 hours for a holiday .. Als…
      15 views
      5 comments
      0 point
      Started by naafitart
      Most recent by xmacar
      Brain Cancer
    • User: "danishguy40"

      life after brain surgery

      was wondering if anyone has the same symptoms i have? i was diagnosed with a brain tumor back in jan. of 09. i dont remember the name but i do remember the doctor telling me that it is a rare tumor an…
      17 views
      3 comments
      0 point
      Started by danishguy40
      Most recent by sonfollower
      Brain Cancer
    • User: "SH2012"

      Anaplastic Astrocytoma Grade III

      I am new to this network as my miseries are new. April 22nd my wife (49 otherwise healthy) had a seizure and then it has been one roller-coaster ride and we are yet to come to the ascent. Initial diag…
      27 views
      2 comments
      0 point
      Started by SH2012
      Most recent by I_Promise
      Brain Cancer
    • User: "gdpawel"

      HBOT for Radiation-induced Necrosis

      HBO Therapy For Radiation-induced Necrosis Radiation-induced necrosis has been estimated to occur in 20% to 25% of patients for cancerous tumors in the brain. Some studies say it can develop in at lea…
      190 views
      13 comments
      0 point
      Started by gdpawel
      Most recent by tomkat26
      Brain Cancer
    • User: "msduncan"

      My dad has Gliblastoma Multiforme

      My dad who is 67 years old and otherwise healthy, started complaining of headaches and 3 days later he passed out in the yard, after getting him to the hosptial it was found that he had a mass on the …
      52 views
      4 comments
      0 point
      Started by msduncan
      Most recent by amsan1724
      Brain Cancer
    • User: "naafitart"

      cramp

      I keep getting cramp in my legs, and hands can anyone suggest a cure? or relief.
      2 views
      0 point
      Started by naafitart
      Brain Cancer
    • User: "mohamedbelhajali"

      MUTIPLE CYSTIC FOCI IN THE CLIVUS

      I had an MRI post an auto accident and they found multiple cystic foci in the clivus and recommended dedicated MRI of the brain with and without contrast and gave differential diagnostics including ch…
      3 views
      0 point
      Started by mohamedbelhajali
      Brain Cancer
    • User: "cindysuetoyou"

      Update

      Once again I don't know where to start. It's 1:30 am and I'm one-finger typing on my iPhone in the dark in my recliner in David's room. So bone-weary and exhausted. We have been out of the hospital on…
      56 views
      14 comments
      0 point
      Started by cindysuetoyou
      Most recent by cindysuetoyou
      Brain Cancer
    • User: "princesspurple"

      Working through avastin

      Hi All, Anyone have experience working through avastin? A little background: Brainstem glioma dx 2009 6 weeks temodar and rad, followed by 3 mos temodar had a very flexible schedule then. But have man…
      5 views
      2 comments
      0 point
      Started by princesspurple
      Most recent by princesspurple
      Brain Cancer
    • User: "Pazza"

      Brain Tumour Concerns

      I am really concerned at how I have been treated since my diagnosis of a ‘low grade’ glioma. I had an MRI in January to investigate hearing loss, which incidentally found what they think is a ‘low gra…
      7 views
      3 comments
      0 point
      Started by Pazza
      Most recent by umcrn
      Brain Cancer
    • User: "4dogs"

      Ependymoma

      At 35 yrs old ( 39 now ) I was diagnosed with an ependymoma brain tumor (benign), and several spinal tumors from l2 through s1. The spinal tumors were removed, although the surgery was long and compli…
      16 views
      0 point
      Started by 4dogs
      Brain Cancer
    • User: "In_it_for_the_long_haul"

      A A grade 3

      I have an astrocytoma in the left frontal lobe again for the 3rd time. Has anyone gone through this and survived?
      25 views
      4 comments
      0 point
      Started by In_it_for_the_long_haul
      Most recent by In_it_for_the_long_haul
      Brain Cancer
    • User: "JessC"

      Oligoastrocytoma Grade III

      Hello everyone, I am new to this site and new to brain tumor. I found out there was a "spot" in my brain (left frontal lobe) after a CT scan in Sept 09. They thought that it was a stroke though and it…
      140 views
      11 comments
      0 point
      Started by JessC
      Most recent by tristanfaulman
      Brain Cancer
    • User: "cindysuetoyou"

      Back in the hospital

      We are back in the hospital---Salem Hospital this time, not OHSU. I'm breaking in a new set of nurses and doctors haha. David had an MRI on Thursday. He's not doing very good..... It takes everything …
      18 views
      5 comments
      0 point
      Started by cindysuetoyou
      Most recent by Ctink8189
      Brain Cancer
    • User: "sonfollower"

      Cyber Knife robotic therapy

      Has anyone experienced the cyber-knife robotic radiation? I have GBM 4 and I was taking Avastin and Temodar. Despite the treatments, my tumor continued to grow. It has doubled in size of a small marbl…
      8 views
      3 comments
      0 point
      Started by sonfollower
      Most recent by sonfollower
      Brain Cancer
    • User: "Tracie1981"

      My 6 year old was DX with a Pilomyxoid Astrocytoma...

      Hi, My Name is Tracie and I have a 6 year old little girl that was recently diagnosed with a pilomyxoid astrocytoma. They are saying its spread to her spine and she is now doing chemo and will have an…
      53 views
      8 comments
      0 point
      Started by Tracie1981
      Most recent by katiekatjacob
      Brain Cancer
     

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