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GBM NON EXTRACTION.

kulaken
kulaken CSN Member Posts: 14
MORNING : I was diagnosed with stage 4 GBM last aug , was told that extraction was my best chance ,, but i would loose a good part of my eyesight , as a carpenter i need to see my tools and hands , so i opted for a biopsy , then full brain radiation in case there were small tumors that couldn't be seen yet then gamma knife , but the edema keeps coming back creating seizures, dexamethasone helps , but if i taper off, the seizures return , at a loss as to what to do ,, the Dr's aren't even sure , any similar experiences ?

Thanks KEN